Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 Hi Ana, I know my mom (who has RA) has been told by her GP to take it in pill form because her blood tests show she is low on B12. My understanding is that a B12 deficiency can exacerbate RA fatigue, among other things. I also believe it is wise to have your blood levels checked regularly if you're taking B12 so that you achieve optimal levels, rather than going too high or too low. My mom's doctor has her levels checked every 3 months and adjusts how much she's supposed to take accordingly. Hugs a Peden > Ana Willson wrote: > > Dear Group, > Has anyone hear of Vitamin B12 being prescribed for RA? My doctor has > added injections of 1cc of Vitamin B12, 3x per week....She said it > would be probably 3 times a week for 3 months, then twice a week for 2 > months and once a week for 1 month.....Said it would help with a very > resistant respiratory virus I've been fighting. > Ana in Alaska > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 ----Dear Ana, Often with these sorts of illnesses, there are malabsorbtion problems. It is not uncommon for people to be low in B12. because this is a vitamin which is manufactured in the bowel as well as coming from some foods. Many of us have long standing bowel infections and cannot always absorb our vitamins. It would be good if you had a blood test to see if you need it first, but I have heard that it does really help some people. Love, Rosemary. allrosy@... - Original Message ----- From: Ana Willson rheumatic Sent: Monday, April 16, 2001 4:43 AM Subject: rheumatic Vitamin B12 Dear Group, Has anyone hear of Vitamin B12 being prescribed for RA? My doctor has added injections of 1cc of Vitamin B12, 3x per week....She said it would be probably 3 times a week for 3 months, then twice a week for 2 months and once a week for 1 month.....Said it would help with a very resistant respiratory virus I've been fighting. Ana in Alaska To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2005 Report Share Posted March 5, 2005 Hi Lesley, I think I responded to one of your previous posts. B12 along with other B vits. as well, tends to be something we hypos can't absorb easily from the gut. B12 can be little short of miraculous for lifting your mood. Doses of a 1000mgs does the trick for me. I take enzymes to help me break down and digest my food. The trick is to cleanse the liver with milk thistle capsules, as much of our T4 to T3 conversion happens here, ant to some extent our kidneys. The iron is an absolute MUST you may not feel it is doing anything, but keep taking it. It's good for the hair loss, but be careful you can overdose on iron. Get advice on how much to safely take. Val. Vitamin B12 > > > > Hi, > > I'm new to the group and wondered if anyone can give me advice or > tell me of similar experiences. > > I've had hypothroidism for about 4 years now. Up until recently > everything was fine. I'm taking 75mcg of thyroxine, antidepresants > and mefemamic acid for heavy painful periods. I've been experiencing > increasing memory loss for a few months now, accompanied by confusion > and headaches. I'm off work now partly because of my health problems > and partly because a work colleague has started to bully me for not > remembering things. > > My last blood test showed border line anemia and I was perscribed > iron tablets, which I took for a while and then stopped as they > didn't seem to be doing much. > > I've been reading about Vitamin B12 and the lack of it in people with > our condition. > > Has anyone experience of this problem - how did it get solved - what > tests should I ask for? > > I would be grateful for any ideas, comments or similar experiences. > > Kind Regards > Lesley > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2005 Report Share Posted March 5, 2005 Hi Val, how many Milk thistle caps did you take? Kerry Re: Vitamin B12 Hi Lesley, I think I responded to one of your previous posts. B12 along with other B vits. as well, tends to be something we hypos can't absorb easily from the gut. B12 can be little short of miraculous for lifting your mood. Doses of a 1000mgs does the trick for me. I take enzymes to help me break down and digest my food. The trick is to cleanse the liver with milk thistle capsules, as much of our T4 to T3 conversion happens here, ant to some extent our kidneys. The iron is an absolute MUST you may not feel it is doing anything, but keep taking it. It's good for the hair loss, but be careful you can overdose on iron. Get advice on how much to safely take. Val. Vitamin B12 > > > > Hi, > > I'm new to the group and wondered if anyone can give me advice or > tell me of similar experiences. > > I've had hypothroidism for about 4 years now. Up until recently > everything was fine. I'm taking 75mcg of thyroxine, antidepresants > and mefemamic acid for heavy painful periods. I've been experiencing > increasing memory loss for a few months now, accompanied by confusion > and headaches. I'm off work now partly because of my health problems > and partly because a work colleague has started to bully me for not > remembering things. > > My