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Hi everyone, All this talk about doctors thinking we are crazy.... I thought

I would add in my quick story. Its not really a story... LOL. As most of you

knwo Im having surgery in 5 days. I really like my NSG but after recovery I

will need to go back to seeing a Ngst.

I need a new one.... Any one know of a good one in the Atlanta area. One that

will not take me for a fool.

My doc now is good about calling in my sleeping meds. But, when it comes to

pain..... he really fairy dances around.... I need real strong meds... A few

weeks ago, I requested something for pain until my surgery. He called me in

something for mood disorders. Now I realize some meds like this do help....

but I need the real stuff.

And get this, at my last apt. He actually sugested I do yoga. This will take

care of all your problems he said.... Im not knocking Yoga.... But, It will

not help my burning nerve pain, my legs hurting so bad I want to cut them

off, ect, ect.

Sorry fro rambling... I just wanted to let yall know, Your not alone with the

Doc stories...

as far as people coming out all of the sudden havind ACM symptoms..... Is ACM

not clearly something diagnoised from films.... herniation or not, reduced

flow ??

Its not something they can just say..oh, It sounds like it, I think that is

what you have....

hugs, Jenn inGA

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Hydromyelia is the same as syringomyelia or syrinx. Which is a fluid filled

cyst in the spinal column. I don t know about the response thing. Anyone

else know? NaNCI

(no subject)

> Hello all,

> OK, here it goes.

> I just got home from the stupid Dr. I hate all this as I know all of you

do

> also. He says he's going to treat me for migraines. The Neurosurgeon

sent

> my Neurologist a letter saying " she does have Chairi 1 Malformation, but

> without deformity of the brain stem and there is no hydromyelia (what is

that

> anyway)? And it also said I do have Hoffman's response (what's that)? and

> then he goes on to say my symptoms are from fibromyalgia.

> the DR today ask me if I was depressed. He said it was anxiety that

> caused me to feel like I am going to pass out when I stand to long and

that's

> why I have the choking feeling.

> I wanted to scream " I'm not crazy, and I'm not depressed and I don't

just

> want drugs. Why won't they listen?

> God Bless you all

> Kim

>

> Help section: /help/

>

> NOTE: NCC refers to posts with No Chiari Content

>

> Unsubscribe Yourself: chiari-unsubscribeegroups

>

> WACMA Home: www.pressenter.com/~wacma

>

> WACMA List: www.eGroups.com/group/chiari

>

>

>

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At 04:23 PM 11/2/00 -0500, kampjm@... wrote:

>anyway)? And it also said I do have Hoffman's response (what's that)? and

>then he goes on to say my symptoms are from fibromyalgia.

Here is an article that I was able to find. I apologize for sending the

text instead of the URL, but I couldn't get it because of the way I got

there. I have put in some blank lines for readability.

Denis Sung, MD, Los Angeles, CA

C Wang, MD, Los Angeles, CA

A positive Hoffmann's reflex usually implies an upper motor neuron lesion

from spinal cord compression.

Although this reflex is commonly tested, the significance of this reflex in

asymptomatic patients is not known. The purpose of this study is to

determine the clinical significance of a positive Hoffmann's reflex in

asymptomatic patients. Sixteen patients without cervical pain or

radiculopathy and a positive Hoffmann's reflex were prospectively studied

with cervical radiographs and magnetic resonance imaging (MRI). These

studies were read by a radiologist and two orthopaedic spine surgeons.

Positive findings were correlated with a detailed neurological examination.

All sixteen patients were asymptomatic. The group consisted of twelve males

and four females with an average age of forty-seven years. Fourteen of

sixteen patients demonstrated spondylosis on cervical radiographs. The MRI

studies revealed pathological findings in all sixteen patients. Fifteen

patients had definite cervical pathology with neural compression by either

an intervertebral disc or an osteophyte. The remaining patient had a T5-T6

thoracic disc with resultant compression.

