Celebrex

[Guest guest]

It sounds to me as though you should definitely switch ENTs. He

sounds consistent and not knowledgeable. I mean, WHY is he against

desensitization? Also, sounds like the nurse is a bit abusive. But

I would not ask for refills for narcotics over the phone anyway or

from anyone except your doctors. Can they even refill Demerol over

the phone?

I do not think desenstizing yourself to Tylenol would do a bit of

good. You must be desensitized to aspirin or at least, as far as I

know, an actual NSAID. Tylenol is just not a strong enough COX

inhibitor. It is very weak as an NSAID.

There are some reasons Celebrex may not be safe, but it probably is

safer than Demerol, unless you have high risk for heart disease.

But there may be someone people who cross-react with Celebrex and

aspirin. I know they have studied this at Scripps and MOST people

do not -- but there might be some that do.

Have you tried some audio CDs specific for pain relief and

anxiety?? They are not expensive compared to some other methods and

can be really, truly effective.

YOu may really have to take some time off and really get withdrawn

from the Demerol -- I don't know how this process works, but I just

wonder if your headaches are only from the polyps or if the

withdrawal effects are worse than the actual headaches. (Just an

idea, you know best).

Um, you know I feel this way, but not wanting to desensitize

yourself is not being a chicken. It is being cautious and in my

opinion, smart. It all depends on your own reaction, but especially

if you don't have a supportive doc. I would only do this under the

superivision of a doctor, and especially if you are going to do it

yourself, having someone you can call if you get in trouble is so

important (well, there is always 911).

Tami, I am sorry you are not getting the help and support you need

from your health care providers. It is one of the problems with

this illness.

Hugs,

Lori

P.S. No one is a whiner here ...

[Guest guest]

Hi Lori,

Read my other post to Chris. Also, I am shocked that I am not having any withdrawel symtoms from stopping demerol. I would think 2-3 pills a day, for the last two months would make me addicted. I can happily tell you that I'm not psycologically craving it either. When the pain is gone I have no craving to take it. Honestly, I was giving up and ready to just take demerol and function as best I could and just accept that this may be my life, but now that sinuses are draining and I get even a short time without pain, I get more hopeful. In fact, I get euphoric about it. I was honestly going to try and find pot and see if that helped with pain, even my straight laced family was behind me on this. They are so sick of seeing me suffer with pain, as I am sure everyones family out there feels the same way. It's funny what chronic pain does to a person. It truely makes you crazy.

As for my doctor, I will be having a very serious talk with him. I'm also having a talk with the nurse. I feel she was completely out of line speaking to me that way. Nothing like kicking me when I'm down. As much as I trust my Ent I feel too that he dropped the ball with me. I'm seriously thinking about a new ENT with new ideas and thoughts on how to handle this damn disease. I'm still seriously considering asa desense. I'd rather have to treat stomach problems with easy to get scrips then be left in the cold with headache pain. As you've probably guessed, I'm an incredibly sensitive person. I used to think it was a good trait, but am realizing that I need to suck it in and get tough. I don't have any pain management cds but I do have some cds on angels etc. that seem to help. These are meditation cds.

Thanks for caring.

Tami

Re: celebrex

It sounds to me as though you should definitely switch ENTs. He sounds consistent and not knowledgeable. I mean, WHY is he against desensitization? Also, sounds like the nurse is a bit abusive. But I would not ask for refills for narcotics over the phone anyway or from anyone except your doctors. Can they even refill Demerol over the phone?I do not think desenstizing yourself to Tylenol would do a bit of good. You must be desensitized to aspirin or at least, as far as I know, an actual NSAID. Tylenol is just not a strong enough COX inhibitor. It is very weak as an NSAID.There are some reasons Celebrex may not be safe, but it probably is safer than Demerol, unless you have high risk for heart disease. But there may be someone people who cross-react with Celebrex and aspirin. I know they have studied this at Scripps and MOST people do not -- but there might be some that do.Have you tried some audio CDs specific for pain relief and anxiety?? They are not expensive compared to some other methods and can be really, truly effective.YOu may really have to take some time off and really get withdrawn from the Demerol -- I don't know how this process works, but I just wonder if your headaches are only from the polyps or if the withdrawal effects are worse than the actual headaches. (Just an idea, you know best).Um, you know I feel this way, but not wanting to desensitize yourself is not being a chicken. It is being cautious and in my opinion, smart. It all depends on your own reaction, but especially if you don't have a supportive doc. I would only do this under the superivision of a doctor, and especially if you are going to do it yourself, having someone you can call if you get in trouble is so important (well, there is always 911). Tami, I am sorry you are not getting the help and support you need from your health care providers. It is one of the problems with this illness.Hugs,LoriP.S. No one is a whiner here ...

