In need of support

[Guest guest]

I have below an email from you from January 06 (right after New

Years which is a busy time of year) where you were asking for help

and it appears nobody answered. I'm taking it that you didn't

wait till age 6 for kindergarten due to something bogus you were told by

someone as you say back then.

Are you still homeschooling? Have your taken your child for private

(outside the school) evals for testing? The " small pot of money'

for children over 5 is a small pot of you know what -don't buy it.

Remember the line written in The Late Talker book. When a school

professional says something you don't believe sounds right, just

smile and say " That's interesting, can you put that in writing for

me and explain why? " They won't put anything in writing that is

against the law.

Don't let them bully you . Your child will always be your

child -and you may move from Maine and this school (one could hope

anyway) and never see these people again -your child deserves a

chance at success. Someone like you gets an attorney or takes this

public and you'd find out how amazingly poor your memory is. You

misunderstood . " Of course! " they will provide your child

_____ (fill in the blank but essentially a free and appropriate

public education in the least restrictive environment) even if

started in kindergarten after 5...it's the law!

(reason number 2,904,321 for tape recording IEP meetings)

Oh -and about all the verbal testing (testing who's IQ?)

" He got a zero on the sentence repeat section (Jeez BIG surprise

there huh?). "

.....you can let your school know you are reporting them to the

Office of Civil Rights if they don't retest your child appropriately

and remove all these bogus tests with poor results from your child's

permanent records that are in violation. If you don't have the

money for private testing - ask them to pay for your private testing

if they are not capable of providing appropriate testing. They can

say no -but then they still have to provide appropriate testing and

if they can't...they have to pay for it outside anyway. It's the

law. It's a violation of the law to test someone's abilities on

their disability. Discrimination on the basis of disability is

prohibited by Section 504 of the Rehabilitation Act of 1973 and

Title II of the Americans with Disabilities Act of 1990 Schools

receive Federal funding -but for disabilities these laws are in

place even for those entities that don't receive Federal Funding.

Let them know the line about the small

Call me if you need help with this at 973 390 7541. And please do

something right away before this " teacher " and school damages your

child's self esteem. Their incompetence is no excuse as far as I'm

concerned. A truck driver would know better than to give a blind

child a visual IQ test or a verbal impaired child a verbal based IQ

test...you'd assume someone schooled in education would know better

too. But you know what they say about assuming things.

Here's your local OCR office:

Connecticut, Maine, Massachusetts,

New Hampshire, Rhode Island, Vermont

Office for Civil Rights, Boston Office

U.S. Department of Education

33 Arch Street, Suite 900

Boston, MA 02110-1491

(617) 289-0111; FAX# (617) 289-0150

And when you call OCR -don't say apraxia...say " verbal disabled "

Or if you say apraxia -say verbal disabled as well and more often.

OCR protects those with verbal disabilities.

You will need to provide them with written examples.

(here's more)

Your email from around New Years 2006

Wed Jan 4, 2006 8:59 pm

" srmccann2003 " <smccann@...>

It seems like just a blink of an eye when my son was two years old,

just being diagnosed with apraxia and I found myself here trying to

find support. Now Nick is 4.9 years and I again need help.

Here are the problems that I am seeking help with;

Number one: Nick's current SLP is the best that we have been with.

Nick likes her and she has got him doing table work and reps that

would have been a nightmare with anyone else. The problem is I feel

as though we are being rushed through. She is indicating that she

doesn't think he will qualify for the coming summer services because

he is able to say the sounds we have been working on in target words

at 80% accuracy. I keep telling her that apraxia is more than just

being able to say the sounds/words, it's about his having extreme

difficulty in putting together sentances and being able to explain

what he is thinking but she tells me that she thinks that is caused

by his word retrival issues and that he will always have it. In

other words, there isn't anything that she can do about it and it

doesn't qualify him for services. Also when there has been words

that he has had trouble with at home, with a sound she has already

written off, she tells me that it's my responsibility to work on it

at home because he is ABLE to say the sound.

Problem number two: In Maine EI goes until 5 yrs of age. I have

just been told that " almost for sure " he will not receive services

from the school district if I don't enter him in kindergarten next

fall. I was told that there is a " very small pot of money for home

schooled children. " I would really like to hear the ins and outs of

placing a 5.5 year old apraxic boy in school. He at this point has

not wanted in any way to go to pre-school and he avoids learning to

visually recognize his alphabet. We've started saving money to pay

for private speech but if anyone knows ways of dealing with a school

situation like this it would be helpful. Maybe he will be ready to

go but at this point I am unsure how one decides that and I don't

want to place him in school when he isn't ready simply because he

needs speech therapy.

Problem three: The EI people, the speech therapist AND the school

people are not hearing me that it is the apraxia that causes him to

frequently be unable to answer direct questions or sometimes even

have difficulty with a task if it is demanded of him. Nick knows

his colors and visually knows his numbers but if he is pressured by

a direct, " WHAT IS THAT NUMBER? " or " WHAT IS THAT COLOR? " he will

frequently freeze or answer incorrectly. These people are telling

me that it is his lack of confidence and I need to bring him to a

psychologist or that it is his word retrival issues once again and

there isn't much we can do, he'll have that all his life. Does

anyone know of research on this? Articles that " professionals " will

listen to? I'm very concerned that they will use testing like this

to determine kindergarten placement. I need hard information to

bring to the school to educate them and I'm not sure where to find

it.

I'm sorry, I'm struggling again and it makes me write long posts

I'm worried and I want to be an educated advocate, not just a

passionate advocate. I apologize for the length of this and am

thankful for having the opportunity to even ask for help. Thank you

in advance for helping me to help my son.

