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Ann, It sounds like the higher dosage of azathioprine is what is causing the problem. There are others in this group that have the same problem. I am sure you will hear from them shortly. My son take 150mgs of azathioprine and it does not seem to affect him at all and he weighs less than 150lbs. What is good for some is not good for all? I hope you feel better soon.

Rosemary

azathioprine

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  • 1 month later...

Hi Ann: That is great news, I hope everything continues to go your way.

As we all know prayers do work.

God Bless, Genny/Jodi's Mom

Living Donor Transplant 5-18-01

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  • 5 weeks later...

Ann,

I had my MGB in Jan, and around 4 or 5 months I lost a lot of hair, I

had very thin hair on top to begin with, and when this started it was awful.

I go do my hair once a week for years, and had been using a wiglet to mix in

with my own hair on top, but I lost so much hair on top and sides, there was

nothing to attach the wiglet to. So I bought 2 full wigs, and have been

using them, I can put them on myself, so I try not to go every week now, so

I do not tease and dye all the time, and giving my own hair a chance , when I

am just in the house I stay without the wig, but if anyone comes over or even

if I run to the store or walk I put the wig on. Now I have been seeing a lot

of new growth, it is like peach fuz but at least it is growing in and not so

much is coming out. If need to I can use the wiglet to mix in with my own

hair again, but If I am not going somewhere special I use just the whole wig,

I put on myself. It will grow back it takes time, and I do not think there

is anything to help it grow back, time has to pass.

See you at the picnic.

Rosemary Commisso (Jan26,2001 297-213 DrR)

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  • 1 month later...

I have been seeing Dr. Gross at Mayo currently. He has also consulted with

a Dr. I guess who does a lot of publication for PBC. This doctor

that you mentioned does sound familiar but I can't place him yet. I have

worked as a nurse for mayo for a long time. Alot of the docs that are now

consultants at the clinic did their residency at the hospital. We got to

know many of the doc's during this time. My floor that I work on in the

hospital tends to have patients with multisystem organ problems. So we see

a lot of patients with AIH, dialysis, diabetics, MRSA, etc. Not sure when

you last seen Dr. Czaja but they have opened the new gondala building and I

hear that it is beautiful. I wonder if our 19th floor hepatology department

will be moving over there. I have not heard yet. Good luck...

Ann

Re: [ ] Ann

> Since last October, that's when we took Raj to Mayo for the first time,

the

> doctor has been Dr. Czaja. It is upon his recommendation that we are now

> tapering prednisone as long term usage risks of Pred are significant and

> need to be weighed in on the benefits vs risk analysis. Our son has been

on

> Pred for 2 1/2 years now. Raj also has a gastroentrologist in Madison

> (Univ. Wis. Hospital) who is his primary contact for day to day needs

> (blood tests, medication, other problems etc.). The hospital in Madison

> also has a hepatologist whom we have consulted on ocassions. As I

> indicated before, when it comes to AIH, at times we have gotten advice

that

> is quite different depending upon whom you asked. In our case, Dr. Czaja

> has the most experience with AIH and we tend to weigh that heavily in our

> decisions.

>

> >From your previous post I understand that you are also going to Mayo,

> Rochester. Whom do you see there?

>

> Take care,

>

> aumesh

> -------------

> At 12:32 PM 10/24/2001 -0000, you wrote:

> >Aumesh

> >I would be interested to know who you are consulting with at Mayo

Rochester.

> >I am too seeing someone at mayo rochester and have some knowledge of

their

> >system.

> >annMN

>

>

>

>

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Since last October, that's when we took Raj to Mayo for the first time, the

doctor has been Dr. Czaja. It is upon his recommendation that we are now

tapering prednisone as long term usage risks of Pred are significant and

need to be weighed in on the benefits vs risk analysis. Our son has been on

Pred for 2 1/2 years now. Raj also has a gastroentrologist in Madison

(Univ. Wis. Hospital) who is his primary contact for day to day needs

(blood tests, medication, other problems etc.). The hospital in Madison

also has a hepatologist whom we have consulted on ocassions. As I

indicated before, when it comes to AIH, at times we have gotten advice that

is quite different depending upon whom you asked. In our case, Dr. Czaja

has the most experience with AIH and we tend to weigh that heavily in our

decisions.

From your previous post I understand that you are also going to Mayo,

Rochester. Whom do you see there?

Take care,

aumesh

-------------

At 12:32 PM 10/24/2001 -0000, you wrote:

>Aumesh

>I would be interested to know who you are consulting with at Mayo Rochester.

>I am too seeing someone at mayo rochester and have some knowledge of their

>system.

>annMN

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  • 2 months later...

In a message dated 1/10/02 9:30:17 AM Pacific Standard Time, sunshinedotson@... writes:

(just for info. the energizer bunny is on commercials for Energizer Battery Co. the pink bunny has a drum hanging from its belly and its pounding on it with sticks.....going around and around and around....!!)

Bert, in the high-Prednisone days, I often compared myself with the competitor in the Energizer Bunny ads -- the figures that ran around doing everything -- and then suddenly stopped dead in their tracks.

Harper

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Sorry I missed you on chat tonight. My turn down to my Dad's. About the m & m's. My were peanut ones also, didn't eat the whole bag only had a few. Not suppose to eat them at all, but we do tend to cheat once in a while. I'm really glad to see you posting again. I've missed seeing the sunshine. Today wasn't a very good day for me. Ending up laying down at my Dad's for a couple of hours, which is very unusual for me. I try to push myself to the limit and suffer afterwards. New Year's resolution - Take care of me - The heck with the rest. Feeling better now. I can't stand the roller coaster. Feel good one day and lousy the next. I'm seeing my liver doctor next week and will find out what's been going on. Take care. Ann CTSorry I [ ] Ann hey you.....eating M & M 's huh???? (the other day)HA! mine were the peanut ones too!!i ate the whole BAG!! : )did you???? LOL!i did get a good chuckle out of that one...thanks!thanks for you concerns about the other night....i am feeling much better, just uncomfortable....can't really sit down for too long, get stiff...gotta keep moving!! HA! alex keeps me going like the "ENERGIZER BUNNY" i just keep goin' and goin' and goin' and goin' and goin'....LOL! want me to keep "GOIN".....LOL!(just for info. the energizer bunny is on commercials for Energizer Battery Co. the pink bunny has a drum hanging from its belly and its pounding on it with sticks.....going around and around and around....!!)HA! don't know if you get the same commercials i do LOL! ....this is just too much....gotta laugh that i had to explain my joke......there are so many of us SPREAD OUT!! HA! just too darn funny!!BUT! we all feel so close....(HUGS) hope you have a great day!i will try to be on chat tonight, i notice i am really worn out by the time you all are home. but i have so much fun with you all on chat...so i wil try......WOW! 3 of us the last time!.....maybe more will join??? .....(suttle hint there eehh??) we already recruited ONE LURKER! (ssshh....it's lyn (ark)...ssshh...)LOLOLOL!!!!!! : )many hugs....ttyl...bert. : )

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  • 6 months later...
Guest guest

Hello Ann,

I realised that that was a stupid question after I'd hit the send button.

