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Remicade Experiences

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Hi Hemal,

My daughter, Sammy, was on Remicade for a year (June 2003- June 2004) for

uveitis. It worked wonderfully for her, without any side effects, until she

eventually developed an allergy to it (not uncommon). Her initial reaction was

vomiting and getting very tired. They did a few things to prevent further

reactions (adding steroid to her IV; infusing at a very slow rate) but that

only worked once. At her last infusion she began to show symptoms of hives in

addition to the vomiting so we decided she could no longer take Remicade.

She switched to Humira about 8 months ago and is doing great on that.

Good luck,

--Lori, mom to Sammy, 5, pauci/uveitis

In a message dated 3/2/2005 10:40:28 P.M. Pacific Standard Time,

writes:

Message: 21

Date: Thu, 3 Mar 2005 00:41:32 -0500 (EST)

From: hamel patel <kachrahp@...>

Subject: Re: Re: remicade experienes

thank you brad for your reply. i was wondering if your daugther had any

reactions during or after the infusions. im asking because ive read that

something this does happen and sometimes the reactions are quite serious and

could

start a flare (rare).

hemal (systemic jra, 21)

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  • 4 years later...

I too, was diagnosed in May with RA. I began Remicade Treatments in September.

I had had NO side effects. After the first Infusion, I actually felt a little

worse for about 3 days, then really good until the next one two weeks later.

After the 2nd infusion, again I felt worse for about 3 days then better for 3

weeks until the next one. After the 3rd, I felt worse for about 10 days, had to

up my prednisone from 10-20 mg for a few days then I was fine for six weeks

until my next infusion. (Think I was having a flare) Had my 4th Infusion on

December 30th - No problem as all and I feel wonderful! Only very minimal

discomfort, which I can control on an as needed basis with just Tylenol. I have

not started MTX yet, as my liver enzymes were elevated, but probably will with I

go in for my next visit the end of February. I'm a Happy Camper so far -

feeling so much better than I did before, and so glad I gave it a try. The

process in not bad at all

just takes a little time. Actually not much longer than I've spent in many a

doctor's office just waiting to be seen! Hope that helps.

Margie

--- In , " nancymillerellis " <nancymillerellis@...>

wrote:

>

> I was diagnosed with RA in May 09 and started Methotrexate (now up to 8/wk).

In Sept I started Humira injections which did absolutely nothing for me. I am

supposed to start Remicade infusions next week. Can anyone who's been on

Remicade let me know what it's really been like for you? What kind of side

affects do you have and how long do they last? Reading the official technical

info is like reading horror stories and I know most of the time that doesn't

happen. A few " real life " stories would be really comforting about now. Thanks.

> from California

>

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  • 3 months later...
Guest guest

Hello,

> My mom was diagnosed with RA about 3 months ago. She has been on several

medications which are not helping in any way. She is 72 and is in alot of pain.

I believe with the next visit she will inquire about the possibility of Remicade

Infusions. I would sincerely appreciate anyone that has experienced a similar

experience to let us know how the injections went and what to expect. She is

otherwise healthy. Thanks much.!!!

Mark

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