Re: Re: Back to Hosp for me in AM

[Guest guest]

Hi my dear friends,

Well, apparently I have started to bleed again internally AGAIN. I was

admitted last Tuesday and received 2 units of blood and told that I had

developed another ulcer. The first one and biggest from November

causing 7 units of blood were healing. I was released on Sunday and I

started showing signs of bleeding again on Monday. The GI doc says that

he is worried about my blood again. He wanted me to go today, but just

couldn't, will go first thing in am. Probably won't come home tomorrow.

A little scared about now.

Will keep in touch.

Gentle, tender angel hugs................

Debs in FL

[ ] Re: My Surgery! I survived!

Hi Dodge:

I am so happy to read that your surgery is over, went well, and you are

on the road to a great recovery. Glad you did so good!

Wishing you a full recovery, and pain free days ahead.

Hugs.

Barbara

>

> Hey Dodge!

>

> I'm so glad you survived! and are now freed!!! yay!!! Hoping your

> recovery goes quickly and smoothly!!!

>

> Heidi in Mass.

>

>

>

>

>

> In a message dated 2/17/2009 2:38:04 A.M. Eastern Standard Time,

> medicdodge@... writes:

>

>

>

>

> Ok, I know you are all just dying to know what happened during the

Dodge at

> Surgery Show... NOOOOOOOT. So, I'll tell ya.

>

> It went something like this. Rod took me and two books. One for him

about

> telivision, and one for me called Leaderdogs for the Blind: Whither

Thou Goest,

> about the forming of that particular guide dog school. Why? You ask?

Because

> I have been active in training dogs for service/guide and

protection/law

> enforcement work, as well as detection, search and rescue and

competition,

> since I was 12, and it was my first thorough reading on the subject...

And one

> of my favorite books still today!

>

> We had to wait for a looooooong time. Apparently doctor was behind. We

made

> it to chapter 4. This book is out of print and was written in 1982,

but if

> you are a serious dog person, get it, read it, take notes!

>

> Anyway, finally, they brought me back into a room. There was the usual

> changing into a gown stuff, which Rod had to help me with, because

they wouldn't

> let me take my morning meds, no other docs have ever had a problem

with me

> taking an opioid injection a couple hours before surgery. Then I was

ready.

>

> One of the nurses came in and gave me two pills, both for my stomach,

then,

> they took me to " the Holding Area " . And I'm like thinking what the

hell did

> I do wrong?

>

> While I'm there the first nurse who comes up to me starts talking to

me

> about my service dog. I'm like how do you know I have one? I ask. She

says they

> wrote him, and his name and breed in my chart, along with how

beautiful he

> is. She even let me see it. I had not brought him up there with me.

The plan

> was for Rod to bring him at the end.

>

> I was then spoken to by the nurse anesthetist. She noted that I was

very

> opioid/drug tolerant. I mentioned it, but she said she was aware, and

by the

> tone of her voice and her body language, she was. She talked to the

> circulating nurse and the anesthesiologist who then both came and

talked to me. The

> anesthesiologist said, " Well, since you didn't take your meds, we'll

just

> give you what will get you up to the point as though you had, then,

we'll give

> you the extra narcotics for your procedure. " They also gave me some

verced,

> because I was so scared I was shaking. I wasn't scared long. I

received

> that, plus Dilaudid and Fentanyl.

>

> After giving me " enough narcotics to kill a horse " and being surprised

that I

> was still chattering like a magpie on a sunny day, the

anesthesiologist was

> about to order me to have more, when the doctor said he was ready.

this

> meant I got them on the move.

>

> Flashback to the age of two, and when I had an organ

transplant..Flashback

> to the age of two, and when I had an organ transplant..<WBR>. A big

room...brig

> over my face and me freaking out.

>

> This time, at least they warned me, and honestly, I was too relaxed

and

> pain-free to care. I had nice pain free thoughts.

>

> ... ... ... ... .. ... ... ... ...

>

> I was " " . I was dying. They told me I couldn't go home because I

was

> dying... I was very upset.

>

> ... ... ... ... .. ... ... ... ...

>

> I woke up. I found out later that there had been a in the room.

She had

> coded and slipped away. She was 99.

>

> She gave it her best shot, but obviously, it was time for her to come

home.

>

> First thing I noticed upon waking was THAT I HURT! There was a nurse

right

> there who asked me if I was in pain and I said yes, and immediately, I

was

> given

> some morphine. Again, " Enough to kill a horse. " It last a little over

an

> hour and again...same dose.

>

> The second thing I noticed is that I was freezing...I was covered with

> blankets. The third thing I noticed was... I had to pee. They bring me

this bedpan

> and I'm like, " Heck no, I can walk to a bathroom. " Nope. Well, I

finally

> gave up on that, since they wouldn't cath me or let me sit up and

peeing lying

> down is against my instincts. Probably against yours, too. Yeah, I

know, I'm

> being gross, here. No more gross, I promise.

>

> Finally, I was ready to go back downstairs. I did and I basically

waited

> around a while, but this time I got to see Rod! I was so happy to see

him.!

> I was also happy to see Dewey Mooey who lapped my face with kisses,

and

> bumped my knee...twice!