Of course you would have done net research! : )

I imagine you have also tried the links below? The first one is probably

the best, but the others apply, too.

www.alkalizeforhealth.net

www.ida.net/users/srdist/harmful.htm

www.aubrey-organics.com/about/treat_10synth.cfm

www.alass.com/articles/canola_oil.htm

www.clearcomplexions.com/rateyour.htm

www.laughinghara.com/Meridians.htm#Meridians

Love,

JK

Re: Hi, I'm back

Thanks , Yes, I have done loads of research on the net and am

doing well. For me at this point, I need to be aware of the stressors in my

life and how I handle them. Exercise, rest, meditation, faith, relaxing and

having fun are all very important ingredients for being well as well as a

good diet. Have been following the O diet for several years now and just

need to stay on course with it.

Thanks for your support, Ann

Hi, I'm back

Hi there! I have been away from the group for 6 months after having

a battle with cancer - surgery in January but no radiation or chemo -

however, I am taking lots of supps to support health and supps that

are anti-cancer prescribed by my naturopath ......

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  • 2 months later...

It is fantastic that Ann is giving this procedure the recognition it

deserves. It's one thing for all of us to expound on the virtues of

the Lap-Band and quite another for her to do it.

I heard that Sharon Osborne also had this procedure but I've

never read anything about it. She's certainly in the spotlight these

days.

I'm going to forward this website to all my thin friends that think

I'm nuts for having the surgery in the first place.

is

Dr. Rumbat 12/07/01

195/153/125(goal)

> Ann has a featured section on the " Spotlife Health " website.

> Actually, the entire portion of the website dedicated to the band

is

> one of the best I have seen to date. I highly recommend it for

> anyone researching the band. Ann's portion of the site is totally

> excellent. It has video interview's, updates on her progress,

and a

> support group section. Here's the address:

>

>

http://www.spotlighthealth.com/morbid_obesity/anns_story/anns

_story.ht

> ml

>

> I have been a fan of Ann's since the beginning of time, and am

so

> glad she is out there promoting the band (actually both " bands "

as

> Heart just came off a new tour!!)

>

> Jennie

> pre-opt

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  • 3 months later...

Hi Barb, thanks for the support. I think what I am doing is a service to

myself and everyone on the board!!! We want to find out what works and so

far only one person has been completely healed by the program and I'm just

wanting to keep track, wanting the protocol to work for myself and would

love it if someone else would get totally well so we can all have more hope.

That is the bottom line.

> From: " bevbarb1234 <bevbarb@...> " <bevbarb@...>

> Reply-candidiasis

> Date: Tue, 21 Jan 2003 20:54:49 -0000

> candidiasis

> Subject: Ann

>

> Ann,

> Thanks for responding to my post and putting me on your list as

> someone who is starting the Russ Protocol. I really appreciate what

> you are doing- trying to keep track of who is improving and who is

> not!

> I used to be a shy person. But now in my 50s, I have changed and find

> myself in leadership rolls- new for me. I would like to encourage you

> and what you are doing. What you are doing isn't necessarily being a

> leader, but you may have some of the same difficulities. Even if you

> are honestly trying to help people, some will question you. The best

> way to survive that is to be yourself. There is so much conflicting

> information and so little time to research out there, that people are

> forced to make judgements on inadequate information.

> One of my biggest problems with candida is that it is so time

> consuming! Researching possibilities and spending so much time

> cooking and eating, trying to not loose any more weight on such a

> restrictive diet. Most people can afford to loose weight, but I've

> been on diets for so long that I've lost too much. I'm going to have

> to go back to work soon too. What you are doing (simply keeping a

> tally of how people are doing on Russ' protocol) will give people

> valuabe information and save them time. I really appreciate it!!

> Bev

>

>

>

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  • 5 months later...
Guest guest

Jan,

  It is funny you say you are from NZ.   My husband of now is a Canadian and not a

day goes by that he does not yell about our legal system.  I have had a lawyer for the whole thing but

my bill has reached over $25,000.  So he

did not want to come to this hearing because he was in a bigger trial.  Here in the states the police can not do

anything about my exhusbands contempt of the court order.  Only the judge can and it takes a long time

to get in front of him.  Tomorrow he

will only hear about the vacation request the rest will have to be dealt with

at a later time.  So until than my ex

will be allowed to break the order for “fear” of the children.  He knows how to work the system.  It is the kids who pay the price like my 4

year old daughter who cries on the phone when we talk because she misses me so

much.   It is just exhausting but thanks

for the advice.  I plan on rereading

before court tomorrow.

Ann

-----Original

Message-----

From: Ian & Janet

[mailto:ianjanaust@...]

Sent: Tuesday, July 01, 2003 6:35

PM

Subject: [ ] Ann

Hello

Ann......Im so very sorry to hear of your problems and my heart goes out to

you. Im not american and our NZ culture & laws are somewhat different from

yours. there's nothing more negative to the people at a custody hearing

than that of one of the parents appearing to be a victim and is emotionally

wrung out, especially when its the mother. People begin to question

whether a person is capable of having custody rights, unfair I know but

true. You're in some muddy water but it will clear. You must appear calm,

strong, well groomed, articulate, keep your voice lowered but non-wavering. If

you are told to speak up which frequently happens, do not raise your

voice...keep to a slightly stronger but still a lowish confident voice.

Eventually, everyone will have to listen very intently to hear you and as such

will hear every word you say. Perhaps you need an court advocate, they are free

of charge here, & the law provides for this to uphold everyones rights.

Your mother sounds if she is throwing a major tantrum with devastating results.