McCann

New Gloucester, Maine USA

~~~~~~~~~~~~~~~~~~~~~~~~~~~end of archive

=====

[Guest guest]

I have below an email from you from January 06 (right after New

Years which is a busy time of year) where you were asking for help

and it appears nobody answered. I'm taking it that you didn't

wait till age 6 for kindergarten due to something bogus you were told by

someone as you say back then.

Are you still homeschooling? Have your taken your child for private

(outside the school) evals for testing? The " small pot of money'

for children over 5 is a small pot of you know what -don't buy it.

Remember the line written in The Late Talker book. When a school

professional says something you don't believe sounds right, just

smile and say " That's interesting, can you put that in writing for

me and explain why? " They won't put anything in writing that is

against the law.

Don't let them bully you . Your child will always be your

child -and you may move from Maine and this school (one could hope

anyway) and never see these people again -your child deserves a

chance at success. Someone like you gets an attorney or takes this

public and you'd find out how amazingly poor your memory is. You

misunderstood . " Of course! " they will provide your child

_____ (fill in the blank but essentially a free and appropriate

public education in the least restrictive environment) even if

started in kindergarten after 5...it's the law!

(reason number 2,904,321 for tape recording IEP meetings)

Oh -and about all the verbal testing (testing who's IQ?)

" He got a zero on the sentence repeat section (Jeez BIG surprise

there huh?). "

.....you can let your school know you are reporting them to the

Office of Civil Rights if they don't retest your child appropriately

and remove all these bogus tests with poor results from your child's

permanent records that are in violation. If you don't have the

money for private testing - ask them to pay for your private testing

if they are not capable of providing appropriate testing. They can

say no -but then they still have to provide appropriate testing and

if they can't...they have to pay for it outside anyway. It's the

law. It's a violation of the law to test someone's abilities on

their disability. Discrimination on the basis of disability is

prohibited by Section 504 of the Rehabilitation Act of 1973 and

Title II of the Americans with Disabilities Act of 1990 Schools

receive Federal funding -but for disabilities these laws are in

place even for those entities that don't receive Federal Funding.

Let them know the line about the small

Call me if you need help with this at 973 390 7541. And please do

something right away before this " teacher " and school damages your

child's self esteem. Their incompetence is no excuse as far as I'm

concerned. A truck driver would know better than to give a blind

child a visual IQ test or a verbal impaired child a verbal based IQ

test...you'd assume someone schooled in education would know better

too. But you know what they say about assuming things.

Here's your local OCR office:

Connecticut, Maine, Massachusetts,

New Hampshire, Rhode Island, Vermont

Office for Civil Rights, Boston Office

U.S. Department of Education

33 Arch Street, Suite 900

Boston, MA 02110-1491

(617) 289-0111; FAX# (617) 289-0150

And when you call OCR -don't say apraxia...say " verbal disabled "

Or if you say apraxia -say verbal disabled as well and more often.

OCR protects those with verbal disabilities.

You will need to provide them with written examples.

(here's more)

Your email from around New Years 2006

Wed Jan 4, 2006 8:59 pm

" srmccann2003 " <smccann@...>

It seems like just a blink of an eye when my son was two years old,

just being diagnosed with apraxia and I found myself here trying to

find support. Now Nick is 4.9 years and I again need help.

Here are the problems that I am seeking help with;

Number one: Nick's current SLP is the best that we have been with.

Nick likes her and she has got him doing table work and reps that

would have been a nightmare with anyone else. The problem is I feel

as though we are being rushed through. She is indicating that she

doesn't think he will qualify for the coming summer services because

he is able to say the sounds we have been working on in target words

at 80% accuracy. I keep telling her that apraxia is more than just

being able to say the sounds/words, it's about his having extreme

difficulty in putting together sentances and being able to explain

what he is thinking but she tells me that she thinks that is caused

by his word retrival issues and that he will always have it. In

other words, there isn't anything that she can do about it and it

doesn't qualify him for services. Also when there has been words

that he has had trouble with at home, with a sound she has already

written off, she tells me that it's my responsibility to work on it

at home because he is ABLE to say the sound.

Problem number two: In Maine EI goes until 5 yrs of age. I have

just been told that " almost for sure " he will not receive services

from the school district if I don't enter him in kindergarten next

fall. I was told that there is a " very small pot of money for home

schooled children. " I would really like to hear the ins and outs of

placing a 5.5 year old apraxic boy in school. He at this point has

not wanted in any way to go to pre-school and he avoids learning to

visually recognize his alphabet. We've started saving money to pay

for private speech but if anyone knows ways of dealing with a school

situation like this it would be helpful. Maybe he will be ready to

go but at this point I am unsure how one decides that and I don't

want to place him in school when he isn't ready simply because he

needs speech therapy.

Problem three: The EI people, the speech therapist AND the school

people are not hearing me that it is the apraxia that causes him to

frequently be unable to answer direct questions or sometimes even

have difficulty with a task if it is demanded of him. Nick knows

his colors and visually knows his numbers but if he is pressured by

a direct, " WHAT IS THAT NUMBER? " or " WHAT IS THAT COLOR? " he will

frequently freeze or answer incorrectly. These people are telling

me that it is his lack of confidence and I need to bring him to a

psychologist or that it is his word retrival issues once again and

there isn't much we can do, he'll have that all his life. Does

anyone know of research on this? Articles that " professionals " will

listen to? I'm very concerned that they will use testing like this

to determine kindergarten placement. I need hard information to

bring to the school to educate them and I'm not sure where to find

it.

I'm sorry, I'm struggling again and it makes me write long posts

I'm worried and I want to be an educated advocate, not just a

passionate advocate. I apologize for the length of this and am

thankful for having the opportunity to even ask for help. Thank you

in advance for helping me to help my son.

McCann

New Gloucester, Maine USA

~~~~~~~~~~~~~~~~~~~~~~~~~~~end of archive

=====

[Guest guest]

Wow. I feel like we are in the same spot here . I'm having a difficult

time getting it through 's kindergarten teacher's head that verbally testing

is not a true reflection of what he does & doesn't understand. His verbal

responses can't be trusted as he often makes different errors for the same word.

They are putting in Title 1 reading to " help " with this. I find it

(almost) funny that she thinks that 15 minutes of extra reading time with a

paraprofessional is going to " fix " 's ability to make a specific sound on

cue. I honestly feel that alot of the time, unless they have been thru this,

they just can't grasp it. They don't get to see how far our child has come

because they haven't been there every step of the way & seen the progress & the

struggles. When first started speech at 3...he couldnt say one

recognizable word. Now they estimate that he's at about 40% for strangers & 60%

for family. I guess a bit higher for us..I understand

about 80% of what he says. That's huge to us. I went into the parent teacher

conferences completely expecting a glowing report, and..like you..I felt kicked

in the gut. I wanted to scream at her that there was a day 2 1/2 years ago that

they were saying he may not get to go to a " normal " school. In our rural area

that means being bussed 40 miles away, that I've sit and watched this kid

struggle for every sound, every word to the point it makes you cry because you

know he wants it so bad. It's not like I want him coddled or treated

" special " , because we've always treated him the same as our other kids, we don't

want him to use his speech as a way around trying, but we know there are times

that things do have to be bent to fit him. So, basically...I dont really have

any advice for you because I'm just trying to figure it out myself, but I wanted

you to know that my heart goes out to you & I can completely relate. I do feel

a bit better now that I've vented it out!

Thanks,

mother of , age 5

srmccann2003 <smccann@...> wrote:

I guess I'm in need of someone to tell me that they've been there

and it will be okay or even if you haven't been there, that you

understand. Yesterday was Nick's kindergarten P.E.T. The classroom

teacher informed us that she thinks he's having trouble drawing and

writing and recommended an OT eval. It's just hard to hear that

along with speech he's struggling with another thing. Then today we

had our first parent/teacher conference. I'm SO bummed out with

this meeting that I feel as though I'm walking in molasses. Not

once did the teacher compliment Nick to us. I had to ask if he was

where she thought he should be. Then the real kicker was that she

pulled out a test result page saying that he came out with a 34 out

of 59 on a Pre-literacy test. She said that was a solid beginning

kindergarten score but when I asked what was in the test she showed

me and ALL of it was VERBAL. He got a zero on the sentence repeat

section (Jeez BIG surprise there huh?). He got another zero on the

multisyllable word part. When I asked what that was she said, " He

did make an attempt at a couple of them, like saying animal, animal,

animal, animal. " WHAT!? My son has APRAXIA for heaven's sake!

