Re: orencia infusions

[Guest guest]

I am on Orencia and have been for about 2 years now. I have had no side effects

at all on the day of infusion and I regularly go driving/shopping afterwards for

several hours. The first time I didn't know how it would affect me so I had my

Mom go with me in case I needed her to drive me home. So, yes, if it will make

you more comfortable then he goes with you. That will remove that worry. My only

side effect is the day AFTER the infusion I feel like I've been hit by a Mack

truck so I make plans to sleep the next day then I'm fine.

It has stopped working for me so April was my last infusion for Orencia. They

have quite a few patients on Orencia and I'm one of 3 that it has stopped

helping.

Best wishes for your treatment! I hope it works very well for you!

Dalanne

Leafy-n-breezy east central Illinois

>

> i'm 58 years old had ra for 25 years. my ra doctor wants me to start

> orencia.need some info.how were  you after your first infusion.any side

effects

> to look out for, were you able to drive afterwards or should i have my husband

> come with me.any info will be helpful

>  

> thanks ann

>

>

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[Guest guest]

i tried to compose new e-mail won't go through

my name is ann had ra for 25 years. my doctor wants me to start orencia

need some info.any side effects after first infusion, can you drive home alone

or need someone with you any info will help, also  i have ut infection

being treated for it for some time now. ra doctor says i can start orencia

even if my ut infection is not cleared up.i think  the infection should be

cleared

up first.any answers will be helpful

 

thanks

ann

From: Mimi <mimi212@...>

Subject: [ ] Re: Hello Everyone

Date: Tuesday, April 20, 2010, 10:54 AM

 

Hi Barbara!! So sorry to hear about that nodule on your foot. Praying it isn't

infected and the surgery will be quick, simple and you're back on your feet

soon.

I've not posted here very often either, but do read the posts. I wish you all

the best in the days ahead. May God guide the surgeon's hands and that you have

a quick and speedy recovery.... . Doreen

Just wanted to say hi and tell you what is going on with me. As most of you

know, my RA has hit me the hardest in my feet. Well, I have a large RA nodule on

the outside of my right foot just at the arch. Needless to say, it has gotten

much bigger and is quite painful. I saw my Rheumy and then my foot dr. I am also

going for a MRI to make sure it is not infected. I will be having surgery soon

to remove the nodule. I was so hoping my surgery days were all over, but I guess

not. I am in so much pain and I can just about stand on my foot. I am taking RX

pain meds. and off my feet most days.

I do read all the posts each day. I haven't talked with Tawny in awhile, but I

will call her and see how she is doing.

I am still dealing with my divorce, and it is just so painful. Dealing with a

broken heart has been just awful. I am still taking one day at a time as that is

all I can really handle.

I hope everyone here is doing better, and I wish you all pain free days ahead.

My RA is still good, thank God. Much love to all of you.

Hugs,

Barbara

[Guest guest]

When I started on Orencia I was told that it would take around 2-3 months for

the full effect. I experienced improvement within 2 months. Of course it isn't

working as well for me now but look up 's Law in any dictionary and my

picture will be there with the definition.

I hope it works well for you much much longer than it did for me.

Dalanne

Breezy Chilly East Central Illinois

>

> had my first infusion of orencia yesterday.no bad side effects,i have a minor

> sore throat today. does any one know how long it takes to start working

> i go back in two weeks for second infusion, then i go once a month.

> hope every one is feeling well.

>  

> ann nj

>