Re: [lowdosenaltrexone] MS

[Guest guest]

dear rachael, i have the fear that ccsvi is having the same impact as stem

cells, ie false hope and i am not being negative

 

i am staying with ldn for 12 months and by then the ccsvi proceedure will have

developed

 

fingers X for all those that try any proceedure where they think it will help

their situation

 

regards/peter/ms/primary progressive

 

 

Hi

are you talking about the CCSVI (Chronic CerebroSpinal Venous Insufficiency)

procedure bing done around the world?

It certainly is a HUGE deal to those of us who've fallen victim to 'MS'.

 

I've had the procedure and am now again able to walk and ride my exercise bike -

the procedure has varying results because it is different for each individual.

It truly deserves the publicity when it has helped so many - getting the word

out about it AND about LDN is how I spend most of my days in the effort to truly

help others who have had the letters 'MS' written in their medical files.

 

Good idea regarding sending through feedback or responses about LDN - it could

work very well!

Another idea would be to 'tweet' about it and get it out there in the same

fashion as Charlie Sheen has been causing his 'tweets' about a lot of his weird

oddities like Tigerblood etc to 'trend'.

*shrugs*

dunno - just an idea

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

[Guest guest]

Hi

As someone who has had great results from the procedure, I'm very positive about

it ansd as someon who has bee researching CCSVI for the past 3+years, I have a

lot of faith in it. For me and for many others it has not been a matter o 'false

hope' -far from it actually!

Some who've had irreversible damage haven't had results as others have reported,

but healing takes time. Give these bodies a chance to mend themselves! I know

that my body is responding to exercise and the rebuilding of muscle and my body

is healing well - I can tell.

My NeuroPhysio is hugely impressed at how my walking is improving from after the

procedure. *shrugs*

Each person will have their results and we shouldn't be comparing results as it

is always going to be different to others' anyway.

I respect that others are fearful and perhaps doubtful about it, but as is the

same with EVERY treatment for 'MS', each individual will have individual results

and there are no guarantees of specific results because of this.

We also must remember that on top of that, each person heals at a different rate

and each individual body must be given the chance to heal itself before being

judged as not having had any affect.

I think it's terriffic that you get good results from LDN - stick with it! I

will never get off it - it has helped so much with the pain so I do rave about

it to people!

Lets do as you say and just wait and see - results will be forthcoming from

studies and from the people who're having the procedures currently, and they'll

be just as happy to share their experiences too I'm sure.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: rachael.m.thomas@...; lowdosenaltrexone ;

lowdosenaltrexone ; mscured

From: peter.nicholls@...

Date: Tue, 8 Mar 2011 11:05:20 +0000

Subject: Re: [lowdosenaltrexone] MS

dear rachael, i have the fear that ccsvi is having the same impact as stem

cells, ie false hope and i am not being negative

i am staying with ldn for 12 months and by then the ccsvi proceedure will have

developed

fingers X for all those that try any proceedure where they think it will help

their situation

regards/peter/ms/primary progressive

[Guest guest]

Does insurance cover the procedure?

>

> Hi

> As someone who has had great results from the procedure, I'm very positive

> about it ansd as someon who has bee researching CCSVI for the past 3+years,

> I have a lot of faith in it. For me and for many others it has not been a

> matter o 'false hope' -far from it actually!

> Some who've had irreversible damage haven't had results as others have

> reported, but healing takes time. Give these bodies a chance to mend

> themselves! I know that my body is responding to exercise and the rebuilding

> of muscle and my body is healing well - I can tell.

> My NeuroPhysio is hugely impressed at how my walking is improving from after

> the procedure. *shrugs*

> Each person will have their results and we shouldn't be comparing results as

> it is always going to be different to others' anyway.

>

> I respect that others are fearful and perhaps doubtful about it, but as is

> the same with EVERY treatment for 'MS', each individual will have individual

> results and there are no guarantees of specific results because of this.

>

> We also must remember that on top of that, each person heals at a different

> rate and each individual body must be given the chance to heal itself before

> being judged as not having had any affect.

>

> I think it's terriffic that you get good results from LDN - stick with it!

> I will never get off it - it has helped so much with the pain so I do

> rave about it to people!

>

> Lets do as you say and just wait and see - results will be forthcoming from

> studies and from the people who're having the procedures currently, and

> they'll be just as happy to share their experiences too I'm sure.

>

>

> 'What we do in life, echoes through eternity.'

> MARCUS AURELIUS (121 - 180 A.D.)

>

>

>

>

>

>

> To: rachael.m.thomas@...; lowdosenaltrexone ;

> lowdosenaltrexone ; mscured

> From: peter.nicholls@...

> Date: Tue, 8 Mar 2011 11:05:20 +0000

> Subject: Re: [lowdosenaltrexone] MS

>

>

>

>

>

>

> dear rachael, i have the fear that ccsvi is having the same impact as stem

> cells, ie false hope and i am not being negative

>

> i am staying with ldn for 12 months and by then the ccsvi proceedure will

> have developed

>

> fingers X for all those that try any proceedure where they think it will

> help their situation

>

> regards/peter/ms/primary progressive

>

>

>

>

[Guest guest]

Hi Aerika

I'm gathering that you're in the States?