Then she showed me what numbers and letters he recognized and I

looked at her and I didn't even have to ask, she said, " Yes, that

was tested verbally too. " I told her that it wasn't a true

representation of what he knows and she said she would have to test

him " receptively " . She does appear to have empathy for his

disability and I have given her literature on apraxia but it just

seems so unfair to use this type of testing on an apraxic child.

When I said something to that effect she told me that she didn't put

THAT much weight on those parts but those parts make up the whole

score, ya know? I know it's just kindergarten but these tests go

into his record and I know there will be more coming.

Does anyone know if there are tests for his teacher to use that wont

put so much stress on Nick's speaking ability? Do they really have

to test him in the exact same manner as every child in the class?

Ugggh! I'm stressed! I hate his going to kindergarten! He wants

to be there though and I guess that's what is important at this

point. *Sigh*

Thanks for " listening " .

McCann

[Guest guest]

Check out http://www.wrightslaw.com/ I went to a seminar they

presented and found it very helpful. Here's the gist of it:

IDEA is very clear that the IEP needs to be agreed upon by all

parties. You are your child's advocate and know him best - they only

have snippets of information. Do not sign it until you are

comfortable with it.

Testing -- very state specific, some only require " appropriate "

testing every 3 years (in other words - tests that assess knowledge

and abilities not skewed by the disability)

Find your advocate within the system (friend/teacher/etc), they'll

help you figure out the politics involved too.

Accomodation is supposed to be in the least restrictive environment --

use that phrasing! Pulling him out of math class for speech is not

a good idea!

My personal comment -- the education system of our teachers and

therapists is very much a system of indoctrination. The older and

more entrenched the teacher or administrator, the more patrinizing

they are it seems. They seem to take on an attitude of " we know

best " . Befriend the young teacher and/or the most liberal/ anti

establishment/ granola type (Starbuck cards, thank you notes, etc!) --

they will be the most likely to help you.

Also, don't be pressured to let your son progress to 1st grade if he

isn't ready. There's virtually no stigma to holding back now -- lots

of it if you do it in 5th grade! I don't know if this follows through

with other kids on this board, but besides the verbal apraxia issues,

my son is " younger " in other ways too. Emotional resiliance, life

skills (potty training is still not complete at 4.3 years!), etc

I'm guessing that a large part of his academic progress will be

coming from home schooling on the weekends, in the car, etc! I think

we all recognize that fact! This isn't an easy road.

>

> Wow. I feel like we are in the same spot here . I'm having a

difficult time getting it through 's kindergarten teacher's head

that verbally testing is not a true reflection of what he does &

doesn't understand. His verbal responses can't be trusted as he

often makes different errors for the same word. They are putting

in Title 1 reading to " help " with this. I find it (almost)

funny that she thinks that 15 minutes of extra reading time with a

paraprofessional is going to " fix " 's ability to make a specific

sound on cue. I honestly feel that alot of the time, unless they

have been thru this, they just can't grasp it. They don't get to see

how far our child has come because they haven't been there every step

of the way & seen the progress & the struggles. When first

started speech at 3...he couldnt say one recognizable word. Now they

estimate that he's at about 40% for strangers & 60% for family. I

guess a bit higher for us..I understand

> about 80% of what he says. That's huge to us. I went into the

parent teacher conferences completely expecting a glowing report,

and..like you..I felt kicked in the gut. I wanted to scream at her

that there was a day 2 1/2 years ago that they were saying he may not

get to go to a " normal " school. In our rural area that means being

bussed 40 miles away, that I've sit and watched this kid struggle

for every sound, every word to the point it makes you cry because you

know he wants it so bad. It's not like I want him coddled or

treated " special " , because we've always treated him the same as our

other kids, we don't want him to use his speech as a way around

trying, but we know there are times that things do have to be bent to

fit him. So, basically...I dont really have any advice for you

because I'm just trying to figure it out myself, but I wanted you to

know that my heart goes out to you & I can completely relate. I do

feel a bit better now that I've vented it out!

> Thanks,

>

> mother of , age 5

>

[Guest guest]

Wow. I feel like we are in the same spot here . I'm having a difficult

time getting it through 's kindergarten teacher's head that verbally testing

is not a true reflection of what he does & doesn't understand. His verbal

responses can't be trusted as he often makes different errors for the same word.

They are putting in Title 1 reading to " help " with this. I find it

(almost) funny that she thinks that 15 minutes of extra reading time with a

paraprofessional is going to " fix " 's ability to make a specific sound on

cue. I honestly feel that alot of the time, unless they have been thru this,

they just can't grasp it. They don't get to see how far our child has come

because they haven't been there every step of the way & seen the progress & the

struggles. When first started speech at 3...he couldnt say one

recognizable word. Now they estimate that he's at about 40% for strangers & 60%

for family. I guess a bit higher for us..I understand

about 80% of what he says. That's huge to us. I went into the parent teacher

conferences completely expecting a glowing report, and..like you..I felt kicked

in the gut. I wanted to scream at her that there was a day 2 1/2 years ago that

they were saying he may not get to go to a " normal " school. In our rural area

that means being bussed 40 miles away, that I've sit and watched this kid

struggle for every sound, every word to the point it makes you cry because you

know he wants it so bad. It's not like I want him coddled or treated

" special " , because we've always treated him the same as our other kids, we don't

want him to use his speech as a way around trying, but we know there are times

that things do have to be bent to fit him. So, basically...I dont really have

any advice for you because I'm just trying to figure it out myself, but I wanted

you to know that my heart goes out to you & I can completely relate. I do feel

a bit better now that I've vented it out!

Thanks,

mother of , age 5

srmccann2003 <smccann@...> wrote:

I guess I'm in need of someone to tell me that they've been there

and it will be okay or even if you haven't been there, that you

understand. Yesterday was Nick's kindergarten P.E.T. The classroom

teacher informed us that she thinks he's having trouble drawing and

writing and recommended an OT eval. It's just hard to hear that

along with speech he's struggling with another thing. Then today we

had our first parent/teacher conference. I'm SO bummed out with

this meeting that I feel as though I'm walking in molasses. Not

once did the teacher compliment Nick to us. I had to ask if he was

where she thought he should be. Then the real kicker was that she

pulled out a test result page saying that he came out with a 34 out

of 59 on a Pre-literacy test. She said that was a solid beginning

kindergarten score but when I asked what was in the test she showed

me and ALL of it was VERBAL. He got a zero on the sentence repeat

section (Jeez BIG surprise there huh?). He got another zero on the

multisyllable word part. When I asked what that was she said, " He

did make an attempt at a couple of them, like saying animal, animal,

animal, animal. " WHAT!? My son has APRAXIA for heaven's sake!

Then she showed me what numbers and letters he recognized and I

looked at her and I didn't even have to ask, she said, " Yes, that

was tested verbally too. " I told her that it wasn't a true

representation of what he knows and she said she would have to test

him " receptively " . She does appear to have empathy for his

disability and I have given her literature on apraxia but it just

seems so unfair to use this type of testing on an apraxic child.

When I said something to that effect she told me that she didn't put

THAT much weight on those parts but those parts make up the whole

score, ya know? I know it's just kindergarten but these tests go

into his record and I know there will be more coming.

