Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 I was treated by Prof Vogl in August. While I know that some people do have success there, I believe I was undertreated and typical of many European doctors, I believe there is a discounting of possible flow irregularities in the azygos vein. If it would be truly blocked, they would find and treat it but Dr Zamboni has also commented that many doctors in western Europe just aren't finding azygos issues. Prof Vogl expected me to get less fatigue and improved mental clarity, which I did but I would also like improved bladder function and mobility. I plan to try again elsewhere where there is a greater focus on webs and flow irregularities in the azygos, and diagnostic ballooning. I'm glad I got any improvement at all, but I do believe I can get more. There are people on thisms.com that have gone to furt. We are at the beginning of this and the doctors have to learn how to best treat us and some of our problems are hard to find. Restenosis, elastic recoil and intimal hyperplasia occur and they need to have strategies to best deal with them. I don't think it is a one time fix for most patients although perhaps with good diet....who knows > > Has anyone on this list had the CCSVI procedure done in furt, Germany? If so, what were your experiences? >  > Thanks, Sheila > > > > > > > > MARKETPLACE > > > Get great advice about dogs and cats. Visit the Dog & Cat Answers Center. > > > > Hobbies & Activities Zone: Find others who share your passions! Explore new interests. > > > > Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now. > > Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use > > > . > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2011 Report Share Posted February 28, 2011 > > CCSVI... > What else is out there? > > It depends on the individual. > I had treatment 4 months ago (today) and am till seeing improvements every week. Re CCSVI, I am truly happy for the great results you had, truly I am, but I think it is important to recall that there are a lot of other recovery stories out there of people who used treatments other than CCSVI. Just to name a few--Terry Wahls (nutrition and elec stim), Kathy Simpson (hormones), Ann Boroch (candida cleansing), Kopera (fasting and organ cleansing), Yvette (diet and supplements), Albright (using the mind over her body), Elaine Delack (Prokarin), Grace (raw food), Ken Presner (amalgam removal, chelation and zapper), Sue Ellen Dickinson (colon, liver cleaning, diet and suppplements, Dudley Delaney (Cayce method); Kathy L (7-year Nieper iv eap protocol), Jelinek (diet and supplements), Dermot O conner (use of mind techniques), and more. I have probably read well over 100 stories of people who improved with time after their MS diagnosis thrugh a variety of methods. Also countless stories of people having great improvement, even long-term remission with BBD, LDN, Nieper's 7-year EAP injection program, stem cell therapy, cervical spine adjustments, Klenner, Prokarin, bee sting, acupuncture, Swank diet, etc. and often a combination of thing. .... Of course none of these help everyone, but CCSVI does not help everyone either. It is still trial and error, hit or miss--as we can see anecdotally. I am still on the fence about CCSVI myself. I am not putting it down. I am even considering it myself. I just think it is one of many options. And I am concerned that the long-term effects are unknown. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Thanks for listing the potential cures. It is good to see them all in one place. I have tried the majority of them but whilst the BBD has helped, nothing else has (until this). CCSVI has never been seen as a cure. It " helps " , some people in big ways, probably removing a set of symptoms that might never have been MS in the first place but CCSVI. The same as amalgam removal helps some people who may have had mercury toxicity or their bodies are overly sensitive to mercury. No, no one knows the long-term effects of CCSVI treatment but presumably as something in the body is corrected, removing/reducing CCSVI, it has to be a healthier option than leaving the body with whatever venous problem one has. Janet To: mscured From: alansamston@... >--Terry Wahls (nutrition and elec stim), Kathy Simpson (hormones), Ann Boroch (candida cleansing), Kopera (fasting and organ cleansing), Yvette (diet and supplements), Albright (using the mind over her body), .... I am still on the fence about CCSVI myself. I am not putting it down. I am even considering it myself. I just think it is one of many options. And I am concerned that the long-term effects are unknown. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2011 Report Share Posted March 5, 2011 Great Janet! I could not have heard better. A miracle cure is a bit over the top and " it doesn't work " is too disappointing. Your explanation is beleivable and encouraging. I am scheduled for MRV and possibly CCSVI. Thank you and best wishes. -Tim > > > Thanks for listing the potential cures. It is good to see them all in one place. I have tried the majority of them but whilst the BBD has helped, nothing else has (until this). > > CCSVI has never been seen as a cure. It " helps " , some people in big ways, probably removing a set of symptoms that might never have been MS in the first place but CCSVI. The same as amalgam removal helps some people who may have had mercury toxicity or their bodies are overly sensitive to mercury. > No, no one knows the long-term effects of CCSVI treatment but presumably as something in the body is corrected, removing/reducing CCSVI, it has to be a healthier option than leaving the body with whatever venous problem one has. > Janet > > > > > > To: mscured > From: alansamston@... > > > >--Terry Wahls (nutrition and elec stim), Kathy Simpson (hormones), Ann Boroch (candida cleansing), Kopera (fasting and organ cleansing), Yvette (diet and supplements), Albright (using the mind over her body), ..... > I am still on the fence about CCSVI myself. I am not putting it down. I am even considering it myself. I just think it is one of many options. And I am concerned that the long-term effects are unknown. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Janet, this is great advise with everything in life! Expect nothing and life WILL be a miracle! Love it... Bianca Connected by DROID on Verizon Wireless Re: CCSVI furt Great Janet! I could not have heard better. A miracle cure is a bit over the top and " it doesn't work " is too disappointing. Your explanation is beleivable and encouraging. I am scheduled for MRV and possibly CCSVI. Thank you and best wishes. -Tim Quote Link to comment Share on other sites More sharing options...
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