Re: New Member and need some help

[Guest guest]

Hi Lynne,

Welcome to the group!

Here is a website you may find helpful in treating your MS:

http://tinyurl.com/advice-to-msers

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Welcome Lynne!

I've been on the BBD for 4 years. The weight pours off to start with but most

of us have found a new equilibrium that the body seems to stick to.

Nuts are one of the quick fix foods to put weight on but go easy or you make

yourself allergic to them.

I only take B complex about once a week, and then in the day rather than at

night or I never sleep.

Look at your supplements to make sure they are all BBD conformable. Many, like

vitamin E, come from soy. Do an ELISA food intolerance test to make sure you

are not eating anything you are allergic to.

I can't help with the anti-depressants I am afraid but I am sure someone else

here will jump in.

Hopefully the stress is behind you and you can grasp all these new MS things.

Having MS is like having a full-time job!

Good luck,

Janet

To: mscured

From: lynneandress@...

Sorry for such a long post. I really need help with the weight thing and the b

complex. Thanks for reading, I am feeling really discouraged and don't want to

give up.

[Guest guest]

Welcome Lynne!

I've been on the BBD for 4 years. The weight pours off to start with but most

of us have found a new equilibrium that the body seems to stick to.

Nuts are one of the quick fix foods to put weight on but go easy or you make

yourself allergic to them.

I only take B complex about once a week, and then in the day rather than at

night or I never sleep.

Look at your supplements to make sure they are all BBD conformable. Many, like

vitamin E, come from soy. Do an ELISA food intolerance test to make sure you

are not eating anything you are allergic to.

I can't help with the anti-depressants I am afraid but I am sure someone else

here will jump in.

Hopefully the stress is behind you and you can grasp all these new MS things.

Having MS is like having a full-time job!

Good luck,

Janet

To: mscured

From: lynneandress@...

Sorry for such a long post. I really need help with the weight thing and the b

complex. Thanks for reading, I am feeling really discouraged and don't want to

give up.

[Guest guest]

Hi Lynne

I'm a fellow shortie at 5'3 " tall.

I usually weigh around 41KG so am very petite. I went through a year or two

couch-bound but had the CCSVI procedure in November of last year and am now

slowly starting to get back into shape as I got as heavy as 57KG which was

REALLY worrying as I couldn't fit into my clothes.

I can back Janet up with the whole weight thing. Weight for most comes off at

first but then evens out.

You'll be fine! I follow the BBD too and have done for a few years now. My body

just seems to respond best to it and I don't even really miss cheese anymore!

*the crowd gasps* (it was my favourite food!)

I'm fine with milk and icecream - ricemilk and dairy-free icecream as a special

treat does an even better job!

I detox every 3-6 months and feel so much better at the end of each cycle! I use

the detox packs from www.bluestarnaturals.com and whilst they'e a little pricey,

they fit with the BBD and do a terriffic job!

I also am looking into the detox from a few places online - if I find anything

good, I will share with everyone.

In regards to supplements, I don't take 'Multivitamins' as they don't have the

correct ratios for what our recommendations are of each.

Vitamin B Complex is my saviour - my husband bought me the wrong brand and I

couldn't wake up.

Vit D3 is the same with me - I MUST have it or my body just seems to shut down

an lose its energy without me doing anything.

A good place to get the run-down on which supplements are recommended for we

'MS'ers and why is www.msrc.co.uk.

I don't know if you've read their supplement recommendation list but it's a

great place for all things Supplement and BBD related too!

I was encountering extreme pain each night when I went to bed (burning, searing

pain all up my left thigh) I got a prescription and bottle of LDN when I was up

in Glasgow being tested for CCSVI in August last year. I haven't had pain in my

leg again.....unless I miss a night of two of LDN.

I am a member of MS-Diet too and of the LDN Yahoo groups too.

I run a group on Facebook called 'Michelangelo'S Angels' which promotes the

'alternative' ways to fight 'MS'.

If you have questions on anything I've said, I'll be happy to fill you in - just

let me know.

Welcome to the group!!

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: lynneandress@...

Date: Tue, 25 Jan 2011 16:51:31 +0000

Subject: New Member and need some help

Hi

My name is Lynne, 50 year old single female. Diagnosed Oct/10, symptoms starting

Aug/10 (likely many years earlier). Symptoms started after 1.5 years of stress

after losing my home and business and ending up on social assistance living with

a friend in a stressful home.

[Guest guest]

Hi Lynne

I'm a fellow shortie at 5'3 " tall.

