OT/

[Guest guest]

In a message dated 5/23/2002 4:38:06 PM Eastern Daylight Time,

hornetwife@... writes:

> Liane, I'm a few days behind on the e-mails, trying to catch up. Anyhow, we

> are in the SC Lowcountry area. If you are near, we could absolutely share

> some enzymes with you. Let me know if you are interested and feel free to

> e-mail me privately.

>

Hi !

That makes us pretty much neighbors, lol. I'm in Surfside. I did get my

zymes, but do keep in touch. We've got a pretty strong parents network up

here, and I love having other parents to bounce things off of!

Liane

[Guest guest]

I realized after I sent it, it may have been confusing. I can't travel

(drive, fly -- in an airplaine, etc.) from Friday night until Saturday night

at sundown. So, if you wanted to have everyone at your house, I could stay

with you and visit with people at your house. But I couldn't drive anywhere

during the Sabbath to meet people. Or, I could stay at a hotel and you could

all come there! I don't want to make it hard on everyone, but I'd really

love to be there!

Is this a little less confusing??!!

Love,

[Guest guest]

That would be wonderful. Maybe we could get a sense of a mid-point -- it

sounds like CT might be it! (Of course, I flunked geography in middle

school!) But it sounds like we've got people in CT, MA, NY, and NJ for

starters! I think a get together would be truly wonderful.

Love,

[Guest guest]

Dear ,

you could stay with me if this helps. I don't know if this is right, or

should I stay over night at a hotel and come to you? I am confused friend..

educate me....lol..

Love.sue #2

-- Re: Sue and other easties...ot

,

I'd love to come...I live in NJ. the only thing is I'm an observant Jew and

can't come on Saturdays (of course, if you'd like to make it an overnight

where I could stay in one place and not have to travel.....)

I'd really love to do it though!

[Guest guest]

Yes friend,

thank you. Anything that everyone would like to do, would be fine. I

would welcome everyone at my house. I would love it, or I would be very

flexible upon driving to you . I just think no matter which way we do

this, it would just be incredible, and a very wonderful thing for all of us

to do. Hugs my friend.

Love,Sue #2

-- Re: OT/

I realized after I sent it, it may have been confusing. I can't travel

(drive, fly -- in an airplaine, etc.) from Friday night until Saturday night

at sundown. So, if you wanted to have everyone at your house, I could stay

with you and visit with people at your house. But I couldn't drive anywhere

during the Sabbath to meet people. Or, I could stay at a hotel and you could

all come there! I don't want to make it hard on everyone, but I'd really

love to be there!

Is this a little less confusing??!!

Love,

[Guest guest]

Dearest ,

Is that better?? I'm not sure if you are really irked or

not...well, if you heard me voice it, you would know that's it's just my

New Yawk vernacular!! Of course I missed you!!!

<<Hey you? That is how you address me?!?! Hmmmm, you did miss me

didn't you? LOL>>

Nuked 9/28/00

Hooked 10/26/00

I SUPPORT OUR TROOPS!

[Guest guest]

,

You are always welcome to play with Gimlet. LOL Well I will be

around for some time. Too bad I can't travel this year.

*---* *---* *---* *---* *---*

It may be that your sole purpose in life is simply to serve as a

warning to others.

& Gimlet (Guide Dawggie)

Portland, Oregon

rlclark77@...

http://home.attbi.com/~rlclark77/

Sig by Kookie Jar 6.3 (http://go.to/generalfrenetics/)

[Guest guest]

Kim and Ebony if you want more information email me.

www.mamajudies@... not sure how the board feel about me giving out

names don't want to break

any rules.

[Guest guest]

Kim email me at mamajudies@... and i will send you the information

I have do not know how the board feels about me naming names do not want to

break any rules

[Guest guest]

There are a couple of things I've learned in the last 8 years or

so. First, trust what your body tells you. If it says something is

wrong, then something is wrong. Second, don't take " no " for an

answer. I suffered from a " fixable " arrhythmia for close to 8 years

because doctor after doctor told me it was benign and there was

nothing they could do, or, worse, that I was imagining it. I gave

up after awhile, but did mention it to a doctor after

my brother DIED of an undiagnosed arrhythmia, and he LISTENED. At

that point I was scared, and would NOT stop until I found out what

was going on, and did what was necessary to prevent what happened to

my brother. I went to two cardiologists after that...the first was

dismissive, but the second actually believed me, and (gasp)

supported me. He actually ran the tests that the others refused,

saying they were unnecessary, and guess what? I had PSVT, which is

generally benign, but can be very debilitating. I was going through

a very long period of exhaustion at that time, and it was mostly

because my heart, at rest, was beating at about 120 bpm. If I even

walked it shot up to over 200 bpm. I was in for surgery within a

couple of weeks, and they found TWO extra nerve pathways in my

heart. I still have periods of tachycardia, but nothing like before.

Of course, I'm now occasionally dealing with some kind of atrial

fibrillation which is driving me nuts, but it is somewhat controlled

with meds (except when I've got pms ).

I also had to fight for my ADD diagnosis. No one seemed to be able

to figure out what was wrong with me. I finally did the research

myself, and gee...every problem I've had throughout my life pointed

to ADD. It was kind of mindblowing, actually. However, even armed

with this information, I hit brick wall after brick wall. I was

given anti-depressants, which was a VERY bad idea (I wasn't

depressed...and you do NOT want to take these drugs if you are not -

the psychological side effects are not pretty!), I was told I had

social anxiety disorder (I laughed in her face...she came up with

this after talking to me for 5 whole minutes, and I had actually

admitted to her that I was " a little bit shy " as a child!) Man, if

you knew me, you'd know this diagnosis was outrageous! I'm the one

everyone used to " draft " to go into the boss's office and ask for

things, since no one else had the guts to do it. I'll talk to a

stranger for HOURS if they let me....poor slobs... Anyway, back to

the subject. I eventually shelled out almost $1000 for a series of

tests, both physical and psychological, and ended up with a definite

diagnosis of SEVERE ADD, predominantly inattentive type. Geeee....

