Re: To _Butterfly, Asiagn and Others Who Feel They Must Do Dangerous Drugs

[Guest guest]

Hi All

I must admit Cheylenna, I wholeheartedly agree.

The Avonex I was forced on after diagnosis (while my head was stil spinning and

I'd have done ANYTHING to 'fix' it all), only made my condition worse - even

though the MSS and the Neuro PROMISED it would take away the problems I was

experiencing.

I could still walk when I started Avonex, once on it for a year, I was stumbling

and falling.

Studies have been released in the US which now show that certain people should

NEVER be on Avonex or its like as the drugs WILL make their symptoms worse. I am

one of the few it would appear!

I'm also a needlephobe - the year of intramuscular injections did nothing more

than show me how strong I am as a person and how much I can take. Oh, not true -

it also gave me ongoing pain all up my left leg through all the inner-leg scar

tissue. (Nice!)

I decided one day that enough was enough! I stopped the Avonex and started

researching a different way through the woods.

My first marker in the trees was Sue Ellen Dickenson - whatever people may think

of her methods/site etc, she is at least on the healthier path.

I read her book, did her detox and was walking again.

I started researching all the 'MS' diets and chose the most restrictive and the

one which my body liked the soundsof best - the BBD.

From the searching, I found the MSRC and the BBD, and there I also found the

Yahoo MS-Diet group. A stone's throw down the path, I found THIS group and found

like minded people who were happy to share their knowledge and research.

Not too many months after mastering the BBD and supplements, I came across the

CCSVI vascular theory on TIMS - these discoveries are helping me get my life

back to where it was before the drugs and before the diagnosis.

I had the procedure (as many of you know) in November of last year - I am riding

our exercise bike 2 kilometres+ each day and am attending sessions with a

Neuro-Physio each week. I stick to the BBD and will be doing a detox next month.

I'm sorry to tell " my life's story " but just wanted to lend another voice as

evidence to the 'not needing dangerous drugs' cause.

I take LDN (Low Dose Naltrexone) and find it has stopped all the pain in my left

leg - that is it, I don't take any other drugs.

I hope that many more look into diet, supplements, detox and CCSVI - and any

other 'alternative' method before taking a life-threatening drug/treatment.

There are so many more natural ways to 'treat' what we're each dealing with each

day.

Yes, it is our individual right to take/treat ourselves any way we feel we'll

respond best to, but please look into the 'alternative' ways too - they're

usually more effective and 99% of the time, far less dangerous!

Happy to help and answer ANY questions regarding anything I've spoken of here,

just send me a question PM and I'll be happy to respond.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: la_cayena@...

Date: Mon, 7 Feb 2011 00:57:17 -0800

Subject: To _Butterfly, Asiagn and Others Who Feel They Must Do

Dangerous Drugs

I know, it is such a scary thing when we are first diagnosed or told that we

will most likely be diagnosed with multiple sclerosis. We get terrible images of

ourselves in the worse case scenario. Life on wheels and lost control... losing

all possibility of normal life. In 1993 or 94, I was given brochures about ms

and I totally blocked it out until I found these pamphlets years later in a

bunch of stuff from my storage locker.

[Guest guest]

Just wanted to say that I too, encourage anyone to try " alternative " methods for

dealing with their MS. When I was diagnosed 4 years ago (at the age of 57), I

was terrified and allowed the neurologist to basically scare me into trying one

of the so-called " disease-modifying " drugs. I had been walking just fine so far,

but a few weeks after starting Rebif I started developing leg weakness and

balance problems. These slowly got worse over time.

There was recently a CCSVI information meeting in Seattle (hosted by the CCSVI

in Seattle facebook group), with several speakers, including Dr Hubbard of

San Diego, a very pro-CCSVI neurologist (how rare is that!) who said that those

drugs don't really work anyway, and they are actually very powerful immune

suppressants, so not good for a person's body. It was so refreshing to hear a

neurologist with that point of view!

Here's a link to the videos of that meeting and the many videos:

http://ccsviseattle.wordpress.com/ccsviinfonight_january282011/

I also wanted to mention exercise. Most of us tend to think of the heavier types

of exercise, which are now impossible for many of us. And I had felt intimidated

for some time about trying anything other than swimming (which I can't often

do). But a book I recently read ( " Rising Up " by York) reminded me about Tai

Chi and Qi Gong. She had been in a wheelchair and scooter for many years, but

regained her walking ability largely through diet, exercise, and bodywork. The

exercise she used was Tai Chi and Qi Gong, and she now teaches these to others.