I usually weigh around 41KG so am very petite. I went through a year or two

couch-bound but had the CCSVI procedure in November of last year and am now

slowly starting to get back into shape as I got as heavy as 57KG which was

REALLY worrying as I couldn't fit into my clothes.

I can back Janet up with the whole weight thing. Weight for most comes off at

first but then evens out.

You'll be fine! I follow the BBD too and have done for a few years now. My body

just seems to respond best to it and I don't even really miss cheese anymore!

*the crowd gasps* (it was my favourite food!)

I'm fine with milk and icecream - ricemilk and dairy-free icecream as a special

treat does an even better job!

I detox every 3-6 months and feel so much better at the end of each cycle! I use

the detox packs from www.bluestarnaturals.com and whilst they'e a little pricey,

they fit with the BBD and do a terriffic job!

I also am looking into the detox from a few places online - if I find anything

good, I will share with everyone.

In regards to supplements, I don't take 'Multivitamins' as they don't have the

correct ratios for what our recommendations are of each.

Vitamin B Complex is my saviour - my husband bought me the wrong brand and I

couldn't wake up.

Vit D3 is the same with me - I MUST have it or my body just seems to shut down

an lose its energy without me doing anything.

A good place to get the run-down on which supplements are recommended for we

'MS'ers and why is www.msrc.co.uk.

I don't know if you've read their supplement recommendation list but it's a

great place for all things Supplement and BBD related too!

I was encountering extreme pain each night when I went to bed (burning, searing

pain all up my left thigh) I got a prescription and bottle of LDN when I was up

in Glasgow being tested for CCSVI in August last year. I haven't had pain in my

leg again.....unless I miss a night of two of LDN.

I am a member of MS-Diet too and of the LDN Yahoo groups too.

I run a group on Facebook called 'Michelangelo'S Angels' which promotes the

'alternative' ways to fight 'MS'.

If you have questions on anything I've said, I'll be happy to fill you in - just

let me know.

Welcome to the group!!

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: lynneandress@...

Date: Tue, 25 Jan 2011 16:51:31 +0000

Subject: New Member and need some help

Hi

My name is Lynne, 50 year old single female. Diagnosed Oct/10, symptoms starting

Aug/10 (likely many years earlier). Symptoms started after 1.5 years of stress

after losing my home and business and ending up on social assistance living with

a friend in a stressful home.

[Guest guest]

> Decided the BB Diet made the most sense and slowly got myself off of grains,

dairy and eggs. Started some supplements.

Don't forget to get rid of the beans/peas/legumes, very important in terms of

molecular mimicry. One of the worst reactions I've ever had since starting BBD

was to soy. If you feel like you are ok with eggs, they are ok on BBD. I

react to them, confirmed by ELISA test, but looking forward to the day when I

can have them occasionally again. It's been a full year so I'm ready to test

them, but I may wait for another ELISA to try it, because eggs are highly

allergenic so it's possible I still react after 1 year. The ELISA I had done

last year still showed reactions to soy and other beans after a full 2 years off

of them.

> I have started a liquid b complex that I am taking only 1 tsp of in the

morning and today will be day 3. The dose for 100mg is 6 tsp!

>

If you find that you can't take it every day, try every 2 or 3 days instead.

> Now that all the grains and dairy are gone I have dropped down to 97.5, and I

am losing my muscle tone as well, and I am very very weak. I am worried I am

going to lose more weight.

>

It took about a year for me, but my weight did stabilize and now I do have to

watch my intake so I don't get too much of a belly (after getting pretty good at

baking BBD-friendly treats!). I found that the biggest help was to add

weight-bearing exercise and build some muscle. I started that in May '09 and

have to say that my body now looks better than ever before! If you feel like

you need more protein to help with that, hemp powder is great in smoothies. HTH

and welcome aboard!

Crystal

[Guest guest]

> Decided the BB Diet made the most sense and slowly got myself off of grains,

dairy and eggs. Started some supplements.

Don't forget to get rid of the beans/peas/legumes, very important in terms of

molecular mimicry. One of the worst reactions I've ever had since starting BBD

was to soy. If you feel like you are ok with eggs, they are ok on BBD. I

react to them, confirmed by ELISA test, but looking forward to the day when I

can have them occasionally again. It's been a full year so I'm ready to test

them, but I may wait for another ELISA to try it, because eggs are highly

allergenic so it's possible I still react after 1 year. The ELISA I had done

last year still showed reactions to soy and other beans after a full 2 years off

of them.

