Re: About psyorisic RA

[Guest guest]

Dear Group

 

I havent written for a while but today I was going over a hundred of my RA group

messages. I quit my RA doctor cause she was just not helping me. As I have  said

before I was allergic to most of the RA meds.

 

I got a new RA doc. He diognosed me with Psyoriotic RA, I was diagnosed with

RA 5 yrs ago.. My finger nails and toe nails are coming off from the psyoric RA.

I was using bandaids to hold them on till they fell off. I had to use so many

cause when my hands got wet the bandaid fell off. Now I am using duct tape. I

split the tape off in 3 pieces. I got to re-wrap them several times a day. Three

nails has completely came off. The tape helps a lot. I have psyorisis very bad.

As the nails come off new ones are growing.

 

The new doc put me back on enbrel injections. He said  over time he will raise

the dose when he sees I am taking it with out allergic reactions. Since I had to

wait all over again to be approved this doc gave me samples of enbrel injections

to take. My last RA doc made me wait till I was approved. The bed table in the

new RA doc is so cool. You set on the end of it and he can slowly lower it to a

bed type table. I use to have to  climb up the the drawer step and painfully get

on the table.

 

I had to wait 3 months to see my new RA doc.  I was in so much pain, I begged my

primary doc to give me pain pills for the  pain till I saw him. . He did. It's

called  kadian 60 mgs. It's morphine  that is time released for 24 hours. The

doctor said it will cause constipation and nausea. He was right. I  took it for

2 months and lost 50 lbs from throwing up. I told the nurse and she called back

and said the doctor has ordered me to see a pain doc. I go the 17th.  I take the

kadian about every 3 or 4 days now, instead of every day. I am in constant pain

.. Sun up till Sun down. Awful moaning pain. I can't take it every day, from

constant throwing up.

 

I have RA, OA, Psyoratic RA, Bursitis in my knees, hips and shoulders. and I

think the fibromyalgia is the worst pain I go through. I can't take Lyrcia cause

I put on 150 lbs.  I take sevella for fibro. and enbrel, thats it. Oh of course

I take the kadian when I can eat a few days, cause after I take the kadian, I

can't eat anything. Ice chips and cottage cheese is it. I have to use a wheel

chair if we go anywhere cause I can't walk for more than a minute or two from

the pain all over my body.

 

I had no idea that people couldn't get pain meds till I got these horrid

diseases. I see people who don't even need it get 60 pain pills a month. And

they are the good ones. What is going on? Why are the letting us suffer so much

when it is obvious we are in great horrifying pain??

 

I will let everyone know what the pain doctor does the 17th. The 15  I see my RA

doc for the second time. I will let everyone know what he does. Keep me in your

prayers as I do for you.God bless everyone and have painless days.

gentle kind hugs to all.

Clora 

 

 

 

 

 

[Guest guest]

Hi Clora,

You are having a hard time right now. I hope you get the meds problem fixed

soon. Pain is so hard to deal with, but add the vomiting and I can't even

imagine how you feel. I will keep you in my prayers.

Dottie

-- Re: [ ] About psyorisic RA

Dear Group

I havent written for a while but today I was going over a hundred of my RA

group messages. I quit my RA doctor cause she was just not helping me. As I

have said before I was allergic to most of the RA meds.

I got a new RA doc. He diognosed me with Psyoriotic RA, I was diagnosed with

RA 5 yrs ago.. My finger nails and toe nails are coming off from the psyoric

RA. I was using bandaids to hold them on till they fell off. I had to use so

many cause when my hands got wet the bandaid fell off. Now I am using duct

tape. I split the tape off in 3 pieces. I got to re-wrap them several times

a day. Three nails has completely came off. The tape helps a lot. I have

psyorisis very bad. As the nails come off new ones are growing.

The new doc put me back on enbrel injections. He said over time he will

raise the dose when he sees I am taking it with out allergic reactions.

Since I had to wait all over again to be approved this doc gave me samples

of enbrel injections to take. My last RA doc made me wait till I was

approved. The bed table in the new RA doc is so cool. You set on the end of

it and he can slowly lower it to a bed type table. I use to have to climb

up the the drawer step and painfully get on the table.

I had to wait 3 months to see my new RA doc. I was in so much pain, I

begged my primary doc to give me pain pills for the pain till I saw him. .

He did. It's called kadian 60 mgs. It's morphine that is time released for

24 hours. The doctor said it will cause constipation and nausea. He was

right. I took it for 2 months and lost 50 lbs from throwing up. I told the

nurse and she called back and said the doctor has ordered me to see a pain

doc. I go the 17th. I take the kadian about every 3 or 4 days now, instead

of every day. I am in constant pain . Sun up till Sun down. Awful moaning

pain. I can't take it every day, from constant throwing up.