[Guest guest]

Tami, If you've been on Demerol, then I guess you passed on acetaminophen a long time ago. I don't know how much of it you can take, in fact, I THINK tylenol is a brand name for it, so, I don't know how much help I am at this point. Have you tried massages? I find I never cough on the massage table. It may in fact help stimulate/ease the lungs, since they do float around in the rib cavity. Also, what about a chiropractor? If you believe what they tell you, a misalignment in the vertebrae can be related to specific nerves that control pain in various areas. Just some ideas. I hope you feel better soon. And no, you're not whining.Tami Klumpyan <tami@...> wrote: Hi Lori, Read my other post to Chris. Also, I am shocked that I am not having any withdrawel symtoms from stopping demerol. I would think 2-3 pills a day, for the last two months would make me addicted. I can happily tell you that I'm not psycologically craving it either. When the pain is gone I have no craving to take it. Honestly, I was giving up and ready to just take demerol and function as best I could and just accept that this may be my life, but now that sinuses are draining and I get even a short time without pain, I get more hopeful. In fact, I get euphoric about it. I was honestly going to try and find pot and see if that helped with pain, even my straight laced family was behind me on this. They are so sick of seeing me suffer with pain, as I am sure everyones family out there feels the same way. It's funny what chronic pain does to a

person. It truely makes you crazy. As for my doctor, I will be having a very serious talk with him. I'm also having a talk with the nurse. I feel she was completely out of line speaking to me that way. Nothing like kicking me when I'm down. As much as I trust my Ent I feel too that he dropped the ball with me. I'm seriously thinking about a new ENT with new ideas and thoughts on how to handle this damn disease. I'm still seriously considering asa desense. I'd rather have to treat stomach problems with easy to get scrips then be left in the cold with headache pain. As you've probably guessed, I'm an incredibly sensitive person. I used to think it was a good trait, but am realizing that I need to suck it in and get tough. I don't have any pain management cds but I do have some cds on angels etc. that seem to help. These are meditation cds.

Thanks for caring. Tami Re: celebrex It sounds to me as though you should definitely switch ENTs. He sounds consistent and not knowledgeable. I mean, WHY is he against

desensitization? Also, sounds like the nurse is a bit abusive. But I would not ask for refills for narcotics over the phone anyway or from anyone except your doctors. Can they even refill Demerol over the phone?I do not think desenstizing yourself to Tylenol would do a bit of good. You must be desensitized to aspirin or at least, as far as I know, an actual NSAID. Tylenol is just not a strong enough COX inhibitor. It is very weak as an NSAID.There are some reasons Celebrex may not be safe, but it probably is safer than Demerol, unless you have high risk for heart disease. But there may be someone people who cross-react with Celebrex and aspirin. I know they have studied this at Scripps and MOST people do not -- but there might be some that do.Have you tried some audio CDs specific for pain relief and anxiety?? They are not expensive compared to some

other methods and can be really, truly effective.YOu may really have to take some time off and really get withdrawn from the Demerol -- I don't know how this process works, but I just wonder if your headaches are only from the polyps or if the withdrawal effects are worse than the actual headaches. (Just an idea, you know best).Um, you know I feel this way, but not wanting to desensitize yourself is not being a chicken. It is being cautious and in my opinion, smart. It all depends on your own reaction, but especially if you don't have a supportive doc. I would only do this under the superivision of a doctor, and especially if you are going to do it yourself, having someone you can call if you get in trouble is so important (well, there is always 911). Tami, I am sorry you are not getting the help and support you need from your health care providers. It is one of the

problems with this illness.Hugs,LoriP.S. No one is a whiner here ...

