Re: Hi to everyone

[Guest guest]

Great to hear from you, !! and especially the good news! You're a courageous man, doing that treatment 3 times. I pray you continue undetectable, you've given that dragon a good run for his money!! Glad you found day work, too. As I recall you lost your job and had to settle for a jot that wasn't quite equal to what you had lost. Are you in a job better suited for you? Good luck and keep coming back!! -dz- <ralexan@...> wrote:

Hi everybody

As most of you old timers here know I haven't been on in quite a long time. I was working nights for the last year and a half and didn't have time for the computer. All I could do was eat sleep and work. Luckily with the help of my doctor I was able to transfer to a job that is days only.

I just completed my third round of treatments at the end of April. Results virus undetected. I hope that it stays that way this time. If not will have to continue treatment for another six months.

Well that is about all for now. I hope to be on much more in the future.

[Guest guest]

Welcome to the group Rhonda!It is good you found her allergies! Those can really put a kink in things.Chores are hard for all kids, but especially so for Aspie kids. Does she have a hamper in her room so when she undresses she can put the clothing right in, or does she have to bring it across the house? Does she have a toybox or somewhere she has decided (key) the toys belong?

-LanaOn 2/18/08, klmr24 <klmr24@...> wrote:

Well what he did first was blood work for alergies and he

found out that she was severly alergic to dairy so we took her

comepletly off dairy. she is also alergic to eggs wheat and corn but

he has not told me to take her off those thing yet. she goes to

school everyday monday though friday for 3 hours and it is doing

wonders for her the doc has said shee iss on tthe autism speectrim

but we are still doing test with her to see were on the spectrim she

is. She will watch tv all the time will play with toyss some but only

for about 15 min at a time and then wants to watch tv so i am not

very good with schedules so i am trying to figur out what to do with

her in the afternoons when she is home she throughs fits over

everthing and i dont no what to do about it she will just sit and

screem in timeout and geting her to do anything that she is not

wanting to do is not going to happen like picking her toys up or

anytthing i am needing to find out how to get her to simple things

likee putting her toys up and taking her clothes to the dirty clothes

hamper any of your help would be great. Sorry my computer sticks

someee time on the letters and sorry for the long post.

__._,_.

[Guest guest]

Welcome to the group, Rhonda!

Hugs,

Support your friendly local autistics...........I'm one of them.

Re: Hi to everyone

Welcome to the group Rhonda!It is good you found her allergies! Those can really put a kink in things.Chores are hard for all kids, but especially so for Aspie kids. Does she have a hamper in her room so when she undresses she can put the clothing right in, or does she have to bring it across the house? Does she have a toybox or somewhere she has decided (key) the toys belong?-Lana

On 2/18/08, klmr24 <klmr24 (DOT) com> wrote:

Well what he did first was blood work for alergies and he found out that she was severly alergic to dairy so we took her comepletly off dairy. she is also alergic to eggs wheat and corn but he has not told me to take her off those thing yet. she goes to school everyday monday though friday for 3 hours and it is doing wonders for her the doc has said shee iss on tthe autism speectrim but we are still doing test with her to see were on the spectrim she is. She will watch tv all the time will play with toyss some but only for about 15 min at a time and then wants to watch tv so i am not very good with schedules so i am trying to figur out what to do with her in the afternoons when she is home she throughs fits over everthing and i dont no what to do about it she will just sit and screem in timeout and geting her to do anything that she is not wanting to do is not going to

happen like picking her toys up or anytthing i am needing to find out how to get her to simple things likee putting her toys up and taking her clothes to the dirty clothes hamper any of your help would be great. Sorry my computer sticks someee time on the letters and sorry for the long post.__._,_.

Never miss a thing. Make your homepage.

[Guest guest]

Welcome back Helene!

Take care,

Wanda

>

> Hi Everyone;

>

> Sorry for the recent absence; lots going on with getting the kids

> back to school and the usual end-of-the-summer activities--Hoping

> everyone is well--

>

> I heard back from Rashelle a few days ago; She sounds busy, so I'm

> hoping everything is OK with her; I just placed another order;

(LOVE

> the seaweed soap and Mojave Magic) and am still working on getting

> the hang of the LL breath; I do feel tons better when I'm doing it,

> so I know it's worthwhile; I've been Oxycising in between, and

while

> I do like that style of breathing, LL seems to be the most gentle

> and compatible for me.

