New Member Intro

[Guest guest]

,

There is a lot that you can do to help yourself....Take " Lutein " & " Bilberry "

for your eyes...inexpensive supplements. Also look into

" Low-Dose-Naltrexone " ...it stops progression..it is not a cure...no adverse side

effects........DO NOT FRET....MS is very manageable. Go to

www.copingandprevailing.com.....If you cannot afford the book send me your

mailing address and I will send to you........DO NOT WORRY

Regards,

Tom Bayuk

Re: Yahoo! Groups: Welcome to mscured. Visit today!

To: mscured Moderator <mscured-owner >

Cc: akhamlet@...

Hello. My name is Gibson, I'm 34 years old, married with a 4 year

old

son, I work full-time and live in Alaska. I was diagnosed with MS in

September

2010 and have been dealing with it [i thought] pretty well until I had a

second

relapse of optic neuritis in November, 2 months after my first bout that led

to

my diagnosis. I am on standard treatment but am interested in anything that

will

slow the progression down or help as being out of work for 2 weeks & not

being

able to do the things I want to do with my family is not what I had planned

for

my life. Thanks.

[Guest guest]

What are your blood levels of vitamin d?

are you gluten free ?

do you consume artificial sweeteners ?

[Guest guest]

Good morning all. I'm not sure what my vitamin D levels are although I had it

checked [since my neurologist didn't say I just assumed it was okay - I will be

asking her next Monday at my appointment].

I am not gluten free and I do use Splenda [i've used artificial sweetners for

about 30 years as my dad was diabetic].

While I'm posting though, does anyone have any remedies [besides massage

therapy] for spasticity? My neck and back hurt so badly it's affecting my sleep

and basically my every day movement.

Thank you.

>

>

> What are your blood levels of vitamin d?

> are you gluten free ?

> do you consume artificial sweeteners ?

>

>

>

[Guest guest]

Thank you for the information on some supplements to look into. I was going to

discuss LDN with my neurologist as dependant upon my second set of MRIs, I think

she is leaning towards Tysabri and that route scares me to death.

I'll check out the website you mentioned. I was thinking I was managing the MS

okay until the pain set in -- I think that is what is getting me the most, the

constant unending pain. I figure once that eases I'll be in a much better place

physically and emotionally [sorry to vent a bit].

>

> ,

> There is a lot that you can do to help yourself....Take " Lutein " & " Bilberry "

for your eyes...inexpensive supplements. Also look into

" Low-Dose-Naltrexone " ...it stops progression..it is not a cure...no adverse side

effects........DO NOT FRET....MS is very manageable. Go to

www.copingandprevailing.com.....If you cannot afford the book send me your

mailing address and I will send to you........DO NOT WORRY

> Regards,

> Tom Bayuk

>

>

> Re: Yahoo! Groups: Welcome to mscured. Visit today!

> To: mscured Moderator <mscured-owner >

> Cc: akhamlet@...

>

> Hello. My name is Gibson, I'm 34 years old, married with a 4 year

> old

> son, I work full-time and live in Alaska. I was diagnosed with MS in

> September

> 2010 and have been dealing with it [i thought] pretty well until I had a

> second

> relapse of optic neuritis in November, 2 months after my first bout that led

> to

> my diagnosis. I am on standard treatment but am interested in anything that

> will

> slow the progression down or help as being out of work for 2 weeks & not

> being

> able to do the things I want to do with my family is not what I had planned

> for

> my life. Thanks.

>

>

[Guest guest]

> Hello. My name is Gibson, I'm 34 years old, married with a 4 year

> old

> son, I work full-time and live in Alaska.

Hi ,

The #1 thing to do right away is start on a high-quality Vitamin D supplement,

it won't be too expensive. I lived in Alaska for almost 10 years and feel quite

sure that it played a role in my own case of MS. The rates of MS increase with

distance from the equator. Even mainstream medicine is starting to catch on and

recommending higher supplementation doses for children to prevent many

conditions down the road.

I had an attack of optic neuritis in Oct '07 and have not had a relapse since

then. I manage with the Best Bet Diet (and supplements), acupuncture, fasting &

detoxing, etc. So far, the only time I feel any symptoms is when I eat

something that I'm intolerant to.