Does anyone know if there are tests for his teacher to use that wont

put so much stress on Nick's speaking ability? Do they really have

to test him in the exact same manner as every child in the class?

Ugggh! I'm stressed! I hate his going to kindergarten! He wants

to be there though and I guess that's what is important at this

point. *Sigh*

Thanks for " listening " .

McCann

[Guest guest]

Check out http://www.wrightslaw.com/ I went to a seminar they

presented and found it very helpful. Here's the gist of it:

IDEA is very clear that the IEP needs to be agreed upon by all

parties. You are your child's advocate and know him best - they only

have snippets of information. Do not sign it until you are

comfortable with it.

Testing -- very state specific, some only require " appropriate "

testing every 3 years (in other words - tests that assess knowledge

and abilities not skewed by the disability)

Find your advocate within the system (friend/teacher/etc), they'll

help you figure out the politics involved too.

Accomodation is supposed to be in the least restrictive environment --

use that phrasing! Pulling him out of math class for speech is not

a good idea!

My personal comment -- the education system of our teachers and

therapists is very much a system of indoctrination. The older and

more entrenched the teacher or administrator, the more patrinizing

they are it seems. They seem to take on an attitude of " we know

best " . Befriend the young teacher and/or the most liberal/ anti

establishment/ granola type (Starbuck cards, thank you notes, etc!) --

they will be the most likely to help you.

Also, don't be pressured to let your son progress to 1st grade if he

isn't ready. There's virtually no stigma to holding back now -- lots

of it if you do it in 5th grade! I don't know if this follows through

with other kids on this board, but besides the verbal apraxia issues,

my son is " younger " in other ways too. Emotional resiliance, life

skills (potty training is still not complete at 4.3 years!), etc

I'm guessing that a large part of his academic progress will be

coming from home schooling on the weekends, in the car, etc! I think

we all recognize that fact! This isn't an easy road.

>

> Wow. I feel like we are in the same spot here . I'm having a

difficult time getting it through 's kindergarten teacher's head

that verbally testing is not a true reflection of what he does &

doesn't understand. His verbal responses can't be trusted as he

often makes different errors for the same word. They are putting

in Title 1 reading to " help " with this. I find it (almost)

funny that she thinks that 15 minutes of extra reading time with a

paraprofessional is going to " fix " 's ability to make a specific

sound on cue. I honestly feel that alot of the time, unless they

have been thru this, they just can't grasp it. They don't get to see

how far our child has come because they haven't been there every step

of the way & seen the progress & the struggles. When first

started speech at 3...he couldnt say one recognizable word. Now they

estimate that he's at about 40% for strangers & 60% for family. I

guess a bit higher for us..I understand

> about 80% of what he says. That's huge to us. I went into the

parent teacher conferences completely expecting a glowing report,

and..like you..I felt kicked in the gut. I wanted to scream at her

that there was a day 2 1/2 years ago that they were saying he may not

get to go to a " normal " school. In our rural area that means being

bussed 40 miles away, that I've sit and watched this kid struggle

for every sound, every word to the point it makes you cry because you

know he wants it so bad. It's not like I want him coddled or

treated " special " , because we've always treated him the same as our

other kids, we don't want him to use his speech as a way around

trying, but we know there are times that things do have to be bent to

fit him. So, basically...I dont really have any advice for you

because I'm just trying to figure it out myself, but I wanted you to

know that my heart goes out to you & I can completely relate. I do

feel a bit better now that I've vented it out!

> Thanks,

>

> mother of , age 5

>

[Guest guest]

Hi ,

Just another plug for the possibility of pulling Nick out for now, or

letting him repeat K next year if necessary: My son started K at 6,

and so far it has turned out to be a good decision. We spent last

year loading up on OT, speech, and other forms of therapy, as well as

a mainstream pre-K. It was a tough year in some ways, and we

accumulated lots of debt because we paid for his therapy privately,

but he is very happy in K this year, and is ahead of the pack in some

areas. He still struggles with fine motor skills, and we, too, have

problems with " educating " his teacher, as sympathetic as she is and

as much as she likes our son. For example, he's writing his name

perfectly in all capital letters, but I noticed that on a sign made

for the K door they had him trace dot to dots so that his name would

properly be in upper and lower case. That irked me, and it's

something we'll address at the parent-teacher conference, but overall

things are going smoothly. I'm even finding that the areas I feared

like P.E. have not been an issue and that he's actually become pretty

darn good at certain gym-related skills that my Mommy instinct would

have preferred to shield him from.

You mentioned being disappointed that there are fine motor issues

cropping up for Nick, and I just wanted to reassure you that it isn't

really " one more thing " - it's just another symptom of apraxia, which

is a motor planning disorder & can impact more than just speech. If

you're just discovering that there may be issues, Nick is far better

off than (whose fine motor delays were obvious at 4.5), and I

can reassure you that has improved significantly with

occupational therapy & time.

I don't mean to overlook what you said about Nick liking where he is

now, and that being important. Maybe it is the right time for him to

be in K, but just know that you do have other options. I guess I'm

writing this for others, too, who might be debating what to do next

year. Waiting a year has turned out to be a very good decision for

us. A year ago, though, I really worried about it & how it might

impact his future. So far so good.

Hang in there,

>

> I guess I'm in need of someone to tell me that they've been there

> and it will be okay or even if you haven't been there, that you

> understand. Yesterday was Nick's kindergarten P.E.T. The

classroom

> teacher informed us that she thinks he's having trouble drawing and

> writing and recommended an OT eval. It's just hard to hear that

> along with speech he's struggling with another thing. Then today

we

> had our first parent/teacher conference. I'm SO bummed out with

> this meeting that I feel as though I'm walking in molasses. Not

> once did the teacher compliment Nick to us. I had to ask if he was

> where she thought he should be. Then the real kicker was that she

> pulled out a test result page saying that he came out with a 34 out

> of 59 on a Pre-literacy test. She said that was a solid beginning

> kindergarten score but when I asked what was in the test she showed

> me and ALL of it was VERBAL. He got a zero on the sentence repeat

> section (Jeez BIG surprise there huh?). He got another zero on the

> multisyllable word part. When I asked what that was she said, " He

> did make an attempt at a couple of them, like saying animal,

animal,

> animal, animal. " WHAT!? My son has APRAXIA for heaven's sake!

> Then she showed me what numbers and letters he recognized and I

> looked at her and I didn't even have to ask, she said, " Yes, that

> was tested verbally too. " I told her that it wasn't a true

> representation of what he knows and she said she would have to test

> him " receptively " . She does appear to have empathy for his

> disability and I have given her literature on apraxia but it just

> seems so unfair to use this type of testing on an apraxic child.

> When I said something to that effect she told me that she didn't

put

> THAT much weight on those parts but those parts make up the whole

> score, ya know? I know it's just kindergarten but these tests go

> into his record and I know there will be more coming.

>

> Does anyone know if there are tests for his teacher to use that

wont

> put so much stress on Nick's speaking ability? Do they really have

> to test him in the exact same manner as every child in the class?

> Ugggh! I'm stressed! I hate his going to kindergarten! He wants

> to be there though and I guess that's what is important at this

> point. *Sigh*

>

> Thanks for " listening " .