You may consider reciprocating the harrassment order & file for damages. If

you can prove shes turning the children & ex against you, consider getting

the court to order a trespass notice against her so that she is forbidden

to see the children unsupervised. This is absolutely drastic but if you

feel your children are in danger, mentally or physically, it warrants thinking

about. The children are very young & need to be kept out of the verbal

loop as far as possible. Their interests are paramount regardless of who is

slanging off. Youve written a very good post and I suggest you write down

events. Dont drag irrelevant emotional mud into it. Keep literally to the

facts. Under each item, clearly refute each allegation. You know the old saying

....where theres smoke theres fire....personally I feel that theres few other

more spiteful & damaging sayings around as while it may be true with a few

people but for a lot of people theres no truth whatsoever and its usually

started by a falling out with a friend or whatever. But its difficult to prove

otherwise. Your mother has caused the smoke which will affect you &

your children, so kiddo dont give up, but what you need to do is take yourself

to task about keeping a cool head and go determinedly to disprove everything

thats being thrown at you with the officials. Turn the tables on your

mother and demand officially that she provides proof of her allegations

otherwise it all become just baseless maliciousness & the court will see that

for what it is. BTW its up to the family court (or whatever its called in

the States) to decide over visitation rights. Your husband has no right to stop

the children visiting you when its approved by a Court Order. I guess this is

why you have a hearing tomorrow as he wants the Order changed, so you

need to keep your head up and clearly explain why your mother is telling

untruths. I will pray for you. This is only my opinion from the few

lines youve written & it may be way off beam...but my heart goes out to you.

Love

Jan

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Guest guest

ann. i dont know what your situation is, but from what you have said, does this

mean your husband has your daughter. i am in exactly the same position and its

making me ill. i miss her so much. if you want to chat my email is

rainbow3591@...

love and hugs

anita

(england)

>

> From: " Ann and Wieler " <wieler@...>

> Date: Wed 02/Jul/2003 00:59 GMT

> < >

> Subject: RE: [ ] Ann

>

> Jan,

> It is funny you say you are from NZ. My husband of now is a Canadian and

> not a day goes by that he does not yell about our legal system. I have had

> a lawyer for the whole thing but my bill has reached over $25,000. So he

> did not want to come to this hearing because he was in a bigger trial. Here

> in the states the police can not do anything about my exhusbands contempt of

> the court order. Only the judge can and it takes a long time to get in

> front of him. Tomorrow he will only hear about the vacation request the

> rest will have to be dealt with at a later time. So until than my ex will

> be allowed to break the order for “fear” of the children. He knows how to

> work the system. It is the kids who pay the price like my 4 year old

> daughter who cries on the phone when we talk because she misses me so much.

> It is just exhausting but thanks for the advice. I plan on rereading before

> court tomorrow.

> Ann

>

> [ ] Ann

>

> Hello Ann......Im so very sorry to hear of your problems and my heart goes

> out to you. Im not american and our NZ culture & laws are somewhat different

> from yours. there's nothing more negative to the people at a custody

> hearing than that of one of the parents appearing to be a victim and is

> emotionally wrung out, especially when its the mother. People begin to

> question whether a person is capable of having custody rights, unfair I know

> but true. You're in some muddy water but it will clear. You must appear

> calm, strong, well groomed, articulate, keep your voice lowered but

> non-wavering. If you are told to speak up which frequently happens, do not

> raise your voice...keep to a slightly stronger but still a lowish confident

> voice. Eventually, everyone will have to listen very intently to hear you

> and as such will hear every word you say. Perhaps you need an court

> advocate, they are free of charge here, & the law provides for this to

> uphold everyones rights. Your mother sounds if she is throwing a major

> tantrum with devastating results. You may consider reciprocating the

> harrassment order & file for damages. If you can prove shes turning the

> children & ex against you, consider getting the court to order a trespass

> notice against her so that she is forbidden to see the children

> unsupervised. This is absolutely drastic but if you feel your children are

> in danger, mentally or physically, it warrants thinking about. The children

> are very young & need to be kept out of the verbal loop as far as possible.

> Their interests are paramount regardless of who is slanging off. Youve

> written a very good post and I suggest you write down events. Dont drag

> irrelevant emotional mud into it. Keep literally to the facts. Under each

> item, clearly refute each allegation. You know the old saying ...where

> theres smoke theres fire....personally I feel that theres few other more

> spiteful & damaging sayings around as while it may be true with a few people

> but for a lot of people theres no truth whatsoever and its usually started

> by a falling out with a friend or whatever. But its difficult to prove

> otherwise. Your mother has caused the smoke which will affect you & your

> children, so kiddo dont give up, but what you need to do is take yourself to

> task about keeping a cool head and go determinedly to disprove everything

> thats being thrown at you with the officials. Turn the tables on your mother

> and demand officially that she provides proof of her allegations otherwise

> it all become just baseless maliciousness & the court will see that for what

> it is. BTW its up to the family court (or whatever its called in the

> States) to decide over visitation rights. Your husband has no right to stop

> the children visiting you when its approved by a Court Order. I guess this

> is why you have a hearing tomorrow as he wants the Order changed, so you

> need to keep your head up and clearly explain why your mother is telling

> untruths. I will pray for you. This is only my opinion from the few lines

> youve written & it may be way off beam...but my heart goes out to you.

> Love Jan

>

>

>

>

>

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Guest guest

Ann I am glad the Judge saw through his antics. I think it is awful of him to use the children in this way but it goes along way in showing the court how little regard he really has for their welfare. Keep believing in your love for the children and keep faith in the system.

As a wise person on here used to quote "perseverance got the snail to the Ark."

the WV hillbilly

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  • 2 months later...

Hi Ann Sorry to hear about your gallstones. I am sure you will have lots

of correspondence on this topic as it is fairly common I think. Had my

problems pre- op and my Gallbladder was removed in 1980. I had to have it open

and did well. God Bless and kee[ us posted on your progress. Phyllis

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  • 11 months later...

Hi Cindi, I live in Texas and have had my surgeries and dilitations at Baylor University Medcial Center in Dallas. I just am not sure which direction I am going to go. I really appreciate any and all feedback. I really really want to know more about what kind of recovery I would be facing if I have the surgery where they cut out part of my esophagus and attach it to my stomach, and open my chestwall, etc. I also wondered how long the surgery way. I know I would be asleep but wondered anyways. :)

Thanks, AnnCindi Wilmot <cindiscandles@...> wrote:

Oh, Ann, what a bummer.

First of all, where do you live (you have probably said this & I'm so sorry, I can't even keep track of my kids at this point in the summer! hahahha!)? How experienced is the surgeon in dealing with A? How many myotomies has he done?? Absolutely talk to him face to face, but also find 1-2 others to talk with as well. If we know the city you are in, maybe someone can give you a good referral.

As for your ER visit/spasms.....also a bummer. Yes, many docs are very undereducated in this disease, even GI docs. It is because it is so rare.

Personally, I take Paxil & it is really, really helping with the spasms. I actually take 12.5 mg. every other day now. I haven't had a spasm in weeks. Also, many here take Procardia when they are having the spasms only. That would be great for me, but my life is very, very stressful right now, so the regular meds are the best option for me. Also, stress tends to aggravate the spasms for many people, myself very much included.