I have RA, OA, Psyoratic RA, Bursitis in my knees, hips and shoulders. and I

think the fibromyalgia is the worst pain I go through. I can't take Lyrcia

cause I put on 150 lbs. I take sevella for fibro. and enbrel, thats it. Oh

of course I take the kadian when I can eat a few days, cause after I take

the kadian, I can't eat anything. Ice chips and cottage cheese is it. I have

to use a wheel chair if we go anywhere cause I can't walk for more than a

minute or two from the pain all over my body.

I had no idea that people couldn't get pain meds till I got these horrid

diseases. I see people who don't even need it get 60 pain pills a month. And

they are the good ones. What is going on? Why are the letting us suffer so

much when it is obvious we are in great horrifying pain??

I will let everyone know what the pain doctor does the 17th. The 15 I see

my RA doc for the second time. I will let everyone know what he does. Keep

me in your prayers as I do for you.God bless everyone and have painless days

gentle kind hugs to all.

Clora

[Guest guest]

Hi Clora.  I was so sorry to read at how much pain and suffering you are having

now.  Your new Rheumy sounds so nice and seems so caring too.  I wish I could

answer your quesions about why some Drs. do not give their patients any RX for

pain meds.  That to me is so cruel and not a caring Dr.  Maybe some Drs. have

dispensed too many pain meds. or they have had a drug habit that they got

caught doing.  Anyone with these horrible diseases know that our pain level is

off the charts on a bad day.  I know I could not endure it for very long. 

Getting out of all that pain makes you feel human again.

 

I so hope when you go to the pain center that they are finally going to do

something for you.  For as long as I have known you, you have suffered more

then any human with that wretched daily pain.  I pray that those days are done

with, and you can finally begin to feel better.  You so deserve it Clora.

 

I don't know much about your recent RA disease.  I feel so badly with your

nails coming off.  It must be a very painful thing to endure.  You have been

delt way too much suffering for such a long time.  I hope and pray better days

are ahead for you.  I pray that you will have many, many pain free days ahead.

 

I was happy to see you posting, which must be hard for you the way you are

suffering.  You mean a lot to me Clora.  Many hugs to you.  I will be anxious

to hear about your visit to the pain center.  Good luck at that appointment. 

You are such a good soul.

 

Love and hugs,

 

Barbara

From: Clora <clora4jesus@...>

Subject: Re: [ ] About psyorisic RA

Date: Friday, June 4, 2010, 9:02 PM

 

Dear Group

 

I havent written for a while but today I was going over a hundred of my RA group

messages. I quit my RA doctor cause she was just not helping me. As I have 

said before I was allergic to most of the RA meds.

 

I got a new RA doc. He diognosed me with Psyoriotic RA, I was diagnosed with

RA 5 yrs ago.. My finger nails and toe nails are coming off from the psyoric

RA. I was using bandaids to hold them on till they fell off. I had to use so

many cause when my hands got wet the bandaid fell off. Now I am using duct tape.

I split the tape off in 3 pieces. I got to re-wrap them several times a day.

Three nails has completely came off. The tape helps a lot. I have psyorisis very

bad. As the nails come off new ones are growing.

 

The new doc put me back on enbrel injections. He said  over time he will raise

the dose when he sees I am taking it with out allergic reactions. Since I had to

wait all over again to be approved this doc gave me samples of enbrel injections

to take. My last RA doc made me wait till I was approved. The bed table in the

new RA doc is so cool. You set on the end of it and he can slowly lower it to a

bed type table. I use to have to  climb up the the drawer step and painfully

get on the table.

 

I had to wait 3 months to see my new RA doc.  I was in so much pain, I begged

my primary doc to give me pain pills for the  pain till I saw him. . He did.

It's called  kadian 60 mgs. It's morphine  that is time released for 24

hours. The doctor said it will cause constipation and nausea. He was right. I

 took it for 2 months and lost 50 lbs from throwing up. I told the nurse and

she called back and said the doctor has ordered me to see a pain doc. I go the

17th.  I take the kadian about every 3 or 4 days now, instead of every day. I

am in constant pain . Sun up till Sun down. Awful moaning pain. I can't take it

every day, from constant throwing up.

 

I have RA, OA, Psyoratic RA, Bursitis in my knees, hips and shoulders. and I

think the fibromyalgia is the worst pain I go through. I can't take Lyrcia cause

I put on 150 lbs.  I take sevella for fibro. and enbrel, thats it. Oh of course

I take the kadian when I can eat a few days, cause after I take the kadian, I

can't eat anything. Ice chips and cottage cheese is it. I have to use a wheel

chair if we go anywhere cause I can't walk for more than a minute or two from

the pain all over my body.

 

I had no idea that people couldn't get pain meds till I got these horrid

diseases. I see people who don't even need it get 60 pain pills a month. And

they are the good ones. What is going on? Why are the letting us suffer so much

when it is obvious we are in great horrifying pain??

 

I will let everyone know what the pain doctor does the 17th. The 15  I see my

RA doc for the second time. I will let everyone know what he does. Keep me in

your prayers as I do for you.God bless everyone and have painless days.

gentle kind hugs to all.

Clora