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Raynaud's

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I'm so sorry I'm not completely sure who it is whose daughter has Raynaud's.

Is it Martha's daughter Christy?

I was asking about this last year (can't remember but I BET it was about when

the cold weather started, most likely) because a few times all of a sudden

the bottom of 's feet turned deathly white, no color at all. It did not

bother her at all though. I mentioned it to the ped who discounted it pretty

much because her skin did not turn blue and red after and there was no

discomfort.

Well, in the past couple months every once in a while would make the

comment, " My feet hurt from walking " but it seemed such a far fetched comment

I paid it no mind. Then yesterday she was crying that her feet were tingling

and didn't feel right and sure enough, they were white as a corpse. When the

color returned she was complaining more (general loud whining), but when I

asked if they still bothered her or were they better she said they were

better (then why all the yelling, I wondered!??) and they did not seem overly

red.

This morning she wanted me to put lotion on her like me (I'm using bag balm

and cotton booties for my snagglefeet which are like loufahs with toes) and I

was massaging her feet and one foot (bottom) turned corpse-like and I had to

secretly slap it repeatedly to finally get some color back. She didn't

complain though.

So if it was not Martha, I apologize! But I was wondering what you do for

this besides try to keep the feet warmer. is one of those kids who runs

around NAKED even in winter, I have to goad her to even wear underwear. So

warm slippers might be tough. Even cute, fun ones, I already tried.

THANKS!!

(mom to Kate, born 9/19/02; and , age 3-3/4 -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs)

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  • 7 years later...

Raynauds " disease " is a hypothyroid symptom. I imagine iodine would work

for it. my symptoms completely disappeared on Armour.

Gracia

Kathy Barr wrote:

>

> Is anyone using iodine to treat Raynaud's? Your experience?

> Barr

> Traditional Naturopath and Health Educator

> Certified Doula, CBE, Monitrice

>

>

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I still have mine, unfortunately. I've been on Iodoral 50 (plus other

recommended supplements) for about two years.

JJ

> >

> > Is anyone using iodine to treat Raynaud's? Your experience?

> > Barr

> > Traditional Naturopath and Health Educator

> > Certified Doula, CBE, Monitrice

> >

> >

>

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then you need to do something different--maybe get thyroid meds.

gracia

cirrus4299 wrote:

>

> I still have mine, unfortunately. I've been on Iodoral 50 (plus other

> recommended supplements) for about two years.

>

> JJ

>

>

> > >

> > > Is anyone using iodine to treat Raynaud's? Your experience?

> > > Barr

> > > Traditional Naturopath and Health Educator

> > > Certified Doula, CBE, Monitrice

> > >

> > >

> >

>

>

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My MIL, who is under Dr. Brownstein’s care for the past 6 months,

has Reynaud’s, but is hyper, not hypo. She is taking 25mg iodine (that is all

he is telling her to take), and she had not seen any improvement in her Reynaud’s

yet. But I think there are a lot more things she is still doing that are adversely

affecting positive change. She has a myriad of problems, and is seeing some

progress, so that is encouraging, but would like to see more.

Donna in IL

From:

iodine [mailto:iodine ] On Behalf Of Gracia

Sent: Friday, November 13, 2009 8:38 AM

iodine

Subject: Re: Re: Raynaud's

then you need to do something different--maybe get thyroid

meds.

gracia

cirrus4299 wrote:

>

> I still have mine, unfortunately. I've been on Iodoral 50 (plus other

> recommended supplements) for about two years.

>

> JJ

>

>

> > >

> > > Is anyone using iodine to treat Raynaud's? Your experience?

> > > Barr

> > > Traditional Naturopath and Health Educator

> > > Certified Doula, CBE, Monitrice

> > >

> > >

> >

>

>

------------------------------------

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wow I don't understand that, b/c high iodine was once used to treat

hyperthyroidism. my TSH has always been low and I had a partial

thyroidectomy b/c of hyper and goiter

, and I take 100mg Iodoral. I would think she would need more iodine.

even on too low a dose of Armour, the Reynauds was gone.

Gracia

Donna Iler wrote:

>

> My MIL, who is under Dr. Brownstein’s care for the past 6 months, has

> Reynaud’s, but is hyper, not hypo. She is taking 25mg iodine (that is

> all he is telling her to take), and she had not seen any improvement

> in her Reynaud’s yet. But I think there are a lot more things she is

> still doing that are adversely affecting positive change. She has a

> myriad of problems, and is seeing some progress, so that is

> encouraging, but would like to see more.

>

> Donna in IL

>

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So is Iodoral NOT 'thyroid meds'?

Maybe not 'meds' but same as/or similar as in replacement for 'meds'?

> > > >

> > > > Is anyone using iodine to treat Raynaud's? Your experience?

> > > > Barr

> > > > Traditional Naturopath and Health Educator

> > > > Certified Doula, CBE, Monitrice

> > > >

> > > >

> > >

> >

> >

>

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Nothing for thyroid. I would like to try some OTC thyroid " supplement " to see if

that would make a difference, but have no idea what. Any suggestions? BTW I'm in

Canada and it's perfect time, winter is coming and also my Raynaud's symptoms.

I have to mention that Iodoral improved my fibrocystic breasts A LOT! I still

have small cysts, so maybe iodine/iodide is working on that first?

Thanks

JJ

> > >

> > > I still have mine, unfortunately. I've been on Iodoral 50 (plus other

> > > recommended supplements) for about two years.

> > >

> > > JJ

> > >

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in my experience OTC supplements don't work too well. maybe they help

a little. I tried Standard Process thyroid and adrenal stuff. are you

taking enough Iodoral?

Gracia

cirrus4299 wrote:

>

>

> Nothing for thyroid. I would like to try some OTC thyroid " supplement "

> to see if that would make a difference, but have no idea what. Any

> suggestions? BTW I'm in Canada and it's perfect time, winter is coming

> and also my Raynaud's symptoms.

>

> I have to mention that Iodoral improved my fibrocystic breasts A LOT!

> I still have small cysts, so maybe iodine/iodide is working on that first?

>

> Thanks

>

> JJ

>

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Iodoral is not thyroid meds--it is food that the thyroid gland can use

to make hormones. some ppl only need iodine alone and some ppl have to

add thyroid hormone to feel well. I need Armour 240mg and Iodoral

100mg, but doc removed half my thyroid gland (unnecessary surgery) and

then I was untreated for 30 years.

Gracia

ellisisland123 wrote:

>

>

> So is Iodoral NOT 'thyroid meds'?

> Maybe not 'meds' but same as/or similar as in replacement for 'meds'?

>

>

> ---

>

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  • 1 month later...
  • 3 weeks later...

Yes, I've had experience with LDN lessening the symptoms of Raynauds. My

thyroid is fine, but I still have that problem. I would really recommend NOT

running your hands under warm water when you are having symptoms. It can cause

damage in the veins if you warm things up too fast. Instead, try using mittens

with hand warmers, toe warmers for your feet, and a space heater before you have

symptoms. When it does happen, try to get indoors out of the cold and help your

body raise its temperature gradually. Magnesium Glycinate (500-600 mg) really

helps with circulation and Raynaud's as well. Other types of magnesium may

cause intestinal issues. It stops the tingling in my legs and numbness in my

hands, and also stops the horrible charlie horses I get in my sleep. Also,

calcium and vitamin B12 are very important.

Cami

SLE (LDN 2 years)

http://healingfromlupus.blogspot.com

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