Insurance doesn't cover the procedure unfortunately but as I'm no expert when it

comes to the medical goings on in the States, this is a subject you should look

into.

I'm living in the UK and the National Health Service (NHS) doesn't cover it here

either. I know that the Medicare system in Australia used to cver it, but I

think that law has changed now.

Essentially, everyone is having to pay for it - studies which are due to show

results pretty soon should give our governments some moe information in order

for them to include it in their rulings on 'MS' and medical treatments.

Having had the procedure and having had good results, I'm delighted we spent our

money on it - I'd do it again in a heartbeat.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: aerika.keith@...

Date: Tue, 8 Mar 2011 07:59:20 -0800

Subject: Re: Re: [lowdosenaltrexone] MS

Does insurance cover the procedure?

[Guest guest]

I am sure I had seen posts by some Americans whose insurance covered CCSVI

treatment - maybe others in the group can comment.

Janet

To: mscured

From: rachael.m.thomas@...

Date: Wed, 9 Mar 2011 02:47:06 +1030

Subject: RE: Re: [lowdosenaltrexone] MS

Hi Aerika

I'm gathering that you're in the States?

Insurance doesn't cover the procedure unfortunately but as I'm no expert when it

comes to the medical goings on in the States, this is a subject you should look

into.

I'm living in the UK and the National Health Service (NHS) doesn't cover it here

either. I know that the Medicare system in Australia used to cver it, but I

think that law has changed now.

Essentially, everyone is having to pay for it - studies which are due to show

results pretty soon should give our governments some moe information in order

for them to include it in their rulings on 'MS' and medical treatments.

Having had the procedure and having had good results, I'm delighted we spent our

money on it - I'd do it again in a heartbeat.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: aerika.keith@...

Date: Tue, 8 Mar 2011 07:59:20 -0800

Subject: Re: Re: [lowdosenaltrexone] MS

Does insurance cover the procedure?

[Guest guest]

I heard that too - but I had thought that they'd had to 'wangle' it with the

help of a medical practitioner....don't know and that's why I couldn't

comment...but generally, as far as I know and strictly speaking, insurance

doesn't cover it.

*shrugs*

As I said, I'm not American so cannot speak for everyone everywhere.

lol

Ask on Facebook if noone replies who can help from the group.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

> To: mscured

> From: janetorchard@...

> Date: Tue, 8 Mar 2011 18:06:05 +0100

> Subject: RE: Re: [lowdosenaltrexone] MS

>

>

> I am sure I had seen posts by some Americans whose insurance covered CCSVI

treatment - maybe others in the group can comment.

> Janet

[Guest guest]

Hi Aerika

Is it really that easy to get a work visa for so many other countries? I had a

hell of a time getting to the UK to work from Australia no less! lol

If you'd be able to do that, research it.

CCSVI may not be done in Europe under the national health schemes either I don't

think as it's still not widely accepted medically.

Studies are still being done...but you should research it for yourself anyway.

Just see what you might be able to do - most of us have had to pay for it though

and most still do.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: aerika.keith@...

Date: Tue, 8 Mar 2011 09:29:54 -0800

Subject: Re: Re: [lowdosenaltrexone] MS

I am in the states, yes. How about any other countries? Norway?

Netherlands, Germany? It would be cheaper to live in one of these

places for a while on a work visa, get insurance, and get it done.

[Guest guest]

LifeGaurd at the Phoenix Heart Institute (that was recently sold to VanGaurd)

takes insurance but the program is on hold until VanGaurd gets it together.

LifeGaurd is supposed to email me when that happens. Having new ownership has

left them in reconstructive mode.

>

> I am in the states, yes. How about any other countries? Norway?

> Netherlands, Germany? It would be cheaper to live in one of these

> places for a while on a work visa, get insurance, and get it done. I

> don't have a formal diagnosis but had 63 symptoms. I refuse to get a

[Guest guest]

, are you referring to the Arizona Heart Institute? I couldn't

find the Phoenix Heart Institute.

> LifeGaurd at the Phoenix Heart Institute (that was recently sold to

> VanGaurd) takes insurance but the program is on hold until VanGaurd gets it

> together. LifeGaurd is supposed to email me when that happens. Having new

> ownership has left them in reconstructive mode.

>

>

>>

>> I am in the states, yes. How about any other countries? Norway?

>> Netherlands, Germany? It would be cheaper to live in one of these

>> places for a while on a work visa, get insurance, and get it done. I

>> don't have a formal diagnosis but had 63 symptoms. I refuse to get a

>

>

>

[Guest guest]

Yes, that's the one but it is now VanGaurd. It's IN Phoenix.

>

> , are you referring to the Arizona Heart Institute? I couldn't

> find the Phoenix Heart Institute.

>

>

[Guest guest]

My MRIs for my Lyme Disease did not use any contrast agent (gadolinium). The MRI

reports conclude I have a demylenating condition like MS or Lyme Disease. We

can have MRIs done w/ out contrast.