Please keep us posted! Cindi in PA

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

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molly, Larry here i just wanted to send a note to say, we all appreciate

the that you opened your heart and mind, and companionship to her

sometimes its just what the dr ordered!!. i myself know it would be soooo

wonderful to have someone at finger tip edge to talk with so i know she

will be soooo greatful!. and i don't mean to put words in her mouth so

please don't take it that way i know how i would feel , considering there

isn't a whole lot of people that believe when you tell them what kind of

miserable pain one is in. so anyway personally i thank you for being

there for her....Larry.

On Sat, 21 Aug 2004 09:52:04 -0500 " molly riley "

<mollio@...> writes:

> I am so sorry you are feeling so badly. Do you get support from your

> family?

> It makes me so sad to realize the pain you and others are in. It is

> overwhelming.

>

> If you ever want to chat, I'm molliof on AOL and and windows

> messenger.

>

> Sometimes surgery is a good thing. My younger sister was in horrible

> pain

> and had a L5 fusion years ago. She has been pain free since then and

> can do

> all the activities she wasn't able to do before. Of course, the

> surgery then

> was awful with the incision from her neck all the way down.

>

> My friend has a disk removed from the lumbar region in CA and was

> out the

> next day walking without pain. For 6 weeks, he layed on the floor

> because

> that was the only way he would get relief from the pain and

> sciatica.

>

> I'm here if you need anything,

> Molly

>

>

>

>

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  • 4 weeks later...

In a message dated 9/17/2004 8:08:48 AM Eastern Daylight Time, cindiscandles@... writes:

Ann - I'm so sorry to hear your news. I am wondering how others have fared long-term with replacement of the lower E. I know the initial recovery is long, but wonder if it solves anything?

Also, I got the impression from my surgeon this week that replacing that lower E is actually easier for them and less risky for you (though longer recovery) than re-doing a myotomy. Kind of like just putting in a new transmission vs. rebuilding it....rebuilding is cheaper, but harder....just putting in a new one costs more, but might last longer (OK - not a perfect analogy! lol!!!).

Cindi-

I love your posts the last couple of days, you are such a up, positive person.

I lost the lower part of my E in my quest to have my botched fundoplications fixed. It is a long recovery, very long. I am supposed to go back up to Cleveland sept. 27 to have my J tube removed. I am swallowing with anxiety, I guess is the best way to put it! It seems a little harder to swallow chunky foods, and I get this sensation of food at the bottom of my throat, but was thinking that this might just be where my stomach is now located, and now, I have to get used to the fact that my stomach is sitting way up higher than it used to be. Does that make any sense or am I just rambling?

I am enjoying eating my ice cream at night, and my feeding tube pump gets knocked down another level to 50 tomorrow! By the 22nd, I think I will be able to turn the pump off. YEA!

Jan from NKY

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  • 7 months later...
Guest guest

In a message dated 4/24/05 7:53:38 AM Mountain Daylight Time,

SSRI medications writes:

> You seem surprised that Ann would say that all

> mental illness is related to nutrition. She is a

> nutrionist. She has always said it was nutrional which

> cause low blood sugar problems

No, I'm not surprised at all. I've always known this. My comment was

directed at Charlie I believe who said that depression was a disease. My reply

was

that not only do I think labels of mental illness are bogus, but even Dr.

believes that and has the credentials to prove it. If you read the Fifth

Column article I posted, it clearly talks about how " mental illnesses " were

manufactured for the purpose of selling drugs.

" Blind Reason "

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

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  • 2 weeks later...
Guest guest

I am happy for you Sherri, and home on Mother's Day too.

F

Ann

> I'm 12 days postop esophagectomy. I'm still in hosp.Get in touch

> anytime will tell anything I can.

> Sherry from Ohio

>

>

>

>

>

>

>

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Guest guest

In a message dated 5/7/2005 1:15:29 PM Eastern Daylight Time,

sld102@... writes:

I'm 12 days postop esophagectomy. I'm still in hosp.Get in touch

anytime will tell anything I can.

Sherry from Ohio

How are you doing, Sherry?

When will you be home?

How long will you be on a feeding tube, do you know?

Jan

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  • 6 months later...

-Hi Ann,

Tamara is doing really well. Her incision is really tidy and will be

really hard to see. This is an issue for teenagers. It is well below

her bikini line. She had a blood test come back a little elevated

with kidney function and will be retested near end of month to see if

it has settled. She went back to school this week. Each day she is

coping better. Tiredness and stress is her biggest problem now. It is

close to exam time and having all her assignments caught up for end

of year.

Thanks for your concern, we are doing well.

My youngest daughter started track racing (cycling on a velodrome)

last night ( she has been waiting patiently for my recovery so she

can start). She is only 8 and had to race with woman. I was impressed

she managed to hold her own and not get dropped to far to my

surprise.

she also got 2 3rd places in handicaps. What a legend. I told her to

just go out and enjoy it she didn't have to race, but she did really

well. She has been waiting so long to do this.

Regards

-- In achalasia , " lilac_blossom_lady "

<lilac_blossom_lady@y...> wrote:

>

>

> Hi ,

>

> You sound to be doing really well. I am so pleased for you. How is

your daughter?

>

> Love and Best Wishes from Ann xxx

>

> > > >

> > > > Chest pains, heartburn, acid reflux, spasm pains, NCCPs....

what

> > > the heck is all of this stuff anyway????

> > > > (aka: Debbi's Dissertation on Dysfunctional Dysphagia

Diagnoses)

> > > >

> > > > Here's some info I've put together on differences

> > > between " heartburn " and the " chest pains/spasm pains " that are

> > > related to achalasia. The official medical term that I've found

> > for

> > > the " spasm pain " is " NCCP " or Non Cardiac Chest Pain. There are

> > > multiple terms used for " heartburn " including: acid

indigestion,

> > > > acid reflux, GERD/GORD, etc.

> > > >

> > > > In my pre-achalasia days, I would

have " indigestion/heartburn "

> > once

> > > in a while (after a particularly large, fatty, acidic meal,

etc.),

> > > maybe once or twice a year. I would have that nasty acid taste

in

> > my

> > > mouth when I burped, and a hot/burning sensation in the area of

my

> > > breastbone. While not particularly comfortable, it wasn't an

> > > excruciating, debilitating pain, and taking some Tums or other

> > > antacid would neutralize it and both the taste and the

discomfort

> > > would go away.

> > > >

> > > > When I had my first NCCP, I had been having problems

swallowing

> > for

> > > a few years but hadn't yet been diagnosed with anything, and I

had

> > no

> > > clue that the pain was related to my swallowing problems. I

> > thought

> > > the pain was some gawd-awful gas pains -- felt like something

was

> > > stabbing me from the inside out! The pain seemed to start in

the

> > > ribs and almost squeeze my chest with searing pain that seemed

to

> > > > shoot up into my neck, too. (note: everyone can experience

NCCPs

> > in

> > > varying degrees and in various parts of the body, including

> > stomach,

> > > chest, shoulders, neck, back, jaw, tongue, teeth, and roof of

the

> > > > mouth.) I lived alone at the time, and I drove to a

convenience

> > > store and bought three rolls of Rolaids and ate two whole

rolls.