So, as you can see, this is not the first time I've dealt with

doctors who either have blinders on or are too afraid, or too

arrogant, to admit that they may be wrong. I've also noticed that 9

times out of 10, male doctors will dismiss a woman. We tend to be

more " in tune " with our bodies, and so often go to a doctor much

sooner with a problem, often before there are obvious physical

symptoms (i.e. permanent damage). Though I've had some really great

male doctors (the one who sent me to the cardiologist, as well as

the cardiologist himself were both men, and both wonderful), and

some women who were jerks (the " social anxiety " doctor was a woman),

generally I've had much better luck with female doctors. They are

less apt to try to hide the fact that they don't know something, and

also are more willing to listen and believe you. Shoot, my current

gp fights like hell for me! If she can't figure it out, she won't

stop until she, or someone else, does. I like her a lot.

I've been busy the last few days....interviews (90% sure I got the

job, too ) and checking out daycare options for my daughter, but

tomorrow I'm calling my gp and asking her for the name of the female

rheumy she mentioned. She is on the way to my potential new job,

and my doc said she is REALLY good. There is a long waiting period,

which is why I didn't go right away (plus, I still need to get my

bloodwork done the second time from Dr. Jerk, so I have a good

baseline from the same lab to compare to the new one), but I'm

calling and making an appointment first thing next week. There was

no reason for this guy to lie to me outright - what little trust I

had in him before (and I should emphasize " little " ) is completely

gone, now. I will NEVER believe a word he says. I should probably

confront him with it (and I may), but I'm just too tired, too

stressed, and too sore to bother. The weakness in my hands came

back a couple days ago (but not much pain, luckily), and my ankles

are KILLING me off and on since we went to the beach for Father's

Day, so I've been in kind of a rotten mood for the past week.

> Hello! How are you today? I hope that all is well with you! I

just

> read your post. Aren't the doctors fun? I swear, the more I

hear

> the madder I get. I " m seeing a pattern here. I've noticed that

more

> woman (not because there are more maybe) seem to be having the

most

> problems with the self proclaimed gods that we seem to be dealing

> with! Wanh!!! I understand your frustration. I also understand

the

> phrase to them, " see ya " ! I can relate about them standing there

> stumped like and saying that you have had that since birth, your

> chart says without finding what they are talking about, and

> especailly the " TUDE " . Ya know, ENOUGH ALREADY!!!!! I had some

fu

> dealing with my self proclaimed mini god just the other day. I

hurt

> my neck about a month or so ago and saw the doctor about my

arthritis

> and mentioned my neck. I informed him that I get really dizzy or

> that everything is moving. He told me in front of my witness

(yeah,

> that is correct, I said witness - I take someone now to verify

what

> they are saying to me) that I must have water in my ears. Didn't

> bother to look either. I asked about the scoliosis...he said that

he

> had it and what did I want him to do about it and that I couldn't

of

> developed it and that I've had it all my life. 3 days later, I

had

> full blown bronchitis. (maybe it was fluid in my ears) I then

> reinjured my neck over the weekend just by riding in a pick up

> truck. I asked for a x-ray at least for a baseline and to check

my

> neck. NOPE!!!! (I have bones spurs in it,etc...) He then said

that

> the only thing was to go to PT. PT doesn't know what to do

because

> they don't know what is going on. FUN! I can't get in to see

them

> until next Thursday anyways. Anyhow when he said PT - I

immediately

> popped off no that hurts. He literally, I kid you not (remember

had

> a witness) threw my chart and replied, " then what do you expect

me

> to do " ? It kinda stunned me to say the least. I then told him

that

> I would try it as it is my only option. So, I don't know?

Sorry,

> didn't mean to rant. I think I have a new condition...it is

called

> CTSD. Heard of it? It is CURRENT TRAMATIC STRESS DISORDER!!!

LOL

> Sometimes I crack myself up!!! Anyhow, I hope that you are

feeling

> better and can get to the bottom of all this. That what I really

> wanted to say. I hope that today is good for you. Take care! Kim

[Guest guest]

>

Vit. C and Selenum should e taken at different times so tey wont cancell

each other out. Aletha

I have just purchased the vitamins that Dr. Lawrence reccomended for

> stress induced relapses. I just have a few questions:

> Do I take them all together or should I spread them out through the

> day? The only beta carotene pills I could find contain soy oil, is this

> okay? His web page also says to take 30mg of beta carotene but again

> the only ones I could find are 25,000 IU. How much do I take to add up

> to 30mg. Below is a list of vitamins I got off his page. Please tell if

> I missed anything.

> zinc-50mg, copper-1mg, selenium-400mcg, vitamin c-2000 mg, vitamin E-

> 800 IU, beta carotene- 30mg, vitamin D- 5000 IU, EPA fish oil as

> reccomened on bottle, grape seed extract-1000mg.

> Again do I take them all at once or just a few at time through the day.

> I'm sorry I know this off topic but I really have no one else to ask.

> Everyone on this group is so knowledgeable. Thank you all for

> everything. I hope I can come out of this healthy.

>

> Amber

>

>

[Guest guest]

,

 

Funny, glad to see you still have your sense of humor!  Yes, the Raynaud's is

very painful.  Any secret remedies.  As you know, I live in a very cold state!

 

Tracie