Re: New Here

[Guest guest]

Hello,

I live in Australia and was only recently diagnosed with Diabetes

II. I have apparently had it for over 30 years, so it has done its

fair share of damage, but the worst thing for me to cope with is not

being able to exercise or move around, due to the fact that I also

have Meniere's Disease (ears - imbalance) and can have a 'drop

attack' very easily.

Overweight is therefore a real issue for me.

I look forward to becoming part of this group and learning and

sharing.

Peace and Love,

Pema

" There are only two ways to live your life. One is as though nothing

is a miracle. The other is as though everything is a miracle. " -

Albert Einstein (1879-1955)

[Guest guest]

Barbara wrote:

> Is it possible that you could do water exercise? I find that

working out in the YMCA swimming pool has been very effective for

me, & really gets my BG down.

**Pema: We don't have a pool and my imbalance is so severe that I

can't travel in a vehicle. We live quite near the ocean, but I

can't get to it - only 5 mins. away by car.

> With the Meniere's disease, you might find it fairly comfortable

to move in shallow water--doesn't hurt if you fall.

**Pema: It's not the hurt so much as the after effects and 'coming

down' from a drop attack.

Thank you for welcoming me.

Peace and Love,

Pema

" There are only two ways to live your life. One is as though nothing

is a miracle. The other is as though everything is a miracle. " -

Albert Einstein (1879-1955)

[Guest guest]

What about hand weights? You can do the exercises with them while sitting in a

chair.

Re: New Here

Barbara wrote:

> Is it possible that you could do water exercise? I find that

working out in the YMCA swimming pool has been very effective for

me, & really gets my BG down.

**Pema: We don't have a pool and my imbalance is so severe that I

can't travel in a vehicle. We live quite near the ocean, but I

can't get to it - only 5 mins. away by car.

> With the Meniere's disease, you might find it fairly comfortable

to move in shallow water--doesn't hurt if you fall.

**Pema: It's not the hurt so much as the after effects and 'coming

down' from a drop attack.

Thank you for welcoming me.

Peace and Love,

Pema

" There are only two ways to live your life. One is as though nothing

is a miracle. The other is as though everything is a miracle. " -

Albert Einstein (1879-1955)

Diabetes homepage: http://groups.yahoo.com/group/diabetes/

To unsubscribe to this group, send an email to:

diabetes-unsubscribe

Hope you come back soon!

_____

[Guest guest]

Welcome to our cozy little group, ! I, too, seem to have had FM

symptoms back to early years, with no diagnosis except for " it's all in

your head " until just recently.

Take care & have a pain-free day.

D.

On Thu, 14 Sep 2006 14:20:57 -0700, fishguys2003

wrote:

> Hi there, I just thought I would take a few minutes to introduce myself.

>

> I am 31 and suffer from Fibromyalgia. I have been diagnosed for about

> 3 years but it is believed that I have had Fibro my whole life as

> symptoms can be traced as early as 3 years old after a very bad bout

> with Mono. I had all sorts of symptoms through my life and they have

> progressively gotten worse. After gallbladder surgery 2.5 years ago

> is when I have started this most recent " phase " of my illness which is

> definitly getting worse.

>

> I went through a lot of testing, misdiagnosis and doctors giving me

> the old " it's all in your head " theory through my childhood, teens and

> adult years.

>

> My mother (not biological) has FM as well and has had her diagnosis

> for 22 years.

>

> I have been married 2.5 years to a great guy who is very understanding

> of my limitations and is very supportive. Our 2 best friends also

> live with us and are very supportive (they supported us financially

> while hubby finished school)

>

> I do not work anymore and haven't since my surgery. There is no way

> for me to hold down a job. I used to work full time and run my own

> aquarium business.

>

> I try and contribute to the family but I often feel like I need to do

> more. I mostly go from bed to couch every day with the occaisional

> outing to the store or for groceries I can't get online.

>

> That's about all I can think of to say right now (fighting a cold) but

> I will be happy to answer any questions posed.

>

>

>

>

>

>

[Guest guest]

>

> Hi there, I just thought I would take a few minutes to introduce

myself.

>

> I am 31 and suffer from Fibromyalgia. I have been diagnosed for

about

> 3 years but it is believed that I have had Fibro my whole life as

> symptoms can be traced as early as 3 years old after a very bad bout

> with Mono. I had all sorts of symptoms through my life and they have

> progressively gotten worse. After gallbladder surgery 2.5 years ago

> is when I have started this most recent " phase " of my illness which

is

> definitly getting worse.

>

> I went through a lot of testing, misdiagnosis and doctors giving me

> the old " it's all in your head " theory through my childhood, teens

and

> adult years.

>

> My mother (not biological) has FM as well and has had her diagnosis

> for 22 years.

>

> I have been married 2.5 years to a great guy who is very

understanding

> of my limitations and is very supportive. Our 2 best friends also

> live with us and are very supportive (they supported us financially

> while hubby finished school)

>

> I do not work anymore and haven't since my surgery. There is no way

> for me to hold down a job. I used to work full time and run my own

> aquarium business.