> > > That didn't have any effect at all, and it took a couple hours

for

> > > the pain to go away.

> > > >

> > > > Another time, I have a distinct memory of standing in the

kitchen

> > > holding onto the countertop and just WAILING at the top of my

lungs

> > > because it hurt so bad, and my knees buckling from the pain. My

> > > wailing turned into one big repetitious prayer: " Please, Lord,

> > > Please, Lord, Make It Stop, Lord, I Can't Take It Anymore,

Lord,

> > > Please, Lord, I Need You To Please Help Me! " over and over and

over

> > > again while sobbing. This was almost a decade ago and I don't

know

> > > how long it went on, but I'm thinking that it was well over an

hour

> > > of that constant wailing. Boy, those were the days, huh? ;o)

> > > >

> > > > For people whose doctors believe that NCCPs are an " atypical "

> > (not

> > > normal) symptom for achalasia patients, point them in the

direction

> > > of this informal poll here on our group:

> > > > achalasia/surveys?

> > > id=1037310 . The poll is now closed, so who knows how many more

> > > would be added to it if it were still accepting votes. If you

> > scroll

> > > down to the end, 38 people reported that they have

these " spasms " ,

> > > and 5 people reported that they don't have spasms. So out of 43

> > > people who answered the poll, 88% have spasms and 12% don't

have

> > > spasms. Doesn't sound like a " rare " or " atypical " symptom, does

> > it?

> > > >

> > > > In another poll (

> > > achalasia/surveys?

> > id=1011383 ),

> > > out of the people who went to the Emergency Room due to extreme

> > chest

> > > pains, 2 were given intravenous Valium, 3 were given Demerol or

> > other

> > > narcotic injection, and 7 were given no treatment

whatsoever....

> > > isn't that sad? 58% of the people who were in such severe pain

> > that

> > > they went to the E.R. for relief were given NO TREATMENT at

all!!!

> > > That is SO unnecessary!!!!

> > > >

> > > > Here's some info that I copied from an old post of mine -- if

> > your

> > > doctor will bother to do some simple web searches, he'll see

that

> > > calcium channel blockers, nitroglycerine, and anti-depressants

are

> > > all documented ways to treat NCCP in people with esophageal

> > > disorders! Maybe if you print it out and show it to him, he'll

be

> > > willing to offer you some help in dealing with this.

> > > >

> > > > =============================================

> > > >

> > > > Here's some basic info that I've posted in the past --

different

> > > things work for different people, so it's basically just an

> > > experiment to find what works for your own particular situation.

> > > >

> > > > Here are some different coping methods to try:

> > > >

> > > > -- Swallowing something warm or something cold (in my case, I

> > chug

> > > warm --not hot-- water as fast as I can).

> > > >

> > > > -- CCB medication (calcium channel blockers) -- when I'm

having

> > > NCCPs, I prick the shell of a nifedipine capsule and squirt it

> > under

> > > my tongue. It absorbs into the bloodstream under the tongue

(this

> > is

> > > called a " sub-lingual " medication, meaning under-tongue) and

> > relaxes

> > > smooth muscle tissue (which is what the esophagus is made up

of).

> > > You can also just swallow the capsule, but since we have

trouble

> > > swallowing in the first place, I've found the under-the-tongue

> > method

> > > works best (then you just swallow when you've held it there as

long

> > > as you can and your saliva requires a swallow). Unfortunately,

it

> > > can also lower your blood pressure (usually only a problem if

you

> > > already have low BP to begin with) and cause a headache

afterwards -

> > -

> > > some people experience this, some don't. CCB's can also be

tried

> > in

> > > the " slow release " formula as a preventative to having NCCPs

start

> > in

> > > the first place.

> > > >

> > > > -- Nitroglycerin medication -- works in much the same way as

the

> > > CCB mentioned above, and can also be taken sublingually for

fast

> > > relief.

> > > >

> > > > -- Certain anti-depressant and anti-convulsant medications --

> > some

> > > people don't have NCCPs when on these types of medications,

> > believed

> > > to be a function of the medicine's effect on serotonin in the

brain

> > > > (antidepressants such as Nortryptaline, Amitryptaline,

Imipramine

> > > and Trazodone have been studied; Neurontin is being studied in

a

> > > similar way for " phantom limb pain " in amputees, etc.) People

in

> > the

> > > group have had luck with Paxil, Ativan, Nortryptaline, etc. The

> > > dosage needed in this case is generally lower than the dosage

that

> > is

> > > normally used to treat depression.

> > > >

> > > > -- L'Argnine supplements -- some people have found these

relieve

> > > NCCP symptoms.

> > > >

> > > > -- If symptoms are debilitating and none of the methods above

> > help,

> > > you may need a narcotic pain reliever, but definitely try all

the

> > > options above first, b/c if you're on narcotics you can't

drive,

> > > work, etc., and the vast majority of people can find relief in

a

> > way

> > > that doesn't involve narcotics.

> > > >

> > > > =============================================

> > > >

> > > > In the last few years I've taken three different drugs that

> > affect

> > > serotonin (two were antidepressants, and one isn't considered

to be

> > > an anti-depressant medication but does have an effect on

> > serotonin);

> > > any time I was on one of those drugs, my NCCPs have either

> > > disappeared entirely, or been nearly eliminated and greatly

reduced

> > > in severity. And each time I discontinued a serotonin-effect

drug,

> > > the NCCPs started up again within a month's time. One member

here

> > > who was in the E.R. repeatedly for debilitating NCCPs finally

had a

> > > doctor prescribe a low-dose daily antidepressant; her NCCPs

have

> > been

> > > eliminated.... no more pain, no more narcotics, no more trips

to

> > the

> > > hospital.

> > > >

> > > > There are soooooooooooo many things that can be done to

reduce

> > > NCCPs, but doctors don't even bother to TRY to find a solution

for

> > > us. I say let THEM curl up in a fetal position making plea-

bargain

> > > deals with their Maker at 3:00 in the morning just ONCE, and

you

> > can

> > > bet your booty that they'll find a solution REAL fast!!!