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[Guest guest]

Hi, I'm allergic to all pain meds OTC including acetemenophen. I tried a chiropractor before I went ahead with surgery. Actually, my lungs are doing great, it's my head that needs to be replaced. Tried selling it on ebay, but no bids!

Tami

Re: celebrex

It sounds to me as though you should definitely switch ENTs. He sounds consistent and not knowledgeable. I mean, WHY is he against desensitization? Also, sounds like the nurse is a bit abusive. But I would not ask for refills for narcotics over the phone anyway or from anyone except your doctors. Can they even refill Demerol over the phone?I do not think desenstizing yourself to Tylenol would do a bit of good. You must be desensitized to aspirin or at least, as far as I know, an actual NSAID. Tylenol is just not a strong enough COX inhibitor. It is very weak as an NSAID.There are some reasons Celebrex may not be safe, but it probably is safer than Demerol, unless you have high risk for heart disease. But there may be someone people who cross-react with Celebrex and aspirin. I know they have studied this at Scripps and MOST people do not -- but there might be some that do.Have you tried some audio CDs specific for pain relief and anxiety?? They are not expensive compared to some other methods and can be really, truly effective.YOu may really have to take some time off and really get withdrawn from the Demerol -- I don't know how this process works, but I just wonder if your headaches are only from the polyps or if the withdrawal effects are worse than the actual headaches. (Just an idea, you know best).Um, you know I feel this way, but not wanting to desensitize yourself is not being a chicken. It is being cautious and in my opinion, smart. It all depends on your own reaction, but especially if you don't have a supportive doc. I would only do this under the superivision of a doctor, and especially if you are going to do it yourself, having someone you can call if you get in trouble is so important (well, there is always 911). Tami, I am sorry you are not getting the help and support you need from your health care providers. It is one of the problems with this illness.Hugs,LoriP.S. No one is a whiner here ...

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Actually, celebrex was not taken off the market, it is still the same as before, and has always ben by prescription. Serrapeptase kicks in just as fast as celebrex. As I said I've used both.

Akiba

[low dose naltrexone] Celebrex

Celebrex was taken off the market. However, you can still get it if you have a prescription. I don't take it every day, in fact, I don't take it every week. It's just that when I get these severe neck aches, Advil only last a couple of hrs. Celebrex gives a take me a couple of weeks before it strikes again. And, this is taking 1 capsule for 1 day.

I would love to try the Serrapeptase, but because it's a supplement I imagine it will take a couple of wks before it kicks in. Celebrex would give me immediate and lasting relief.

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[Guest guest]

Ok--am off to get Serrapeptase...thanks for the recommendation!Akiba <akiba@...> wrote: Actually, celebrex was not taken off the market, it is still the same as before, and has always ben by prescription. Serrapeptase kicks in just as fast as celebrex. As I said I've used both. Akiba [low dose naltrexone] Celebrex Celebrex was taken off the market. However, you can still get it if you have a prescription. I don't take it every day, in fact, I don't take it every week. It's just that when I get these severe neck aches, Advil only last a couple of hrs. Celebrex gives a take me a couple of weeks before it strikes again. And, this is taking 1 capsule for 1 day. I would love to try the Serrapeptase, but because it's a supplement I imagine it will take a couple of wks before it kicks in. Celebrex would give me immediate and lasting relief. Blab-away for as little

as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice. No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.392 / Virus Database: 268.7.0/345 - Release Date: 5/22/2006

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[Guest guest]

I have taken Celebrex in the past, I have also taken Bextra with no ill effects.

Marcus

[Guest guest]

I can’t take it, brings on an asthma

attack and my doctor won’t prescribe it for me either because of this.

From: samters [mailto:samters ] On Behalf Of kjmccarry@...