Many of these exercises can be done sitting down, and some Qi Gong can be done

lying down. I had taken classes a dozen or so years ago, but had long since

gotten away from practice. So I'm starting to relearn a lot of this stuff. There

are many books and DVDs available. It is supposed to help move energy through

the body and release blockages.

And Betty Iams also uses Tai Chi and Qi Gong.

Hope these suggestions help somebody.

Alice

>

> I know, it is such a scary thing when we are first diagnosed or told that we

will most likely be diagnosed with multiple sclerosis. We get terrible images of

ourselves in the worse case scenario. Life on wheels and lost control... losing

all possibility of normal life......

[Guest guest]

so true -- >> " Just because a drug is approved by the FDA does not mean it

is safe or healthy. "

Has everyone seen the documentary behind fda and drugs called " Certain

Adverse Events "

The dvd is $25 but I found it free on youtube.

[Guest guest]

Dear Cheylenna and , as well as others.

Thank you dearly for taking the time and effort to offer your view and spice it

up with your PERSONAL experience, which is most valuable and appreciated.

I still have time until the beginning of March before I decide to begin on

Rebif. I'm giving it second, third...thoughts and it does not feel entirely

right for me either. I will try to find some more way how to obtain LDN I guess

and give it a try.

Marijuana also sounds like a solution, but as a recovered smoker, addict, I dont

perceive it as right for me either.

But great news is, the spasm, unsensitivity and pain in my left arm is slowly

but surely going away. Every day it gets better! And I havent even started the

drugs for pain, Neurontin, I have been prescribed. Going to work soon, after 3

months of sick leave. How promising is that Maintaining the diet and

accepting the utmost importance of daily physical exercise.

Best wishes to you all,

>

>

> Hi All

> I must admit Cheylenna, I wholeheartedly agree.

> The Avonex I was forced on after diagnosis (while my head was stil spinning

and I'd have done ANYTHING to 'fix' it all), only made my condition worse - even

though the MSS and the Neuro PROMISED it would take away the problems I was

experiencing.

> I could still walk when I started Avonex, once on it for a year, I was

stumbling and falling.

> Studies have been released in the US which now show that certain people should

NEVER be on Avonex or its like as the drugs WILL make their symptoms worse. I am

one of the few it would appear!

>

> I'm also a needlephobe - the year of intramuscular injections did nothing more

than show me how strong I am as a person and how much I can take. Oh, not true -

it also gave me ongoing pain all up my left leg through all the inner-leg scar

tissue. (Nice!)

>

> I decided one day that enough was enough! I stopped the Avonex and started

researching a different way through the woods.

> My first marker in the trees was Sue Ellen Dickenson - whatever people may

think of her methods/site etc, she is at least on the healthier path.

> I read her book, did her detox and was walking again.

> I started researching all the 'MS' diets and chose the most restrictive and

the one which my body liked the soundsof best - the BBD.

> From the searching, I found the MSRC and the BBD, and there I also found the

Yahoo MS-Diet group. A stone's throw down the path, I found THIS group and found

like minded people who were happy to share their knowledge and research.

>

> Not too many months after mastering the BBD and supplements, I came across the

CCSVI vascular theory on TIMS - these discoveries are helping me get my life

back to where it was before the drugs and before the diagnosis.

> I had the procedure (as many of you know) in November of last year - I am

riding our exercise bike 2 kilometres+ each day and am attending sessions with a

Neuro-Physio each week. I stick to the BBD and will be doing a detox next month.

>

> I'm sorry to tell " my life's story " but just wanted to lend another voice as

evidence to the 'not needing dangerous drugs' cause.

> I take LDN (Low Dose Naltrexone) and find it has stopped all the pain in my

left leg - that is it, I don't take any other drugs.

>

> I hope that many more look into diet, supplements, detox and CCSVI - and any

other 'alternative' method before taking a life-threatening drug/treatment.

There are so many more natural ways to 'treat' what we're each dealing with each

day.

> Yes, it is our individual right to take/treat ourselves any way we feel we'll

respond best to, but please look into the 'alternative' ways too - they're

usually more effective and 99% of the time, far less dangerous!

>

> Happy to help and answer ANY questions regarding anything I've spoken of here,

just send me a question PM and I'll be happy to respond.

>

>

> 'What we do in life, echoes through eternity.'

> MARCUS AURELIUS (121 - 180 A.D.)

>

>

>

>

>

>

> To: mscured

> From: la_cayena@...

