new member

[Guest guest]

In a message dated 1/27/2004 4:50:53 PM Eastern Standard Time,

Heart2Heart551@... writes:

Know one in my family had diabetis so how did I get it?

Hi ,

My diabetes was caused partly due to large doses of steroids. Stress, severe

illness can also cause diabetes.

Eunice

[Guest guest]

Welcome to the group Lee.

[Guest guest]

Welcome to the group Judy!

You have found a very good one. Everyone is helpful and not too many

here whine. It is ok to vent though. Sorry to hear your doctor

stopped listening to you after 13 years and stopped your tramadol.

Hope your Fm doc will give it back or something similar. It is

surprising to read that you are still working full time. No wonder

you are so stressed. And to work with painful feet! Thanks for

telling your story. It will help us know you better.

Like you, I have had fibro since 1992. The pcp I first saw confirmed

I have fibro. Then insurance changed so I had to find another one

who did. I started seeing my rheum in 1997. He is very good but

doesn't believe in fibro fog. I take Elavil to help me sleep along

with Soma and my pain pills. My strongest pain pill is Darvocet

which doesn't always help.

warm hugs,

Debbie J

my parents live in Crossville, TN

[Guest guest]

Thanks, Debbie. Not working is not an option and I have never considered not

working.. I have expensive hobbies and love to eat.

Make that past tense. My sleep doctor called me obese in his report. I had

never thought of myself that way and the truth hurts. I was never in my life

heavy until I hit 45 and it was downhill from there.

I got my report today from my sleep study and they tell me I have severe sleep

aepna. I was stunned because I didn't think anything was wrong but the loss of

Trazadone. So now I have to be fitted for a CPAP and go for another study

wearing it in mid-September. Actually that is good news because maybe now I

will feel like getting up and doing something. Sleep is ALL I want to do

anymore and I always hated to give up my work time for sleep!

Did your parents retire to Crossville? It's about 40 to 50 miles from me and a

lot of people are retiring to Tennessee because the cost of living is so low.

(i.e, cheap labor, lower insurance and housing costs)

Judy

Re: New Member

Welcome to the group Judy!

You have found a very good one. Everyone is helpful and not too many

here whine. It is ok to vent though. Sorry to hear your doctor

stopped listening to you after 13 years and stopped your tramadol.

Hope your Fm doc will give it back or something similar. It is

surprising to read that you are still working full time. No wonder

you are so stressed. And to work with painful feet! Thanks for

telling your story. It will help us know you better.

Like you, I have had fibro since 1992. The pcp I first saw confirmed

I have fibro. Then insurance changed so I had to find another one

who did. I started seeing my rheum in 1997. He is very good but

doesn't believe in fibro fog. I take Elavil to help me sleep along

with Soma and my pain pills. My strongest pain pill is Darvocet

which doesn't always help.

warm hugs,

Debbie J

my parents live in Crossville, TN

[Guest guest]

I'm looking forward to the group and hope I can share

something to help someone else.

Judy

--- Deborah Currie wrote:

> Hi Judy ,

> It's nice to have you here. This is a great group

> and a great support system. In sharing all our

> stories of the past and the present we learn alot

> from eachother but best of all we learn we're not

> alone in how we are feeling.

> Glad you're here,

> Debbie C.

>

[Guest guest]

HI Judy,

Good luck with your CPAP. A good email friend of mine uses one and

really likes it. Hopefully if others here use them, they can tell

you about it. You must really enjoy your job to keep working

fulltime. I am a nurse but I can't work full time anymore. No part

time day jobs available.

My parents moved in with my dad's aunt 5-6 years ago. After she died

they stayed in her house. My dad's family lived there for a long

time. We used to go there for short visits on the weekend from Ohio.

My dad is now in a Crossville nursing home. When we visit, it takes

2 days to get there from here.

Debbie J

Texas

>

> Thanks, Debbie. Not working is not an option and I have never

considered not working.. I have expensive hobbies and love to eat.

>

> Make that past tense. My sleep doctor called me obese in his

report. I had never thought of myself that way and the truth

hurts. I was never in my life heavy until I hit 45 and it was

downhill from there.

>

> I got my report today from my sleep study and they tell me I have

severe sleep aepna. I was stunned because I didn't think anything

was wrong but the loss of Trazadone. So now I have to be fitted for

a CPAP and go for another study wearing it in mid-September.