> > > >

> > > > Debbi in Michigan

> > > >

> > >

> >

>

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Dear , I am not at all surprised that your younger daughter did so well. Look at the role models of womanhood she has had recently. She has watched you go through this op in a positive manner and ready to support others at the same time. And she has watched her older sister have to cope with her medical problem AND think about school exams coming up and the pressure that that alone causes.It has all probably made her determined to have a good time and try her best. Good for you all.Sending love from Ann in England (far in distance and close in thoughts) xxx> > > > >> > > > > Chest pains, heartburn, acid reflux, spasm pains, NCCPs.... > what > > > > the heck is all of this stuff anyway????> > > > > (aka: Debbi's Dissertation on Dysfunctional Dysphagia > Diagnoses)> > > > > > > > > > Here's some info I've put together on differences > > > > between "heartburn" and the "chest pains/spasm pains" that are > > > > related to achalasia. The official medical term that I've found > > > for > > > > the "spasm pain" is "NCCP" or Non Cardiac Chest Pain. There are > > > > multiple terms used for "heartburn" including: acid > indigestion, > > > > > acid reflux, GERD/GORD, etc.> > > > > > > > > > In my pre-achalasia days, I would > have "indigestion/heartburn" > > > once > > > > in a while (after a particularly large, fatty, acidic meal, > etc.), > > > > maybe once or twice a year. I would have that nasty acid taste > in > > > my > > > > mouth when I burped, and a hot/burning sensation in the area of > my > > > > breastbone. While not particularly comfortable, it wasn't an > > > > excruciating, debilitating pain, and taking some Tums or other > > > > antacid would neutralize it and both the taste and the > discomfort > > > > would go away.> > > > > > > > > > When I had my first NCCP, I had been having problems > swallowing > > > for > > > > a few years but hadn't yet been diagnosed with anything, and I > had > > > no > > > > clue that the pain was related to my swallowing problems. I > > > thought > > > > the pain was some gawd-awful gas pains -- felt like something > was > > > > stabbing me from the inside out! The pain seemed to start in > the > > > > ribs and almost squeeze my chest with searing pain that seemed > to > > > > > shoot up into my neck, too. (note: everyone can experience > NCCPs > > > in > > > > varying degrees and in various parts of the body, including > > > stomach, > > > > chest, shoulders, neck, back, jaw, tongue, teeth, and roof of > the > > > > > mouth.) I lived alone at the time, and I drove to a > convenience > > > > store and bought three rolls of Rolaids and ate two whole > rolls. > > > > That didn't have any effect at all, and it took a couple hours > for > > > > the pain to go away. > > > > > > > > > > Another time, I have a distinct memory of standing in the > kitchen > > > > holding onto the countertop and just WAILING at the top of my > lungs > > > > because it hurt so bad, and my knees buckling from the pain. My > > > > wailing turned into one big repetitious prayer: "Please, Lord, > > > > Please, Lord, Make It Stop, Lord, I Can't Take It Anymore, > Lord, > > > > Please, Lord, I Need You To Please Help Me!" over and over and > over > > > > again while sobbing. This was almost a decade ago and I don't > know > > > > how long it went on, but I'm thinking that it was well over an > hour > > > > of that constant wailing. Boy, those were the days, huh? ;o)> > > > > > > > > > For people whose doctors believe that NCCPs are an "atypical" > > > (not > > > > normal) symptom for achalasia patients, point them in the > direction > > > > of this informal poll here on our group: > > > > > achalasia/surveys?> > > > id=1037310 . The poll is now closed, so who knows how many more > > > > would be added to it if it were still accepting votes. If you > > > scroll > > > > down to the end, 38 people reported that they have > these "spasms", > > > > and 5 people reported that they don't have spasms. So out of 43 > > > > people who answered the poll, 88% have spasms and 12% don't > have > > > > spasms. Doesn't sound like a "rare" or "atypical" symptom, does > > > it? > > > > > > > > > > In another poll ( > > > > achalasia/surveys?> > > id=1011383 ), > > > > out of the people who went to the Emergency Room due to extreme > > > chest > > > > pains, 2 were given intravenous Valium, 3 were given Demerol or > > > other > > > > narcotic injection, and 7 were given no treatment > whatsoever.... > > > > isn't that sad? 58% of the people who were in such severe pain > > > that > > > > they went to the E.R. for relief were given NO TREATMENT at > all!!! > > > > That is SO unnecessary!!!!> > > > > > > > > > Here's some info that I copied from an old post of mine -- if > > > your > > > > doctor will bother to do some simple web searches, he'll see > that > > > > calcium channel blockers, nitroglycerine, and anti-depressants > are > > > > all documented ways to treat NCCP in people with esophageal > > > > disorders! Maybe if you print it out and show it to him, he'll > be > > > > willing to offer you some help in dealing with this. > > > > > > > > > > =============================================> > > > > > > > > > Here's some basic info that I've posted in the past -- > different > > > > things work for different people, so it's basically just an > > > > experiment to find what works for your own particular situation.> > > > > > > > > > Here are some different coping methods to try: > > > > > > > > > > -- Swallowing something warm or something cold (in my case, I > > > chug > > > > warm --not hot-- water as fast as I can).> > > > > > > > > > -- CCB medication (calcium channel blockers) -- when I'm > having > > > > NCCPs, I prick the shell of a nifedipine capsule and squirt it > > > under > > > > my tongue. It absorbs into the bloodstream under the tongue > (this > > > is > > > > called a "sub-lingual" medication, meaning under-tongue) and > > > relaxes > > > > smooth muscle tissue (which is what the esophagus is made up > of). > > > > You can also just swallow the capsule, but since we have > trouble > > > > swallowing in the first place, I've found the under-the-tongue > > > method > > > > works best (then you just swallow when you've held it there as > long > > > > as you can and your saliva requires a swallow). Unfortunately, > it > > > > can also lower your blood pressure (usually only a problem if > you > > > > already have low BP to begin with) and cause a headache > afterwards -> > > - > > > > some people experience this, some don't. CCB's can also be > tried > > > in > > > > the "slow release" formula as a preventative to having NCCPs > start > > > in > > > > the first place.> > > > > > > > > > -- Nitroglycerin medication -- works in much the same way as > the > > > > CCB mentioned above, and can also be taken sublingually for > fast > > > > relief.> > > > > > > > > > -- Certain anti-depressant and anti-convulsant medications -- > > > some > > > > people don't have NCCPs when on these types of medications, > > > believed > > > > to be a function of the medicine's effect on serotonin in the > brain > > > > > (antidepressants such as Nortryptaline, Amitryptaline, > Imipramine > > > > and Trazodone have been studied; Neurontin is being studied in > a > > > > similar way for "phantom limb pain" in amputees, etc.) People > in > > > the > > > > group have had luck with Paxil, Ativan, Nortryptaline, etc. The > > > > dosage needed in this case is generally lower than the dosage > that > > > is > > > > normally used to treat depression.> > > > > > > > > > -- L'Argnine supplements -- some people have found these > relieve > > > > NCCP symptoms. > > > > > > > > > > -- If symptoms are debilitating and none of the methods above > > > help, > > > > you may need a narcotic pain reliever, but definitely try all > the > > > > options above first, b/c if you're on narcotics you can't > drive, > > > > work, etc., and the vast majority of people can find relief in > a > > > way > > > > that doesn't involve narcotics.> > > > > > > > > > =============================================> > > > > > > > > > In the last few years I've taken three different drugs that > > > affect > > > > serotonin (two were antidepressants, and one isn't considered > to be > > > > an anti-depressant medication but does have an effect on > > > serotonin); > > > > any time I was on one of those drugs, my NCCPs have either > > > > disappeared entirely, or been nearly eliminated and greatly > reduced > > > > in severity. And each time I discontinued a serotonin-effect > drug, > > > > the NCCPs started up again within a month's time. One member > here > > > > who was in the E.R. repeatedly for debilitating NCCPs finally > had a > > > > doctor prescribe a low-dose daily antidepressant; her NCCPs > have > > > been > > > > eliminated.... no more pain, no more narcotics, no more trips > to > > > the > > > > hospital. > > > > > > > > > > There are soooooooooooo many things that can be done to > reduce > > > > NCCPs, but doctors don't even bother to TRY to find a solution > for > > > > us. I say let THEM curl up in a fetal position making plea-> bargain > > > > deals with their Maker at 3:00 in the morning just ONCE, and > you > > > can > > > > bet your booty that they'll find a solution REAL fast!!! > > > > > > > > > > Debbi in Michigan> > > > >> > > >> > >> >>