> I have started a liquid b complex that I am taking only 1 tsp of in the

morning and today will be day 3. The dose for 100mg is 6 tsp!

>

If you find that you can't take it every day, try every 2 or 3 days instead.

> Now that all the grains and dairy are gone I have dropped down to 97.5, and I

am losing my muscle tone as well, and I am very very weak. I am worried I am

going to lose more weight.

>

It took about a year for me, but my weight did stabilize and now I do have to

watch my intake so I don't get too much of a belly (after getting pretty good at

baking BBD-friendly treats!). I found that the biggest help was to add

weight-bearing exercise and build some muscle. I started that in May '09 and

have to say that my body now looks better than ever before! If you feel like

you need more protein to help with that, hemp powder is great in smoothies. HTH

and welcome aboard!

Crystal

[Guest guest]

hi lynne - what is your diagnosis ? MS progressive or relapse/remittance

brgds peter

________________________________

To: mscured

Sent: Tue, 25 January, 2011 16:51:31

Subject: New Member and need some help

 

Hi

My name is Lynne, 50 year old single female. Diagnosed Oct/10, symptoms starting

Aug/10 (likely many years earlier). Symptoms started after 1.5 years of stress

after losing my home and business and ending up on social assistance living with

a friend in a stressful home.

The neurologists have not had their way with me yet! (no drugs)

Right from the get go I knew that I would approach this disease in a holistic

way and have spent the last months doing nothing but research on the web.

Decided the BB Diet made the most sense and slowly got myself off of grains,

dairy and eggs. Started some supplements.

Two issues have come up that I desperately need help with.

First I have been on antidepressants (paxil) for quite a number of years (15)

after quite a few unsuccessful attempts of weaning off because I would

experience panic episodes, which I had never had before paxil, but this is a

common symptom of withdrawl which is so scary that many people stay on the drug.

I know I need to get off of this drug if I am ever going to get health, but

withdrawing is for another time. Right now my focus is on getting my nutritional

state better and hopefully get some relief from my symptoms.

Some people that have been on antidepressants for a long time become

hypersensitive to a lot of supplements...so I have had to be careful.

The problem I am having is with B-Complex. I have tried every way possible but

it is too stimulating for me. 50 mg a day and after the third day I could only

sleep 3 hours in 24, but some of my numbness was abating! I had to stop my multi

because of it as well. I have started a liquid b complex that I am taking only 1

tsp of in the morning and today will be day 3. The dose for 100mg is 6 tsp!

So the b-complex is the one issue, the other one is weight. I am only 5 feet

tall and small boned, and I have always weighed around 100lbs.

This year before I got sick I had gained 15lbs...a first for me, but my diet was

bad. Now that all the grains and dairy are gone I have dropped down to 97.5, and

I am losing my muscle tone as well, and I am very very weak. I am worried I am

going to lose more weight.

Sorry for such a long post. I really need help with the weight thing and the b

complex. Thanks for reading, I am feeling really discouraged and don't want to

give up.

Thanks

Lynne

[Guest guest]

hi lynne - what is your diagnosis ? MS progressive or relapse/remittance

brgds peter

________________________________

To: mscured

Sent: Tue, 25 January, 2011 16:51:31

Subject: New Member and need some help

 

Hi

My name is Lynne, 50 year old single female. Diagnosed Oct/10, symptoms starting

Aug/10 (likely many years earlier). Symptoms started after 1.5 years of stress

after losing my home and business and ending up on social assistance living with

a friend in a stressful home.

The neurologists have not had their way with me yet! (no drugs)

Right from the get go I knew that I would approach this disease in a holistic

way and have spent the last months doing nothing but research on the web.

Decided the BB Diet made the most sense and slowly got myself off of grains,

dairy and eggs. Started some supplements.

Two issues have come up that I desperately need help with.

First I have been on antidepressants (paxil) for quite a number of years (15)

after quite a few unsuccessful attempts of weaning off because I would

experience panic episodes, which I had never had before paxil, but this is a

common symptom of withdrawl which is so scary that many people stay on the drug.

I know I need to get off of this drug if I am ever going to get health, but

withdrawing is for another time. Right now my focus is on getting my nutritional

state better and hopefully get some relief from my symptoms.

Some people that have been on antidepressants for a long time become

hypersensitive to a lot of supplements...so I have had to be careful.