Actually that is good news because maybe now I will feel like

getting up and doing something. Sleep is ALL I want to do anymore

and I always hated to give up my work time for sleep!

>

> Did your parents retire to Crossville? It's about 40 to 50 miles

from me and a lot of people are retiring to Tennessee because the

cost of living is so low. (i.e, cheap labor, lower insurance and

housing costs)

>

> Judy

>

>

[Guest guest]

Lori:

I, too, had unexplained pain. And my doctor did the

tender points test along with other tests to determine

I had fibromyalgia, low thyroid and was severly

anemic. He also said I had psoratic arthritis. So

where does the pain come from? I didn't know for sure

then and I don't know for sure now. But any of those

diagnoses could cause the pain, I think.

Last year I developed excrutiating pain in my feet and

walking was extremely difficult. My xrays and a bone

scan later, my podiatrist backed off of his diagnosis

of stress fractures. Good thing. When my pcp gave me

Ultram, the feet mysteriously lost the awful pain.

I think fibro is very much a disease of unexplained

pain. Keep after the doctors until you get one to

listen to you!

And one final thing, psoratic arthritis, should you

have it, does not cause swelling or joint deformities.

RA and osteo arthritis do, I believe.

Welcome from a relatively new member as well.

Judy in Tennessee

--- Lori Ginsberg wrote:

> Hello Everyone:

>

> Thank you for letting me join your group. I was

> recently diagnosed with

> neuropathic Fibromyalgia. I have many symptoms and

> I was hoping to see

> if there is anyone who has had a similar experience

> as mine. I

> appreciate your patience as I describe what is going

> on with me.

>

> Last November (I actually can remember the exact day

> and time) I had been

> wearing a low pair of heals and when I came home

> from Church, I kicked

> off my shoes and when I went to walk it felt as if I

> had two disks under

> the balls of each foot. It seemed like each day I

> would develop a new

> weird feeling in my feet: vibrations, stabbing

> pain, razor like pain,

> the feeling that my toes were in a vice, etc. I had

> these sensations all

> day and night. Sleeping became very difficult and I

> could not walk for

> any length of time. I saw a rheumatologist and he

> tested me for

> Rheumatoid Arthritis. The Podiatrist thought I had

> Peripheral

> Neuropathy, but the nerve conduction test came back

> negative. I was then

> referred to a neurologist and she said you can have

> neuropathy without a

> positive nerve conduction test, so she began

> treating me with Neurontin.

> The dosage was gradually raised until I was on

> 2100mg a day. I was also

> on Cymbalta - 40mg a day. I never received any

> relief only more and more

> symptoms. My hands feel like I have severe

> arthritis but there is no

> swelling or joint degeneration. Every joint in each

> hand hurts. My

> ankles now hurt as well. When I push on just about

> any area on my body

> it feels like I am pressing on a bad bruise. I have

> terrible problems

> with my memory, especially my short term memory. My

> thinking is just

> slow. The pain in my feet is not just the

> neuropathy like sensations,

> but it feels like I would imagine arthritis would

> feel.

>

> No one could come up with an answer and then my

> rheumatologist said I

> have " neuropathic " fibromyalgia. Has anyone had a

> similar experience as

> mine?

>

> Thank you for listening.

>

> Lori in Southern California

>

>

>

>

[Guest guest]

How fun. I honestly love memories like the ones you shared. My girls

are just amazing. I adore being a Mom. I cherish this time.

I hope to build many memories with my girls. We get pretty silly

dancing singing etc. I love it~

It sounds like you had quite a farm going. I had horses and

chickens and long to move to a farm/ranch and do it again.

It was really great!

>

> Welcome, . I'm a relative newbie myself.

>

> I,too, have found that exercise kept my fibro at bay

> and for many years I was very active. When I gave up

> my sheep, llamas and alpacas a few years ago along

> with most of my land, I became very inactive and the

> fibro crept up on me. Keep camping, etc., as long as

> you can.

>

> (Five girls? There were four of us growing up and we

> had the largest bathroom in the community after Dad

> built a new house. All four of us could get ready for

> school in front of that bathroom mirror. However, we

> had to fuss about who stood where so we still got

> ready for school one at a time! Hope your girls are

> better at it!)