>

> I sent Rashelle some pics from our recent vacation, so I'm hoping

to

> send even more once the results are a bit more dramatic.

>

> Talk to you all again soon-

> Love,

> Helene

>

[Guest guest]

Hi sweet girl.  I knew you weren't posting much and thought you must be sick

again.  I was so sorry to read how ill you have been.  I swear when it rains,

it pours on us with RA.  I was glad to read you have a very aggressive Dr. to

treat you.  Those top drugs will do the job for you, and I hope you will feel

so much better soon.  I am sorry I have not written sooner to you.  I have

been so consumed with pain, I can hardly function at all.  I was so sorry to

read that you are having on going issues with your feet and nodules.  I had no

idea just how painful these nodules can become.  Yikes, you have had to have

them removed that many times!  I did not know they become ongoing issues. 

Today they are unbearable for me.  I am living on pain meds. but lately it is

like eating a gumdrop.....no working so good anymore.  I had blood work done

for my Rheumy yesterday, and I bet I am flaring.  I hope not but this pain is

brutal.

 

I bet you are enjoying this better weather.  I sure am.  Each day has been

75-82, dry, breezy and so sunny.  It feels wonderful.  I am dying to get into

the pool, but it needs to be a little warmer for me.  My feet could not stand

cold water!!!

 

Please take care and know my thoughts and prayers are with you.  So nice to

hear from you today.  I know how it is when you are sick, in pain, and don't

feel up to being on line.  Get lots of rest.  Talk soon.  Wishing you better

days ahead, and pain free days as well.

 

Love and hugs,

 

Barbara

From: <ltdavis_jrdavis@...>

Subject: [ ] Hi to everyone

" RA Support Group " < >

Date: Tuesday, April 20, 2010, 3:09 PM

 

I haven't posted in a few weeks although I have read everyone's posts. I have

been really sick - I started out with a bacterial infection in my blood and then

as they were treating that, somehow I contracted MRSA - they believe from a cut

on my arm (deep scratch from a playful pup!)  aqnd shoot this superbug can be

on the handles of the carts at the grocery store!

 

So, I've hopefully had my last IV today - more bloodwork on Thursday to make

sure I've gotten rid of it. I've had a very aggressive doctor who put me

directly on the top drugs - just real drugged feeling today but wanted to let

everyone know that I have not dropped off the face of the earth.

 

And Barbara: I'm sorry about your foot!! I've had nodules in the arch of my

right foot (fibroids - not RA) every year that have to be removed - 4 times now!

So, I know the pain, etc. I am so sorry you are having to go thru this! I'm

scheduled for my 5th removal in a couple of months.

 

Love to all -

in SC

[Guest guest]

You R so sweet! Actuallythe fibroids are something I inherited from my dad. I'm

actually lucky because mydad had to have his entire feet opened because his

fibroids were huge. I mine have only been the size of a quarter but when it's on

your arch - it sucks! Then you start limping then Ur hip & back start hurting! I

actually can't wait to have my new nodule removed! My ortho doc makes sure I'm

drugged really well Which helps. Plus going thru it SO many times I know what to

excpect. Make sure they make u mark the nodule.

Love & hugs!

Sent from my iPhone

On Apr 20, 2010, at 3:26 PM, Barbara Creedon <bcreedon@...> wrote:

Rheumy yesterday, and I bet I am flaring. I hope not but this pain is brutal.

[Guest guest]

, I had no idea you could get Fibroids in your feet.  That must have been a

painful operation for your father.

 

You are so right about the painful feet, limping and favoring your foot. 

Pretty soon your whole body is out of sinc, hence, more pain and suffering.  My

feet are the bane of my existence.  I really could scream with the pain of it

all.

 

I can see why you want to get your foot done.  Is it a fast recovery after the

nodule is taken out? 