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Thanks Ann,

I am proud of my girls.

> > > > > >

> > > > > > Chest pains, heartburn, acid reflux, spasm pains,

NCCPs....

> > what

> > > > > the heck is all of this stuff anyway????

> > > > > > (aka: Debbi's Dissertation on Dysfunctional Dysphagia

> > Diagnoses)

> > > > > >

> > > > > > Here's some info I've put together on differences

> > > > > between " heartburn " and the " chest pains/spasm pains " that

are

> > > > > related to achalasia. The official medical term that I've

found

> > > > for

> > > > > the " spasm pain " is " NCCP " or Non Cardiac Chest Pain. There

are

> > > > > multiple terms used for " heartburn " including: acid

> > indigestion,

> > > > > > acid reflux, GERD/GORD, etc.

> > > > > >

> > > > > > In my pre-achalasia days, I would

> > have " indigestion/heartburn "

> > > > once

> > > > > in a while (after a particularly large, fatty, acidic meal,

> > etc.),

> > > > > maybe once or twice a year. I would have that nasty acid

taste

> > in

> > > > my

> > > > > mouth when I burped, and a hot/burning sensation in the

area of

> > my

> > > > > breastbone. While not particularly comfortable, it wasn't

an

> > > > > excruciating, debilitating pain, and taking some Tums or

other

> > > > > antacid would neutralize it and both the taste and the

> > discomfort

> > > > > would go away.

> > > > > >

> > > > > > When I had my first NCCP, I had been having problems

> > swallowing

> > > > for

> > > > > a few years but hadn't yet been diagnosed with anything,

and I

> > had

> > > > no

> > > > > clue that the pain was related to my swallowing problems. I

> > > > thought

> > > > > the pain was some gawd-awful gas pains -- felt like

something

> > was

> > > > > stabbing me from the inside out! The pain seemed to start

in

> > the

> > > > > ribs and almost squeeze my chest with searing pain that

seemed

> > to

> > > > > > shoot up into my neck, too. (note: everyone can

experience

> > NCCPs

> > > > in

> > > > > varying degrees and in various parts of the body, including

> > > > stomach,

> > > > > chest, shoulders, neck, back, jaw, tongue, teeth, and roof

of

> > the

> > > > > > mouth.) I lived alone at the time, and I drove to a

> > convenience

> > > > > store and bought three rolls of Rolaids and ate two whole

> > rolls.

> > > > > That didn't have any effect at all, and it took a couple

hours

> > for

> > > > > the pain to go away.

> > > > > >

> > > > > > Another time, I have a distinct memory of standing in the

> > kitchen

> > > > > holding onto the countertop and just WAILING at the top of

my

> > lungs

> > > > > because it hurt so bad, and my knees buckling from the

pain. My

> > > > > wailing turned into one big repetitious prayer: " Please,

Lord,

> > > > > Please, Lord, Make It Stop, Lord, I Can't Take It Anymore,

> > Lord,

> > > > > Please, Lord, I Need You To Please Help Me! " over and over

and

> > over

> > > > > again while sobbing. This was almost a decade ago and I

don't

> > know

> > > > > how long it went on, but I'm thinking that it was well over

an

> > hour

> > > > > of that constant wailing. Boy, those were the days, huh? ;o)

> > > > > >

> > > > > > For people whose doctors believe that NCCPs are

an " atypical "

> > > > (not

> > > > > normal) symptom for achalasia patients, point them in the

> > direction

> > > > > of this informal poll here on our group:

> > > > > > achalasia/surveys?

> > > > > id=1037310 . The poll is now closed, so who knows how many

more

> > > > > would be added to it if it were still accepting votes. If

you

> > > > scroll

> > > > > down to the end, 38 people reported that they have

> > these " spasms " ,

> > > > > and 5 people reported that they don't have spasms. So out

of 43

> > > > > people who answered the poll, 88% have spasms and 12% don't

> > have

> > > > > spasms. Doesn't sound like a " rare " or " atypical " symptom,

does

> > > > it?

> > > > > >

> > > > > > In another poll (

> > > > > achalasia/surveys?

> > > > id=1011383 ),

> > > > > out of the people who went to the Emergency Room due to

extreme

> > > > chest

> > > > > pains, 2 were given intravenous Valium, 3 were given

Demerol or

> > > > other

> > > > > narcotic injection, and 7 were given no treatment

> > whatsoever....

> > > > > isn't that sad? 58% of the people who were in such severe

pain

> > > > that

> > > > > they went to the E.R. for relief were given NO TREATMENT at

> > all!!!

> > > > > That is SO unnecessary!!!!

> > > > > >

> > > > > > Here's some info that I copied from an old post of mine --

if

> > > > your

> > > > > doctor will bother to do some simple web searches, he'll

see

> > that

> > > > > calcium channel blockers, nitroglycerine, and anti-

depressants

> > are

> > > > > all documented ways to treat NCCP in people with esophageal

> > > > > disorders! Maybe if you print it out and show it to him,

he'll

> > be

> > > > > willing to offer you some help in dealing with this.

> > > > > >

> > > > > > =============================================

> > > > > >

> > > > > > Here's some basic info that I've posted in the past --

> > different

> > > > > things work for different people, so it's basically just an

> > > > > experiment to find what works for your own particular

situation.