There are *lots* of options. My advice would be to start the Vitamin D today,

and that gives you a start while you're looking into everything else. I

currently take 10,000 IU/day in summer and 15,000 IU/day in winter. A study out

of the University of Toronto showed that folks on an average of 14,000 IU/day

experienced fewer relapses.

Hope this helps and welcome aboard!

Crystal

[Guest guest]

Stop Splenda!

Try going gluten-free then cut out dairy and legumes.

It helps a lot of us.

Medical marijuana is the best thing I've found for pain and spasticity.

Good you are looking at your vitamin D levels.

Janet

To: mscured

From: akhamlet@...

Date: Mon, 3 Jan 2011 10:25:37 +0000

Subject: Re: New member intro

Good morning all. I'm not sure what my vitamin D levels are although I had it

checked [since my neurologist didn't say I just assumed it was okay - I will be

asking her next Monday at my appointment].

I am not gluten free and I do use Splenda [i've used artificial sweetners for

about 30 years as my dad was diabetic].

While I'm posting though, does anyone have any remedies [besides massage

therapy] for spasticity? My neck and back hurt so badly it's affecting my sleep

and basically my every day movement.

Thank you.

>

>

> What are your blood levels of vitamin d?

> are you gluten free ?

> do you consume artificial sweeteners ?

>

>

>

[Guest guest]

Crystal,

I currently take whatever Vitamin D is in my multivitamin and my calcium

supplement which I'm sure is no where what I need to be taking. I was planning

on upping my vitamin D anyways so I'll make that a New Year's resolution.

As for the acupuncture I read somewhere that it could boost your immune system

and we should not do that -- have you not found that to be the case? If so, I'll

look into what, if any, acupuncturists my insurance covers as anything that is

not a pill that can help with my pain I would be more than happy to try.

Thank you.

>

> > Hello. My name is Gibson, I'm 34 years old, married with a 4 year

> > old

> > son, I work full-time and live in Alaska.

>

> Hi ,

>

> The #1 thing to do right away is start on a high-quality Vitamin D supplement,

it won't be too expensive. I lived in Alaska for almost 10 years and feel quite

sure that it played a role in my own case of MS. The rates of MS increase with

distance from the equator. Even mainstream medicine is starting to catch on and

recommending higher supplementation doses for children to prevent many

conditions down the road.

>

> I had an attack of optic neuritis in Oct '07 and have not had a relapse since

then. I manage with the Best Bet Diet (and supplements), acupuncture, fasting &

detoxing, etc. So far, the only time I feel any symptoms is when I eat

something that I'm intolerant to.

>

> There are *lots* of options. My advice would be to start the Vitamin D today,

and that gives you a start while you're looking into everything else. I

currently take 10,000 IU/day in summer and 15,000 IU/day in winter. A study out

of the University of Toronto showed that folks on an average of 14,000 IU/day

experienced fewer relapses.

>

> Hope this helps and welcome aboard!

>

> Crystal

>

[Guest guest]

Janet,

Is Splenda really that bad? I'll just continue with my Stevia then [i don't like

the taste as much but I think it's better]. I have cut down on my dairy [i.e.

non dairy creamer in my coffee] but have any of you found a good cheese

subsitute as I LOVE cheese? As for the gluten free aspect my husband and I were

going to try the Spelt bread from a specialty bakery shop in town as it's gluten

free and I love bread as well [i have toast every morning].

It seems that everyone on here uses the Best Bet Diet and not the Swank diet --

is that the one most people have found effective as I was planning on a diet

overhaul this New Year's as well?

Thank you.

> >

> >

> > What are your blood levels of vitamin d?

> > are you gluten free ?

> > do you consume artificial sweeteners ?

> >

> >

> >

[Guest guest]

I am sure Splenda is bad but I've never personally used it. Perhaps Yvette

will step in here as she will know more about it than me.

I love cheese too and haven't had any for 4 years - I'd rather have the

possibility of walking again.

Some people make a cheese type topping with cashew nuts. Obviously all the soy

based cheeses are out too on the BBD.

Spelt isn't in fact gluten-free but it can be tolerated by some people who can't

do regular wheat.

The BBD has certainly helped me.

Janet

To: mscured

From: akhamlet@...

Date: Mon, 3 Jan 2011 17:29:05 +0000

Subject: Re: New member intro

Janet,

Is Splenda really that bad? I'll just continue with my Stevia then [i don't like

the taste as much but I think it's better]. I have cut down on my dairy [i.e.

non dairy creamer in my coffee] but have any of you found a good cheese

subsitute as I LOVE cheese? As for the gluten free aspect my husband and I were

going to try the Spelt bread from a specialty bakery shop in town as it's gluten

free and I love bread as well [i have toast every morning].