I have one on my left foot, but it is small and does not hurt yet.  I hope it

never does.

 

So nice to hear from you as I have missed our chatting.   I hope you feel

better soon.  We all need a break from pain and suffering.  Rest often and

stay off those feet!!  Who knew feet could hurt so badly!!!

 

Love and hugs,

 

Barbara

Rheumy yesterday, and I bet I am flaring. I hope not but this pain is brutal.

[Guest guest]

Don't know if I replied or not but when I have had these surgeries - I have had

to wear a boot thing for 2 weeks. I have issues with my shoulders so I cant use

crutches so the boot thing is a pain!

Sent from my iPhone

On Apr 20, 2010, at 9:45 PM, Barbara Creedon <bcreedon@...> wrote:

, I had no idea you could get Fibroids in your feet. That must have been a

painful operation for your father.

You are so right about the painful feet, limping and favoring your foot. Pretty

soon your whole body is out of sinc, hence, more pain and suffering. My feet

are the bane of my existence. I really could scream with the pain of it all.

I can see why you want to get your foot done. Is it a fast recovery after the

nodule is taken out?

I have one on my left foot, but it is small and does not hurt yet. I hope it

never does.

So nice to hear from you as I have missed our chatting. I hope you feel better

soon. We all need a break from pain and suffering. Rest often and stay off

those feet!! Who knew feet could hurt so badly!!!

Love and hugs,

Barbara

Rheumy yesterday, and I bet I am flaring. I hope not but this pain is brutal.

[Guest guest]

! ! !!! I have been so worried about you - specially when I

didn't hear back from a few private posts. I finally figured you would

holler once things settled down. Wow! You have been put the proverbial

wringer, bless your heart. Here's praying you are on the road to recovery &

hope you'll let me know soon how your are. Great big gentle hugs, Nae

[ ] Hi to everyone

I haven't posted in a few weeks although I have read everyone's posts. I

have been really sick - I started out with a bacterial infection in my blood

and then as they were treating that, somehow I contracted MRSA - they

believe from a cut on my arm (deep scratch from a playful pup!) aqnd shoot

this superbug can be on the handles of the carts at the grocery store!

So, I've hopefully had my last IV today - more bloodwork on Thursday to make

sure I've gotten rid of it. I've had a very aggressive doctor who put me

directly on the top drugs - just real drugged feeling today but wanted to

let everyone know that I have not dropped off the face of the earth.

And Barbara: I'm sorry about your foot!! I've had nodules in the arch of my

right foot (fibroids - not RA) every year that have to be removed - 4 times

now! So, I know the pain, etc. I am so sorry you are having to go thru this!

I'm scheduled for my 5th removal in a couple of months.

Love to all -

in SC

[Guest guest]

Thanks sweetie.....will keep you posted!

Sent from my iPhone

On Apr 21, 2010, at 6:20 PM, Nae <renae1943@...> wrote:

! ! !!! I have been so worried about you - specially when I

didn't hear back from a few private posts. I finally figured you would

holler once things settled down. Wow! You have been put the proverbial

wringer, bless your heart. Here's praying you are on the road to recovery &

hope you'll let me know soon how your are. Great big gentle hugs, Nae

[ ] Hi to everyone

I haven't posted in a few weeks although I have read everyone's posts. I

have been really sick - I started out with a bacterial infection in my blood

and then as they were treating that, somehow I contracted MRSA - they

believe from a cut on my arm (deep scratch from a playful pup!) aqnd shoot

this superbug can be on the handles of the carts at the grocery store!

So, I've hopefully had my last IV today - more bloodwork on Thursday to make

sure I've gotten rid of it. I've had a very aggressive doctor who put me

directly on the top drugs - just real drugged feeling today but wanted to

let everyone know that I have not dropped off the face of the earth.

And Barbara: I'm sorry about your foot!! I've had nodules in the arch of my

right foot (fibroids - not RA) every year that have to be removed - 4 times

now! So, I know the pain, etc. I am so sorry you are having to go thru this!

I'm scheduled for my 5th removal in a couple of months.

Love to all -

in SC