>

> Judy

>

[Guest guest]

hey hon, we are write nere eachother! I think we are the only two in CA. Welcome

to the list. I would have to recomend you try some herbal treatments before

going ot meds. Folic assid and magnesiam has been helping me. I have heavy pain

meds for the offel days and such. But I like ot go all natural as much as I can.

I wish you luck. I no you will find the group helpful. Email me any time. hugs

New Member

Hi all, my name is I live in Southern California and I have had Fibro

for the past 5 years. Lately it has been feeling like I can hardly move out of

bed, and I am more able to do things at night.

I do not take any meds, but I am wondering if I should be.

Just thought I would introduce myself.

Hope to learn and contribute here.

[Guest guest]

Hi

Welcome!!!

ACanadian Fibro Friend

wrote:

Hi all, my name is I live in Southern California and I have had

Fibro for the past 5 years. Lately it has been feeling like I can hardly move

out of bed, and I am more able to do things at night.

I do not take any meds, but I am wondering if I should be.

Just thought I would introduce myself.

Hope to learn and contribute here.

[Guest guest]

> Hi all, my name is I live in Southern California

and I have had Fibro for the past 5 years. Lately it has been feeling

like I can hardly move out of bed, and I am more able to do things at

night.

> I do not take any meds, but I am wondering if I should be.

>

> Just thought I would introduce myself.

>

> Hope to learn and contribute here.

>

>

>

>

[Guest guest]

Welcome !

My name is Debbie and I have had fibro for about 15-16 years. Not too

medicine intol so I do take too many pills. My fibro ones are Lodine

twice day, NSAID, for joint pain; Soma, muscle relaxant,

amitriptyline for sleep and pain pills Ultram and Darvocet N. Also

take magnesium for another problem but it seems to help my pain. I

take yoga classes twice week to help my muscles.

Maybe your doctor can give you samples of meds to see if you can

tolerate them.

warm hugs,

Debbie J

>

> Hi all, my name is I live in Southern California and I have

had Fibro for the past 5 years. Lately it has been feeling like I

can hardly move out of bed, and I am more able to do things at

night.

> I do not take any meds, but I am wondering if I should be.

>

> Just thought I would introduce myself.

>

> Hope to learn and contribute here.

>

>

>

>

>

[Guest guest]

I take prescription Folic Acid because of a hereditary form of anemia

I've had since birth. I was not aware that it was good for pain

management. Can you elaborate, or direct us to info on this? This is

great news! Thank you for sharing.

K2

Folic assid and magnesiam has been helping me.

[Guest guest]

Anita,

Have your thyroid checked by a thyroid specialist.

Throughout life, disorders associated with hypothyroidism include headaches,

migraines, sinus infections, post-nasal drip, visual disturbances, frequent

respiratory infections, difficulty swallowing, heart palpitations, indigestion,

gas, flatulence, constipation, diarrhea, frequent bladder infections,

infertility, reduced libido and sleep disturbances, with the person requiring 12

or more hours of sleep at times. Other conditions include intolerance to cold

and/or heat, poor circulation, Raynaud's Syndrome, which involves the hands and

feet turning white in response to cold, allergies, asthma, heart problems,

benign and malignant tumors, cystic breasts and ovaries, fibroids, dry skin,

acne, fluid retention, loss of memory, depression, mood swings, fears, and joint

and muscle pain.

http://www.mbschachter.com/hypothyroidism.htm

>

>

>

>

>

>

I will

> be calling my neurologist again tomorrow.

>

> Okay, I'm writing a book now, lol

>

> TTYL

> Anita

> anitalyns@...

>

>

>

>

>

[Guest guest]

Funny you mentioned my Thyroid. Yes, I have had my thyroid checked and I'm

on synthroid at this very minute.

I did however go this past week and have testing done on my thyroid again

due to my headaches and more of the symptoms you have mentioned below

difficulty swallowing, heart palpitations, sinus infections, post-nasal drip

visual disturbances so bad that I'm in and out of my doctor every other

week or so for testing due to blurred vision, watering eyes, dried eyes,just

varies...., these I have more than most.-->, loss of memory, depression (on

meds for this and bi-polar and ocd) , mood swings, (my mood swings are out

of control at times) fears, and joint and muscle pain (the pain in my leg

and arms is just unbearable at times).

I have been tested by my GP and my Neurologist also, but this week my

psychologist seemed interested in my test and the results of my thyroid test

so he ask that I have the test redone for him.

