Re: Update my blacking out incident

[Guest guest]

In 1982 after the birth of my daughter, I ended up with Pappiladema (msp).

Where the brain acts like it has a brain tumor and there is a lot of

swelling. This is when I was formally diagnosed with RA. In 1997 I had a

cataract

removed from my right eye and ended up with Episcleritis. Very painful and

had to be on steroids. Unfortunately I can't see out of the eye now...only

a blue like film. I have a cataract on the left eye now and can't see very

well from it without my glasses. I have the soreness, redness and the

throbbing as before and but the eye specialist says that it is nothing he can

do and but treat it with steroid med. I have been on Remicade and Humira.

Started again on Rituxin for a second trial back in march of this year. It

worked wonders for the first month and now I am on a flare up with my hands

and wrists, feet swelling and more stiffness in the morning lasting almost

all day. Pain med's...darvocet does no good unless I add extra strength

tylenol. I hate using my cane for I feel gets in my way. But lately have had to

creep around to do what I need to get done. Whenever I have something that

gets to hurting I am usually told it is due to my RA. I am 49 yrs. old

and I feel like I am 90. My kids great aunt is 89 and she gets around better

than I do. One problem I have is how others don't know why I am hurting and

I have to try to explain to them why I can't move as fast as they do or do

things in a way that will accommodate me. Did not mean to ramble on and

on, but today I am hurting and have not slept in 2 days. Yes, having RA sucks

really bad!!!!!

Irish aka Ms Pisces

[Guest guest]

Sorry, Kami. I hope your eye and its vessels are OK.

Be sure to tell anyone who needs to know that your physician said that

your must be brilliant!

Not an MD

On Sat, Aug 8, 2009 at 10:10 AM, ~Kami~<kamilleon@...> wrote:

> I blacked out 6/28. I have had a boatload of tests which have come back normal

UNTIL.... my brain MRI. My brain is normal... very healthy...he said I must be

BRILLIANT! (ha ha ha) HOWEVER.... There is some concern with some blood vessels

behind my left eye and I must now have an MRA on Thursday.

>

> I had scleritis in my left eye in 2007 which led to my diagnosis of RA. I have

had pain behind that eye on numerous occassions and even had an MRI on my orbits

last year (but not the brain) so I am wondering if all of this could be

connected....

>

> So now I am FREAKING OUT.... I would love, for once, to have one test come

back NORMAL and for someone to tell me.... " Hey you are OKAY! " instead of one

test always leading to another...... Seriously. THIS SUCKS!

>

>

> *~ Kami ~*

[Guest guest]

Hi Kami:

I was so sorry to read about your eye problem. I do hope it can be

taken care of soon. I will keep you in my prayers.

Hugs,

Barbara

>

> I blacked out 6/28. I have had a boatload of tests which have come

back normal UNTIL.... my brain MRI. My brain is normal... very

healthy...he said I must be BRILLIANT! (ha ha ha) HOWEVER.... There is

some concern with some blood vessels behind my left eye and I must now

have an MRA on Thursday.

>

> I had scleritis in my left eye in 2007 which led to my diagnosis of

RA. I have had pain behind that eye on numerous occassions and even had

an MRI on my orbits last year (but not the brain) so I am wondering if

all of this could be connected....

>

> So now I am FREAKING OUT.... I would love, for once, to have one test

come back NORMAL and for someone to tell me.... " Hey you are OKAY! "

instead of one test always leading to another...... Seriously. THIS

SUCKS!

>

>

> *~ Kami ~*

>

>

>

>

>

[Guest guest]

Kami,

You have been through so much. I pray this next test will be okay too.

I know its tough going through all the tests, they need to find out

what's going on, so they can make you better.

Keep us posted, and may they be gentle

Tawny

>

> I blacked out 6/28. I have had a boatload of tests which have come

back normal UNTIL.... my brain MRI. My brain is normal... very

healthy...he said I must be BRILLIANT! (ha ha ha) HOWEVER.... There is

some concern with some blood vessels behind my left eye and I must now

have an MRA on Thursday.

>

> I had scleritis in my left eye in 2007 which led to my diagnosis of

RA. I have had pain behind that eye on numerous occassions and even had

an MRI on my orbits last year (but not the brain) so I am wondering if

all of this could be connected....

>

> So now I am FREAKING OUT.... I would love, for once, to have one test

come back NORMAL and for someone to tell me.... " Hey you are OKAY! "

instead of one test always leading to another...... Seriously. THIS

SUCKS!

>

>

> *~ Kami ~*

>

>

>

>

>

[Guest guest]

(((((Kami))))) - do the doctors think the black out you had in June is related

to the scleritis? It stinks that the main cause of scleritis is Rheumatoid

Arthritis - yet they say only 1% of patients with RA will develop scleritis. I

pray its something they can help control. I pray you have some positive test

results for a change when they do your MRA. Keep us posted - prayers are with

you.....Doreen

I blacked out 6/28. I have had a boatload of tests which have come back normal

UNTIL.... my brain MRI. My brain is normal... very healthy...he said I must be

BRILLIANT! (ha ha ha) HOWEVER.... There is some concern with some blood vessels

behind my left eye and I must now have an MRA on Thursday.

I had scleritis in my left eye in 2007 which led to my diagnosis of RA. I have

had pain behind that eye on numerous occassions and even had an MRI on my orbits

last year (but not the brain) so I am wondering if all of this could be

connected....

So now I am FREAKING OUT.... I would love, for once, to have one test come back

NORMAL and for someone to tell me.... " Hey you are OKAY! " instead of one test

always leading to another...... Seriously. THIS SUCKS!

*~ Kami ~*

[Guest guest]

I have been telling EVERYONE and may add it to my signature... LOL

*~ Kami ~*

Re: [ ] Update my blacking out incident

Sorry, Kami. I hope your eye and its vessels are OK.

Be sure to tell anyone who needs to know that your physician said that

your must be brilliant!

Not an MD

On Sat, Aug 8, 2009 at 10:10 AM, ~Kami~<kamilleon@...> wrote:

> I blacked out 6/28. I have had a boatload of tests which have come back

normal UNTIL.... my brain MRI. My brain is normal... very healthy...he said I

must be BRILLIANT! (ha ha ha) HOWEVER.... There is some concern with some blood

vessels behind my left eye and I must now have an MRA on Thursday.

>

> I had scleritis in my left eye in 2007 which led to my diagnosis of RA. I

have had pain behind that eye on numerous occassions and even had an MRI on my

orbits last year (but not the brain) so I am wondering if all of this could be

connected....

>

> So now I am FREAKING OUT.... I would love, for once, to have one test come

back NORMAL and for someone to tell me.... " Hey you are OKAY! " instead of one

test always leading to another...... Seriously. THIS SUCKS!

>

>

> *~ Kami ~*