No treatment was instituted and the clinical course of each patient was not

affected. Although the presence of cervical cord impingement is extremely

high in these patients, no treatment was rendered specifically to address

the cervical pathology. Therefore, the presence of a positive Hoffmann's

reflex in asymptomatic patients strongly suggests underlying cervical

pathology, but it does not warrant further evaluation with either cervical

radiographs or MRI since the management and clinical course are not

affected by positive studies.

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  • 3 weeks later...

Mine got better until the symptoms started to come back. =( Before I

got sick, I worked in fast food. I could be at the back of the

restaurant and remember and entire order for two people until I got to

the front to ring it up. Now I cannot remember what I just thought of

to put on the shopping list. =)

in Texas

(no subject)

hi all

wow, no offense, but i'm glad i'm not the only one that acts like i've

got

alzheimer's ! my poor hubbie and kids really laught at me and play it

off

as a BIG joke, but they know i can't remember anything without a note.

okay, next big question - for those of you that have had the

decompression,

does the memory loss get better post op?

chris

Help section: /help/

NOTE: NCC refers to posts with No Chiari Content

Unsubscribe Yourself: chiari-unsubscribeegroups

WACMA Home: www.pressenter.com/~wacma

WACMA List: www.eGroups.com/group/chiari

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> I was finally approved by my insurance to see Dr. Milhorat. I am

> wondering ,for those of you that saw him and where out of town, where

> did you stay, how much etc? Any help on this matter would be greatly

> appreciated.

> Sheila In Pa

> ****

> please reply to the group on this, because i'm interested too. i may be able

> to go for a consultation and am interested in this info also. thanks

> chris in fla.

While in Brooklyn I stayed with Betsy and Klein. 281-A Henry St.

Brooklyn, NY 11201

If you want their phone number, e mail me privately.

Their B and B is within walking distance of Long Island College hospital.

Mention my name when you call. They don't like to take strangers. Tell them you

have chiari like me :-) I believe it was around $75.00 per night to stay at

their B and B.

It is a brownstone building and has 5 floors. They rent three rooms out. If

they

don't have a room they will always give you others in the area. and Irene

should also be able to send you a list of accommodations.

If your consult is at SUNY, you would need to take a car service. Betsy and

would give you a number for that.

I flew Angel Flight twice and it worked out great. We landed in NJ and we took a

car service from there. That runs different prices. Ours cost $100.

If you drive, you can try to find a spot on the street, or park at the LICH

parking lot. They will give you a break if you are there for more than one

night.

There are great places to eat in the LICH area. It is a very family oriented

area.

Jeff walked back and forth at late hours from the hospital to the B and B, and

never had a problem.

Kathleen

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  • 1 month later...

Dr. Epstein operated on my daughter on Jan. 3rd too!

He's really an incredible man.

She's doing well.

Debbie K

(no subject)

> Hi everyone. My name is Thania and I am 31 yrs old from NY. I was

diagnosed

> with ACM I with no syrinx in Oct 2000. On Janaury 3, 2001 I was oerated on

By

> Dr Fred Epstein at BethIsrael Hospital. O couple of things I would just

like

> to mention. First before surgery my symptoms were not as bad as some of

the

> ones that i have read. I had severe headaches dizziness, loss of balance,

> slight numbness and shaking of my right hand and I could not bend my head.

I

> was not driving from the time of diagnosis until surgery. I have to admit

> that I was terrified of having the surgery but I had all the confidence in

> Dr. Epstein. He was GREAT!!! From the first day I met him. He made me feel

> comfortable, he explanied everything to me and anytime I wanted infor

prior

> to surgery I was able to call up and ask. To date I am 10 days after

> surgery. Still have sutures whick will be removed on Tuesday. Still some

> syymptoms but much better than before. My dura was opened and some patch

was

> put in there. My neck is just sore. I am only talking tylenol # 3

w/codeine

> for pain when I really need it (makes my tummy sick) but overall don't

really

> use it much. I will tell you that I had some complications after the

surgery

> so I was in ICU for 3 days and in the hospital for 9 days. It was not Dr.