>

> Then, finally...finally.Then, Then,

> finally...finally.<WBR>..Finally.<WBR>.. They brought me a wheelchair

and I was

>

> More waiting and I got to leave.

>

> While I was in recovery, and Rod was speaking to the doctor, Rod tried

to

> explain to the man about chronic pain patients, breakthrough pain,

etc, etc, and

> that all these meds I take only help me deal with the myriad oooooos

and ows

> I face every day, and there are a lot of them, not knew ones that

might crop

> up...He wouldn't budge.

>

> Not to worry, Dodge was prepared. Dodge thought ahead, and he did get

some

> post op pain meds...just not from his surgeon. Thank you Doctor D!

>

> I got out of there and was so hungry I could have eaten an elephant,

so

> after stopping at my favorite place for take out, I came home, where I

ate and_

> have

> been resting ever since.

>

> --

> Dodge

>

> Read my blog at:

>

>

>

>

>

> _ (http://www.brainyquote.com/quotes/quotes/b/barackobam409128.html)

> _http://jumpthis.http://jumhtt_ (http://jumpthis.wordpress.com/) _

>

> Visit me at:

> _ (http://www.brainyquote.com/quotes/quotes/b/barackobam409128.html)

> _http://www.grohttp://www.yahhttp://www.yhttp://_

> (http://www./group/a_different_reality) _

>

> And my adults only journal at:

> _ (http://www.brainyquote.com/quotes/quotes/b/barackobam409128.html)

> _http://www.my-http://www.mhttp://ww_

(http://www.my-journal.com/slaveheat) _

>

> You can check out the progress of my new service dog in training here:

> _ (http://www.brainyquote.com/quotes/quotes/b/barackobam409128.html)

> _http://www.my-http://www.mhttp://www.my_

(http://www.my-journal.com/demonsjournal)

>

> (http://www.brainyquote.com/quotes/quotes/b/barackobam409128.html)

> **************You can't always choose whom you love, but you can

> choose how to find them. Start with AOL Personals.

> (http://personals.aol.com/?ncid=emlcntuslove00000002)

>

>

>

[Guest guest]

hang in there debs!!! may you get the help and rest you need

kathy in il

**************Need a job? Find employment help in your area.

(http://yellowpages.aol.com/search?query=employment_agencies & ncid=emlcntusyelp00\

000005)

[Guest guest]

wow......

I was admitted last Monday to Tampa Gen hosp for internal bleeding and a blood

sugar over 1100  !!!!!

The highest sugar I ever had previously was 130.....

I stayed 6 days.  I am still bleeding and going to a lab every other day for

blood counts...

We do believe after 6 years on celebrex and very small doses of pred  - usually

2.5 my stomach gave out....

 

I am exhausted but recovering....

 

Good luck tomorrow.

Raniolo

From: BadKneesDebs@... <BadKneesDebs@...>

Subject: Re: [ ] Re: Back to Hosp for me in AM

Date: Wednesday, March 4, 2009, 10:59 PM

Hi my dear friends,

Well, apparently I have started to bleed again internally AGAIN. I was

admitted last Tuesday and received 2 units of blood and told that I had

developed another ulcer. The first one and biggest from November

causing 7 units of blood were healing. I was released on Sunday and I

started showing signs of bleeding again on Monday. The GI doc says that

he is worried about my blood again. He wanted me to go today, but just

couldn't, will go first thing in am. Probably won't come home tomorrow.

A little scared about now.

Will keep in touch.

Gentle, tender angel hugs........ ........

Debs in FL

[ ] Re: My Surgery! I survived!

Hi Dodge:

I am so happy to read that your surgery is over, went well, and you are

on the road to a great recovery. Glad you did so good!

Wishing you a full recovery, and pain free days ahead.

Hugs.

Barbara

>

> Hey Dodge!

>

> I'm so glad you survived! and are now freed!!! yay!!! Hoping your

> recovery goes quickly and smoothly!!!

>

> Heidi in Mass.

>

>

>

>

>

> In a message dated 2/17/2009 2:38:04 A.M. Eastern Standard Time,

> medicdodge@. .. writes:

>

>

>

>

> Ok, I know you are all just dying to know what happened during the

Dodge at

> Surgery Show... NOOOOOOOT. So, I'll tell ya.

>

> It went something like this. Rod took me and two books. One for him

about

> telivision, and one for me called Leaderdogs for the Blind: Whither

Thou Goest,

> about the forming of that particular guide dog school. Why? You ask?

Because

> I have been active in training dogs for service/guide and

protection/law

> enforcement work, as well as detection, search and rescue and

competition,

> since I was 12, and it was my first thorough reading on the subject...

And one

> of my favorite books still today!

>

> We had to wait for a looooooong time. Apparently doctor was behind. We

made

> it to chapter 4. This book is out of print and was written in 1982,

but if

> you are a serious dog person, get it, read it, take notes!

>

> Anyway, finally, they brought me back into a room. There was the usual

> changing into a gown stuff, which Rod had to help me with, because

they wouldn't

> let me take my morning meds, no other docs have ever had a problem

with me

> taking an opioid injection a couple hours before surgery. Then I was

ready.

>

> One of the nurses came in and gave me two pills, both for my stomach,

then,

> they took me to " the Holding Area " . And I'm like thinking what the

hell did

> I do wrong?