last blood test showed border line anemia and I was perscribed > iron tablets, which I took for a while and then stopped as they > didn't seem to be doing much. > > I've been reading about Vitamin B12 and the lack of it in people with > our condition. > > Has anyone experience of this problem - how did it get solved - what > tests should I ask for? > > I would be grateful for any ideas, comments or similar experiences. > > Kind Regards > Lesley > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2005 Report Share Posted March 5, 2005 you need better thyroid treatment, then you can get off the other drugs. If you don't get treated properly you will develop other health problems. Have you looked at topdoc lists? http://www.geocities.com/thyroide Gracia > > > > Hi, > > I'm new to the group and wondered if anyone can give me advice or > tell me of similar experiences. > > I've had hypothroidism for about 4 years now. Up until recently > everything was fine. I'm taking 75mcg of thyroxine, antidepresants > and mefemamic acid for heavy painful periods. I've been experiencing > increasing memory loss for a few months now, accompanied by confusion > and headaches. I'm off work now partly because of my health problems > and partly because a work colleague has started to bully me for not > remembering things. > > My last blood test showed border line anemia and I was perscribed > iron tablets, which I took for a while and then stopped as they > didn't seem to be doing much. > > I've been reading about Vitamin B12 and the lack of it in people with > our condition. > > Has anyone experience of this problem - how did it get solved - what > tests should I ask for? > > I would be grateful for any ideas, comments or similar experiences. > > Kind Regards > Lesley > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2005 Report Share Posted March 5, 2005 Hi Kerry, The bottle says 1 capsule three times a day preferably with food. I sometimes take two per meal twice a day, along with a digestive enzyme. It gets rid of that puffing up like a bullfrog every time food or drink passes my lips! Love, Val. Vitamin B12 > > > > > > > > > > Hi, > > > > I'm new to the group and wondered if anyone can give me advice or > > tell me of similar experiences. > > > > I've had hypothroidism for about 4 years now. Up until recently > > everything was fine. I'm taking 75mcg of thyroxine, antidepresants > > and mefemamic acid for heavy painful periods. I've been experiencing > > increasing memory loss for a few months now, accompanied by confusion > > and headaches. I'm off work now partly because of my health problems > > and partly because a work colleague has started to bully me for not > > remembering things. > > > > My last blood test showed border line anemia and I was perscribed > > iron tablets, which I took for a while and then stopped as they > > didn't seem to be doing much. > > > > I've been reading about Vitamin B12 and the lack of it in people with > > our condition. > > > > Has anyone experience of this problem - how did it get solved - what > > tests should I ask for? > > > > I would be grateful for any ideas, comments or similar experiences. > > > > Kind Regards > > Lesley > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Traditionally made tempeh contains Vit B12, however the commerical varieties come up short because the conditions that they are fermented in are too clean. I've made my own, but do not know the B12 content. Nora --------------------------------- Use Photomail to share photos without annoying attachments. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Nora Braverman wrote: >Traditionally made tempeh contains Vit B12, however the commerical >varieties come up short because the conditions that they are >fermented in are too clean. I've made my own, but do not know the >B12 content. This is due to a secondary fermentation by bacteria. " Clean room " style tempeh made with sterile ingredients and pure tempeh fungus starter will not increase levels of B12, but your home-made tempeh might, as does traditional Indonesian tempeh. -- Ross McKay, Toronto, NSW Australia " There is more to life than simply increasing its speed. " - Mahatma Gandhi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2006 Report Share Posted March 25, 2006 Hello, I have MS, and I have been taking Avonex for 9 yrs now. I had to ask the doctor for the B12 shot, they really don't like giving them to you. The B12 shot really helps me alot, and I have been taking them every month for the last 3 yrs, and proldy make sure I get it. I hope everyone who has MS will get them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 In a message dated 3/26/2006 2:06:48 P.M. Eastern Standard Time, jharbott@... writes: how would the B12 tablets that you dissolve under tongue be? Jim if you decide to take b-12 make sure it's the methyl cobalamin, and not hydroxy, cyano or adenosyl. Did you see the earlier post from Shirley re the methylcobalamin? She had some brand recommendations that she got from an herbalist. Let me know if you need to see her post. Be well, Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 