Re: My visit with the doctor today....Joyce D.?Peggy

[Guest guest]

Trick you Peggy....no. I'm just a ditz! OK TX then.

Mama-Sher, age 69. IPF 3-06, OR. Don't fret about tomorrow, God is already there!

Re: My visit with the doctor today....Joyce D.

Joyce, I am praying by the time of your surgeries that they will not want to put the pic line in at all.

I know you do realize how much you have improved since this all began with this Flolan. It is always so up lifting

to read what you have been able to do each trip out. God is so GOOD. I hope Lucian get rested. I always feel bad for when he has to push me because ha is so tall. I know if hurts his back. But whatch gonna do.

I have had some strange things happening. My sat. is staying up pretty well. Always above 92. BUT I am so short of breath I am just amazed. I am not really sure what is happening but I know I don't like it. I am getting little sharp pains I think in the mustle right over from my shoulder blade. I know it can not be my lung since they don't have nerves but it freaks me out. I keep pushing so we'll see if it gets better soon. I have increased my 02 to 7 & 8 while on my feet.. Oh how I HATE THIS DISEASE.. I am not ready for this. I am however ticked off

about this.. lol

Anyway have a good night. God Bless and Keep You..

Love and Prayers, Peggy

Have a God Blessed Day

I saw my pulmonologist today. All the usual blood work. Made tentative plans for the middle of April for my surgeries. It will be one hospital stay for both. Maybe I will get packed and ready by then.....and forget the smell of that gross food!

They will test my pulmonary pressures to see how the Flolan is doing. I feel better...not great, but better.

I had to go all over three buildings to get everything done. My poor husband went to work at 4:30 so he could get off early to go with me. I rode in my handy dandy wheelchair, but he had to walk 80 miles pushing me and all my baggage. Poor guy!

They had me do the 6 minute walk. This new way I call "Walk till you drop" test. I lasted 1:54 minutes before all this hoopla. Today I lasted 1:57. Well, it is better! You really can't get far in 1:57 minutes! Thank God for the person who invented wheels....had to be a woman!

Keep praying good people. God is listening. I'm still ticking.

Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16