> Epstein's fault, just something that happened. I would definately

recommend

> him. He does treat some adults and I am one of the lucky ones. Heard he

was

> on ABC but have not seen it yet. He is a wonderful,caring, easy going

doctor

> who I feel made things very confortable for myself and my family. Well

sorry

> so long, getting tired. Will chat later. Hope all of you keep well. It's

hard

> but we can all help each other get throught the tought times. I am still

> trying to cope with all that has happened to me (will elaborate later) so

> take things one day and a time and HAVE FAITH!!! The power of prayer is

> GREAT!!

>

> God bless all

>

>

>

>

>

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  • 1 year later...

Is this really the latest?

Aliceanne

On Mon, 21 Jan 2002 14:31:28 EST Farmvixen@... writes:

> I am just starting out in the MT world... haven't taken my final test

> yet,

> but I got my Dorland's 28th edition through www.half.com for $20.47

> incl

> shipping. It's brand new! I just thought I would throw that out

> there.

>

> By the way, I have been reading the dailies for a couple months now

> and I am

> learning so much. I really like this group!

>

> Louann Gentry

> Farmvixen@...

>

> ATTENTION PEOPLE

>

>

> > Hey, I am training a newbie MT and she is a little hard up for

> money.

> She

> > would like to buy a used Stedman's Ortho Words and a Stedman's

> Dictionary.

> > Anyone who has one to sell please email me with prices off the

> list.

>

>

>

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Aliceanne, I have the 28th edition of Dorland's, which I purchased probably

around 5 years ago. I believe there is now a 29th edition available. Maybe she

was able to get it so cheaply because it is not the latest edition. Margaret

>>> Alice A Sawyer 01/21/02 05:30PM >>>

Is this really the latest?

Aliceanne

On Mon, 21 Jan 2002 14:31:28 EST Farmvixen@... writes:

> I am just starting out in the MT world... haven't taken my final test

> yet,

> but I got my Dorland's 28th edition through www.half.com for $20.47

> incl

> shipping. It's brand new! I just thought I would throw that out

> there.

>

> By the way, I have been reading the dailies for a couple months now

> and I am

> learning so much. I really like this group!

>

> Louann Gentry

> Farmvixen@...

>

> ATTENTION PEOPLE

>

>

> > Hey, I am training a newbie MT and she is a little hard up for

> money.

> She

> > would like to buy a used Stedman's Ortho Words and a Stedman's

> Dictionary.

> > Anyone who has one to sell please email me with prices off the

> list.

>

>

>

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No. I have the 29th edition.

Monika

ATTENTION PEOPLE

>

>

> > Hey, I am training a newbie MT and she is a little hard up for

> money.

> She

> > would like to buy a used Stedman's Ortho Words and a Stedman's

> Dictionary.

> > Anyone who has one to sell please email me with prices off the

> list.

>

>

>

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  • 3 weeks later...

I ask you, honestly, some of the mush mouth docs you transcribe, does it or

does it not sound like pig latin???

========Original Message========

Subj: Re: (no subject)

Date: 2/8/2002 4:00:22 PM Pacific Standard Time

From: <A HREF= " mailto:JanTranscribes " >JanTranscribes</A>

To: <A HREF= " mailto:AccuScribe " >AccuScribe</A>

Hello Accuscribe@...,

In reference to your comment:

è for all intents and purposes like learning pig latin from

è someone with a really crappy sadomasochistic sense

è of humor

ROFL.. I love it .. Pig latin!!! Sorry.. couldn't resist :)

Jan " Typing is my life " (said sarcastically)

Remember... WSTPMTR (which means,

whoever signs the paycheck makes the rules).

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This is the type of attitude that people come to NMTC to get away from.

There are plenty of newsgroups and lists where anything goes. NMTC is not

one of them.

Quixote

(no subject)

> Don't let the door hit you in your arse on the way out.