>

> While I'm there the first nurse who comes up to me starts talking to

me

> about my service dog. I'm like how do you know I have one? I ask. She

says they

> wrote him, and his name and breed in my chart, along with how

beautiful he

> is. She even let me see it. I had not brought him up there with me.

The plan

> was for Rod to bring him at the end.

>

> I was then spoken to by the nurse anesthetist. She noted that I was

very

> opioid/drug tolerant. I mentioned it, but she said she was aware, and

by the

> tone of her voice and her body language, she was. She talked to the

> circulating nurse and the anesthesiologist who then both came and

talked to me. The

> anesthesiologist said, " Well, since you didn't take your meds, we'll

just

> give you what will get you up to the point as though you had, then,

we'll give

> you the extra narcotics for your procedure. " They also gave me some

verced,

> because I was so scared I was shaking. I wasn't scared long. I

received

> that, plus Dilaudid and Fentanyl.

>

> After giving me " enough narcotics to kill a horse " and being surprised

that I

> was still chattering like a magpie on a sunny day, the

anesthesiologist was

> about to order me to have more, when the doctor said he was ready.

this

> meant I got them on the move.

>

> Flashback to the age of two, and when I had an organ

transplant.. Flashback

> to the age of two, and when I had an organ transplant.. <WBR>. A big

room...brig

> over my face and me freaking out.

>

> This time, at least they warned me, and honestly, I was too relaxed

and

> pain-free to care. I had nice pain free thoughts.

>

> ... ... ... ... .. ... ... ... ...

>

> I was " " . I was dying. They told me I couldn't go home because I

was

> dying... I was very upset.

>

> ... ... ... ... .. ... ... ... ...

>

> I woke up. I found out later that there had been a in the room.

She had

> coded and slipped away. She was 99.

>

> She gave it her best shot, but obviously, it was time for her to come

home.

>

> First thing I noticed upon waking was THAT I HURT! There was a nurse

right

> there who asked me if I was in pain and I said yes, and immediately, I

was

> given

> some morphine. Again, " Enough to kill a horse. " It last a little over

an

> hour and again...same dose.

>

> The second thing I noticed is that I was freezing...I was covered with

> blankets. The third thing I noticed was... I had to pee. They bring me

this bedpan

> and I'm like, " Heck no, I can walk to a bathroom. " Nope. Well, I

finally

> gave up on that, since they wouldn't cath me or let me sit up and

peeing lying

> down is against my instincts. Probably against yours, too. Yeah, I

know, I'm

> being gross, here. No more gross, I promise.

>

> Finally, I was ready to go back downstairs. I did and I basically

waited

> around a while, but this time I got to see Rod! I was so happy to see

him.!

> I was also happy to see Dewey Mooey who lapped my face with kisses,

and

> bumped my knee...twice!

>

> Then, finally...finally. Then, Then,

> finally...finally. <WBR>..Finally. <WBR>.. They brought me a wheelchair

and I was

>

> More waiting and I got to leave.

>

> While I was in recovery, and Rod was speaking to the doctor, Rod tried

to

> explain to the man about chronic pain patients, breakthrough pain,

etc, etc, and

> that all these meds I take only help me deal with the myriad oooooos

and ows

> I face every day, and there are a lot of them, not knew ones that

might crop

> up...He wouldn't budge.

>

> Not to worry, Dodge was prepared. Dodge thought ahead, and he did get

some

> post op pain meds...just not from his surgeon. Thank you Doctor D!

>

> I got out of there and was so hungry I could have eaten an elephant,

so

> after stopping at my favorite place for take out, I came home, where I

ate and_

> have

> been resting ever since.

>

> --

> Dodge

>

> Read my blog at:

>

>

>

>

>

> _ (http://www.brainyqu ote.com/quotes/ quotes/b/ barackobam409128 .html)

> _http://jumpthis. http://jumhtt_ (http://jumpthis. wordpress. com/) _

>

> Visit me at:

> _ (http://www.brainyqu ote.com/quotes/ quotes/b/ barackobam409128 .html)

> _http://www.gro'>http://www.gro http://www. yahhttp:/ /www.yhttp: //_

> (http://www.gro ups.com/group/ a_different_ reality) _

>

> And my adults only journal at:

> _ (http://www.brainyqu ote.com/quotes/ quotes/b/ barackobam409128 .html)

> _http://www.my-'>http://www.my- http://www. mhttp://ww_

(http://www.my- journal.com/ slaveheat) _

>

> You can check out the progress of my new service dog in training here:

> _ (http://www.brainyqu ote.com/quotes/ quotes/b/ barackobam409128 .html)

> _http://www.my-'>http://www.my- http://www. mhttp://www. my_

(http://www.my- journal.com/ demonsjournal)

>

> (http://www.brainyqu ote.com/quotes/ quotes/b/ barackobam409128 .html)

> ************ **You can't always choose whom you love, but you can

> choose how to find them. Start with AOL Personals.

> (http://personals. aol.com/? ncid=emlcntuslov e00000002)

>

>

>

[Guest guest]

I finally came home from hospital on Friday. It turned out that one of

the ulcers had not healed and they had to go in and do whatever it is

that they do. They also found a bladder infection. Needed some more

blood.

