Re: Fwd: Yahoo! Groups: Welcome to mscured. Visit today!

[Guest guest]

when you crave chocolate your magnesium count is down

Walgreen's has Cod Liver Oil for 8.99 a bottle - one tsp of cod liver oil is

all

you need for Vitamen D

sun and MS don't work - we do not have internal thermostats - too much sun can

be dangerous for us

 God, grant me the strength of eagles wings,

the faith and courage to fly to new heights,

and the wisdom to rely on his spirit to carry me there.

________________________________

To: mscured <mscured >

Sent: Thu, September 16, 2010 10:16:07 AM

Subject: Fwd: Yahoo! Groups: Welcome to mscured. Visit today!

 

from a new member..

---------- Forwarded message ----------

Date: Tue, Sep 14, 2010 at 11:33 PM

Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today!

To: mscured Moderator <mscured-owner >

Hi,

Thanks for accepting me into the group. I look forward to learning a lot!!

My name is and I was just diagnosed with MS in June and it was

confirmed on Sept. 2nd. The doctor asked me which medication I would like

to take, however, after reading up on the drug, and ms in general, I have

decided to tackle this naturally. I have been seeing a holistic doctor,

consistently, for a few months. I also started on the Best Bet Diet and I

am about 85% fully on the diet. Ranch dressing and chocolate still get me,

but not as much as they used to. I started taking Vitamin D and other

recommended supplements and teas. I started exercising more, but not nearly

enough. After all these changes I feel pretty good. Most of the symptoms

from this attack have gone away. My legs feel like they have been on a jack

hammer forever when I walk sometimes. However, I have found that it goes

away if I continue walking.

So I am new to the group and still learning. Any advise, stories, or

knowledge is greatly appreciated. Thanks for listening to my story. I look

forward to meeting everyone.

[Guest guest]

> Thanks for accepting me into the group. I look forward to learning a lot!!

> My name is and I was just diagnosed with MS in June and it was

> confirmed on Sept. 2nd.

*waves* Hi ! Good to see you here.

Crystal

[Guest guest]

>

>

> > Thanks for accepting me into the group. I look forward to learning a

> lot!!

> > My name is and I was just diagnosed with MS in June and it was

> > confirmed on Sept. 2nd.

>

> *waves* Hi ! Good to see you here.

>

> Crystal

>

>

>

--

Yvette

Freelance Writer

www.msquill.com

Omaha Natural Health Examiner

http://www.examiner.com/x-16397-Omaha-Natural-Health-Examiner

****

" The doctor of the future will give no medicine but will interest his

patients in the care of human frame, in diet, and in the cause and

prevention disease. " Alva Edison

[Guest guest]

Hey Crystal!!!!

Thanks for the link. I finally know exactly what I am going to do!!!

Subject: Re: Fwd: Yahoo! Groups: Welcome to mscured. Visit today!

To: mscured

Date: Thursday, September 16, 2010, 2:09 PM

 

> Thanks for accepting me into the group. I look forward to learning a

lot!!

> My name is and I was just diagnosed with MS in June and it was

> confirmed on Sept. 2nd.

*waves* Hi ! Good to see you here.

Crystal

[Guest guest]

Hey Crystal!!!!

Thanks for the link. I finally know exactly what I am going to do!!!

Subject: Re: Fwd: Yahoo! Groups: Welcome to mscured. Visit today!

To: mscured

Date: Thursday, September 16, 2010, 2:09 PM

 

> Thanks for accepting me into the group. I look forward to learning a

lot!!

> My name is and I was just diagnosed with MS in June and it was

> confirmed on Sept. 2nd.

*waves* Hi ! Good to see you here.

Crystal

[Guest guest]

Hi and welcome.

With so many MS/similar problems in your familyy I would suspect CCSVI. (This

is my latest thing, so excuse me!) As you have insurance see if they will test

it for you, or for any of your family.

Janet

To: mscured

From: atlanteanproductions@...

Date: Mon, 7 Feb 2011 18:34:43 -0600

Subject: Fwd: Yahoo! Groups: Welcome to mscured. Visit today!

new member

---------- Forwarded message ----------

Date: Sun, Feb 6, 2011 at 9:37 PM

Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today!

To: mscured Moderator <mscured-owner >

Hi,

I am Dawn Schaller, a 49 year old woman married woman with a 13 year old

daughter.

My family is suspected, but not yet confirmed to have a mito disorder (my

guess is MELAS). After having various weird neurological and autonomic

issues that have come and gone (or stayed) since my teens, I have had

memory, executive function, pain, burning, numbness, and other nerve

problems that have popped up recently, so my doctor sent me to a neurologist

for evaluation/testing for MS. All my tests came up positive for MS, but the

doctor says that my mild neurological symptoms don't fit how severe some of

the test results were. My spinal tap and blood test results showed 8

oligoclonal bands in spinal fluid and none in blood.

My mom had ADD and learning disabilities, and was diagnosed with multiple

sclerosis about 8 or 10 years ago, but her neurologist also says her MS is

non-standard. My sister has had optic neuritis eight times (but not

officially diagnosed with MS because she cannot have an MRI), hypoglycemia,

and several other neurological issues. Her son has sensory issues, intense

ADHD, and Asperger's Syndrome. My brother has had drug resistant depression

since he was in elementary school, optic neuritis (tested for MS, but can't

have an MRI and other testing was inconclusive), lots of nerve issues, ADD,

and small fiber neuropathy. I suspect he has Asperger's syndrome also, but

not diagnosed. My aunt had ADD and learning disabilities, and has had

hypoglycemia her entire life. She has five daughters, a son, and 10

grandchildren from her daughters. Most of her children and grandchildren

(even the kids) have ADD and drug resistant depression. Her son has POTS.

Three daughter have chronic pain syndromes that won't clear. One daughter

has Scleroderma, Raynaud's, and Sjogrens. Her 22 year old daughter has

Lupus Nephritis and her son has Asperger's Syndrome. Two of my mother's

male cousins also had MS (since deceased).

My 13 year old daughter had had multiple chronic health issues since she was

born and still has sensory issues, ADD, nonverbal learning disability, and

hypoglycemia. She has had severe health deterioration since she entered

puberty six months ago - depression; wild mood swings; uncontrolled anger;

anxiety; need for 10 - 12 hours of sleep per day; her hormones are messed up

because her periods have gone from 3 28 day " normal " cycles, to 8 days of

basically hemorrhaging (unable to go to school), followed by 3 days of

spotting, to 24 days of spotting after a 60 day cycle; inability to focus;

grades dropped two grade levels; and she developed a severe case of POTS

(pulse goes up 50 points when she stands up). A year before all that started

last July, she developed gross hematuria without protein when she was really

active, which seems to have calmed down. She also had a mildly positive ANA

test result that the kidney doctor said wasn't anything to worry about 18

months ago. She has now developed microhematuria still without protein, so

her kidney specialist is not tremendously concerned. He could do a kidney

biopsy, but he said that is tremendously invasive, painful, and expensive,

so he is not inclined to push it unless things get much worse in the kidney

arena.

The more I am looking into non-MS causes for my CSF oligoclonal band test

results, the more I am seeing the possibility of Lupus, rather than MS, both

for me and possibly for my daughter.

At the request of my MS specialist (neurologist) who has no idea what is

causing my strange test results, I am working with my insurance co to get

approval to see two doctors at the Cleveland Clinic - an MS specialist and a

neurologist who is like a " Dr. House " . The " Dr. House " type doctor is also

supposedly a specialist in mito and MS (although not Lupus), so I hope I can

get some answers there.