Guest guest Posted January 9, 2011 Report Share Posted January 9, 2011 Good evening Edie. I too am on Amantadine and it helps somewhat but not for what I was experiencing the last weekend. I think only massage or perhaps accupunture will help with that pain -- they gave me Zanaflex but I had some bad side effects to it after one dose and won't take it again. > > > > > > What are your blood levels of vitamin d? > > are you gluten free ? > > do you consume artificial sweeteners ? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2011 Report Share Posted January 9, 2011 Good evening Edie. I too am on Amantadine and it helps somewhat but not for what I was experiencing the last weekend. I think only massage or perhaps accupunture will help with that pain -- they gave me Zanaflex but I had some bad side effects to it after one dose and won't take it again. > > > > > > What are your blood levels of vitamin d? > > are you gluten free ? > > do you consume artificial sweeteners ? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Hi Felicia, I think you are really doing great. I have had MS for nearly 5 years now. It appears I have either PPMS or RRMS because after my first distinct attack I never had remission but rather I have just had daily symptoms that fluctuate. The second year I got worse than the first year, but I have stayed stable the last 2 and 1/2 years in terms of not getting any worse. I have been researching MS natural and alternative healing since the very beginning. I do believe MS is caused by epigenetics (one has to have the genes that predisposes which then gets triggered by a factor or factors). That factor could be different things in different people, such as candida, heavy metals, other issues related to vaccines, lack of sun/D, long-term dehydration, aspartame, smoking, or any combination of these factors along with the genetic predisposition. I understand there is not necessarily ONE diet that is right for everyone but I have personally decided that the healthiest is to follow something along the lines of what Dr. Terry Wahls (who has had a fantastic recovery) is doing. So the diet I am trying to do is extremely high in vegetables, including vegetable juicing, a small amount of fruit, fish 2-3x per week (I only eat wild Alaskand salmon), and hormone/abx free chicken or turkey about 1-2x per week. I am trying to avoid grains but when I do eat it, I take brown rice or quinoa. As for supplements, there are so many recommended it is hard to choose IMO because one doesn't really know what they may be low or high in. However, just looking at the overlapping research of the various different opinions I have decided the most important are Omega 3s, Vitamin D, Vitamin B complex, Coral Calcium, a probiotic, and currently I am trying to find a good quality multimineral. If I try to take too many things it is just too many, as I don't much care for swallowing pills as it is. Of course there are other important things--not very profound here--but such as exercise, sun exposure, fresh air, deep breathing, relaxation, lots of purified water, etc. I don't exactly feel like one of the great success stories but I am quite certain that I have slowed or stopped the MS process that started in my body 5 or more years ago (looking back there were even earlier signs I hadn't realized were likely MS starting to show its head). But anyway, I do feel I am on the right track and that I need to continue to strengthen my program (mostly more veggies!!!!) and trying to get my body to sweat more. I have also done some work with colon and liver cleansing and feel I need to do more -- as well I would like to try some fasting. I was on LDN for the first 3 years but I did not feel like it helped in my particular case, although clearly it seems to help many other people. So after 3 years I decided to wean off and there has been nothing negative in doing so. I have been watching the CCSVI unfold and spoken to some and I feel that the CCSVI is a very individual situation and is really anecdotal at this point--With many stories quite positive but also we cannot ignore the fact that there are some people who got no results and there are some who actually feel worse since the procedure. So while the odds seem to be in favor of it, I think one needs to go in to CCSVI willing to know there is a likely chance there will be improvement but also accepting the possibility that there will be no improvement and a small possibility of feeling worse. Now I know that a few people here, including myself, are quite sensitive and passionate in their views and will surely disagree with me about diet, LDN and CCSVI. I am just stating my own opinions. I am actually considering CCSVI myself but I still would prefer a natural detox approach as I feel my own case was caused by the genetic predisposition plus toxins, so it is something I continue to think over as I continue to work with diet and detox. I do wish people here, including myself, could be less sensitive and a little less omniscient (I think that's the word that means all-knowing) in their views. When these debates go on, it is just counterproductive to the group and even a bit stressful and I have decided I won't get into that anymore. None of us really knows everything or we would certainly be cured if we did and it is clear that there is no one protocol (be it food, LDN, EAP, Klenner, CCSVI, etc) that works for everyone. I read and read and there are always a range of opinions and reactions to the various diets and protocols. I do believe it is trial and error for each person to find what works for them and that there is hope for all, however each of us finds what works for us individually. Anyway, these are my thoughts and welcome to the group -- if anyone is still reading. LOL. ________________________________ To: mscured <mscured > Sent: Sat, January 22, 2011 2:38:53 PM Subject: New member intro ---------- Forwarded message ---------- Date: Sat, Jan 22, 2011 at 1:24 PM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner > Hi, My name is Felecia and I was diagnosed with MS in May of 2010 after months of numb feet that kept getting worse. I have spent the last few months searching for anything to help that doesn't involve crab Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Hi Felicia, I think you are really doing great. I have had MS for nearly 5 years now. It appears I have either PPMS or RRMS because after my first distinct attack I never had remission but rather I have just had daily symptoms that fluctuate. The second year I got worse than the first year, but I have stayed stable the last 2 and 1/2 years in terms of not getting any worse. I have been researching MS natural and alternative healing since the very beginning. I do believe MS is caused by epigenetics (one has to have the genes that predisposes which then gets triggered by a factor or factors). That factor could be different things in different people, such as candida, heavy metals, other issues related to vaccines, lack of sun/D, long-term dehydration, aspartame, smoking, or any combination of these factors along with the genetic predisposition. I understand there is not necessarily ONE diet that is right for everyone but I have personally decided that the healthiest is to follow something along the lines of what Dr. Terry Wahls (who has had a fantastic recovery) is doing. So the diet I am trying to do is extremely high in vegetables, including vegetable juicing, a small amount of fruit, fish 2-3x per week (I only eat wild Alaskand salmon), and hormone/abx free chicken or turkey about 1-2x per week. I am trying to avoid grains but when I do eat it, I take brown rice or quinoa. As for supplements, there are so many recommended it is hard to choose IMO because one doesn't really know what they may be low or high in. However, just looking at the overlapping research of the various different opinions I have decided the most important are Omega 3s, Vitamin D, Vitamin B complex, Coral Calcium, a probiotic, and currently I am trying to find a good quality multimineral. If I try to take too many things it is just too many, as I don't much care for swallowing pills as it is. Of course there are other important things--not very profound here--but such as exercise, sun exposure, fresh air, deep breathing, relaxation, lots of purified water, etc. I don't exactly feel like one of the great success stories but I am quite certain that I have slowed or stopped the MS process that started in my body 5 or more years ago (looking back there were even earlier signs I hadn't realized were likely MS starting to show its head). But anyway, I do feel I am on the right track and that I need to continue to strengthen my program (mostly more veggies!!!!) and trying to get my body to sweat more. I have also done some work with colon and liver cleansing and feel I need to do more -- as well I would like to try some fasting. I was on LDN for the first 3 years but I did not feel like it helped in my particular case, although clearly it seems to help many other people. So after 3 years I decided to wean off and there has been nothing negative in doing so. I have been watching the CCSVI unfold and spoken to some and I feel that the CCSVI is a very individual situation and is really anecdotal at this point--With many stories quite positive but also we cannot ignore the fact that there are some people who got no results and there are some who actually feel worse since the procedure. So while the odds seem to be in favor of it, I think one needs to go in to CCSVI willing to know there is a likely chance there will be improvement but also accepting the possibility that there will be no improvement and a small possibility of feeling worse. Now I know that a few people here, including myself, are quite sensitive and passionate in their views and will surely disagree with me about diet, LDN and CCSVI. I am just stating my own opinions. I am actually considering CCSVI myself but I still would prefer a natural detox approach as I feel my own case was caused by the genetic predisposition plus toxins, so it is something I continue to think over as I continue to work with diet and detox. I do wish people here, including myself, could be less sensitive and a little less omniscient (I think that's the word that means all-knowing) in their views. When these debates go on, it is just counterproductive to the group and even a bit stressful and I have decided I won't get into that anymore. None of us really knows everything or we would certainly be cured if we did and it is clear that there is no one protocol (be it food, LDN, EAP, Klenner, CCSVI, etc) that works for everyone. I read and read and there are always a range of opinions and reactions to the various diets and protocols. I do believe it is trial and error for each person to find what works for them and that there is hope for all, however each of us finds what works for us individually. Anyway, these are my thoughts and welcome to the group -- if anyone is still reading. LOL. ________________________________ To: mscured <mscured > Sent: Sat, January 22, 2011 2:38:53 PM Subject: New member intro ---------- Forwarded message ---------- Date: Sat, Jan 22, 2011 at 1:24 PM Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today! To: mscured Moderator <mscured-owner > Hi, My name is Felecia and I was diagnosed with MS in May of 2010 after months of numb feet that kept getting worse. I have spent the last few months searching for anything to help that doesn't involve crab Quote Link to comment Share on other sites More sharing options...
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