It seems that everyone on here uses the Best Bet Diet and not the Swank diet --

is that the one most people have found effective as I was planning on a diet

overhaul this New Year's as well?

Thank you.

[Guest guest]

if Tysabri or any drug scares you, then dont take it. I often get the

feeling that patients think they HAVE to take the stuff the doctors

prescribes for them.

You are under no legal obligation to take anything, that is the law.

A prescription is a recommendation, thats it. They are doctors of medicine,

so they recommend drug medicine. Doesnt mean it is the best thing for you,

it is just what they are recommending (usually based on what is good for

them not necessarily you)

[Guest guest]

go to your doctor and get a blood test for your vitamin d levels.

You should take enough vitamin d to get your levels at least over 50ng.

this number varies for everyone, so there is no one size fits all

dose.

So there is no way I would take 10,000 or 14,000iu's without

working my way up to that point after repeated testing and

dose escalation. A safer dose would be more like 2,000-4,000

and then test in a month to see where that raised your levels to

and then dial in the dose further based on the data.

[Guest guest]

Hey ,

My name is and I was diagnosed this summer with MS as well.  I have an

awesome mentor (Crystal) who introduced me to this group and has helped me a lot

with over coming some of the challenges I have encountered.

I started the BBD in June and have slowly been working my way to 100%.  Cheese

and ranch dressing were some of the hardest things to give up.  But I can say,

I feel so much better not eating these foods.  And when I do, I really pay for

it.  I originally started out on the Swank diet, as a doctor told me to look

into it.  I tried it for a few weeks, but I noticed that many of my " act ups "

came from food that was not allowed in the BBD, so I switched.  Corn doesn't

seem to affect me the way others talk about, so I haven't completely gotten away

from that one yet.  Smoking (which I am already down to 2 cigs a day and plan

to be done in the next few weeks) and Dr. Peppers are next on the list. 

I have also noticed that when I forget to take my vitamins (especially Vitamin

D) the tingling in my legs comes back.  So I would say that Vitamin D is where

its at.

I have not had much pain or spastic movements, but I have heard from many that

marijuana is where its at.  I started taking hemp oil this September, and I

could really tell a difference in my energy levels.  This semester I worked 2

jobs, about 60 hours per week, took 10 credit hours with an additional 20 hours

of homework on top of that.  I can say with pure confidence that I would not

have made it without the hemp oil.  I started it about 3 weeks into school, and

ran out for a few during school.  It was hard to get through those weeks, but I

got through them, and the semester for that matter.

Anyways, after that long rant, search on YouTube - Run from the Cure, the Rick

Simpson Story.  There are 7 videos that go through the process of making it and

the benefits that people have had.  In one of the videos it gives you the

address to his site, which has more info. 

And welcome to the club.... sort of!!!  There are some great people in this

group!!!!  I have learned a lot from reading their posts.  They have given me

many questions to ask my voodoo witch doctor (a holistic chiropractor), and he

has come up with some pretty cool things to get toxins out of my body!!!

Wishing you nothing but the best on your journey.

Subject: New member intro

To: " mscured " <mscured >

Date: Sunday, January 2, 2011, 9:23 AM

 

---------- Forwarded message ----------

Date: Thu, Dec 30, 2010 at 1:20 PM

Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today!

To: mscured Moderator <mscured-owner >

Cc: akhamlet@...

Hello. My name is Gibson, I'm 34 years old, married with a 4 year

old

son, I work full-time and live in Alaska. I was diagnosed with MS in

September

2010 and have been dealing with it [i thought] pretty well until I had a

second

relapse of optic neuritis in November, 2 months after my first bout that led

to

my diagnosis. I am on standard treatment but am interested in anything that

will

slow the progression down or help as being out of work for 2 weeks & not

being

able to do the things I want to do with my family is not what I had planned

for

my life. Thanks.

[Guest guest]

Hi Jen.  Are you in the exercise group too?

________________________________

To: mscured

Sent: Mon, January 3, 2011 4:14:40 PM

Subject: Re: New member intro

 

Hey ,

My name is and I was diagnosed this summer with MS as well.  I have an

awesome mentor (Crystal) who introduced me to this group and has helped me a lot

with over coming some of the challenges I have encountered.

