Re: Anyone have experiences to share with Lion's Mane

[Guest guest]

I'm pretty sure that Janet was taking it - I'm sure she'll respond soon.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: alansamston@...

Date: Tue, 8 Mar 2011 20:21:47 +0000

Subject: Anyone have experiences to share with Lion's Mane

Anyone taking Lion's Mane and if so had any results related to it?

[Guest guest]

Yes I did take it for about 6 months. I felt it did a little at the beginning

but then tailed off, as so many supplements seem to do with me.

Janet

To: mscured

From: rachael.m.thomas@...

Date: Wed, 9 Mar 2011 10:25:13 +1030

Subject: RE: Anyone have experiences to share with Lion's Mane

I'm pretty sure that Janet was taking it - I'm sure she'll respond soon.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: alansamston@...

Date: Tue, 8 Mar 2011 20:21:47 +0000

Subject: Anyone have experiences to share with Lion's Mane

Anyone taking Lion's Mane and if so had any results related to it?

[Guest guest]

I have a similar reaction with supplements. I think that they are enervating

and not healing sometimes. I've really cut back on what I take.

>

>

> Yes I did take it for about 6 months. I felt it did a little at the beginning

but then tailed off, as so many supplements seem to do with me.

> Janet

[Guest guest]

Thanks Janet,

There are SO MANY supplements recommended for MS by various experts as well as

eduated patients and other patients who just seemed to get lucky and pick the

right things. I feel I could literally be on over 1000 supplements if I bought

every single thing supplement I have seen recommended by websites and patients

and natural practitioners. I wish there was a way to determine what exactly the

individual body needs. I even went to two different natural practitioners who

energy tested me and each recommended completely different supplements for me.

The first practitioner sold me $1,000 U.S. worth of supplements based on the

energy testing. About 8 months later I saw another practioner who told me to

bring those supplements, and he claimed that every single one of those $1,000

supplements was an allergen for me yet he (the second one) claimed all of the

supplements he sold (Shaklee) my body accepted and wanted. Argh. That really

turned me off of these energy medicine practitioners.

I have had bolood, urine, and saliva tests--trying to figure out what are my

deficiencies and excesses. But many say these tests are unreliable and

constantly changing. One thing I have found is that when I add in a new

supplement (most paraticularly sublingual B12 and Gingko as well as a brief

trial of Cortef (cortisol) that my spasticity got worse/unbearable. Yet these

supplements seem to help so many.

What I liked about the concept of Lion's Mane is that it is, I believe, one of

the few supplements that claims to rebuild myelin.

Anyone else have a Lion's Mane story to tell--be it good, bad or indifferent?

This is a very tough puzzle to figure out--Healing MS, that is.

Thanks for any additional feedback.

________________________________

To: MS-Cured <mscured >

Sent: Wed, March 9, 2011 4:24:15 AM

Subject: RE: Anyone have experiences to share with Lion's Mane

Yes I did take it for about 6 months.  I felt it did a little at the beginning

but then tailed off, as so many supplements seem to do with me.

Janet

[Guest guest]

Me too Alllison. Right now I am down to a very simple regimen. I take Garden of

Life whole food supplement multivitamin/multimineral, which gives about 75-100%

of the RDA of most vitamins and minerals. I like that the percentages are not

extreme because I am not sure the liver, kidneys, digestive enzymes, etc can

really handle the massive supplements that are often suggested. In addition I

take Coral Calcium Powder, because the aforementioned product does not have much

calcium or magnesium. The coral calcium powder, like the other product I

mentioned, is a whole food product (not synthetic, not isolated). The other

things that I take daily are 10,000 IU Vitamin D3 daily, flax or borage oil, and

Wild Alaskan salmon and wild Alaskan salmon oil from Vital Choice. Occasionally

I also take a B complex. I've been doing this for the last several weeks and

feel a bit better in some symptoms. I still feel, as many others do, that diet

is more important than supplements.

I am thinking about adding Gingko and or ALA.

I am also always on the search for a safe gentle chelator. The ones I tried

(oral DMSA and cilantro) turned my brain to mush. I can't handle that kind of

" healing crisis " without knowing if I'm on the right track.