Sent: Thursday, 15 June 2006 7:18

AM

samters

Subject: Celebrex

How may people take Celebrex?

Just wondering

JMAC

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[Guest guest]

Hi Jeannie,

I take the celebrex for my neck. I will ask the doctor about 400

mg. However I already have bad stomach problems and take lots of

other medicine for that.

Rochelle

>

> Hi Rochelle,

> You can take 400 milligrams a day, of course with dr's. order's,

but that's the highest dosage they go, otherwise there's the

possibility of stomach problems, or liver. It really helped me, and

post-poned more invasive surgery for about 18 months. I had no

problems taking it, but ended up with taking 400mg. I had a very

physical job, as I said, plus I was overweight, so i needed the

higher dose. The glucosomine ended up costing so much, you have to

take so many tablets a day for it to be effective, which is fine if

you can afford it, but it really didn't work for me, cost aside-

> What are you taking the Celebrex for-I mean, which body part? Mine

was used for my knees. Let me know how everything goes

> Take care

>

> Jeannie

>

>

>

>

______________________________________________________________________

______________

> Cheap talk?

> Check out Messenger's low PC-to-Phone call rates.

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>

>

[Guest guest]

Yes i take it and I take 100mg 1x a day. and I weigh 3x's what you do.

I am supposed to take it 2 or 2 times a day but one does me fine so I

am sure @ 50lbs it will work really good for you.

>

> Anybody taking Celebrex to manage osteoarthritis pain? I started on

> Wednesday with some benefit. My hips have been killing me,

especially

> transferring into bed at the end of the day. I'm taking 100 mg 1x

per

> day. I weigh 50 lbs.

>

> Any sharing of experiences will be appreciated.

>

> Alana

>

[Guest guest]

I used it to handle some significant neck pain several years ago, due to a bad

lift . It was EXTREMELY effective in the short - term, and over several months

eliminated the pain . However, my doctor told me and I read there is some risk

for long -term use (increased stroke risk). So I stopped after a couple of

years.

I think the jury is out on super-long term use, but it was effective for me in

the short term.

I weigh about double that and took more than that dose (can't remember, but it

was twice per day for something like 200 MG each, i think).

Alana <alrt@...> wrote:

Anybody taking Celebrex to manage osteoarthritis pain? I started on

Wednesday with some benefit. My hips have been killing me, especially

transferring into bed at the end of the day. I'm taking 100 mg 1x per

day. I weigh 50 lbs.

Any sharing of experiences will be appreciated.

Alana

---------------------------------

Have a burning question? Go to Answers and get answers from real people

who know.

[Guest guest]

Thank you Kay and Adam. Did it hurt your stomach? Headache? I'm not

getting enough pain relief yet, but am glad to hear that over time the

pain decreased, Adam.

[Guest guest]

I haven't had any side effects from it.

>

> Thank you Kay and Adam. Did it hurt your stomach? Headache? I'm

not

> getting enough pain relief yet, but am glad to hear that over time

the

> pain decreased, Adam.

>

[Guest guest]

Alana,

I had " hip pain " similar to what you described a few years ago. I took

Celebrex for almost a year and the pain disappeared. It started again this past

summer so I went to a chiropractor. He identified the " hip pain " as my hamstring

and used an actuator--which stimulates the nerves to promote healing. The first

time I went I got relief but the pain returned in a week. I went again and it

has been pain-free ever since.

Alana <alrt@...> wrote:

Anybody taking Celebrex to manage osteoarthritis pain? I started on

Wednesday with some benefit. My hips have been killing me, especially

transferring into bed at the end of the day. I'm taking 100 mg 1x per

day. I weigh 50 lbs.

Any sharing of experiences will be appreciated.

Alana

---------------------------------

Expecting? Get great news right away with email Auto-Check.