Hi, I was on Avonex about 16 months, had to quite because it almost killed me, very bad reaction after that long, now I'm on LDN, doing much better. After taking the B12 shots, what benefit do you see? My doctor tested me for B12 and said I was fine, do you think I would still get some benefit from taking B12? how would the B12 tablets that you dissolve under tongue be? Jim Re: [low dose naltrexone] Vitamin B12 Hello, I have MS, and I have been taking Avonex for 9 yrs now. I had to ask the doctor for the B12 shot, they really don't like giving them to you. The B12 shot really helps me alot, and I have been taking them every month for the last 3 yrs, and proldy make sure I get it. I hope everyone who has MS will get them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Arlene; Would you please forward Shirley's post, Thanx, Jim Re: [low dose naltrexone] Vitamin B12 In a message dated 3/26/2006 2:06:48 P.M. Eastern Standard Time, jharbott@... writes: how would the B12 tablets that you dissolve under tongue be? Jim if you decide to take b-12 make sure it's the methyl cobalamin, and not hydroxy, cyano or adenosyl. Did you see the earlier post from Shirley re the methylcobalamin? She had some brand recommendations that she got from an herbalist. Let me know if you need to see her post. Be well, Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 I was self-injecting 1,000mg of B-12 every week and it did nothing for me. I stopped after 5 months. I guess it gets down to how it helps some people while not others. Bob From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of ShaginLsme@... Sent: Saturday, March 25, 2006 8:34 PM low dose naltrexone Subject: Re: [low dose naltrexone] Vitamin B12 Hello, I have MS, and I have been taking Avonex for 9 yrs now. I had to ask the doctor for the B12 shot, they really don't like giving them to you. The B12 shot really helps me alot, and I have been taking them every month for the last 3 yrs, and proldy make sure I get it. I hope everyone who has MS will get them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 If you have sufficient B vitamins in your system, the balance flush out. You probably saw little help because most likely you had as much in your body as your body could use. Bruce Guilmette, PhD Survive Cancer Foundation, Inc. Http://survivecancer.net Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Matt 6:34 (NIV) From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Bob Sent: Monday, March 27, 2006 12:01 PM low dose naltrexone Subject: RE: [low dose naltrexone] Vitamin B12 I was self-injecting 1,000mg of B-12 every week and it did nothing for me. I stopped after 5 months. I guess it gets down to how it helps some people while not others. Bob From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of ShaginLsme@... Sent: Saturday, March 25, 2006 8:34 PM low dose naltrexone Subject: Re: [low dose naltrexone] Vitamin B12 Hello, I have MS, and I have been taking Avonex for 9 yrs now. I had to ask the doctor for the B12 shot, they really don't like giving them to you. The B12 shot really helps me alot, and I have been taking them every month for the last 3 yrs, and proldy make sure I get it. I hope everyone who has MS will get them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Thanks Bruce. You are correct, Bob From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Bruce Guilmette PhD Sent: Monday, March 27, 2006 12:58 PM low dose naltrexone Subject: RE: [low dose naltrexone] Vitamin B12 If you have sufficient B vitamins in your system, the balance flush out. You probably saw little help because most likely you had as much in your body as your body could use. Bruce Guilmette, PhD Survive Cancer Foundation, Inc. Http://survivecancer.net Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own. Matt 6:34 (NIV) ! GROUPS LINKS Visit your group " low dose naltrexone " on the web. To unsubscribe from this group, send an email to: low dose naltrexone-unsubscribe Your use of is subject to the Terms of Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Several years ago, before I knew I had a problem with candida, I was tired all of the time. My conventional doctor tested my blood and found out that I had a deficiency is vitamin B (I think it was more than just B12 ) I took B vitamins for a while, and it really helped. I think what I was told to buy was a complex of all B vitamins. Sorry I don't remember the dosage. You might want to go to the doctor and have your blood tested for the B vitamins and all other vitamins and minerals as well. Someone a few days ago responded to a post dealing with the heart and candida and her blood was tested and several mineral deficiencies were found. Good luck, >From: " emlshaw " <rljshaw@...