________________________________

To: mscured

Sent: Wed, March 9, 2011 10:38:39 AM

Subject: Re: Anyone have experiences to share with Lion's Mane

 

I have a similar reaction with supplements. I think that they are enervating and

not healing sometimes. I've really cut back on what I take.

[Guest guest]

very intersting view on ms and supplement, i agree

 

cannot find 'lion's mane' on my supplier list, is this called by some other name

 

regards/peter/london/ms primary progressive

Thanks Janet,

There are SO MANY supplements recommended for MS by various experts as well as

eduated patients and other patients who just seemed to get lucky and pick the

right things. I feel I could literally be on over 1000 supplements if I bought

every single thing supplement I have seen recommended by websites and patients

and natural practitioners. I wish there was a way to determine what exactly the

individual body needs. I even went to two different natural practitioners who

energy tested me and each recommended completely different supplements for me.

The first practitioner sold me $1,000 U.S. worth of supplements based on the

energy testing. About 8 months later I saw another practioner who told me to

bring those supplements, and he claimed that every single one of those $1,000

supplements was an allergen for me yet he (the second one) claimed all of the

supplements he sold (Shaklee) my body accepted and wanted. Argh. That really

turned me off of these energy medicine practitioners.

I have had bolood, urine, and saliva tests--trying to figure out what are my

deficiencies and excesses. But many say these tests are unreliable and

constantly changing. One thing I have found is that when I add in a new

supplement (most paraticularly sublingual B12 and Gingko as well as a brief

trial of Cortef (cortisol) that my spasticity got worse/unbearable. Yet these

supplements seem to help so many.

What I liked about the concept of Lion's Mane is that it is, I believe, one of

the few supplements that claims to rebuild myelin.

Anyone else have a Lion's Mane story to tell--be it good, bad or indifferent?

This is a very tough puzzle to figure out--Healing MS, that is.

Thanks for any additional feedback.

[Guest guest]

good read, out of interest, how much per month do your supplements cost you

 

trying to trace 'lion's mane' maybe by another name ??

 

regards/peter/ms/primary progressive

 

Me too Alllison. Right now I am down to a very simple regimen. I take Garden of

Life whole food supplement multivitamin/multimineral, which gives about 75-100%

of the RDA of most vitamins and minerals. I like that the percentages are not

extreme because I am not sure the liver, kidneys, digestive enzymes, etc can

really handle the massive supplements that are often suggested. In addition I

take Coral Calcium Powder, because the aforementioned product does not have much

calcium or magnesium. The coral calcium powder, like the other product I

mentioned, is a whole food product (not synthetic, not isolated). The other

things that I take daily are 10,000 IU Vitamin D3 daily, flax or borage oil, and

Wild Alaskan salmon and wild Alaskan salmon oil from Vital Choice. Occasionally

I also take a B complex. I've been doing this for the last several weeks and

feel a bit better in some symptoms. I still feel, as many others do, that diet

is more important than supplements.

I am thinking about adding Gingko and or ALA.

I am also always on the search for a safe gentle chelator. The ones I tried

(oral DMSA and cilantro) turned my brain to mush. I can't handle that kind of

" healing crisis " without knowing if I'm on the right track.

[Guest guest]

Hi Alan

I'd say mine was a similar experience to Janets, last year over the summer I was

taking Lions Mane powder and capsules and so was taking it throughout the day.

I was getting good results with feeling coming back, less pins and needles and

warmth in my feet. Unfortunately I could no longer get the powder and stopped

taking it. I didn't particularly notice any reversal all improvements were

maintained ~ hopefully due to all other good things I'm doing.

Regarding getting your supplements checked, these things do change over time

with the body's needs, stick with a practioner and method you trust in so you

can see how it does change. I'm in agreement with you regarding not overloading

the liver and digestive system.

I've recently found out I'm 'allergic' to chocolate!!! which I've been taking on

a daily basis for the last 2 years so now having stopped it I'll be looking out

for improvements.

Its a careful balancing act which I hope we can all master.

Regards