Thought I would be going home soon and a nurse came in and said that I

wasn't looking too well and I mentioned that I had some chest pain and

with the I got whisked to the CT department, large bore IV;s were

started and a blood clot was found in my lower left lung. Once again,

heart monitors were installed and I was rushed to ICU. The next day I

went to surgery to have a filter installed in my neck along wth

additional central lines.

Now here is my question.......they have taken me off all Celebrex

minimal prednisore, no aspirin products, none of the new drugs.

Previously, I have had all the new drugss.....Enbrel: pneumonia;

Remicade: septicemia, septic shock; cardiac arrest; Orencia: celluitis

of my abdomen. Won't see Rheumie for about 1 month. Any suggestions to

brng up to him?

I am gllad to be home, but not making much urine, vomitting, no

internal blooding, Lovenox injections, and more than anything, my whole

body is in pain, can't button a shirt, put an earring in. Going thru

some tough days. Any suggestions ???????

Welcome to all our new members, you will find information, compassion

and just great friends.

Gentle, tender, angel hugs to all.......................

Debs in FL

Re: [ ] Re: Back to Hosp for me in AM

hang in there debs!!! may you get the help and rest you need

kathy in il

**************Need a job? Find employment help in your area.

(http://yellowpages.aol.com/search?query=employment_agencies & ncid=emlcntu

syelp00000005)

[Guest guest]

Deb,

I'm truly sorry for your ordeal and it sure sounds like a hell of an ordeal.

Did you not see a rheumy while in the hospital? Maybe not your rheumy but at

least a rheumy. I would be shocked at that, that they didn't have a consult.

Wishing you well, in PA

Re: [ ] Re: Back to Hosp for me in AM

hang in there debs!!! may you get the help and rest you need

kathy in il

**************Need a job? Find employment help in your area.

(http://yellowpages.aol.com/search?query=employment_agencies & ncid=emlcntu

syelp00000005)

[Guest guest]

Barbara,

Thanks for your good wishes. I am tyring to find that road to good

health (my GPS is in the shop)!

The weather is sunny & warm which helps. We redid our pool yard, so my

Cabana Boys are eager to get started pampering.

Hopefully my docs have majic wands, I have never been so scared in my

life.

Thank you dear friend for being there.

Gentle, tender, angel hugs......................

Debs in FL

Re: [ ] Re: Back to Hosp for me in AM

>

>

>

>

>

>

> hang in there debs!!! may you get the help and rest you need

>

> kathy in il

> **************Need a job? Find employment help in your area.

>

(http://yellowpages.aol.com/search?query=employment_agencies & ncid=emlcnt\

u

> syelp00000005)

>

>

[Guest guest]

Debs,

I'm so very sorry that you're having such a hard time again. It seems

that bad times keep coming for you. Since you've tried all of the

drugs with bad results, I don't know what you can take. Why don't you

call your rheumy and ask? Maybe at least you could get some pain pills.

I wish that I could do something to help. It's just not fair that you

should have to suffer like this. At least I can offer my sympathy.

I'll be sending positive thoughts your way. Try to hang in there.

Sue

On Mar 16, 2009, at 10:17 AM, BadKneesDebs@... wrote:

> I finally came home from hospital on Friday. It turned out that one of

> the ulcers had not healed and they had to go in and do whatever it is

> that they do. They also found a bladder infection. Needed some more

> blood.

>

[Guest guest]

So sorry to hear all of this, Debs.

Have you tried Rituxan (rituximab) yet?

Not an MD

On Mon, Mar 16, 2009 at 9:17 AM, <BadKneesDebs@...> wrote:

> I finally came home from hospital on Friday. It turned out that one of

> the ulcers had not healed and they had to go in and do whatever it is

> that they do. They also found a bladder infection. Needed some more

> blood.

>

> Thought I would be going home soon and a nurse came in and said that I

> wasn't looking too well and I mentioned that I had some chest pain and

> with the I got whisked to the CT department, large bore IV;s were

> started and a blood clot was found in my lower left lung. Once again,

> heart monitors were installed and I was rushed to ICU. The next day I

> went to surgery to have a filter installed in my neck along wth

> additional central lines.

>

> Now here is my question.......they have taken me off all Celebrex

> minimal prednisore, no aspirin products, none of the new drugs.

> Previously, I have had all the new drugss.....Enbrel: pneumonia;

> Remicade: septicemia, septic shock; cardiac arrest; Orencia: celluitis

> of my abdomen. Won't see Rheumie for about 1 month. Any suggestions to

> brng up to him?

>

> I am gllad to be home, but not making much urine, vomitting, no

> internal blooding, Lovenox injections, and more than anything, my whole

> body is in pain, can't button a shirt, put an earring in. Going thru

> some tough days. Any suggestions ???????

>

> Welcome to all our new members, you will find information, compassion

> and just great friends.

>

> Gentle, tender, angel hugs to all.......................

>

> Debs in FL

[Guest guest]

Thanks , we have been through a lot over the years and I value the

information. Of course,as usual, called my rheumy for an appt and

can't be seen until next month (typical); but at least I will have

something to bring up and not feel so inadequate.

I can't tell you the amount of pain that I am in between my joints and

my broken knee cap.

They are having trouble regulating the anticoagulant, so it is a battle

right now.

Thank you again my friend. As always..................