>

>

>

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  • 3 weeks later...

Good for you! About your business paying for itself

so quickly! This new doc is breaking me because of

expanding my library.

Polly

--- Accuscribe@... wrote:

> I don't think you've ruffled anyone's feathers but

> you have to understand the

> differences in nuances, some bigger than others,

> when it comes to digital

> systems. Most people who are at-homes don't need

> anything as extensive as

> what gets peddled to us by some of the manufacturers

> of this type of

> equipment. You have to be careful the questions you

> ask or the information

> you seek because you can get sold a bill of goods by

> someone and by stuck

> with a machine that cost you thousands of dollars

> and never pays for itself

> because you simply don't have the business to

> support the maintenance of it.

> I have seen your posts and you seem to have

> financial issues and to be

> looking into DVI systems as a newbie and as a

> potential at-home just does not

> make any kind of business sense on the one hand and

> is quite illogical on the

> other. Just my two cents as someone who started out

> with a small system that

> paid for itself within the first two months.

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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They'll do that but if he is requesting specific things you should work out

something so that you can get him to pay for a portion of it.

========Original Message========

Subj: Re: (no subject)

Date: 2/24/2002 4:09:42 AM Pacific Standard Time

From: <A HREF= " mailto:pollyp2@... " >pollyp2@...</A>

To: <A HREF= " mailto:Accuscribe@... " >Accuscribe@...</A>, <A

HREF= " mailto:nmtc " >nmtc </A>

Sent from the Internet (Details)

Good for you! About your business paying for itself

so quickly! This new doc is breaking me because of

expanding my library.

Polly

--- Accuscribe@... wrote:

> I don't think you've ruffled anyone's feathers but

> you have to understand the

> differences in nuances, some bigger than others,

> when it comes to digital

> systems. Most people who are at-homes don't need

> anything as extensive as

> what gets peddled to us by some of the manufacturers

> of this type of

> equipment. You have to be careful the questions you

> ask or the information

> you seek because you can get sold a bill of goods by

> someone and by stuck

> with a machine that cost you thousands of dollars

> and never pays for itself

> because you simply don't have the business to

> support the maintenance of it.

> I have seen your posts and you seem to have

> financial issues and to be

> looking into DVI systems as a newbie and as a

> potential at-home just does not

> make any kind of business sense on the one hand and

> is quite illogical on the

> other. Just my two cents as someone who started out

> with a small system that

> paid for itself within the first two months.

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

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  • 1 year later...

[EXCESSIVE QUOTING REMOVED BY MODERATOR, PLEASE REMEMBER TO SHORTEN THE QUOTED

MESSAGE YOU ARE REPLYING TO]

Doesn't help me either .

Thanks

Missouri

wrote:

> EXCESSIVE QUOTING REMOVED BY MODERATOR

>

> I have it in my feet and legs... I've tried Neurontin, but, it didn't

> help.

>

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EXCESSIVE QUOTING REMOVED BY MODERATOR

I have it in my feet and legs... I've tried Neurontin, but, it didn't help.

(no subject)

Hi all.

I'd like to know how many of you suffer from Neuropathy in your feet

because of diabetes. What have you tried? Has anything helped?

Thanks!

Missouri

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  • 2 years later...
Guest guest

-Dear :

I am so sorry you are having a bad day, but the good days even if

short lived help me get through the bad days. Just remember God will

not give you more than you can handle, So be thankful for good days

and lean on us to get through the bad days.

Love & prayers

Mahala

-- In Fibromyalgia_Support_Group , Iva@... wrote:

>

> This past week, I was actually feeling good. I had no pain. And I

was moving

> around and having no trouble doing things. And I wake up this

morning

> feeling all that pain again.

> Its very discouraging.

> Every time I feel like I am going to get ahead in my job and at

home....my

> body says....wait a minute....I don't think so.

> It feels like a loosing battle. But I am thankful for the good

days. I wish

> today was one of them

>

>

>

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  • 4 years later...

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