> McCann

>

[Guest guest]

Hi ,

Just another plug for the possibility of pulling Nick out for now, or

letting him repeat K next year if necessary: My son started K at 6,

and so far it has turned out to be a good decision. We spent last

year loading up on OT, speech, and other forms of therapy, as well as

a mainstream pre-K. It was a tough year in some ways, and we

accumulated lots of debt because we paid for his therapy privately,

but he is very happy in K this year, and is ahead of the pack in some

areas. He still struggles with fine motor skills, and we, too, have

problems with " educating " his teacher, as sympathetic as she is and

as much as she likes our son. For example, he's writing his name

perfectly in all capital letters, but I noticed that on a sign made

for the K door they had him trace dot to dots so that his name would

properly be in upper and lower case. That irked me, and it's

something we'll address at the parent-teacher conference, but overall

things are going smoothly. I'm even finding that the areas I feared

like P.E. have not been an issue and that he's actually become pretty

darn good at certain gym-related skills that my Mommy instinct would

have preferred to shield him from.

You mentioned being disappointed that there are fine motor issues

cropping up for Nick, and I just wanted to reassure you that it isn't

really " one more thing " - it's just another symptom of apraxia, which

is a motor planning disorder & can impact more than just speech. If

you're just discovering that there may be issues, Nick is far better

off than (whose fine motor delays were obvious at 4.5), and I

can reassure you that has improved significantly with

occupational therapy & time.

I don't mean to overlook what you said about Nick liking where he is

now, and that being important. Maybe it is the right time for him to

be in K, but just know that you do have other options. I guess I'm

writing this for others, too, who might be debating what to do next

year. Waiting a year has turned out to be a very good decision for

us. A year ago, though, I really worried about it & how it might

impact his future. So far so good.

Hang in there,

>

> I guess I'm in need of someone to tell me that they've been there

> and it will be okay or even if you haven't been there, that you

> understand. Yesterday was Nick's kindergarten P.E.T. The

classroom

> teacher informed us that she thinks he's having trouble drawing and

> writing and recommended an OT eval. It's just hard to hear that

> along with speech he's struggling with another thing. Then today

we

> had our first parent/teacher conference. I'm SO bummed out with

> this meeting that I feel as though I'm walking in molasses. Not

> once did the teacher compliment Nick to us. I had to ask if he was

> where she thought he should be. Then the real kicker was that she

> pulled out a test result page saying that he came out with a 34 out

> of 59 on a Pre-literacy test. She said that was a solid beginning

> kindergarten score but when I asked what was in the test she showed

> me and ALL of it was VERBAL. He got a zero on the sentence repeat

> section (Jeez BIG surprise there huh?). He got another zero on the

> multisyllable word part. When I asked what that was she said, " He

> did make an attempt at a couple of them, like saying animal,

animal,

> animal, animal. " WHAT!? My son has APRAXIA for heaven's sake!

> Then she showed me what numbers and letters he recognized and I

> looked at her and I didn't even have to ask, she said, " Yes, that

> was tested verbally too. " I told her that it wasn't a true

> representation of what he knows and she said she would have to test

> him " receptively " . She does appear to have empathy for his

> disability and I have given her literature on apraxia but it just

> seems so unfair to use this type of testing on an apraxic child.

> When I said something to that effect she told me that she didn't

put

> THAT much weight on those parts but those parts make up the whole

> score, ya know? I know it's just kindergarten but these tests go

> into his record and I know there will be more coming.

>

> Does anyone know if there are tests for his teacher to use that

wont

> put so much stress on Nick's speaking ability? Do they really have

> to test him in the exact same manner as every child in the class?

> Ugggh! I'm stressed! I hate his going to kindergarten! He wants

> to be there though and I guess that's what is important at this

> point. *Sigh*

>

> Thanks for " listening " .

> McCann

>

[Guest guest]

I cried and cried and cried today.

 

Having spent years with some sort of chronic fatigue like disorder, which means

I cant work to support myself and my family, and I can barely pass my  subjects

at college, I discovered (after tests) that I had exhausted adrenals. I learnt

that one could potentially get better/cured by taking bovine adrenal cortex. I

ordered some from overseas. It was great. I almost felt normal. My life

changed. Despite significant problems that I had  when  I suddenly stopped

taking it (when I had run out - some horrible sort of withdrawal effect), I

ordered more nonetheless - I thought I just had to make sure I didnt run out. It

was my dream come true. I could function almost normally. I felt well. I felt

normal. The only other thing that made me feel well was dexamphetamine (legally

prescribed) and I learnt that this was not a good thing to take for a number of

reasons. Among other things, it gave me horrible  gastritis with bloody mucus

in my feces.

 

Today I again found bloody mucus in the toilet, after other  emerging symptoms

of gastritis started to occur over time. I worked out its the cortex. I cant

take the cotex anymore and  I'm devastated. In addition  I learnt that coming

off the stuff is  a nightmare for  me. I think it must be some sort of

autoimmune thing. I know I will be  on activated charcoal every 4 hours for a

week while  I go through this whole toxic experience again coming off it. I

can live with that - but I'm devastated that I'm going to be exhausted again

without real hope of recovery. Sorry to pester you guys like ths. I cant stop

crying.

 

Helen 

Start your day with 7 and win a Sony Bravia TV. Enter now

http://au.docs./homepageset/?p1=other & p2=au & p3=tagline

[Guest guest]

Helen,

Go to http://www.adrenalfatigue.org/ there is help. There are products that

are safe and do work. I've used them myself.

I cried and cried and cried today.

Having spent years with some sort of chronic fatigue like disorder, which

means I cant work to support myself and my family, and I can barely pass my

subjects at college, I discovered (after tests) that I had exhausted adrenals. I

learnt that one could potentially get better/cured by taking bovine adrenal

cortex. I ordered some from overseas. It was great. I almost felt normal. My

life changed. Despite significant problems that I had when I suddenly stopped

taking it (when I had run out - some horrible sort of withdrawal effect), I

ordered more nonetheless - I thought I just had to make sure I didnt run out. It

was my dream come true. I could function almost normally. I felt well. I felt

normal. The only other thing that made me feel well was dexamphetamine (legally

prescribed) and I learnt that this was not a good thing to take for a number of

reasons. Among other things, it gave me horrible gastritis with bloody mucus in

my feces.

.

[Guest guest]

Ms. Helen, this is Obie. I read your post and a sense of sadness seemed to

settle over me. I can remember when my Lady had a pathetic things called

adrenals that failed, or seemed to. Our Naturopath holds a Ph. D in

Pharmacy and a Ph. D. in Naturopathy; sees my problems from both

perspectives. He forewarned me and recommended Isocort, a sheep grandular,

rather than something from beef, said I'd be happier with Isocort, and I

most certainly am pleased with Isocort. The best to you, Obie.

____________________________________________________________________

I cried and cried and cried today.