I started the BBD in June and have slowly been working my way to 100%.  Cheese

and ranch dressing were some of the hardest things to give up.  But I can say,

I

feel so much better not eating these foods.  And when I do, I really pay for

it.  I originally started out on the Swank diet, as a doctor told me to look

into it.  I tried it for a few weeks, but I noticed that many of my " act ups "

came from food that was not allowed in the BBD, so I switched.  Corn doesn't

seem to affect me the way others talk about, so I haven't completely gotten away

from that one yet.  Smoking (which I am already down to 2 cigs a day and plan

to

be done in the next few weeks) and Dr. Peppers are next on the list. 

I have also noticed that when I forget to take my vitamins (especially Vitamin

D) the tingling in my legs comes back.  So I would say that Vitamin D is where

its at.

I have not had much pain or spastic movements, but I have heard from many that

marijuana is where its at.  I started taking hemp oil this September, and I

could really tell a difference in my energy levels.  This semester I worked 2

jobs, about 60 hours per week, took 10 credit hours with an additional 20 hours

of homework on top of that.  I can say with pure confidence that I would not

have made it without the hemp oil.  I started it about 3 weeks into school, and

ran out for a few during school.  It was hard to get through those weeks, but I

got through them, and the semester for that matter.

Anyways, after that long rant, search on YouTube - Run from the Cure, the Rick

Simpson Story.  There are 7 videos that go through the process of making it and

the benefits that people have had.  In one of the videos it gives you the

address to his site, which has more info. 

And welcome to the club.... sort of!!!  There are some great people in this

group!!!!  I have learned a lot from reading their posts.  They have given me

many questions to ask my voodoo witch doctor (a holistic chiropractor), and he

has come up with some pretty cool things to get toxins out of my body!!!

Wishing you nothing but the best on your journey.

Subject: New member intro

To: " mscured " <mscured >

Date: Sunday, January 2, 2011, 9:23 AM

 

---------- Forwarded message ----------

Date: Thu, Dec 30, 2010 at 1:20 PM

Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today!

To: mscured Moderator <mscured-owner >

Cc: akhamlet@...

Hello. My name is Gibson, I'm 34 years old, married with a 4 year

old

son, I work full-time and live in Alaska. I was diagnosed with MS in

September

2010 and have been dealing with it [i thought] pretty well until I had a

second

relapse of optic neuritis in November, 2 months after my first bout that led

to

my diagnosis. I am on standard treatment but am interested in anything that

will

slow the progression down or help as being out of work for 2 weeks & not

being

able to do the things I want to do with my family is not what I had planned

for

my life. Thanks.

[Guest guest]

> As for the acupuncture I read somewhere that it could boost your immune system

and we should not do that -- have you not found that to be the case?

>

I haven't read that myself, but I can understand that would be a concern.

Anything that revs up the immune system could be an issue for people with an

autoimmune condition. I haven't found it to be the case personally and I knows

there are many others who have found acupuncture to be useful. One of the

things it helped with very quickly was my ability to sleep better. I had such

pain in my legs when I went to bed at night, and even when I slept it wasn't

very good. Now, I started acupuncture about a month after starting BBD, so it's

hard to say which really helped the most. But I can definitely say that the

acupuncture has *some* kind of effect. About 3 months after starting the diet,

I decided to have some gluten-free pizza with soy cheese. My reaction to the

soy caused vision changes in my " good " eye, the one that didn't go blind

temporarily from optic neuritis. Since the other eye still hadn't fully

recovered yet, I started to panic that I wouldn't be able to drive or do

anything that I needed to get done. When I went for acupuncture, it would

immediately correct my vision, but it was only temporary. So, although it

didn't end up being the absolute answer or cure for that incident, I can say

that it does do something unexplainable and beneficial. I would walk into a

session with impaired vision, and walk out an hour later with it corrected. It

was pretty wild! I remember reading a story of a woman who had optic neuritis

in both eyes at once and had been pretty much blind for 2 or 3 months

continuously. After her very first acupuncture session, she was able to see

tail-lights of other cars on her way home.

