Re: Inflammatory arthritis with chronic urticaria/

[Guest guest]

Hi Joy

Sorry just doing a search about RF and found this!

Glad to hear you've been given the opportunity to try this - but gee

this post was in Oct so i'm wondering how you're going.... Sorry I

don't always get to read everything and my sister was staying around

that time so I probably was just trying to keep up with my 5 yo

niece! lol

Personally I noticed a change within the 1st 2 weeks of using Doxy.

It wasn't all good lol I was in the pic theatre and my feet and

ankles swelled up so much I took my boots off and then couldn't get

them back on! lol I must say it was relatively painless just more

uncomfortable.

Then it was all uphill from there.

Love to hear your experience!

>

> I just started on doxycylcine last week. Can you tell me

about how long it takes

> before you see relief? I also had rheumatic fever twice as a child.

But no heart damage

> thank goodness.

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> Joy

>

> --- On Thu, 10/2/08, blondewbrains1971 <blondewbrains1971@...>

wrote:

>

> From: blondewbrains1971 <blondewbrains1971@...>

> Subject: [ ] Re: Inflammatory arthritis with chronic

urticaria

>

> Date: Thursday, October 2, 2008, 11:59 PM

>

>

> Hi Jen

>

> If you're given the opportunity to try the Minocin and you're happy

> with what you know about it i'd definately say go for it!!

>

> I used Doxycycline for 6-7 years. I'm in Australia and as yet we

> stil haven't approved it as a DMARD (craziness!). They were happy

to

> give me Gold upfront 14 years ago (when swimming seemed to clear up

> my first swollen joint a knee) - it just does not make sense!!

>

> It's difficult to say what results you actually get from something

as

> there is nothing to compare it to whilst your taking the drugs and

we

> all know what a rollercoaster RA can be - if that makes sense. I

> definately got through a long period of time just using the Doxy

and

> some Voltaran on occasion for many years - I often had periods of

> remission in between also so I took nothing when I could.

>

> My personal experience was very positive with no ill side affects

> aside from a very tanned skin without much sun exposure. I used the

> odd Diflucan capsule when I felt a little low and it seemed to

clear

> up any signs of thrush but we're all different. A lot of docs seem

to

> think that as long as we're not constantly changing our stomach

flora

> this shouldnt be a problem - it's when we change it that thrush can

> go wild.

>

> The minocin is an altered drug from the original antibiotics used

> over the past 80 years by Dr Brown and his followers so i'm not as

> big a fan of it as I personally believe there is an infectious

> element to some arthritis and some of these parts of the drug have

> been removed. I used Euromycin also and also had good results with

> it when the Doxy seemed to be loosing it's affects.

>

> If nothing else it's been proven over and over again to reduce the

> production of destructive cytokines.

>

> If you have a good PC or Rheumy who is interested in this it would

> also help you i'm sure no end - especially if they agreed to

> intravenous etc as well as following you completely in the

treatment -

> ie checking your ASOT's etc prior to starting etc.

>

> The www.roadback.org has some interesting articles as does the book

> of the same name - it's been rewritten a few times. When I came

> across it in a library 10 years ago I think it was something

amazing

> and total luck!

>

> Unfortunately about 12 months ago I agreed to go onto Arava and

> Methatrexate as the Salazopyrin i'd been on with the Doxy and

> Voltaren weren't giving me relief after a flare started after i'd

had

> another episode of Rheumatic Fever which damaged my heart (from

Strep

> A-what the ASOT tests are for - tonsilitis) and I had x-ray

evidence

> of erosions in my hands and feet. There is nothing to say I

wouldn't

> have had these errosions if i'd started on the methotrexate earlier

> either - DMARDS are unfortunately just that - they modify the

disease

> not stop it.

>

> Since using the Methotrexate & Arava (only for 3 months) for about

6

> months though i've gone back to where I usually am with pain etc

and

> it seems the flare has finally stopped and I have stopped taking

them

> and the Salosopyrin and only rely on the Voltaren and Doxy when I

> need. So for me accepting the Methotrexate etc was obviously the

> right decision at that point even though at the time the idea

brought

> me to tears.

>

> I wish you the best of health and hope that if you decide to go the

> antibiotic route that you have the benefits I found with it.

>

> All I can say to people is don't poo poo it till you try it - if

it's

> not for you it's not but it's helped others so i'm sure will

> continue

> to - even if it can't help everyone, you might be one of the lucky

> ones.

>

> All the best

>

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