The problem I am having is with B-Complex. I have tried every way possible but

it is too stimulating for me. 50 mg a day and after the third day I could only

sleep 3 hours in 24, but some of my numbness was abating! I had to stop my multi

because of it as well. I have started a liquid b complex that I am taking only 1

tsp of in the morning and today will be day 3. The dose for 100mg is 6 tsp!

So the b-complex is the one issue, the other one is weight. I am only 5 feet

tall and small boned, and I have always weighed around 100lbs.

This year before I got sick I had gained 15lbs...a first for me, but my diet was

bad. Now that all the grains and dairy are gone I have dropped down to 97.5, and

I am losing my muscle tone as well, and I am very very weak. I am worried I am

going to lose more weight.

Sorry for such a long post. I really need help with the weight thing and the b

complex. Thanks for reading, I am feeling really discouraged and don't want to

give up.

Thanks

Lynne

[Guest guest]

I apologize to all for starting this thread and not returning quicker, I

really need to be a part of this group for support.

My right hand has now gone numb, tingly and weak and typing has been

difficult, but I think it is getting a tad better =)

Janet Orchard wrote:

>

> I only take B complex about once a week, and then in the day rather than at

> night or I never sleep.

>

> Look at your supplements to make sure they are all BBD conformable.

Janet, thanks for your advice. I wonder why it is that we are having

difficulties with the B Complex? It is such an important set of nutrients

for MS, and I see that all the different protocols are using large amounts.

On day three of using the B Complex I was feeling less tingly and my

walking was a tad better, but my sleep got so bad. I was only sleeping for

about 3 hours in 24, so I had to stop.

I need to figure out which B's are causing the issues with sleep.

Yes, I am making sure that all my supplements are BBD conforming =)

Lynne

[Guest guest]

On Tue, Jan 25, 2011 at 10:48 AM, <

rachael.m.thomas@...> wrote:

>

> Hi Lynne

> I'm a fellow shortie at 5'3 " tall.

> I usually weigh around 41KG so am very petite. I went through a year or two

> couch-bound but had the CCSVI procedure in November of last year and am now

> slowly starting to get back into shape as I got as heavy as 57KG which was

> REALLY worrying as I couldn't fit into my clothes.

>

I spent the last year and a half before dx, not doing much, and my diet was

quite bad (sugar and dairy fat). I gained 10 kg and I have never been able

to gain weight like that before. Since starting this diet I am down to my

normal weight 42kg..but it is still coming off.

>

> I can back Janet up with the whole weight thing. Weight for most comes off

> at first but then evens out.

> You'll be fine! I follow the BBD too and have done for a few years now.

I sure hope so.

>

I detox every 3-6 months and feel so much better at the end of each cycle! I

> use the detox packs from www.bluestarnaturals.com and whilst they'e a

> little pricey, they fit with the BBD and do a terriffic job!

> I also am looking into the detox from a few places online - if I find

> anything good, I will share with everyone.

>

Detoxing sounds like something I would really like to do. I don't feel

healthy enough to do it yet though. I find I get lightheaded if I don't get

enough food on a regular basis. I do wonder if this has to do with

malabsorption perhaps?

>

> In regards to supplements, I don't take 'Multivitamins' as they don't have

> the correct ratios for what our recommendations are of each.

> Vitamin B Complex is my saviour - my husband bought me the wrong brand and

> I couldn't wake up.

> Vit D3 is the same with me - I MUST have it or my body just seems to shut

> down an lose its energy without me doing anything.

>

I so badly want to be able to take the B's. I am hoping they will help with

my fatigue which is constant and debilitating.

>

> A good place to get the run-down on which supplements are recommended for

> we 'MS'ers and why is www.msrc.co.uk.

> I don't know if you've read their supplement recommendation list but it's a

> great place for all things Supplement and BBD related too!

>

Yes that is a great site! I had gleaned lots of good information from

there.

>

> I was encountering extreme pain each night when I went to bed (burning,

> searing pain all up my left thigh) I got a prescription and bottle of LDN

> when I was up in Glasgow being tested for CCSVI in August last year. I

> haven't had pain in my leg again.....unless I miss a night of two of LDN

>

Yes I have done a bit of research on LDN . I am doubtful if I would be able

to take it, until I get off the antidepressant.

>

> I am a member of MS-Diet too and of the LDN Yahoo groups too.

> I run a group on Facebook called 'Michelangelo'S Angels' which promotes the

> 'alternative' ways to fight 'MS'.

> If you have questions on anything I've said, I'll be happy to fill you in -

> just let me know.