> >Reply-candidiasis >candidiasis >Subject: Vitamin B12 >Date: Tue, 20 Jun 2006 15:29:04 -0000 > >I have been doing the candida diet for weeks now and also taking many >supplements: Natural Calm/milk thistle (thanks to Keen's advice)/ >rotating capyrillic acid, garlic and grapefruit seed extract/1500 mg >of vitamin C/ 1000 MG of cod fish oil/one pearl a day (probiotic) >My question is that I am still experiencing a lot of fatigue. Getting >more than enough sleep at night and still exhausted in the day. My >mother rec. Vitamin B12 - does anyone know how much (dosage) I should >take or if anyone has used this in the past - what kind of results did >you get? It's supposed to help with Chronic Fatigue Syndrome. >Thanks, >a > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Several years ago, before I knew I had a problem with candida, I was tired all of the time. Also, I think I had the vitamin B deficiency when I was eating alot of carbohydrates, most of which were refined carbohydrates. Good luck, >From: " emlshaw " <rljshaw@...> >Reply-candidiasis >candidiasis >Subject: Vitamin B12 >Date: Tue, 20 Jun 2006 15:29:04 -0000 > >I have been doing the candida diet for weeks now and also taking many >supplements: Natural Calm/milk thistle (thanks to Keen's advice)/ >rotating capyrillic acid, garlic and grapefruit seed extract/1500 mg >of vitamin C/ 1000 MG of cod fish oil/one pearl a day (probiotic) >My question is that I am still experiencing a lot of fatigue. Getting >more than enough sleep at night and still exhausted in the day. My >mother rec. Vitamin B12 - does anyone know how much (dosage) I should >take or if anyone has used this in the past - what kind of results did >you get? It's supposed to help with Chronic Fatigue Syndrome. >Thanks, >a > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 It could also be what you are eating. Are you getting enough food every day, with enough calories? What about food allergies, have you tried eliminating corn, fish (I get that from fish), all gluten? Do you keep a diary with the food you eat and your symptoms or do you have another way of tracking down which food might be responsible? Do you know if you have leaky gut? When I was a vegetarian (years ago), I took the strongest dose B12 I could find, it was sublingual and over 1000mg (can't remember the exact dosage). It made me feel much better, I could feel it when I didn't take it. Keen Vitamin B12 I have been doing the candida diet for weeks now and also taking many supplements: Natural Calm/milk thistle (thanks to Keen's advice)/ rotating capyrillic acid, garlic and grapefruit seed extract/1500 mg of vitamin C/ 1000 MG of cod fish oil/one pearl a day (probiotic) My question is that I am still experiencing a lot of fatigue. Getting more than enough sleep at night and still exhausted in the day. My mother rec. Vitamin B12 - does anyone know how much (dosage) I should take or if anyone has used this in the past - what kind of results did you get? It's supposed to help with Chronic Fatigue Syndrome. Thanks, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 Keen, So by sublingual you mean it dissolves under the tongue? How does it taste? Thanks! Alison _____ From: candidiasis [mailto:candidiasis ] On Behalf Of Keen Venables Sent: Wednesday, June 21, 2006 1:04 AM candidiasis Subject: RE: Vitamin B12 It could also be what you are eating. Are you getting enough food every day, with enough calories? What about food allergies, have you tried eliminating corn, fish (I get that from fish), all gluten? Do you keep a diary with the food you eat and your symptoms or do you have another way of tracking down which food might be responsible? Do you know if you have leaky gut? When I was a vegetarian (years ago), I took the strongest dose B12 I could find, it was sublingual and over 1000mg (can't remember the exact dosage). It made me feel much better, I could feel it when I didn't take it. Keen Vitamin B12 I have been doing the candida diet for weeks now and also taking many supplements: Natural Calm/milk thistle (thanks to Keen's advice)/ rotating capyrillic acid, garlic and grapefruit seed extract/1500 mg of vitamin C/ 1000 MG of cod fish oil/one pearl a day (probiotic) My question is that I am still experiencing a lot of fatigue. Getting more than enough sleep at night and still exhausted in the day. My mother rec. Vitamin B12 - does anyone know how much (dosage) I should take or if anyone has used this in the past - what kind of results did you get? It's supposed to help with Chronic Fatigue Syndrome. Thanks, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2006 Report Share Posted June 21, 2006 The one I had tasted very nice. But you have no taste buds under your tongue, only on the top. Keen Vitamin B12 I have been doing the candida diet for weeks now and also taking many supplements: Natural Calm/milk thistle (thanks to Keen's advice)/ rotating capyrillic acid, garlic and grapefruit seed extract/1500 mg of vitamin C/ 1000 MG of cod fish oil/one pearl a day (probiotic) My question is that I am still experiencing a lot of fatigue. Getting more than enough sleep at night and still exhausted in the day. My mother rec. Vitamin B12 - does anyone know how much (dosage) I should take or if anyone has used this in the past - what kind of results did you get? It's supposed to help with Chronic Fatigue Syndrome. Thanks, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 The candida is probably causing anaemia. To treat the anaemia and