>

> I try and contribute to the family but I often feel like I need to

do

> more. I mostly go from bed to couch every day with the occaisional

> outing to the store or for groceries I can't get online.

>

> That's about all I can think of to say right now (fighting a cold)

but

> I will be happy to answer any questions posed.

>

>

>

Welcome !

Looks like we both joined today. Was rather surprised when I read

that you had Fibro probably going back to you childhood. I did also.

I remember as a child complaining about muscle aches and pains and

flu like symptoms. Muscle like chest pains that reoccurred. Drs.

always telling my parents that it was " all in my head " . Later as a

teen I had a " cousin " to mono every single winter. Not exactly mono

but a " cousin " to it. I was a slow healer, for everything. All of

this continued throughout my life until finally when I hit my 34th

year I had three multiple surgeries within a 15 hour period, team of

14 doctors and was in ICU for 10 days. Three year recovery of which I

never recovered from fully. They couldn't figure out why I was in

such horrific pain!! All the while it remained " all in my head " . It

wasn't until 7 yr. later my son brought a girl home to meet the

family who had a youger sister with Fibromyalgia. It sounded an awful

lot like me. Took my findings to 3 different drs. who all said " Why

didn't I think of that " . Yeah, why didn't they?!

~ (or Jenn *middle name* whatever you feel like calling me LOL.

I answer to anything. Hee Hee)

[Guest guest]

Hi ,

Let me say welcome to this great group, too! It is a very nice one

to belong to. I have been a member about 2 months now.

Like you, I do have fibromyalgia and had my gall bladder taken out

in 1993. My symptoms seem to get worse after thyroid surgery last

year. I was first told I had it in 1992. Before that several doctors

told me the same thing that is was pyschological. One called

it " waste basket " diagnosis.

My husband and I have been married 16 years and he is wonderful

supportive one, too. Because of my health problems I can't work full

time either so I don't work at all.

It will be nice for you to help answer questions. They are

encouraged. Venting sometimes is ok, too. Looking forward to knowing

you better.

hugs,

Debbie J

[Guest guest]

What meds are good for MS?  What type of things are you doing naturally?  I

have

already been on the diet for several months and still have so much pain.  I

feel

as if I could make the pain easy up in my legs I would actually feel alot

better.  The electricty feeling I have is sooooo painful.

Tonia

 

________________________________

To: mscured

Sent: Sat, September 11, 2010 1:59:07 PM

Subject: Re: New Here

 

Wecome.  Im sorry you are in need of such a group but you will find support and

good info here.

 

You can still have MS even with a clean MRI.  This is my case.  My EPT test

and

LP came back abnormal and they diagnosed me. 

 

I have the pain too...or at least I did have it severly before I went on MS

meds.  I am coming off the MS meds and doing things naturally.  It sounds as

if

your diet is a good one.  I stopped eatling grains and gluten and eat mainly

raw

fruit and veggies. I see an imporvement in my MS symptoms.  If I cheat and eat

breads just a little, I pay for it. 

 

A lot of people here will tell you to try LDN  but thats hard to come by in the

US.  My dr wont even hear of it. 

 

Subject: New Here

To: mscured

Date: Saturday, September 11, 2010, 1:56 PM

 

Hi there,

I am fairly new to the group. I joined a few weeks ago, but have been trying to

figure out actually if I have MS or not yet. I have some doctors that say yes I

most likely have this, however the neurologist says absolutely NOT since my

brain MRI has come back normal in March. He just did some more lab work, EEG and

another MRI on my back and my primary doctor is still not convienced with this

specialists findings and is sending me for another MRI for a lower lumbar to

check the nerves now he says since only the bones in my back where checked so

far.

I am falling all the time and my legs are in major pain. It is so hard to

explain the feelings that I have as they are so sever I am in so much pain on

the backs of my legs. Hard to even have clothing touch my skin let alone

anything else.

I am on a gluten free, casein free, soy free diet. Have been on all types of

supplements. I do have thyroid issues which are being addressed and have been

improving greatly. I have been put in all types of thearpy but have had to stop

it all due to it making me worse and me falling even more.

I don't know what to do any more. I am getting depressed due to the pain as I

just can't function very well. I also have three young children still at home to

care for.

Any suggestions or advice would be greatly appreciated.

Tonia

[Guest guest]

Hi,

Welcome to the group!

Here is a website you may find helpful if you have MS:

http://tinyurl.com/advice-to-msers

With best wishes,

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

Hi Tonia

Good to have you here.

Have you looked into LDN (low dose naltrexone)? I have found that it has helped

my pain beyond measure!

How are you finding the Diet in regards to how you're feeling? Is 'the Diet' the

Best Bet Diet'? Are you also taking the recommended supplements too? I found

that the combination of sticking to the diet religiously and taking the

supplements REALLY helped me!!

Hope that helps!

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: theinz1966@...

Date: Sun, 12 Sep 2010 21:16:51 -0700

Subject: Re: New Here

What meds are good for MS? What type of things are you doing naturally?