Crystal

[Guest guest]

Good evening . It's nice to meet you. I don't know anything about an

exercise group -- is that on this board? I'm going to look into the BBD this

week although a life without Ben & Jerry's and Raspberry Mochas [although better

for me] will be hard as I love ice cream, chocolate, cheese, etc [basically

anything dairy and/or sweet]. I think for the muscle stiffness I'm going to see

if my neurologist will prescribe massages for me as that helps and I really

don't want to take any medication if I can help it. I'll have to look into the

hemp oil possibility.

I hope all is well with you and look forward to talking to you more.

>

>

> Subject: New member intro

> To: " mscured " <mscured >

> Date: Sunday, January 2, 2011, 9:23 AM

>

>  

>

> ---------- Forwarded message ----------

>

>

>

> Date: Thu, Dec 30, 2010 at 1:20 PM

>

> Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today!

>

> To: mscured Moderator <mscured-owner >

>

> Cc: akhamlet@...

>

> Hello. My name is Gibson, I'm 34 years old, married with a 4 year

>

> old

>

> son, I work full-time and live in Alaska. I was diagnosed with MS in

>

> September

>

> 2010 and have been dealing with it [i thought] pretty well until I had a

>

> second

>

> relapse of optic neuritis in November, 2 months after my first bout that led

>

> to

>

> my diagnosis. I am on standard treatment but am interested in anything that

>

> will

>

> slow the progression down or help as being out of work for 2 weeks & not

>

> being

>

> able to do the things I want to do with my family is not what I had planned

>

> for

>

> my life. Thanks.

>

>

[Guest guest]

- Alaska rings big alarm bells of take your Vitamin D3 without fail.

Optic neuritis - try CST (cranio-sacral therapy) and acupuncture (Crystal is the

best one to advise you on the latter) and, of course, CCSVI.

Good to hear you are doing so well .

Tell us more what your " voodoo witch doctor " suggests. It will be a welcome

relief from Big Pharma.

Thanks for the hemp oil videos - interesting. If anyone does do MJ, I'd caution

not overdoing it. In small quantities it is good for pain, spasms, spasticity

and incontinence but if you have too much you end up focusing on the pain until

you remind yourself not to.

Janet

To: mscured

From: mariarush3@...

Date: Mon, 3 Jan 2011 16:14:40 -0800

Subject: Re: New member intro

I have not had much pain or spastic movements, but I have heard from many that

marijuana is where its at. I started taking hemp oil this September, and I

could really tell a difference in my energy levels. This semester I worked 2

jobs, about 60 hours per week, took 10 credit hours with an additional 20 hours

of homework on top of that. I can say with pure confidence that I would not

have made it without the hemp oil. I started it about 3 weeks into school, and

ran out for a few during school. It was hard to get through those weeks, but I

got through them, and the semester for that matter.

Anyways, after that long rant, search on YouTube - Run from the Cure, the Rick

Simpson Story. There are 7 videos that go through the process of making it and

the benefits that people have had. In one of the videos it gives you the

address to his site, which has more info.

And welcome to the club.... sort of!!! There are some great people in this

group!!!! I have learned a lot from reading their posts. They have given me

many questions to ask my voodoo witch doctor (a holistic chiropractor), and he

has come up with some pretty cool things to get toxins out of my body!!!

---------- Forwarded message ----------

Hello. My name is Gibson, I work full-time and live in Alaska.

second relapse of optic neuritis in November,

[Guest guest]

Hi ,

This site has helpful information about treating MS-related spasticity:

http://tinyurl.com/treating-ms-spasticity

Here is a site that you may also find of interest:

http://tinyurl.com/advice-to-msers

With best wishes for 2011,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Thanks Janet.  Glad things are looking up for you too!!!

- I didn't post the one about the exercise group, but I try to be

active in one.  It is hard with work and school - most people don't like to

work out @ 7 or 8 pm.  I highly recommend them though.  Or just find a good

friend and get some yoga videos.  That is what I have been doing recently.  I

know how you feel about wanting to do it naturally.  I am not a fan of shots or

people telling me that I don't have any options other than what they are

recommending.  I asked my neurologist about the diet and supplements and he

pretty much shut me down saying that there was no proof it worked or helped. 

My response was to prove him wrong and show him that there is more to healing

that what he learned in the books.  I am so sad that 98% of the AMA docs I have

seen have been so closed minded.  From my recent journey, I have to reiterate

what every one else says here.... Stay on the BBD, take your Vitamin D, and

exercise as much as you physically

can.  I also found that exercising my brain has helped a lot with the memory

issues but that could be the MJ and not the MS talking there   You do what

you feel is best for you and do all the research you possibly can.  Side note -

In doing research I found that soy also raises your estrogen levels and that

high estrogen levels have been linked to breast cancer.  Since both my

grandmothers have had breast cancer, this was something I needed to pass on to

my sisters and cousins!!!!!