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[Guest guest]

Thanks a. In the past I used a TENS unit for hip pain with

little success. My pain is in both hips, my sacram, both knees, my

right shoulder, and many of my fingers. This is definitely

osteoarthritis. Exercise works best and I hoping that the Celebrex

will reduce the pain enough so I can do my exercises daily. So far

it's good with mild side effects. I'm especially glad it's not a

narcotic. I hate the drugs that make me high when I'm trying to

function. Was your pain relief from the Celebrex gradual?

Thanks!

Alana

>

> Alana,

>

> I had " hip pain " similar to what you described a few years ago. I

took Celebrex for almost a year and the pain disappeared. It started

again this past summer so I went to a chiropractor. He identified

the " hip pain " as my hamstring and used an actuator--which stimulates

the nerves to promote healing. The first time I went I got relief but

the pain returned in a week. I went again and it has been pain-free

ever since.

>

[Guest guest]

It's been a long time but I think it was gradual relief.....

Alana <alrt@...> wrote:

Thanks a. In the past I used a TENS unit for hip pain with

little success. My pain is in both hips, my sacram, both knees, my

right shoulder, and many of my fingers. This is definitely

osteoarthritis. Exercise works best and I hoping that the Celebrex

will reduce the pain enough so I can do my exercises daily. So far

it's good with mild side effects. I'm especially glad it's not a

narcotic. I hate the drugs that make me high when I'm trying to

function. Was your pain relief from the Celebrex gradual?

Thanks!

Alana

>

> Alana,

>

> I had " hip pain " similar to what you described a few years ago. I

took Celebrex for almost a year and the pain disappeared. It started

again this past summer so I went to a chiropractor. He identified

the " hip pain " as my hamstring and used an actuator--which stimulates

the nerves to promote healing. The first time I went I got relief but

the pain returned in a week. I went again and it has been pain-free

ever since.

>

---------------------------------

Don't pick lemons.

See all the new 2007 cars at Autos.

[Guest guest]

I'm happy you are finding some relief. I wanted to provide the group with

another option to Celebrex or other prescription meds. I represent a company

which has found a way to put 17 raw, fresh fruits, veggies and grains into a

capsule. They also have chewable and gummies. The item is called Juice Plus.

I just got home from a nutrition class. There were several people at the class

who have added Juice Plus to their diet. One person- Jan spoke to us about the

relief she has enjoyed over the past 8 months since she began adding Juice Plus

to her diet. She has suffered from severe arthritis for years. Juice Plus is

not a vitamin or supplement. It is whole food nutrition with live enzymes. If

anyone would like to learn more - contact me directly through my E-mail at

mbc543@.... Take are for now.

Peace to You,

Beth

Re: Re: Celebrex

It's been a long time but I think it was gradual relief.....

Alana <alrt@...> wrote:

Thanks a. In the past I used a TENS unit for hip pain with

little success. My pain is in both hips, my sacram, both knees, my

right shoulder, and many of my fingers. This is definitely

osteoarthritis. Exercise works best and I hoping that the Celebrex

will reduce the pain enough so I can do my exercises daily. So far

it's good with mild side effects. I'm especially glad it's not a

narcotic. I hate the drugs that make me high when I'm trying to

function. Was your pain relief from the Celebrex gradual?

Thanks!

Alana

>

> Alana,

>

> I had " hip pain " similar to what you described a few years ago. I

took Celebrex for almost a year and the pain disappeared. It started

again this past summer so I went to a chiropractor. He identified

the " hip pain " as my hamstring and used an actuator--which stimulates

the nerves to promote healing. The first time I went I got relief but

the pain returned in a week. I went again and it has been pain-free

ever since.

>

---------------------------------

Don't pick lemons.

See all the new 2007 cars at Autos.

[Guest guest]

I used to take Celebrex for my chronic back/hip pain in 2002. I

experienced extreme stomach pains, nausea and insomnia, and didn't

have any significant pain relief.

<3 Kendra

[Guest guest]

I took vioxx many years ago when I was having problems with a

shoulder. I didn't know it then it was a part of my Reiter's since I

wasn't diagnosed for many years later. It worked wonderful for my back

but it never seemed to help my shoulder however, they only had me on a

week dose of it.

