Guest guest Posted March 2, 2005 Report Share Posted March 2, 2005 Hi Hemal, My daughter, Sammy, was on Remicade for a year (June 2003- June 2004) for uveitis. It worked wonderfully for her, without any side effects, until she eventually developed an allergy to it (not uncommon). Her initial reaction was vomiting and getting very tired. They did a few things to prevent further reactions (adding steroid to her IV; infusing at a very slow rate) but that only worked once. At her last infusion she began to show symptoms of hives in addition to the vomiting so we decided she could no longer take Remicade. She switched to Humira about 8 months ago and is doing great on that. Good luck, --Lori, mom to Sammy, 5, pauci/uveitis In a message dated 3/2/2005 10:40:28 P.M. Pacific Standard Time, writes: Message: 21 Date: Thu, 3 Mar 2005 00:41:32 -0500 (EST) From: hamel patel <kachrahp@...> Subject: Re: Re: remicade experienes thank you brad for your reply. i was wondering if your daugther had any reactions during or after the infusions. im asking because ive read that something this does happen and sometimes the reactions are quite serious and could start a flare (rare). hemal (systemic jra, 21) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2010 Report Share Posted January 9, 2010 I too, was diagnosed in May with RA. I began Remicade Treatments in September. I had had NO side effects. After the first Infusion, I actually felt a little worse for about 3 days, then really good until the next one two weeks later. After the 2nd infusion, again I felt worse for about 3 days then better for 3 weeks until the next one. After the 3rd, I felt worse for about 10 days, had to up my prednisone from 10-20 mg for a few days then I was fine for six weeks until my next infusion. (Think I was having a flare) Had my 4th Infusion on December 30th - No problem as all and I feel wonderful! Only very minimal discomfort, which I can control on an as needed basis with just Tylenol. I have not started MTX yet, as my liver enzymes were elevated, but probably will with I go in for my next visit the end of February. I'm a Happy Camper so far - feeling so much better than I did before, and so glad I gave it a try. The process in not bad at all just takes a little time. Actually not much longer than I've spent in many a doctor's office just waiting to be seen! Hope that helps. Margie --- In , " nancymillerellis " <nancymillerellis@...> wrote: > > I was diagnosed with RA in May 09 and started Methotrexate (now up to 8/wk). In Sept I started Humira injections which did absolutely nothing for me. I am supposed to start Remicade infusions next week. Can anyone who's been on Remicade let me know what it's really been like for you? What kind of side affects do you have and how long do they last? Reading the official technical info is like reading horror stories and I know most of the time that doesn't happen. A few " real life " stories would be really comforting about now. Thanks. > from California > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2010 Report Share Posted April 13, 2010 Hello, > My mom was diagnosed with RA about 3 months ago. She has been on several medications which are not helping in any way. She is 72 and is in alot of pain. I believe with the next visit she will inquire about the possibility of Remicade Infusions. I would sincerely appreciate anyone that has experienced a similar experience to let us know how the injections went and what to expect. She is otherwise healthy. Thanks much.!!! Mark Quote Link to comment Share on other sites More sharing options...
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