So far my voodoo witch doctor agrees with everything that I have been doing.  I

showed him everything from the web site regarding the BBD and he said that he

really couldn't recommend anything else until he " saw " what my body was doing. 

He said the only thing he would change with the BBD is to eliminate meat because

I have A blood type (it likes to store cholesterol).  I told him I am a meat

and potatoes kind of girl and that wont happen.  He was referring to the Diet

for your Blood Type, so not sure what other blood types would require.  Other

than that, he agreed with everything.  He also told me to quit using refined

sugars, drink ginger tea (I like to mix it with Pau D' Arco - now thats some

powerful stuff), eat fennel for my eyes, to quit smoking and to take out my

tongue ring!!!  I have seen him every week since July and I can really see a

difference in the way I feel.

I want to thank everyone in the group too for your posts.  I get most of the

questions I ask him from posts.  I still have to remember to ask him about his

feelings on salt.

Plus, 98% of my symptoms are gone at this point.  The symptom that took the

longest to " get better " was the tingling in my legs.  It would feel like I was

on a jack hammer or that my legs were getting ready to fall asleep when I would

walk.  I didn't have to tell him about this and he just knew to " pop " /adjust my

legs/ankles.  The first time he did this, the tingling went from occurring

every time I walked to occurring while I was speed walking or walking up hill. 

He did it a couple times after and now the only time I notice it is when I

forget to take my Vitamin D.

So far he has taken fluoride (check your toothpastes), silver, nickle, uranium

(feels like a sugar high), cadmium (causes short, sharp headaches), mercury, and

some others that I can't remember right now, out of my system.  I felt the

biggest change with the uranium.  I was up and down all week and after he did

the pressure points for uranium, with in 5 minutes I wanted off the table and

wanted to bounce off the walls!!!  Silver and nickle make the roof of my mouth

swell up (hence why he wants the tongue ring out) and when he took these out of

my system, with in an hour the swelling in my mouth went down.  When he did the

mercury pressure points, it was like heat started to rise and leave my body.

If you can find a holistic chiropractor or someone who does acupressure I highly

recommend it.  I haven't tried acupuncture yet, but I am looking forward to it.

If anyone is on Facebook let me know and I will share his new video he just

posted.  It explains what he does so much better than I can.

On the hemp oil, you only take about 2 pin head size amounts a day.  It isn't

enough to get you high, but it will work its magic.  The taste is extremely

strong since the oil is highly concentrated; putting it in something usually

makes it easier to handle.  I smoke MJ daily so I got used to the taste but it

was almost unbearable at first.  Mixing it with some passion flower tea is an

awesome sleep aid.  After starting it, I saw an immediate change in my energy

levels.  Since I have smoked everyday for the past few years, I am not sure if

it helped with pain and spastic movements before.  DON'T COOK WITH IT

THOUGH!!!   I have a friend here who is in the process of getting her

dispensary license since MJ was just made legal here and she told me that she

has a natural way to make this, without using the solvent.  So as soon as I get

more info I will pass it on!!

Subject: RE: New member intro

To: " MS-Cured " <mscured >

Date: Tuesday, January 4, 2011, 9:15 AM

 

- Alaska rings big alarm bells of take your Vitamin D3 without fail.

Optic neuritis - try CST (cranio-sacral therapy) and acupuncture (Crystal is the

best one to advise you on the latter) and, of course, CCSVI.

Good to hear you are doing so well .

Tell us more what your " voodoo witch doctor " suggests. It will be a welcome

relief from Big Pharma.

Thanks for the hemp oil videos - interesting. If anyone does do MJ, I'd caution

not overdoing it. In small quantities it is good for pain, spasms, spasticity

and incontinence but if you have too much you end up focusing on the pain until

you remind yourself not to.

Janet

To: mscured

From: mariarush3@...

