Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 I have a friend from Madrid who has (last week). Initially he felt brilliant but within a day he felt he had restenosed. I would have thought that is more to do with the individual than the place. No other feedback so far I am afraid. Janet To: mscured From: sheilat252002@... Date: Tue, 15 Feb 2011 11:51:56 +0000 Subject: CCSVI furt Has anyone on this list had the CCSVI procedure done in furt, Germany? If so, what were your experiences? Thanks, Sheila MARKETPLACE Get great advice about dogs and cats. Visit the Dog & Cat Answers Center. Hobbies & Activities Zone: Find others who share your passions! Explore new interests. Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now. Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 I was treated by Prof Vogl in August. While I know that some people do have success there, I believe I was undertreated and typical of many European doctors, I believe there is a discounting of possible flow irregularities in the azygos vein. If it would be truly blocked, they would find and treat it but Dr Zamboni has also commented that many doctors in western Europe just aren't finding azygos issues. Prof Vogl expected me to get less fatigue and improved mental clarity, which I did but I would also like improved bladder function and mobility. I plan to try again elsewhere where there is a greater focus on webs and flow irregularities in the azygos, and diagnostic ballooning. I'm glad I got any improvement at all, but I do believe I can get more. There are people on thisms.com that have gone to furt. We are at the beginning of this and the doctors have to learn how to best treat us and some of our problems are hard to find. Restenosis, elastic recoil and intimal hyperplasia occur and they need to have strategies to best deal with them. I don't think it is a one time fix for most patients although perhaps with good diet....who knows > > Has anyone on this list had the CCSVI procedure done in furt, Germany? If so, what were your experiences? >  > Thanks, Sheila > > > > > > > > MARKETPLACE > > > Get great advice about dogs and cats. Visit the Dog & Cat Answers Center. > > > > Hobbies & Activities Zone: Find others who share your passions! Explore new interests. > > > > Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now. > > Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use > > > . > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2011 Report Share Posted February 17, 2011 2 hours away - how awesome! Yes you are right, it was Poland (Ameds) back in October. I am feeling GREAT. I am still in a wheelchair but can do a few steps with the walker in the house. I went from 30 steps to 16 today which might sound like a reversal but it is in fact a great improvement as it covers the same distance and my steps have got longer and more assured. Every day I am still seeing improvements. Good luck next week. Janet --------------------------- Subject: RE: CCSVI furt Janet, Thank you. I have made an appointment for the tests next week and will go from there once I find out if it even applies to me. You had this done in Poland, correct? How are you feeling now? Since I only live two hours away from furt, hard to pass up the closer option. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2011 Report Share Posted February 28, 2011 What else is out there? It depends on the individual. I had treatment 4 months ago (today) and am till seeing improvements every week. They have slowed down but they still happen. The first two months saw major improvements with everything other than mobility. I am still on the ascendancy. The distance that it took me to do 30 steps with my walker now takes only 16 steps. I can balance holding the walker with one hand rather than 2. Every day there are others - like hand sewing the other day that I didn't even do any more. Without thinking I just picked up some mending and did it then afterwards thought - wow! Before I could never thread a needle, use a needle, would always stick pins in my fingers, and couldn't see what I was doing anyway or match the thread with the colour of the mending. Janet To: mscured ; MSersLife It seems that this ccsvi treatment is not all that we had hoped it would be. I have read many reports that say some improvement the first day or so but within a few days or so most are back to where they were.. Regards, Tom Bayuk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2011 Report Share Posted February 28, 2011 I am getting the same impression Tom. I am being scheduled for the treatment in April or May but am having some second thoughts. The more testimonials seem to be from those saying they had no improvement or that the improvement was quite temporary. In a few cases I read people got much worse--which is scary. On the other hand, those who have improved moderately or dramatically are very compelling, and this remains a very confusing issue. I probably won't move forward, as there are too many unknowns and this seems to be coming to a hit-or-miss treatment at this point, much like other treatments such as LDN or Cal EAP or stem cell therapy. ________________________________ To: mscured ; MSersLife Sent: Wed, February 16, 2011 11:51:08 AM Subject: Fw: CCSVI furt It seems that this ccsvi treatment is not all that we had hoped it would be. I have read many reports that say some improvement the first day or so but within a few days or so most are back to where they were.. Regards, Tom Bayuk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Just to mention, I'm not sure I listed " all " the potential healing methods in my previous post--just the ones that came to mind. I have read so many different healing stories, and of course also many stories of people getting worse, sometimes despite great efforts to heal. I have heard of people going 10 years in between attacks without any interventions (natural or alternative and I personally know one lady who has had MS for 25 years and the only symptoms she has is minor fatigue and urinary urgency and the only treatment she does is acupuncture 2x per month and takes a multivitamin....I just read one unusual story today. A woman diagnosed with MS had one severe attack in 1974 and another severe attack in 1978. Each time she was treated with steroids and drugs and each time she went into complete remission and she has been in remission ever since 1978, even though she does not do any special diet or any other modalities! She did, however in 2009 get into a car accident that left her with dizziness and a couple other symptoms but has greatly improved that with chriropractics.....I was just kind of shocked to read a story of someone in remission from 1978 to 2009 (31 years) without doing anything at all to improve her health during those 31 years (no drugs during that time, nor any natural or alternative treatments, nothing)....As is often said, every case is different with this illness. That's for sure. ________________________________ To: MS-Cured <mscured > Sent: Tue, March 1, 2011 1:54:09 PM Subject: RE: Re: CCSVI furt Thanks for listing the potential cures. It is good to see them all in one place. I have tried the majority of them but whilst the BBD has helped, nothing else has (until this). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2011 Report Share Posted March 6, 2011 Good luck Tim! Go in expecting a miracle and you will probably be disappointed. Go in expecting nothing, and you will get a miracle! Janet To: mscured From: tloftus@... Date: Sun, 6 Mar 2011 02:57:00 +0000 Subject: Re: CCSVI furt Great Janet! I could not have heard better. A miracle cure is a bit over the top and " it doesn't work " is too disappointing. Your explanation is beleivable and encouraging. I am scheduled for MRV and possibly CCSVI. Thank you and best wishes. -Tim Quote Link to comment Share on other sites More sharing options...
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