Having spent years with some sort of chronic fatigue like disorder, which

means I cant work to support myself and my family, and I can barely pass my

subjects at college, I discovered (after tests) that I had exhausted

adrenals. I learnt that one could potentially get better/cured by taking

bovine adrenal cortex. I ordered some from overseas. It was great. I almost

felt normal. My life changed. Despite significant problems that I had when

I suddenly stopped taking it (when I had run out - some horrible sort of

withdrawal effect), I ordered more nonetheless - I thought I just had to

make sure I didnt run out. It was my dream come true. I could function

almost normally. I felt well. I felt normal. The only other thing that made

me feel well was dexamphetamine (legally prescribed) and I learnt that this

was not a good thing to take for a number of reasons. Among other things, it

gave me horrible gastritis with bloody mucus in my feces.

Today I again found bloody mucus in the toilet, after other emerging

symptoms of gastritis started to occur over time. I worked out its the

cortex. I cant take the cotex anymore and I'm devastated. In addition I

learnt that coming off the stuff is a nightmare for me. I think it must be

some sort of autoimmune thing. I know I will be on activated charcoal every

4 hours for a week while I go through this whole toxic experience again

coming off it. I can live with that - but I'm devastated that I'm going to

be exhausted again without real hope of recovery. Sorry to pester you guys

like ths. I cant stop crying.

Helen

Start your day with 7 and win a Sony Bravia TV. Enter now

http://au.docs.

<http://au.docs./homepageset/?p1=other & p2=au & p3=tagline>

/homepageset/?p1=other & p2=au & p3=tagline

[Guest guest]

Hi Helen,

I'm really sorry to hear about the rough time you're having. How do

you know it's the adrenal cortex causing the problem though? Did it

stop when you went off it?

I know doctors are generally a waste of time, but do you see any

medical professional for your health issues? Someone in the

natural/alternative medicine arena? I finally found someone useful who

came highly recommended, and it has helped a lot just having monthly

appointments, having someone to keep me on track with trying to heal,

and to talk to about the frustrations along the way. If a supplement

doesn't work for me, he always has an alternative, so it lessens the

time spent feeling upset about this uphill battle. It's so easy to

feel lost on your own... but if you aren't working it may be difficult

to see anyone other than GP's. I wonder if there will ever be a day

where naturopaths and herbalists will be covered by medicare!

After only 6 months I had to quit university just recently after

trying to juggle studying part time with working full time sent my

health crashing down. Now I must dig myself out of the damage

over-stressing my body did. I know you can't work full time, but would

it be possible for you to put your studies on hold and find some

casual work, or maybe work that you can do from home, where you can

decide your own hours and work when you're feeling at your best? To

have money to spend on getting to the bottom of your health issues

would help a lot - but yes, easier said than done.

I really hope things get better for you soon. And this may sound

weird, but try to enjoy the cry, you often feel so much better after

you release those emotions with tears!

Take care,

ita

>

>

> I cried and cried and cried today.

>  

> Having spent years with some sort of chronic fatigue like disorder,

which means I cant work to support myself and my family, and I can

barely pass my  subjects at college, I discovered (after tests) that

I had exhausted adrenals. I learnt that one could potentially get

better/cured by taking bovine adrenal cortex. I ordered some from

overseas. It was great. I almost felt normal. My life

changed. Despite significant problems that I had  when  I suddenly

stopped taking it (when I had run out - some horrible sort of

withdrawal effect), I ordered more nonetheless - I thought I just had

to make sure I didnt run out. It was my dream come true. I could

function almost normally. I felt well. I felt normal. The only other

thing that made me feel well was dexamphetamine (legally prescribed)

and I learnt that this was not a good thing to take for a number of

reasons. Among other things, it gave me horrible  gastritis with

bloody mucus in my feces.

>  

> Today I again found bloody mucus in the toilet, after other 

emerging symptoms of gastritis started to occur over time. I worked

out its the cortex. I cant take the cotex anymore and  I'm

devastated. In addition  I learnt that coming off the stuff is  a

nightmare for  me. I think it must be some sort of autoimmune thing.

I know I will be  on activated charcoal every 4 hours for a week

while  I go through this whole toxic experience again coming off it.

I can live with that - but I'm devastated that I'm going to be

exhausted again without real hope of recovery. Sorry to pester you

guys like ths. I cant stop crying.

>  

> Helen 

>

>

> Start your day with 7 and win a Sony Bravia TV. Enter

now http://au.docs./homepageset/?p1=other & p2=au & p3=tagline

>

>

[Guest guest]

Another Aussie - how  wonderful.

 

You wouldnt believe my story about study, so I'll send it to you privately.

The  rest of the group  could only conclude that I was making it up if I told

them - it's a story I wouldnt believe..

 

I really wish I could take time out from study just to try to get better. But I

need to produce a medical certificate to get leave from my law degree, and

doctors dont think there is anything wrong with me.

 

You are right about feeling very alone in my ill health - very alone. This group

is the nearest I get to not being alone. I have just connected to a naturopath

in Sydney who I found on the NEt who deals with my sort  of issues.

 

Helen

From: ita <juanita@...>

Subject: Re: in need of support

candidiasis

Received: Saturday, 6 December, 2008, 10:25 PM

Hi Helen,

I'm really sorry to hear about the rough time you're having. How do

you know it's the adrenal cortex causing the problem though? Did it

stop when you went off it?

I know doctors are generally a waste of time, but do you see any

medical professional for your health issues? Someone in the

natural/alternative medicine arena? I finally found someone useful who

came highly recommended, and it has helped a lot just having monthly

appointments, having someone to keep me on track with trying to heal,

and to talk to about the frustrations along the way. If a supplement

doesn't work for me, he always has an alternative, so it lessens the

time spent feeling upset about this uphill battle. It's so easy to

feel lost on your own... but if you aren't working it may be difficult

to see anyone other than GP's. I wonder if there will ever be a day

where naturopaths and herbalists will be covered by medicare!

After only 6 months I had to quit university just recently after

trying to juggle studying part time with working full time sent my

health crashing down. Now I must dig myself out of the damage

over-stressing my body did. I know you can't work full time, but would

it be possible for you to put your studies on hold and find some

casual work, or maybe work that you can do from home, where you can

decide your own hours and work when you're feeling at your best? To

have money to spend on getting to the bottom of your health issues

would help a lot - but yes, easier said than done.

I really hope things get better for you soon. And this may sound

weird, but try to enjoy the cry, you often feel so much better after

you release those emotions with tears!

Take care,

ita

>

>

> I cried and cried and cried today.

>  

> Having spent years with some sort of chronic fatigue like disorder,

which means I cant work to support myself and my family, and I can

barely pass my  subjects at college, I discovered (after tests) that

I had exhausted adrenals. I learnt that one could potentially get

better/cured by taking bovine adrenal cortex. I ordered some from

overseas. It was great. I almost felt normal. My life

changed. Despite significant problems that I had  when  I suddenly

stopped taking it (when I had run out - some horrible sort of

withdrawal effect), I ordered more nonetheless - I thought I just had

to make sure I didnt run out. It was my dream come true. I could

function almost normally. I felt well. I felt normal. The only other

thing that made me feel well was dexamphetamine (legally prescribed)

and I learnt that this was not a good thing to take for a number of

reasons. Among other things, it gave me horrible  gastritis with

bloody mucus in my feces.