I have been diagnosed TWICE w/ MS. Taken Rebif, Copaxone, LDN, and EAP.

NOTHING was slowing down my sickness. With MUCH library studying, figured out my

sickness was potentially Lyme Disease (neuroborreliosis), hired a Lyme Literate

Medical Doctor (LLMD), and was diagnosed w/ Lyme Disease and started treatment

for that.

Symptoms:

www.CanLyme.com

Lyme disease documentary - " Under Our Skin " (UOS) trailer

Lyme Expose' by Chronicle (bundled with a piece on Low Dose Naltrexone)

http://vimeo.com/2354218

How Lyme Disease and it's Treatments Work

cool 3D animations. I feel the best description of why I am so sick.

>

> I am in the states, yes. How about any other countries? Norway?

> Netherlands, Germany? It would be cheaper to live in one of these

> places for a while on a work visa, get insurance, and get it done. I

> don't have a formal diagnosis but had 63 symptoms. I refuse to get an

> MRI because of the gadolinium. Do you think it's likely I would be a

> candidate? I'm 24 so they may say I'm young and doing fine. I worry

> about that, because I'm so not fine. The fatigue and brain fog are the

> worst.

>

[Guest guest]

Yes, agree, you can get an MRI without gad and it is much safer. The main

difference is that the gad allows the neuro to see " active lesions " and without

gad they can only see " old lesions. " Perhaps the MRI with contrast does show

more, but if you are looking for a diagnosis, then an MRI without contrast could

show lesions. You just have to get the neuro to request " no contrast. "

________________________________

To: mscured

Sent: Tue, March 8, 2011 4:43:13 PM

Subject: Re: [lowdosenaltrexone] MS

 

My MRIs for my Lyme Disease did not use any contrast agent (gadolinium). The MRI

reports conclude I have a demylenating condition like MS or Lyme Disease. We can

have MRIs done w/ out contrast.

I have been diagnosed TWICE w/ MS. Taken Rebif, Copaxone, LDN, and EAP. NOTHING

was slowing down my sickness. With MUCH library studying, figured out my

sickness was potentially Lyme Disease (neuroborreliosis), hired a Lyme Literate

Medical Doctor (LLMD), and was diagnosed w/ Lyme Disease and started treatment

for that.

Symptoms:

:

>

> I am in the states, yes. How about any other countries? Norway?

> Netherlands, Germany? It would be cheaper to live in one of these

> places for a while on a work visa, get insurance, and get it done. I

> don't have a formal diagnosis but had 63 symptoms. I refuse to get an

> MRI because of the gadolinium.

[Guest guest]

>

> dear rachael, i have the fear that ccsvi is having the same impact as stem

cells, ie false hope and i am not being negative

>  

> i am staying with ldn for 12 months and by then the ccsvi proceedure will have

developed

>  

> fingers X for all those that try any proceedure where they think it will help

their situation

>  

> regards/peter/ms/primary progressive

>  

>

>

I don't know if you had stem cell therapy, but I had it in Mexico and had great

results. Really I don't have any symtpoms at all anymore. I did catch the MS

early and I don't know if that is what made the difference,but so far so good.

>

[Guest guest]

, where did you have it done and how much was it? if you don't

mind my asking.

>

>

>

>>

>> dear rachael, i have the fear that ccsvi is having the same impact as stem

>> cells, ie false hope and i am not being negative

>>

>> i am staying with ldn for 12 months and by then the ccsvi proceedure will

>> have developed

>>

>> fingers X for all those that try any proceedure where they think it will

>> help their situation

>>

>> regards/peter/ms/primary progressive

>>

>>

>>

> I don't know if you had stem cell therapy, but I had it in Mexico and had

> great results. Really I don't have any symtpoms at all anymore. I did catch

> the MS early and I don't know if that is what made the difference,but so far

> so good.

>

>

>>

>

>

>

[Guest guest]

As soon as I found out I had MS (which I was not offically diagnosed, but had an

MRI with lesions), I went to Tijuana Mexico and did stem cell therapy with the

bone marrow in my own leg. I was there for 1 week and paid $6500 (not including

hotel or flight). 3 months after I came back I did a 30 day fast on The Master

Cleanser. During that time I also had my one filling in my mouth removed and

replaced with composite. I have never done the BBD, LDN, supplements or anything

else special and since my fast have had no symptoms (knock on wood). I do not

think I'm cured, I just think the stem cell therapy put me into a

remission...the question is really how long. That remains to be seen. I have

considered CCSVI and also LDN to keep myself in a permanent remission

(hopefully), but have not gone forth with it yet. I forgot to mention that in

Mexico, the docor's there officailly diagnosed me with MS. Hope this helps!

> , where did you have it done and how much was it? if you don't

> mind my asking.

>

> > I don't know if you had stem cell therapy, but I had it in Mexico and had

> > great results. Really I don't have any symtpoms at all anymore. I did catch

> > the MS early and I don't know if that is what made the difference,but so far

> > so good.

> >

> >

> >>

> >

> >

> >

>