restore your energy levels you need to take at least double the normal recommended dose of the following nutrients: B12, Iron, folic acid. Obviously however, you need to get rid of the candida and anything else that might be inside you that shouldn't be - becasue that will be taking up all the nutrition and you will be left feeling weak and tired. Helen Helen > > It could also be what you are eating. Are you getting enough food every > day, with enough calories? What about food allergies, have you tried > eliminating corn, fish (I get that from fish), all gluten? Do you keep > a diary with the food you eat and your symptoms or do you have another > way of tracking down which food might be responsible? Do you know if > you have leaky gut? > > When I was a vegetarian (years ago), I took the strongest dose B12 I > could find, it was sublingual and over 1000mg (can't remember the exact > dosage). It made me feel much better, I could feel it when I didn't > take it. > > Keen > > Vitamin B12 > > I have been doing the candida diet for weeks now and also taking many > supplements: Natural Calm/milk thistle (thanks to Keen's advice)/ > rotating capyrillic acid, garlic and grapefruit seed extract/1500 mg > of vitamin C/ 1000 MG of cod fish oil/one pearl a day (probiotic) > My question is that I am still experiencing a lot of fatigue. Getting > more than enough sleep at night and still exhausted in the day. My > mother rec. Vitamin B12 - does anyone know how much (dosage) I should > take or if anyone has used this in the past - what kind of results did > you get? It's supposed to help with Chronic Fatigue Syndrome. > Thanks, > a > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2011 Report Share Posted January 24, 2011 Hi, From the emails I've read here it seems that quite a few people take vitamin B12, either in pill form or injection. I was just re-tested after getting 9 shots and my B12 has improved quite a bit (to 689 from 189). My Dr wants me to keep taking a supplement but she said I could go with the pill form now if I wanted to and get re-tested in a few months. As it would be easier for me to take pills rather than drive all the way to my Dr I have picked up the vitamin (2000 mg/day) but haven't started yet as I'm unsure when to take it. I've looked on the internet and there is conflicting advice so I thought I'd ask here to get some hands on advice from people with experience. Should it be taken with food or without? Should I take 1/2 in the morning and 1/2 in the evening or all at once? Can it upset my stomach or are there any other side effects I should be aware of? Any information at all would be greatly appreciated. Thank you, PJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2011 Report Share Posted January 25, 2011 Hi, I've also just recently began taking B12 and am also curious if others have taken this vitamin and the results. My understanding is that improves immunity, which mine is terrible. Heidi in Denver ________________________________ From: Patti Yuswak <WhtBC10@...> Sent: Mon, January 24, 2011 10:18:38 PM Subject: [ ] Vitamin B12 Hi, From the emails I've read here it seems that quite a few people take vitamin B12, either in pill form or injection. I was just re-tested after getting 9 shots and my B12 has improved quite a bit (to 689 from 189). My Dr wants me to keep taking a supplement but she said I could go with the pill form now if I wanted to and get re-tested in a few months. As it would be easier for me to take pills rather than drive all the way to my Dr I have picked up the vitamin (2000 mg/day) but haven't started yet as I'm unsure when to take it. I've looked on the internet and there is conflicting advice so I thought I'd ask here to get some hands on advice from people with experience. Should it be taken with food or without? Should I take 1/2 in the morning and 1/2 in the evening or all at once? Can it upset my stomach or are there any other side effects I should be aware of? Any information at all would be greatly appreciated. Thank you, PJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2011 Report Share Posted March 19, 2011 That works if you are not greatly depleted or don't have a script. Shots work much quicker.Save the earth... It's the only planet with chocolate," a well behaved woman never made history " Mae WestOn Mar 19, 2011, at 9:02 AM, "dianedellicarpini" <dellcar9@...> wrote: vitamin B12 does not make it through the stomach acid. The best one to get is the sublingual type, you place it under your tongue and let it dissolve. I have had good luck with that type and yes it sure does help with depression. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2011 Report Share Posted March 20, 2011 Yes shots are better, just wanted people to know that if you are going to buy B12 supplements that you shoud get the sublingual. > > vitamin B12 does not make it through the stomach acid. The best one to get is the sublingual type, you place it under your tongue and let it dissolve. I have had good luck with that type and yes it sure does help with depression. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.