Date: Mon, 3 Jan 2011 16:14:40 -0800

Subject: Re: New member intro

I have not had much pain or spastic movements, but I have heard from many that

marijuana is where its at. I started taking hemp oil this September, and I

could really tell a difference in my energy levels. This semester I worked 2

jobs, about 60 hours per week, took 10 credit hours with an additional 20 hours

of homework on top of that. I can say with pure confidence that I would not

have made it without the hemp oil. I started it about 3 weeks into school, and

ran out for a few during school. It was hard to get through those weeks, but I

got through them, and the semester for that matter.

Anyways, after that long rant, search on YouTube - Run from the Cure, the Rick

Simpson Story. There are 7 videos that go through the process of making it and

the benefits that people have had. In one of the videos it gives you the

address to his site, which has more info.

And welcome to the club.... sort of!!! There are some great people in this

group!!!! I have learned a lot from reading their posts. They have given me

many questions to ask my voodoo witch doctor (a holistic chiropractor), and he

has come up with some pretty cool things to get toxins out of my body!!!

---------- Forwarded message ----------

Hello. My name is Gibson, I work full-time and live in Alaska.

second relapse of optic neuritis in November,

[Guest guest]

> a life without Ben & Jerry's and Raspberry Mochas [although better for me]

will be hard as I love ice cream, chocolate, cheese, etc [basically anything

dairy and/or sweet].

> >

You will find there are lots of alternatives, especially for ice cream. You can

get it made from hemp milk, almond milk, rice milk, even coconut milk. Are you

in or near Anchorage? I would think that Natural Pantry or New Sagaya either

carry it or could order it. Or get an ice cream machine and make your own.

I found that some of the substitutions I started using after going on the diet

were easy, and some took getting used to. Eventually your taste buds change and

things don't seem nearly as dire. And when the symptoms started to disappear, I

decided right then and there that it was worth it to me.

Crystal

[Guest guest]

Hi Crystal. I've seen Soy, Rice & Coconut ice cream but not hemp & almond. I'll

have to check out New Sagaya or Natural Pantry for those [Fred Meyer's carries

the other three kinds]. Have you found one that tastes & " feels " like real ice

cream? I've tried soy ice cream and didn't like it and soy doesn't really agree

with me. I have starting using Oat Milk instead of dairy -- it's the only kind

of milk that tastes like real milk to me and doesn't upset my stomach.

> > a life without Ben & Jerry's and Raspberry Mochas [although better for me]

will be hard as I love ice cream, chocolate, cheese, etc [basically anything

dairy and/or sweet].

> > >

>

> You will find there are lots of alternatives, especially for ice cream. You

can get it made from hemp milk, almond milk, rice milk, even coconut milk. Are

you in or near Anchorage? I would think that Natural Pantry or New Sagaya

either carry it or could order it. Or get an ice cream machine and make your

own.

>

> I found that some of the substitutions I started using after going on the diet

were easy, and some took getting used to. Eventually your taste buds change and

things don't seem nearly as dire. And when the symptoms started to disappear, I

decided right then and there that it was worth it to me.

>

> Crystal

>

[Guest guest]

It's good that you don't care for the soy because it's out too if you go on the

diet. I really don't like the rice-based either, but the almond, coconut, and

hemp are good. I don't know that you will get exactly the same result as dairy

ice cream because they don't have as much fat, but they are good enough to

satisfy my cravings. I forgot about Fred Meyer, you should be able to get

lots of stuff there. They are Kroger-owned, and the Kroger chain that is here

in AZ carries lots of stuff that I use on a regular basis and it's considerably

cheaper than the health food store. One of my staples is the gluten-free pizza

crust from Bob's Red Mill. You have to watch some of the other Bob's Red Mill

gluten-free flours though, because they often contain bean flours.

If you decide to try the BBD, I think the best advice is to go slow. I tried to

go cold-turkey and would last about a week, then binge. lol So I slowed down

and got rid of dairy, then gluten, then soy/beans/legumes over several weeks.

And I used to cook a lot from scratch, but when I first started the diet I

leaned on the packaged, convenience foods for a while til I got the hang of it.

I just wanted to make sure that I always had something around the house to grab

when I was hungry so I wouldn't be tempted to cheat!

Crystal

> Hi Crystal. I've seen Soy, Rice & Coconut ice cream but not hemp & almond.

I'll have to check out New Sagaya or Natural Pantry for those [Fred Meyer's

carries the other three kinds]. Have you found one that tastes & " feels " like

real ice cream?