Debs

Re: [ ] Re: Back to Hosp for me in AM

So sorry to hear all of this, Debs.

Have you tried Rituxan (rituximab) yet?

Not an MD

On Mon, Mar 16, 2009 at 9:17 AM, <BadKneesDebs@...> wrote:

> I finally came home from hospital on Friday. It turned out that one of

> the ulcers had not healed and they had to go in and do whatever it is

> that they do. They also found a bladder infection. Needed some more

> blood.

>

> Thought I would be going home soon and a nurse came in and said that I

> wasn't looking too well and I mentioned that I had some chest pain and

> with the I got whisked to the CT department, large bore IV;s were

> started and a blood clot was found in my lower left lung. Once again,

> heart monitors were installed and I was rushed to ICU. The next day I

> went to surgery to have a filter installed in my neck along wth

> additional central lines.

>

> Now here is my question.......they have taken me off all Celebrex

> minimal prednisore, no aspirin products, none of the new drugs.

> Previously, I have had all the new drugss.....Enbrel: pneumonia;

> Remicade: septicemia, septic shock; cardiac arrest; Orencia: celluitis

> of my abdomen. Won't see Rheumie for about 1 month. Any suggestions to

> brng up to him?

>

> I am gllad to be home, but not making much urine, vomitting, no

> internal blooding, Lovenox injections, and more than anything, my

whole

> body is in pain, can't button a shirt, put an earring in. Going thru

> some tough days. Any suggestions ???????

>

> Welcome to all our new members, you will find information, compassion

> and just great friends.

>

> Gentle, tender, angel hugs to all.......................

>

> Debs in FL

[Guest guest]

Sue,

Thanks for your kind words and positive thoughts. They had given me

some pain pills, however, they don't have any anti-inflammatory

properties or joint protection. And as we all know, doctors tell you

they will prescribe and out of the blue, NOPE, no more.....Yadda,

Yadda, Yadda...............

And just so that I know that God has a sense of humor, last week before

I had my hair colored and cut (I was looking like a hag!), the girel

who came to the house to do this, brought her daughter with who had

come from her father's house who had a flea problem and guess who now

has a flea circus at her house???????????? Gotta keep on

laughing........another bonus of living in Florida!!!!!!

Thanks sweetie and always in my thoughts with gentle, tender angel

hugs............

Debs

Re: [ ] Re: Back to Hosp for me in AM

Debs,

I'm so very sorry that you're having such a hard time again. It seems

that bad times keep coming for you. Since you've tried all of the

drugs with bad results, I don't know what you can take. Why don't you

call your rheumy and ask? Maybe at least you could get some pain pills.

I wish that I could do something to help. It's just not fair that you

should have to suffer like this. At least I can offer my sympathy.

I'll be sending positive thoughts your way. Try to hang in there.

Sue

On Mar 16, 2009, at 10:17 AM, BadKneesDebs@... wrote:

> I finally came home from hospital on Friday. It turned out that one of

> the ulcers had not healed and they had to go in and do whatever it is

> that they do. They also found a bladder infection. Needed some more

> blood.

>

[Guest guest]

Barbara,

Nothing like a new house to pick up your spirits. We had our house

built 21 years ago (still can't believe that one) and right now I am in

the process of redecorating. It occupies what's left of my mind, my

fingers and my husband's check book!

My children are all grown now, but I have a 7 month old granddaughter

who is the best medicine God ever sent me. She was born premature at 3

lb, 13 oz; but she is a trouper and kicking butt. She stays at my

house during the day with my 2 youngest daughters because Mama has to

work. I now fully understand why God gives children to young people.

But I do what I can, mainly in a consultation basis.

Enjoy your new house. I will be thinking about your as I watch my

husband and daughters do the painting. Well, back on my flea patrol.

Gentle, tender,angel hugs.................

Debs

Re: [ ] Re: Back to Hosp for me in AM

> >

> >

> >

> >

> >

> >

> > hang in there debs!!! may you get the help and rest you need

> >

> > kathy in il

> > **************Need a job? Find employment help in your area.

> >

>

(http://yellowpages.aol.com/search?query=employment_agencies & ncid=emlcnt\

\

>

> u

> > syelp00000005)

> >

> >

[Guest guest]

Hi ,

You know they called in every specialist but the rheumy. This time

though, the big boys were the oncologist for the blood clot and the GI

guy for the internal hemorrhage. Go figure.....

Here's to a pain free day in PA. We just got rain today, first since

Christmas!

Gentle, tender, angel hugs................

Debs

Re: [ ] Re: Back to Hosp for me in AM

Deb,

I'm truly sorry for your ordeal and it sure sounds like a hell of an

ordeal. Did you not see a rheumy while in the hospital? Maybe not your

rheumy but at least a rheumy. I would be shocked at that, that they

didn't have a consult.

Wishing you well, in PA

Re: [ ] Re: Back to Hosp for me in AM

hang in there debs!!! may you get the help and rest you need

kathy in il

**************Need a job? Find employment help in your area.

(http://yellowpages.aol.com/search?query=employment_agencies & ncid=emlcntu

syelp00000005)

[Guest guest]

,

I have learned not to " assume " anything. I called my rheumy from the

hospital and once I got home. Can't see me before next month. In our

county, we only have 2 rheumy. Went a few rounds with the other one

several years ago and she nearly killed me.