> Date: Mon, 7 Feb 2011 00:57:17 -0800

> Subject: To _Butterfly, Asiagn and Others Who Feel They Must Do

Dangerous Drugs

>

>

>

>

>

>

> I know, it is such a scary thing when we are first diagnosed or told that we

will most likely be diagnosed with multiple sclerosis. We get terrible images of

ourselves in the worse case scenario. Life on wheels and lost control... losing

all possibility of normal life. In 1993 or 94, I was given brochures about ms

and I totally blocked it out until I found these pamphlets years later in a

bunch of stuff from my storage locker.

>

>

[Guest guest]

Dear Cheylenna and , as well as others.

Thank you dearly for taking the time and effort to offer your view and spice it

up with your PERSONAL experience, which is most valuable and appreciated.

I still have time until the beginning of March before I decide to begin on

Rebif. I'm giving it second, third...thoughts and it does not feel entirely

right for me either. I will try to find some more way how to obtain LDN I guess

and give it a try.

Marijuana also sounds like a solution, but as a recovered smoker, addict, I dont

perceive it as right for me either.

But great news is, the spasm, unsensitivity and pain in my left arm is slowly

but surely going away. Every day it gets better! And I havent even started the

drugs for pain, Neurontin, I have been prescribed. Going to work soon, after 3

months of sick leave. How promising is that Maintaining the diet and

accepting the utmost importance of daily physical exercise.

Best wishes to you all,

>

>

> Hi All

> I must admit Cheylenna, I wholeheartedly agree.

> The Avonex I was forced on after diagnosis (while my head was stil spinning

and I'd have done ANYTHING to 'fix' it all), only made my condition worse - even

though the MSS and the Neuro PROMISED it would take away the problems I was

experiencing.

> I could still walk when I started Avonex, once on it for a year, I was

stumbling and falling.

> Studies have been released in the US which now show that certain people should

NEVER be on Avonex or its like as the drugs WILL make their symptoms worse. I am

one of the few it would appear!

>

> I'm also a needlephobe - the year of intramuscular injections did nothing more

than show me how strong I am as a person and how much I can take. Oh, not true -

it also gave me ongoing pain all up my left leg through all the inner-leg scar

tissue. (Nice!)

>

> I decided one day that enough was enough! I stopped the Avonex and started

researching a different way through the woods.

> My first marker in the trees was Sue Ellen Dickenson - whatever people may

think of her methods/site etc, she is at least on the healthier path.

> I read her book, did her detox and was walking again.

> I started researching all the 'MS' diets and chose the most restrictive and

the one which my body liked the soundsof best - the BBD.

> From the searching, I found the MSRC and the BBD, and there I also found the

Yahoo MS-Diet group. A stone's throw down the path, I found THIS group and found

like minded people who were happy to share their knowledge and research.

>

> Not too many months after mastering the BBD and supplements, I came across the

CCSVI vascular theory on TIMS - these discoveries are helping me get my life

back to where it was before the drugs and before the diagnosis.

> I had the procedure (as many of you know) in November of last year - I am

riding our exercise bike 2 kilometres+ each day and am attending sessions with a

Neuro-Physio each week. I stick to the BBD and will be doing a detox next month.

>

> I'm sorry to tell " my life's story " but just wanted to lend another voice as

evidence to the 'not needing dangerous drugs' cause.

> I take LDN (Low Dose Naltrexone) and find it has stopped all the pain in my

left leg - that is it, I don't take any other drugs.

>

> I hope that many more look into diet, supplements, detox and CCSVI - and any

other 'alternative' method before taking a life-threatening drug/treatment.

There are so many more natural ways to 'treat' what we're each dealing with each

day.

> Yes, it is our individual right to take/treat ourselves any way we feel we'll

respond best to, but please look into the 'alternative' ways too - they're

usually more effective and 99% of the time, far less dangerous!

>

> Happy to help and answer ANY questions regarding anything I've spoken of here,

just send me a question PM and I'll be happy to respond.

>

>

> 'What we do in life, echoes through eternity.'

> MARCUS AURELIUS (121 - 180 A.D.)

>

>

>

>

>

>

> To: mscured

> From: la_cayena@...

> Date: Mon, 7 Feb 2011 00:57:17 -0800

> Subject: To _Butterfly, Asiagn and Others Who Feel They Must Do

Dangerous Drugs

>

>

>

>

>

>

> I know, it is such a scary thing when we are first diagnosed or told that we

will most likely be diagnosed with multiple sclerosis. We get terrible images of

ourselves in the worse case scenario. Life on wheels and lost control... losing

all possibility of normal life. In 1993 or 94, I was given brochures about ms

and I totally blocked it out until I found these pamphlets years later in a

bunch of stuff from my storage locker.

>

>