> > > > > >

> > > > > > Here are some different coping methods to try:

> > > > > >

> > > > > > -- Swallowing something warm or something cold (in my

case, I

> > > > chug

> > > > > warm --not hot-- water as fast as I can).

> > > > > >

> > > > > > -- CCB medication (calcium channel blockers) -- when I'm

> > having

> > > > > NCCPs, I prick the shell of a nifedipine capsule and squirt

it

> > > > under

> > > > > my tongue. It absorbs into the bloodstream under the tongue

> > (this

> > > > is

> > > > > called a " sub-lingual " medication, meaning under-tongue)

and

> > > > relaxes

> > > > > smooth muscle tissue (which is what the esophagus is made

up

> > of).

> > > > > You can also just swallow the capsule, but since we have

> > trouble

> > > > > swallowing in the first place, I've found the under-the-

tongue

> > > > method

> > > > > works best (then you just swallow when you've held it there

as

> > long

> > > > > as you can and your saliva requires a swallow).

Unfortunately,

> > it

> > > > > can also lower your blood pressure (usually only a problem

if

> > you

> > > > > already have low BP to begin with) and cause a headache

> > afterwards -

> > > > -

> > > > > some people experience this, some don't. CCB's can also be

> > tried

> > > > in

> > > > > the " slow release " formula as a preventative to having

NCCPs

> > start

> > > > in

> > > > > the first place.

> > > > > >

> > > > > > -- Nitroglycerin medication -- works in much the same way

as

> > the

> > > > > CCB mentioned above, and can also be taken sublingually for

> > fast

> > > > > relief.

> > > > > >

> > > > > > -- Certain anti-depressant and anti-convulsant

medications --

> > > > some

> > > > > people don't have NCCPs when on these types of medications,

> > > > believed

> > > > > to be a function of the medicine's effect on serotonin in

the

> > brain

> > > > > > (antidepressants such as Nortryptaline, Amitryptaline,

> > Imipramine

> > > > > and Trazodone have been studied; Neurontin is being studied

in

> > a

> > > > > similar way for " phantom limb pain " in amputees, etc.)

People

> > in

> > > > the

> > > > > group have had luck with Paxil, Ativan, Nortryptaline, etc.

The

> > > > > dosage needed in this case is generally lower than the

dosage

> > that

> > > > is

> > > > > normally used to treat depression.

> > > > > >

> > > > > > -- L'Argnine supplements -- some people have found these

> > relieve

> > > > > NCCP symptoms.

> > > > > >

> > > > > > -- If symptoms are debilitating and none of the methods

above

> > > > help,

> > > > > you may need a narcotic pain reliever, but definitely try

all

> > the

> > > > > options above first, b/c if you're on narcotics you can't

> > drive,

> > > > > work, etc., and the vast majority of people can find relief

in

> > a

> > > > way

> > > > > that doesn't involve narcotics.

> > > > > >

> > > > > > =============================================

> > > > > >

> > > > > > In the last few years I've taken three different drugs

that

> > > > affect

> > > > > serotonin (two were antidepressants, and one isn't

considered

> > to be

> > > > > an anti-depressant medication but does have an effect on

> > > > serotonin);

> > > > > any time I was on one of those drugs, my NCCPs have either

> > > > > disappeared entirely, or been nearly eliminated and greatly

> > reduced

> > > > > in severity. And each time I discontinued a serotonin-

effect

> > drug,

> > > > > the NCCPs started up again within a month's time. One

member

> > here

> > > > > who was in the E.R. repeatedly for debilitating NCCPs

finally

> > had a

> > > > > doctor prescribe a low-dose daily antidepressant; her NCCPs

> > have

> > > > been

> > > > > eliminated.... no more pain, no more narcotics, no more

trips

> > to

> > > > the

> > > > > hospital.

> > > > > >

> > > > > > There are soooooooooooo many things that can be done to

> > reduce

> > > > > NCCPs, but doctors don't even bother to TRY to find a

solution

> > for

> > > > > us. I say let THEM curl up in a fetal position making plea-

> > bargain

> > > > > deals with their Maker at 3:00 in the morning just ONCE,

and

> > you

> > > > can

> > > > > bet your booty that they'll find a solution REAL fast!!!

> > > > > >

> > > > > > Debbi in Michigan

> > > > > >

> > > > >

> > > >

> > >

> >

>

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  • 1 month later...

Ann I will check with Pastor and let you know where his home in England was. I sent a copy of one of your emails, and will tell her you said hello. Jolilac_blossom_lady <lilac_blossom_lady@...> wrote: Dear Dawn, I love your phrase "tune up". I will remember that when I have to have "services" in the future. It kind of puts things into an easy perspective. Dear Jo, That was such a sweet message. Thank you for your kind words. Do you know where in England your pastor is from? It's not such a big place really. I may have heard of it. Say hello to your for

me Dear Liz, You really have been through a tough time haven't you sweetheart? You must be very grateful to be at this side of it. I sincerely hope that your life will now become better and better. Dear LeeAnn, The only thing that I can give to you is this little piece of advice. From now, until it is over, keep saying to yourself "I can do this, I can do this". The words will keep you strong. You will be ok. Special love to you. Love to all from Ann in England xxxxxxxx

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Pastor and his wife Glenys are currently trying to arrange green cards for the two oldest boys, ages 21 & 19 (I think). The rest of the family is all set, but the church has been praying for & for months. I know they want to stay here together, so this is a difficult time for the family. I have printed your message, and will take it with me when I see him. Your advice for dealing with this disease is right on target. Too bad I didn't see it before this past week, when I let depression creep in and I sabotaged my current employment. I am filling out new applications today. My position has not been terminated yet, but I doubt that I am up to the demands required when business increases. Twelve hour days and six day work weeks are beyond my abilities at this time. lilac_blossom_lady <lilac_blossom_lady@...> wrote: Dear Jo, Both Manchester and Liverpool are close by. Manchester is about 25 miles and Liverpool about 40. My stepson is a graphic artist in Manchester. Liverpool,as you probably know, is famous for the Beatles. It must seem like a very big change for your Pastor and his family. Tell him that I live in Huddersfield, where we are very proud of our football team, who travelled down to London yesterday to take on the Premier side, Chelsea and though beaten 2-1 put on a very good show. I am not a supporter myself but my daughter is "Town Mad". I hope he is very happy in his new life. Best wishes from Ann In England's Green and Pleasant Land. XX>> I spoke with pastor after services this morning. He said he was > born in Manchester, and lived in Liverpool before moving to the > States. He asked what area you are from, and I wasn't able to tell > him. I have been looking through your messages, but haven't found the > answer yet.> > Jo>

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