Barbara

>

> Yesteray I took my first Celebrex (200mg) pill. I took another

> today. Does anyone know how long it takes to feel the effect of this

> drug? Any significant side effects to worry about? Any feedback on

> the drug's effectiveness?

>

[Guest guest]

Hi

I took Celebrex years ago now, right after being taken off Vioxx. I found it

worked well but I also found that I was allergic to it so had to stop. If you

are allergic to Sulpha Drugs you more than likely will be allergic to Celebrex.

Fr. Dave

[Guest guest]

Well Joe, I don't know if I am one to comment, since I have refused to take

any of the medications out there. To me they are all palleative. Since there

is no cure. Its like a band-aid over a bruise or soar.

So I have adopted the policy to not take drugs.

I have gone for the starch free diet. No milk related products.

Vitamins.

And when I feel unconfortable I pop some Ibuprofen over the counter.

I mostly control the AS with my mind and with the help and Faith in the Lord

God almighty, that brings me through the good and the bad days.

Hope I did not discourage you but that is my approach.

Sincerely,

Todd Aitken

-- Celebrex

Yesteray I took my first Celebrex (200mg) pill. I took another

today. Does anyone know how long it takes to feel the effect of this

drug? Any significant side effects to worry about? Any feedback on

the drug's effectiveness?

[Guest guest]

Wow Todd, you sure got lucky that it works for you. I have Reiter's and have

been in and out of remission for 30-40 years.But now I think I am too far

gone to into it again. But I now have hope for my son 24,with UC, and AS. I

got my Reiter's from UC,Toxic Mega Colon,and Kidney infections. But my son

came down for Christmas, and he has lost so much weight and is as pale as

milk. And he is walking around all crippled up like a 90 year old man. Poor

guy loves to lift weights and play sports, and I'm afraid the wind would

blow him away now. We just got him covered by insurance today, since he lost

his job for being sick, he lost his insurance. I've never seen him in this

condition before. He has had AS since high school,but this is a bad bout of

it, he should be in the hospital.I sure am glad some of us can control it

like you are. I have a constant infection thru out my body, so I know the

Lord will keep me going as long as He wants. I have had a great exciting

relationship with Him, that I wouldn't have if I wasn't as sick as I have

been all these years. I feel blessed to really KNOW Him!! And that really

brings me joy. Bless you and all of us survivors. Pain isn't my idea of a

great time, but it is a learning tool. Love to all, and have a happy new

year. D. In Oregon

-- Celebrex

Yesteray I took my first Celebrex (200mg) pill. I took another

today. Does anyone know how long it takes to feel the effect of this

drug? Any significant side effects to worry about? Any feedback on

the drug's effectiveness?

[Guest guest]

thanks.j after two days I feel a bit better. however, I've been

walking around like a zombie. i'm hoping the zombie effect will wear

off. i'm also having a hard time sleeping. we'll see.

>

>

[Guest guest]

barb:

thanks. so far so good. I just cant sleep at night. we'll see and i'll keep

the board posted.

regards,

joey

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

Well ,

Don't get me wrong the battles are many. I just keep them private, between

me and the Lord and don't like to bother my family members with pain that I

suffer. So I suffer quietly. I like to think of having a positive attitude

even though I feel bad inside. I always have a smile on my face and am

always the first to volunteer to help even though like you said I also look

like a 90 year old man sometimes.

But I have hope and most of all I have FAITH, soon and very soon I am going

to see my King and He is going to give me a new body like all my other

brothers and sisters and that is what keeps me going. Remember things on

earth are temporal, that is why my Eyes are fixed on the Eternal matters.

Those are the ones that matter.

Unfortunately my son also has tested positive, he is just now turning 12,

and it brakes my heart to think that some day he might go through the same

things I have gone through. Would love to take His place and endure double

the suffering so he does not haft to. Have choosen not to say anything so

far, since it has not manifested yet. If it does we will go through it

together.

Good to know you are a Christian, keep your hopes high and feed the FAITH,

its the only thing that keeps me going.

Sincerely,

Todd Aitken