>  

> Today I again found bloody mucus in the toilet, after other 

emerging symptoms of gastritis started to occur over time. I worked

out its the cortex. I cant take the cotex anymore and  I'm

devastated. In addition  I learnt that coming off the stuff is  a

nightmare for  me. I think it must be some sort of autoimmune thing.

I know I will be  on activated charcoal every 4 hours for a week

while  I go through this whole toxic experience again coming off it.

I can live with that - but I'm devastated that I'm going to be

exhausted again without real hope of recovery. Sorry to pester you

guys like ths. I cant stop crying.

>  

> Helen 

>

>

> Start your day with 7 and win a Sony Bravia TV. Enter

now http://au.docs. / homepageset/ ?p1=other & p2=au & p3= tagline

>

>

[Guest guest]

There are many herbs that can help with adrenals, you can search web

for it. But gastritis pain can be stopped by Zink - Carnizine

supplement. It protect lining and can even kill H Pylori infection.

Hope it can help.

> >

> >

> > I cried and cried and cried today.

> >  

> > Having spent years with some sort of chronic fatigue like

disorder,

> which means I cant work to support myself and my family, and I can

> barely pass my  subjects at college, I discovered (after tests)

that

> I had exhausted adrenals. I learnt that one could potentially get

> better/cured by taking bovine adrenal cortex. I ordered some from

> overseas. It was great. I almost felt normal. My life

> changed. Despite significant problems that I had  when  I

suddenly

> stopped taking it (when I had run out - some horrible sort of

> withdrawal effect), I ordered more nonetheless - I thought I just

had

> to make sure I didnt run out. It was my dream come true. I could

> function almost normally. I felt well. I felt normal. The only

other

> thing that made me feel well was dexamphetamine (legally

prescribed)

> and I learnt that this was not a good thing to take for a number of

> reasons. Among other things, it gave me horrible  gastritis with

> bloody mucus in my feces.

> >  

> > Today I again found bloody mucus in the toilet, after other 

> emerging symptoms of gastritis started to occur over time. I worked

> out its the cortex. I cant take the cotex anymore and  I'm

> devastated. In addition  I learnt that coming off the stuff is  a

> nightmare for  me. I think it must be some sort of autoimmune

thing.

> I know I will be  on activated charcoal every 4 hours for a week

> while  I go through this whole toxic experience again coming off

it.

> I can live with that - but I'm devastated that I'm going to be

> exhausted again without real hope of recovery. Sorry to pester you

> guys like ths. I cant stop crying.

> >  

> > Helen 

> >

> >

> > Start your day with 7 and win a Sony Bravia TV. Enter

> now http://au.docs./homepageset/?p1=other & p2=au & p3=tagline

> >

> >

[Guest guest]

So sorry Helen. It's so hard when something is finally helping you

then it has such a bad side effect.

I take supplements that have B12, Pantothenic acid and little cortex

and they work well but I don't take them much as I feel speed-y on

them. Also I was put on Cortef for adrenal fatigue, just a low dose.

It is a steroid so I don't think it's great with candida but it didn't

bother me, they say on a low dose it's just replacing what your body

isn't making rather than suppressing your immune system.

Perhaps focusing on what is making your adrenals not work well would

be better. Have you had your thyroid checked, with TSH, T3 and reverse

T3? Low thyroid and adrenals often go together (and candida of course).

I'm finding apple cider vinegar is helping with candida, I think, as

on the days the die-off isn't awful (can't say the good days are that

frequent, but they do happen, and I'm at the beginning of the ACV

experiment) I feel more energy and less pain. Maybe trying to

alkalinize your system would help?

Just getting off the cortex isn't dooming you to chronic fatigue and

you will find a way get better without it, you must believe that.

Vicky

>

>

> I cried and cried and cried today.

>

>

[Guest guest]

So sorry Helen. It's so hard when something is finally helping you

then it has such a bad side effect.

I take supplements that have B12, Pantothenic acid and little cortex

and they work well but I don't take them much as I feel speed-y on

them. Also I was put on Cortef for adrenal fatigue, just a low dose.

It is a steroid so I don't think it's great with candida but it didn't

bother me, they say on a low dose it's just replacing what your body

isn't making rather than suppressing your immune system.

Perhaps focusing on what is making your adrenals not work well would

be better. Have you had your thyroid checked, with TSH, T3 and reverse

T3? Low thyroid and adrenals often go together (and candida of course).

I'm finding apple cider vinegar is helping with candida, I think, as

on the days the die-off isn't awful (can't say the good days are that

frequent, but they do happen, and I'm at the beginning of the ACV

experiment) I feel more energy and less pain. Maybe trying to

alkalinize your system would help?

Just getting off the cortex isn't dooming you to chronic fatigue and

you will find a way get better without it, you must believe that.

Vicky

>

>

> I cried and cried and cried today.

>

>

[Guest guest]

Hi Bee & Everyone,

 

I've been going through some more die-off symptoms, which for me are painful

cystic acne on my face.  Not only do they hurt, but they are embarrassing and

sometimes the only way to get rid of them is go to the dermatologist.  I believe

I will be going tomorrow a.m.

 

Anyway, I believe that I am on of the folks that can't even tollerate stevia.  I

made the egg drink this a.m. for a second try.  The first time I made this I did

not care for it at all.  I decided it was worth a second chance.  I believe it

has constipated me and flared up the acne.

 

I must say, I feel frustrated and discouraged, but I know that this is toxins

coming out of my system.  Any encouragement would be greatly appreciated. 

Today, I feel like giving up.

 

Thanks,

 

Gloria

[Guest guest]

>

> Hi Bee & Everyone,

>  

> I must say, I feel frustrated and discouraged, but I know that this is toxins

coming out of my system.  Any encouragement would be greatly appreciated. 

Today, I feel like giving up.  

Thanks,   Gloria

Gloria, suppose you broke your leg. You'd have to go thru healing it & you

couldn't give up. This is the same. You can do it. Susie

[Guest guest]

Hi Gloria,

I'm sorry you're feeling so bad. It may not be the stevia you are reacting to.

Eggs, butter and coconut oil all have anti-fungal properties to them. Some

people are very sensitive to all these things, especially in one drink. You may

need to cut the recipe in half and even minimize the amount of fats you use by

more than half until you build up your tolerance.

The drink really is nutritious, good tasting and good for you. However, it's not

a required part of the plan...it's just that many people find it an easy,

nutritious and good tasting way to take in some of the recommended daily fats.

jackie

> 

> Anyway, I believe that I am on of the folks that can't even tollerate stevia. 

I made the egg drink this a.m. for a second try.  The first time I made this I

did not care for it at all.  I decided it was worth a second chance.  I believe

it has constipated me and flared up the acne.

>  

[Guest guest]

>

> Hi Bee & Everyone,

>  

> I've been going through some more die-off symptoms, which for me are painful

cystic acne on my face.  Not only do they hurt, but they are embarrassing and

sometimes the only way to get rid of them is go to the dermatologist.  I believe

I will be going tomorrow a.m.

>  

> Anyway, I believe that I am on of the folks that can't even tollerate stevia. 

I made the egg drink this a.m. for a second try.  The first time I made this I

did not care for it at all.  I decided it was worth a second chance.  I believe

it has constipated me and flared up the acne.