>

[Guest guest]

,  I hope you've heard something re: spasticity, my input, I was put on

Amantadine from the beginning.  I really feel that it's helped, I know there

are

others who have had it prescribed.  Any other thoughts?

Edie

________________________________

To: mscured

Sent: Mon, January 3, 2011 4:25:37 AM

Subject: Re: New member intro

 

Good morning all. I'm not sure what my vitamin D levels are although I had it

checked [since my neurologist didn't say I just assumed it was okay - I will be

asking her next Monday at my appointment].

I am not gluten free and I do use Splenda [i've used artificial sweetners for

about 30 years as my dad was diabetic].

While I'm posting though, does anyone have any remedies [besides massage

therapy] for spasticity? My neck and back hurt so badly it's affecting my sleep

and basically my every day movement.

Thank you.

>

>

> What are your blood levels of vitamin d?

> are you gluten free ?

> do you consume artificial sweeteners ?

>

>

>

[Guest guest]

---------- Forwarded message ----------

Date: Sat, Jan 22, 2011 at 3:33 PM

Subject: RE: Yahoo! Groups: Welcome to mscured. Visit today!

To: mscured Moderator <mscured-owner >

Hi,

I was dx with MS in 2008, shortly after my daughter was born. Because she

was so young, it was really important to me to be able to continue nursing

her. So, I really did not want to go on any drugs, and started looking into

alternative ways to treat MS. That is when I learned about the MS Recovery

Diet. It made sense to me as soon as I heard about it, because I had

already noticed that my symptoms grew worse around mealtime… to the point

where I didn’t even want to eat, which was a big deal for me. It’s amazing

how closely linked my symptoms are to what I eat… often experiencing

symptoms within a minute if I’ve eaten something on my no-no list.

While the diet helped control many of my symptoms, others grew worse, and I

eventually had to seek a steroid treatment, and started Copaxone in 10/09.

It was okay, did help, but not what I really wanted for the long-term. In

4/10, I started LDN (low-dose naltrexone). I call it my non-drug

wonder-drug… as it started helping me feel better immediately.

I continually improved and was very excited when my neuro agreed to let me

to discontinue the Copaxone this past October. I have been doing really

well, but not so much the past few weeks. I have been looking into

alternative ways to treat relapses and have success with increasing my

antioxidants in the past. However, I am really interested in seeing what

other people are doing to successfully treat their MS… and incorporate what

I can. I have two small children and need to feel better. I need a boost…

and I REALLY do not want to go back on any medication.

Thanks,

)

*

*

[Guest guest]

Hi

It's nice to meet you

I don't know if anyone has suggested it to you yet, but the Bet Bet Diet has

helped me beyond belief!!

You'll find a good run-down on it at: www.msrc.co.uk or www.direct-ms.org

It can be tough but I have found it to make SUCH a difference in MY life - as

well as the suggested supplements.

I also do a full body detox every 3-6 months which I get from

www.bluestarnaturals.com.

I'm sure you'l find so much though the group which will help you -it has been a

godsend for me.

I really hope it will be of the same help to you too!

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

> ---------- Forwarded message ----------

>

> Date: Sat, Jan 22, 2011 at 3:33 PM

> Subject: RE: Yahoo! Groups: Welcome to mscured. Visit today!

> To: mscured Moderator <mscured-owner >

>

>

> Hi,

>

>

>

> I was dx with MS in 2008, shortly after my daughter was born. Because she

> was so young, it was really important to me to be able to continue nursing

> her.

[Guest guest]

Hi

It's nice to meet you

I don't know if anyone has suggested it to you yet, but the Bet Bet Diet has

helped me beyond belief!!

You'll find a good run-down on it at: www.msrc.co.uk or www.direct-ms.org

It can be tough but I have found it to make SUCH a difference in MY life - as

well as the suggested supplements.

I also do a full body detox every 3-6 months which I get from

www.bluestarnaturals.com.

I'm sure you'l find so much though the group which will help you -it has been a

godsend for me.

I really hope it will be of the same help to you too!

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

> ---------- Forwarded message ----------

>

> Date: Sat, Jan 22, 2011 at 3:33 PM

> Subject: RE: Yahoo! Groups: Welcome to mscured. Visit today!

> To: mscured Moderator <mscured-owner >

>

>

> Hi,

>

>

>

> I was dx with MS in 2008, shortly after my daughter was born. Because she

> was so young, it was really important to me to be able to continue nursing

> her.