I am looking for that healthy body too! It must be around here

somewhere!

Gentle, tender, angel hugs.

Debs

[ ] Re: Back to Hosp for me in AM

Debs,

If you haven't called your Rheumy to let him know, you should. Don't

Assume that the hospital called your Rheumy.

Hope your body decides to be healthy soon.

[Guest guest]

Debs, I wish one of your physicians would treat your pain more effectively.

I hope they figure out the anticoagulant dosage soon.

You would think that the rheumatologist would squeeze you in earlier.

Hang in there,

Not an MD

On Wed, Mar 18, 2009 at 7:38 AM, <BadKneesDebs@...> wrote:

> Thanks , we have been through a lot over the years and I value the

> information. Of course,as usual, called my rheumy for an appt and

> can't be seen until next month (typical); but at least I will have

> something to bring up and not feel so inadequate.

>

> I can't tell you the amount of pain that I am in between my joints and

> my broken knee cap.

>

> They are having trouble regulating the anticoagulant, so it is a battle

> right now.

>

> Thank you again my friend. As always..................

>

> Debs

[Guest guest]

Debs,

You really did not need the fleas! I don't know how to get rid of

them, but I hope you can. I have an infestation of little moths in my

house. They started out in the bird seed, and I put it outside, but

I'm afraid the moths stayed inside. I don't know how to get rid of

them, either. I think they must still be breeding in here.

I do hope that you can get some relief from the pain very soon. You've

been through enough! I admire your spirit!

Sue

On Mar 18, 2009, at 8:55 AM, BadKneesDebs@... wrote:

> Sue,

>

> Thanks for your kind words and positive thoughts. They had given me

> some pain pills, however, they don't have any anti-inflammatory

> properties or joint protection. And as we all know, doctors tell you

> they will prescribe and out of the blue, NOPE, no more.....Yadda,

> Yadda, Yadda...............

>

> And just so that I know that God has a sense of humor, last week

> before

> I had my hair colored and cut (I was looking like a hag!), the girel

> who came to the house to do this, brought her daughter with who had

> come from her father's house who had a flea problem and guess who now

> has a flea circus at her house???????????? Gotta keep on

> laughing........another bonus of living in Florida!!!!!!

>

> Thanks sweetie and always in my thoughts with gentle, tender angel

> hugs............

>

[Guest guest]

Well Sue, 30 years ago when we moved to FL, my neighbor explained all

the " + & - 's " of flea combat. All you need is just one pregnant flea

to hitch a riide to your house and the circus starts. Actually,

treatment is more of a PITA than anything else. We use the Frontline

from the vet on the dog and then you spread Borax (yes Borax for your

laundry " . Sprinkle it dry on your rugs, beds, sofa's etc. Leave it on

the floor for 24-48 hours and then vacuum it up. Wash your pet every

night and continue the Boras treatment until critters have been

evicted. The theory with the Borax is that the fleas " eat " the soap

and then they explode!!!!!

I swear last night, all I heard was little pops! No not really. We

really haven't had fleas in about 20 years so sometimes you forget what

a PITA it really is!!!!

Another day of liquid sunshine in sunny FL. Good day to catch up on

sleep, don't tell me twice!

Having Terrible pain. Don't see rheumy until next month. See primary,

hopefully she can help with something. Having the baby stay here every

day, unable to change the diapers or snap her up. Trying not to let it

get to me, but I can see the writing on the wall.

Gentle, tender painfree angel hugs today, my dear

friend..........................

Debs

Re: [ ] Re: Back to Hosp for me in AM

Debs,

You really did not need the fleas! I don't know how to get rid of

them, but I hope you can. I have an infestation of little moths in my

house. They started out in the bird seed, and I put it outside, but

I'm afraid the moths stayed inside. I don't know how to get rid of

them, either. I think they must still be breeding in here.

I do hope that you can get some relief from the pain very soon. You've

been through enough! I admire your spirit!

Sue

On Mar 18, 2009, at 8:55 AM, BadKneesDebs@... wrote:

> Sue,

>

> Thanks for your kind words and positive thoughts. They had given me

> some pain pills, however, they don't have any anti-inflammatory

> properties or joint protection. And as we all know, doctors tell you

> they will prescribe and out of the blue, NOPE, no more.....Yadda,

> Yadda, Yadda...............

>

> And just so that I know that God has a sense of humor, last week

> before

> I had my hair colored and cut (I was looking like a hag!), the girel

> who came to the house to do this, brought her daughter with who had

> come from her father's house who had a flea problem and guess who now

> has a flea circus at her house???????????? Gotta keep on

> laughing........another bonus of living in Florida!!!!!!

>

> Thanks sweetie and always in my thoughts with gentle, tender angel

> hugs............

>

[Guest guest]

Barbara

Your words are so right on. 5 little words...... " grandbabies are the

best medicine " .

Have a painfree day, I am hoping for the same, although they say in FL

it would be a good idea to have boat near by.

Gentle, tender, angel hugs.......................

Debs

Re: [ ] Re: Back to Hosp for me in AM

> > >

> > >

> > >

> > >

> > >

> > >

> > > hang in there debs!!! may you get the help and rest you need

> > >

> > > kathy in il

> > > **************Need a job? Find employment help in your area.