He is a DR OF PSYCHOLOGY and seems to think becasue he has his DR degree he

knows more I guess so he is going over all my other doctors heads and

redoing their tests. He is really becoming a headache on a headache, but I

will see in two weeks when I go back how it goes.

OMG, I forgot to mention the dry skin......it's really dry, the doctors keep

telling me I was dehydrated and once was going to send me to the hospital

for IV fluids. I told them I would drink lots and lots, knowing it was just

dry skin.

Anita

-- Re: new member

Anita,

Have your thyroid checked by a thyroid specialist.

Throughout life, disorders associated with hypothyroidism include headaches,

migraines, sinus infections, post-nasal drip, visual disturbances, frequent

respiratory infections, difficulty swallowing, heart palpitations,

indigestion, gas, flatulence, constipation, diarrhea, frequent bladder

infections, infertility, reduced libido and sleep disturbances, with the

person requiring 12 or more hours of sleep at times. Other conditions

include intolerance to cold and/or heat, poor circulation, Raynaud's

Syndrome, which involves the hands and feet turning white in response to

cold, allergies, asthma, heart problems, benign and malignant tumors, cystic

breasts and ovaries, fibroids, dry skin, acne, fluid retention, loss of

memory, depression, mood swings, fears, and joint and muscle pain.

http://www.mbschachter.com/hypothyroidism.htm

>

>

>

>

>

>

I will

> be calling my neurologist again tomorrow.

>

> Okay, I'm writing a book now, lol

>

> TTYL

> Anita

> anitalyns@...

>

>

>

>

>

[Guest guest]

I take Armour. That snip was from the website that is posted below it. You

might be interested in Dr. B's opinion of synthetic hormones. B complex is

highly recommended. I just ordered some to see if it makes a difference with

the way the hormones work. I haven't got the dose right yet or there are issues

that need to be addressed first. I've been doing this sans doctor, not the

optimal situation.

I wish you well with your doc tomorrow.

>

> Funny you mentioned my Thyroid. Yes, I have had my thyroid checked and I'm

> on synthroid at this very minute.

[Guest guest]

dear jan

 

me same as you until i started on the ldn

 

1st month 1ml, 2nd month 2ml, 3rd month 3ml, now 4th month 4.5 mg [capsules, a

lot easier]

 

improvements in bladder, bowels, brain fog and best of all fatique

 

i am not on any vitamins or supplements to access the impact of the ldn

 

good luck

 

regards peter/london/ms primary progressive

 

ps are you in uk ?

Hi. My name is Jan. I've had MS since at least 1992. My main MS problem is

severe fatigue, but I was able to work until 2000. At that time, the fatigue

became extremely intense, so that I was able to work only 2 hours at a time,

I also developed gait problems - unsteady & walked with a limp and falling

fairly often.

I had tried the ABC drugs without any improvement in the MS symptoms, but

they led to my developing a hemolytic anemia, needing transfusions. I have

tried stress reduction, biofeedback, a TENS unit, accupuncture,

chiropractic,,,, all without noticable success. I refuse to give up hope

though and continue to hope for a miracle.

I believe people with MS sharing their stories is the best medicine for thid

awful disease.

Be well,

jan g

[Guest guest]

---------- Forwarded message ----------

Date: Tue, Mar 15, 2011 at 8:31 PM

Subject: Re: Yahoo! Groups: Welcome to mscured. Visit today!

To: mscured Moderator <mscured-owner >

I was diagnosed in January of 2000. I stay positive and upbeat and

although this disease doesn't like it much, I live life to the fullest! Each

day the definition of " Fullest " may change, but I am always on the go!!

* Connors*

*-Whatever the Mind of Man*

*Can Conceive and Believe*

*It Can Achieve!*

*-Napoleon Hill*

[Guest guest]

Welcome .

So nice to welcome another positive, upbeat member - you'll be around a lot of

us here.

No doubt over the years you have found things that work for you but you'll get

plenty more ideas from this group.

My favourites have been the Best Bet Diet (BBD), supplements, exercise, CST

(cranio-sacral therapy), medical marijuana, and drinking water plus CCVSI

treatment which I had last October and is like a miracle. I'm still in a

wheelchair but everything else has improved.

Janet (PPMS 15 years)

Date: Tue, Mar 15, 2011 at 8:31 PM

I was diagnosed in January of 2000.