>

> Thanks so much for your welcome =)

Lynne

[Guest guest]

On Wed, Jan 26, 2011 at 7:55 AM, Nicholls <

peter.nicholls@...> wrote:

> hi lynne - what is your diagnosis ? MS progressive or relapse/remittance

> brgds peter

>

Thats a really good question =) The Dr. I saw at the MS clinic said

it is Relapsing/Remitting, because two of my symptoms were short lived and

went away, but all my other symptoms have not gone away since this all

started on August 1.

These two exaberations the Dr. was referring too were Optic Neuritis- double

vision and a bout of trigeminal neuralgia. They both came on at different

times and each peaked at about two weeks and slowly went away.

However, my first symptom was numbness on my left side. I did have a limp

for a few weeks which went away. The numbness which has slowly gotten worse

and tingly, and has moved to both sides and now up to my chest. My right

hand and arm was the last to be effected in the last few weeks. Three

months ago both feet started to get cold which is now up both legs and my

back, it never goes away and effects my walking which is very slow and stiff

like. Of course the cold areas are warm to the touch. I

am extremely cold sensitive and my legs go very stiff and I can't walk well

at all if I go outside, and it is not THAT cold outside. My fatigue

is debilitating.

I would love some input on this if anyone would like to give their opinion.

Lynne

[Guest guest]

Hi Judith, MOVICOL works very well with no known side effects. Works better than

any other type of laxative because it basically adds fluid from the inside of

the stool.

My wife who i care for 24/7 with MS takes this every day on small dosages daily

rather than use the whole satchel when needed.

I have been managing her bowels for about the last 14 years now and she goes

every day without any bowel issues. And this is someone who cannot exercise or

walk or move at all. I highly recommend MOVICOL which is not only available at

the chemist but if you have MS you can get it on prescription too.

russ

>

> >

> >

> >

> > On a totally other issue I wondered what other members of the group do

> > to ensur regular bowel movements .

> >

> > judith

> >

> > ________________________________

> >

> >

> I would be quite interested in this as well. I used to go once every

> morning. Now I am only going once a week, and I need to do something about

> this asap.

>

> Lynne

>

> >

> >

>

>

>

[Guest guest]

Hi everyone,

Having struggled to be 'regular' for years, I now am in the wonderful position

of going daily, if not 2 or 3 times a day. In the past I have tried psyllium

husks powder which worked well, but since I've started taking colostrum, my

bladder and bowels appear to be back to normal!

Vx

> >

> > >

> > >

> > >

> > > On a totally other issue I wondered what other members of the group do

> > > to ensur regular bowel movements .

> > >

> > > judith

> > >

> > > ________________________________

> > >

> > >

> > I would be quite interested in this as well. I used to go once every

> > morning. Now I am only going once a week, and I need to do something about

> > this asap.

> >

> > Lynne

> >

> > >

> > >

> >

> >

> >

[Guest guest]

, What particular detox do you do every 4-6 months? Thank you.

-Tim

>

>

> Hi Lynne

> I was having far too much movement with no way to contain it.....and then was

suggested to use Slippery Elm.

> I have found that it now also helps get things moving when things come to a

stall too these days.

>

> I do a detox every 3-6 months and that really helps as well!

>

> Going to the toilet used to be the cause of so much distress and worry for

me......I'm so happy that I found what works for me. I hope others find what

works for them too.

>

>

> 'What we do in life, echoes through eternity.'

> MARCUS AURELIUS (121 - 180 A.D.)

>

>

>

>

>

>

>

>

>

> > > I would be quite interested in this as well. I used to go once every

> > > morning. Now I am only going once a week, and I need to do something about

> > > this asap.

> > >

> > > Lynne

>

>

>

[Guest guest]

, What particular detox do you do every 4-6 months? Thank you.

-Tim

>

>

> Hi Lynne

> I was having far too much movement with no way to contain it.....and then was

suggested to use Slippery Elm.

> I have found that it now also helps get things moving when things come to a

stall too these days.

>

> I do a detox every 3-6 months and that really helps as well!

>

> Going to the toilet used to be the cause of so much distress and worry for

me......I'm so happy that I found what works for me. I hope others find what

works for them too.

>

>

> 'What we do in life, echoes through eternity.'

> MARCUS AURELIUS (121 - 180 A.D.)

>

>

>

>

>

>

>

>

>

> > > I would be quite interested in this as well. I used to go once every

> > > morning. Now I am only going once a week, and I need to do something about

> > > this asap.

> > >

> > > Lynne

>

>

>