> > >

> >

>

(http://yellowpages.aol.com/search?query=employment_agencies & ncid=emlcnt\

\

>

> \

> >

> > u

> > > syelp00000005)

> > >

> > >

[Guest guest]

Thank you Sweetie for the kind words......yhou will never know what

they mean.

I am trying to take one day at a time, but it is difficult. I notice

the pain and loss of movement when I take care of the baby & can't do a

snap or a button on an outfit. I also don't trust myself alone with

the baby and won't even attempt to pick her up from her crib and when

it is realy bad, just holding her. But she is definitely God's best

medicine and for now, that is more than enough.

It has been a long road with this disease and I doubt that the end is

anywhere in sight. But I am so grateful to have a friend along the way

to help with the speed bumps. For that I am truly bllessed.

Gentle, tender, angel hugs spring will be here soon!

Always.........................................Debs

[ ] Re: Back to Hosp for me in AM

Hi Debs:

I feel so badly that you are in such awful pain. I too, wish your dr.

could give you something to ease your pain and suffering. These knees

can have such unbearable pain. I too, hate all that pain and suffering.

I know just what you are going through.

I think of you so often, and so want you to be feeling much better soon.

You have been through so much pain, and I wish it would all go away.

One person should not have to suffer like you do.

Praying for you to feel better soon, and that your pain will go away.

God Bless you, and take care.

Hugs,

Barbara

> > Thanks , we have been through a lot over the years and I value

the

> > information. Of course,as usual, called my rheumy for an appt and

> > can't be seen until next month (typical); but at least I will have

> > something to bring up and not feel so inadequate.

> >

> > I can't tell you the amount of pain that I am in between my joints

and

> > my broken knee cap.

> >

> > They are having trouble regulating the anticoagulant, so it is a

battle

> > right now.

> >

> > Thank you again my friend. As always..................

> >

> > Debs

>

[Guest guest]

as you know, FL is not the medical mecca of

America........................Debs

Re: [ ] Re: Back to Hosp for me in AM

Debs, I wish one of your physicians would treat your pain more

effectively.

I hope they figure out the anticoagulant dosage soon.

You would think that the rheumatologist would squeeze you in earlier.

Hang in there,

Not an MD

On Wed, Mar 18, 2009 at 7:38 AM, <BadKneesDebs@...> wrote:

> Thanks , we have been through a lot over the years and I value the

> information. Of course,as usual, called my rheumy for an appt and

> can't be seen until next month (typical); but at least I will have

> something to bring up and not feel so inadequate.

>

> I can't tell you the amount of pain that I am in between my joints and

> my broken knee cap.

>

> They are having trouble regulating the anticoagulant, so it is a

battle

> right now.

>

> Thank you again my friend. As always..................

>

> Debs

[Guest guest]

Hi Barbara,

We are in SE FL. The rains finally stopped. The pool overflowed, but

the rain was a welcomed relklief. The grass has " greened " up again and

we have a nice little breeze also. They say the weekend should be

beautiful. My daughter, sil and the baby are driving to Ormond Beach

for the weekend to see his familly, so I was glad to see the rain stop,

they will be taking I-95.

I LOVE the SW corner of FL........Naples, Marco Island, yes that is

God's country.

I am so sorry the knee is giving you trouble. Waiting for that surgery

can seem impossible. My new knees brought pain relief, mobility and

freedom of orthopedic devices. They say the failure of my prosthesis

is probably due to the prednisone. VERY disappointing for me.......I

felt like a poster chilld for knee replacements! I was a very

satisfied patient. I will pray for speedy passage of these pre op days.

Angel hugs, my friend............

Debs

[ ] Re: Back to Hosp for me in AM

Hi Debs:

I can understand your reluctance to pick up the baby, etc. When I go

home, my RA flares so bad, and I get so sick each time. There were days

when I could not pick her up, etc. My daughter had to put her in my

arms. It killed me because I waited 10 years for her arrival!! She had

2 babies in 2 years, both born in April. I went home each time to stay

and help out. A joyous time, but my RA was in full swing each time.

Damn it!!!

I will be so happy for you the day I read that you are feeling better,

and your pain is lessening. I just wish it didn' take so long!! These

diseases have a mind of their own!!! I so want you to be better, so you

can enjoy your life, and all the time with the baby. I just love

children, and anytime I can spend with them, is just the best days.

Please take care of yourself, and rest when you can. It is a good thing

you do for yourself. Remember I care about you, and pray you will feel

better soon. I hope you have a good day today.

Hugs,

Barbara

> > > Thanks , we have been through a lot over the years and I value

> the

> > > information. Of course,as usual, called my rheumy for an appt and

> > > can't be seen until next month (typical); but at least I will have

> > > something to bring up and not feel so inadequate.

> > >

> > > I can't tell you the amount of pain that I am in between my joints

> and

> > > my broken knee cap.

> > >

> > > They are having trouble regulating the anticoagulant, so it is a

> battle

> > > right now.

> > >

> > > Thank you again my friend. As always..................

> > >

> > > Debs

> >

>

[Guest guest]

I have been too ill to write but need to respond.

