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Re: Re: CCSVI/BBD supplements

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Thanks Crystal.

On googling fish oil " More serious contraindications may be excessive bleeding

in people who may be taking blood thinners (or who simply have a tendency to

bleed), and fish oil may not be advisable if severe high blood pressure is not

under control (due to possibly increased risk of a hemorrhagic stroke). "

At this rate it will work out cheaper to have CCSVI treatment that to take all

the BBD recommended supplements :)

Janet

To: mscured

From: freewitheft@...

Date: Thu, 11 Nov 2010 19:19:15 +0000

Subject: Re: CCSVI/BBD supplements

> I have been checking if any recommended BBD supplements are at odds with any

blood-thinning drugs we (who have had CCSVI treatment) have been given.

>

>

>

> I was only given 6 months of aspirin but others might have been given stronger

drugs.

I would check into fish oil and Vitamin E, especially if you are taking both. I

don't even take aspirin because of those supplements.

FYI, when I had my appendix taken out through my navel, it bled continuously for

over 24 hours without any signs of trying to clot. They finally had to stitch

the navel shut for a week. I was told those two supplements were the culprits.

Crystal

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Sorry , not walking yet but it is only 3 weeks.

ALL my other improvements still stand and are even stronger.

My senses have got better (sight, sound, taste, smell, touch) and everything is

wonderful (sitting).

My mood has changed - super happy and no worries.

EVERYTHING is back apart from my legs. I can cllimb a couple of stairs with

handrails and my left foot remembers what to do. My right foot was the first to

go (in 1995) and seems like it will be the last to return.

I used my sewing machine today and could thread the needle just like that then

guide the material perfectly, perhaps more so than I have ever been able. I

still can't operate the foot pedal with my right leg but with the other pluses

this isn't a particular problem.

Walking will take time. 7 years with none, a further 8 with limited. I have

only done yoga/physio 3 times since treatment and it is all a little easier. I'm

pracitising balance on the big exercise ball too.

Normally I would be trying to hike up mountains by now but for once I am

approaching this slowly. I couldn't deal with everything returning at once, it

would be far too much. I haven't worn mascara for a few weeks as I kept looking

like a panda everytime something new had returned when I was out, my emotions

are all shot!

I'd still say GO FOR IT even though I am not 100% yet.

Janet

mscured

From: alpdesigns1@...

Date: Sun, 14 Nov 2010 02:03:48 +0000

Subject: Re: CCSVI/BBD supplements

I'm hoping that you can walk again Janet! You are my litmus test.

> Oh Janet,

>

> Not fair! You can't post without giving an update. Please. :)

>

> Crystal

>

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Janet, I am SO happy for you!

This is one more tool in our road to recovery from ms. My husband and I are

saving up so I can be evaluated. It's going to take us a while, but with the

successes I've read, I believe every one of us should look into the

Liberation therapy.

Yvette

On Sun, Nov 14, 2010 at 10:50 AM, Janet Orchard wrote:

>

> Sorry , not walking yet but it is only 3 weeks.

> ALL my other improvements still stand and are even stronger.

>

>

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Thanks Yvette.

Yes, that is how I felt. Well worth the expenditure. (I'm already saving on

supplements as there are so many not recommended with blood-thinning drugs).

I believe that millions of us have been wrongly diagnosed, and have/had CCSVI

rather than MS. Where that leaves MS per se, I don't yet know. Is there such a

thing or is it mainly untreated CCSVI? For those who have no CCSVI, I would

question the symptoms, are they MS or perhaps Lyme or heavy metals or food

allergies or something else.

Janet

To: mscured

From: atlanteanproductions@...

Date: Sun, 14 Nov 2010 11:00:45 -0600

Subject: Re: Re: CCSVI/BBD supplements

Janet, I am SO happy for you!

This is one more tool in our road to recovery from ms. My husband and I are

saving up so I can be evaluated. It's going to take us a while, but with the

successes I've read, I believe every one of us should look into the

Liberation therapy.

Yvette

On Sun, Nov 14, 2010 at 10:50 AM, Janet Orchard wrote:

>

> Sorry , not walking yet but it is only 3 weeks.

> ALL my other improvements still stand and are even stronger.

>

>

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We used deep pressure massage to get my feet to stop hurting. Back when I

was really having ms problems, the bottoms of my feet felt like I was

stepping on nails. Walking brought tears, it hurt so bad.

We combined deep pressure massage with acupressure to relieve the pain.

Yvette.

On Mon, Nov 15, 2010 at 2:08 PM, Janice Hoover

wrote:

>

>

> Janet,

>

> Can I recommend that you try deep pressure to regain 'feeling' to your leg?

>

> Worth a shot!

>

> Has " anyone " in this group ever tried deep pressure to regain neurological

> connection to the limbs?

>

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