>  

> I must say, I feel frustrated and discouraged, but I know that this is toxins

coming out of my system.  Any encouragement would be greatly appreciated. 

Today, I feel like giving up.

>  

> Thanks,

>  

> Gloria

>

>

Gloria I've been in your place for 1 whole year I had the worse cystic acne in

the whole world. I really feel for you.

Maby increase your exercise, your epsom salt baths, hotsteam baths, enemas and

dry skin brushing so that your body can detoxify in other ways and not by acne?

Just a thought....When I started dry skin brushing I started having eczemas on

my body, so I skipped the acne part. Eczemas are not good either, but are better

than acne. What do you think?

Just please don't take any antibiotics for acne....this way it will never stop.

And I almost forgot! When some weeks ago I saw some acne ready to flare up, I

immediately put oregano oil + coconut oil as a facial cream, and it went away

next day.

I really know how hard this. Please be patient.

Marisa

[Guest guest]

>

> Hi Bee & Everyone,

>  

> I've been going through some more die-off symptoms, which for me are painful

cystic acne on my face.  Not only do they hurt, but they are embarrassing and

sometimes the only way to get rid of them is go to the dermatologist.  I believe

I will be going tomorrow a.m.

>  

> Anyway, I believe that I am on of the folks that can't even tollerate stevia. 

I made the egg drink this a.m. for a second try.  The first time I made this I

did not care for it at all.  I decided it was worth a second chance.  I believe

it has constipated me and flared up the acne.

+++Hi Gloria. Since you've had acne before during natural healing your body

will " retrace " each and every episode, which is according to Hering's Law of

Cures: http://www.healingnaturallybybee.com/articles/heal8.php

+++So please hang in there, and stick to the program so your body has time to

get though these symptoms. Any other treatments will not help, since it is a

necessary step in the healing process. Only " proper nutrients " will heal your

body in the long run. Antibiotics seem to work since they suppress the

symptoms, which only have to come out later in more debilitating symptoms and

health problems.

+++I do not believe stevia caused your constipation, however some people do not

tolerate it. Again, if you've had constipation in the past your body will

retrace it. Also if you change over to this program too fast you can also get

constipated, so if you did you may need to back off for awhile until you can get

your " good " fats up high enough.

+++See the Success Stories on my website for more encouragement - you can use

your Browser's Edit Find On This Page function with any word to find specific

stories about skin problems.

The best to you, Bee

[Guest guest]

Yes, I felt the same way... I cried and cried till finally I had to come to grips that this is the right thing we are doing for our son.  What made me really come to terms with the whole thing is I thought if your child had crooked teeth you wouldn't think twice about braces and our son has a non so round head so we are making it round again.  Our little guy has been in his band for 2 weeks and trust me I still snuggle with him, still nurse  him, still kiss his little head it all works out.  We are in Texas and have already had straight days of 100+ degree weather, it is an adjustment but we just keep him inside and cool he doesn't seem to mind.  It does get easier and once I saw how little the band bothered or effected him I felt much better about the whole thing.

Trust me I still have the why us days but I am glad we are doing this.

 

Mark 6months DOC band 2 weeks

On Mon, Jun 29, 2009 at 11:17 AM, geanine.hunt <geanine.hunt@...> wrote:

my son is about to receive his helmet tomorrow for his plagiocephaly and I'm having a really difficult time. i know that he needs it & obviously, we are going through with it, but that doesn't make it easy. i feel like i'm going to miss out on snuggling with him and holding him the way that he likes b/c of this big, intrusive piece of equipment. not to mention that i worry he will be so hot having to wear it in the dead of summer. did other mom's feel the same way at first? how do you cope with these feelings? any advice would be greatly appreciated b/c i am so anxious about this as our appt. is tomorrow. thanks so much!

[Guest guest]

Geanine,

Our son (almost 6 months) has been in his DOC band now for a week and a half. I

had mixed feelings going into treatment. Like you, I was sad that he'd have to

wear it during the blazing hot summer and that our snuggle time wouldn't be

quite the same. On the other hand, I knew we were doing the right thing by

proceeding with treatment and I was even somewhat excited that we were finally

going to start seeing his little head shape change. He is doing great -- doesn't

seem to notice the Band at all. We've limited our time outdoors, since it is

over 100 degrees here in Austin, Texas. (I remind myself often that even if he

wasn't in the band, we probably wouldn't be doing much outside in 100+ degree

heat!) And snuggle time is still great..we just give lots of kisses on the top

of his head now, instead of on the side, where the band is. That's a small

sacrifice for the change we've already seen in a week and a half. He had a big

growth spurt last week (4 mm) and we did see very significant improvement. That

was exciting and reminds me that this season, too, will pass quickly.

On a practical note, I secured a 6-inch fan to the tray of his stroller (out of

his reach) and that has helped keep him cool when we have to be outdoors and

when we go on early morning walks, which we're still doing most days.

Be encouraged that change is on the horizon...I bet that as soon as you start to

see his progress, your sadness will quickly change to excitement!

Jill

mom of Cade, 6 mo

fitted with DOC Band, 06/18/09

Austin, Texas

>

> my son is about to receive his helmet tomorrow for his plagiocephaly and I'm

having a really difficult time. i know that he needs it & obviously, we are

going through with it, but that doesn't make it easy. i feel like i'm going to

miss out on snuggling with him and holding him the way that he likes b/c of this

big, intrusive piece of equipment. not to mention that i worry he will be so

hot having to wear it in the dead of summer. did other mom's feel the same way

at first? how do you cope with these feelings? any advice would be greatly

appreciated b/c i am so anxious about this as our appt. is tomorrow. thanks so

much!

>

[Guest guest]

I totally understand. We got a helmet 5 weeks ago. And it was hard. And I do

miss being able to easily kiss his cheeks or rub his little head.

But realistically--before we got it, it made me sad TO cuddle his head and

realize how flat that spot was, and how out of line his ear was. And to kiss

his little cheek and see how different his left and right cheekbones were---

Realized I was going to be sad about ONE of those two things, and would rather

be a little sad about the one that would have a good outcome!!

Hang in there! You're doing what you can for your little guy; you're a good

mom! My son hasn't minded the helmet a BIT; he actually seems to be happy when

we put it back on after taking it off for cleaning it. And I still snuggle him

a lot, and snuggle his fuzzy head when the helmet is off

Betsy

my son is about to receive his helmet tomorrow for his plagiocephaly and I'm

having a really difficult time. i know that he needs it & obviously, we are

going through with it, but that doesn't make it easy. i feel like i'm going to

miss out on snuggling with him and holding him the way that he likes b/c of this

big, intrusive piece of equipment. not to mention that i worry he will be so hot

having to wear it in the dead of summer. did other mom's feel the same way at

first? how do you cope with these feelings? any advice would be greatly

appreciated b/c i am so anxious about this as our appt. is tomorrow. thanks so

much!

[Guest guest]

-Thank you all for the support, it is so helpful. I know that we are absolutely

doing the right thing, it's just hard. I will let you all know how tomorrow

goes. Fingers crossed that does as well as some of your children.

Thanks again!

>