Last month. I almost died from internal bleeding and celebrex, prednisone/

 induced diabetes. My blood sugar was over 1100,

It was a miracle I did not stroke out. Last rights were recommended. I had many

blood transfusions and days of IV,s  to flush the sugar out of my system.

I did not go to one of the " nice,comfy " hospitals near by.

I went to Tampa General. Those on staff were awesome while I was in cricis. I

could not have gotten better care anywhere.

 

As I recovered the care diminished but I did not mind. They were catering to

many others in cricis.

 

Barbara I so enjoy you,  and wish you well with your knee.

 

 I had a similar . emotional adjustment after 26 years of marriage,  What seemed

like a nightmare became a blessing. The transition was torture.  I do believe

the worst is over for you. You realize the w----e  did not get a prize package.

Reality will enlighten her.

 

To the group...I understand the desire for NSAID's and steroids. Please remember

there are prices to pay for many.

 

God Bless....

 

Raniolo

From: Mimi <mimi212@...>

Subject: [ ] Re: Back to Hosp for me in AM

Date: Thursday, March 19, 2009, 7:22 PM

Hi Debs - I live in East Central Florida and I can honestly say you have hit the

nail on the head with your words. I really feel like Florida sucks when it comes

to Healthcare and Education! But, here we are and will do the best we can with

what we have available to us.

Best of luck to you.....Doreen

Re: [ ] Re: Back to Hosp for me in AM

as you know, FL is not the medical mecca of

America..... ......... ......... .Debs

[Guest guest]

,

I'm glad you're still alive to tell the tale. Prednisone does raise

blood glucose, and can cause diabetes. What instructions did they give

you to control it? Did they put you on insulin.

I've had diabetes for a while now and have educated myself about it.

If you have any questions about the disease, feel free to email me

privately.

Sue

On Mar 19, 2009, at 8:56 PM, CATHERINE RANIOLO wrote:

> I have been too ill to write but need to respond.

> Last month. I almost died from internal bleeding and celebrex,

> prednisone/ induced diabetes. My blood sugar was over 1100,

> It was a miracle I did not stroke out. Last rights were recommended.

> I had many blood transfusions and days of IV,s to flush the sugar

> out of my system.

[Guest guest]

You know what my answer to that is, Debs! LOL.

Not an MD

On Thu, Mar 19, 2009 at 8:19 AM, <BadKneesDebs@...> wrote:

> as you know, FL is not the medical mecca of

> America........................Debs

[Guest guest]

, that's awful. How are you feeling today?

Not an MD

On Thu, Mar 19, 2009 at 7:56 PM, CATHERINE RANIOLO

<c.raniolo@...> wrote:

> I have been too ill to write but need to respond.

> Last month. I almost died from internal bleeding and celebrex, prednisone/

>  induced diabetes. My blood sugar was over 1100,

> It was a miracle I did not stroke out. Last rights were recommended. I had

> many blood transfusions and days of IV,s  to flush the sugar out of my

> system.

> I did not go to one of the " nice,comfy " hospitals near by.

> I went to Tampa General. Those on staff were awesome while I was in cricis.

> I could not have gotten better care anywhere.

>

> As I recovered the care diminished but I did not mind. They were catering to

> many others in cricis.

>

> Barbara I so enjoy you,  and wish you well with your knee.

>

>  I had a similar . emotional adjustment after 26 years of marriage,  What

> seemed like a nightmare became a blessing. The transition was torture.  I do

> believe the worst is over for you. You realize the w----e  did not get a

> prize package. Reality will enlighten her.

>

> To the group...I understand the desire for NSAID's and steroids. Please

> remember there are prices to pay for many.

>

> God Bless....

>

>

> Raniolo

[Guest guest]

Hello ,

 

Thank you for asking. I am improving. My hematocrit has returned to 11...Better

than the 7 plus I had.  I am in a lot of discomfort since I am not allowed even

a baby aspirin. They put me on high doses of Gampentin to alleviate my pain. It

makes my thought process fuzzy but i am adjusting.It does not affect my stomach

and helps me sleep.

Diabetes is a new challenge. Doctors claim it is celebrex/steroid induced. My

fantasy is it will go away in time. I am doing quite well in managing my blood

sugar although the darn lancet is my new enemy.....  RA treatment is on the back

burner until the other issues are well controlled.

Have a nice day.....Cordially,

Raniolo

> I have been too ill to write but need to respond.

> Last month. I almost died from internal bleeding and celebrex, prednisone/

>  induced diabetes. My blood sugar was over 1100,

> It was a miracle I did not stroke out. Last rights were recommended. I had

> many blood transfusions and days of IV,s  to flush the sugar out of my

> system.

> I did not go to one of the " nice,comfy " hospitals near by.

> I went to Tampa General. Those on staff were awesome while I was in cricis.

> I could not have gotten better care anywhere.

>

> As I recovered the care diminished but I did not mind. They were catering to

> many others in cricis.

>

> Barbara I so enjoy you,  and wish you well with your knee.

>

>  I had a similar . emotional adjustment after 26 years of marriage,  What

> seemed like a nightmare became a blessing. The transition was torture.  I do

> believe the worst is over for you. You realize the w----e  did not get a

> prize package. Reality will enlighten her.

>

> To the group...I understand the desire for NSAID's and steroids. Please

> remember there are prices to pay for many.

>

> God Bless....

>

>

> Raniolo