Guest guest Posted November 11, 2010 Report Share Posted November 11, 2010 Thanks Crystal. On googling fish oil " More serious contraindications may be excessive bleeding in people who may be taking blood thinners (or who simply have a tendency to bleed), and fish oil may not be advisable if severe high blood pressure is not under control (due to possibly increased risk of a hemorrhagic stroke). " At this rate it will work out cheaper to have CCSVI treatment that to take all the BBD recommended supplements Janet To: mscured From: freewitheft@... Date: Thu, 11 Nov 2010 19:19:15 +0000 Subject: Re: CCSVI/BBD supplements > I have been checking if any recommended BBD supplements are at odds with any blood-thinning drugs we (who have had CCSVI treatment) have been given. > > > > I was only given 6 months of aspirin but others might have been given stronger drugs. I would check into fish oil and Vitamin E, especially if you are taking both. I don't even take aspirin because of those supplements. FYI, when I had my appendix taken out through my navel, it bled continuously for over 24 hours without any signs of trying to clot. They finally had to stitch the navel shut for a week. I was told those two supplements were the culprits. Crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2010 Report Share Posted November 14, 2010 Sorry , not walking yet but it is only 3 weeks. ALL my other improvements still stand and are even stronger. My senses have got better (sight, sound, taste, smell, touch) and everything is wonderful (sitting). My mood has changed - super happy and no worries. EVERYTHING is back apart from my legs. I can cllimb a couple of stairs with handrails and my left foot remembers what to do. My right foot was the first to go (in 1995) and seems like it will be the last to return. I used my sewing machine today and could thread the needle just like that then guide the material perfectly, perhaps more so than I have ever been able. I still can't operate the foot pedal with my right leg but with the other pluses this isn't a particular problem. Walking will take time. 7 years with none, a further 8 with limited. I have only done yoga/physio 3 times since treatment and it is all a little easier. I'm pracitising balance on the big exercise ball too. Normally I would be trying to hike up mountains by now but for once I am approaching this slowly. I couldn't deal with everything returning at once, it would be far too much. I haven't worn mascara for a few weeks as I kept looking like a panda everytime something new had returned when I was out, my emotions are all shot! I'd still say GO FOR IT even though I am not 100% yet. Janet mscured From: alpdesigns1@... Date: Sun, 14 Nov 2010 02:03:48 +0000 Subject: Re: CCSVI/BBD supplements I'm hoping that you can walk again Janet! You are my litmus test. > Oh Janet, > > Not fair! You can't post without giving an update. Please. > > Crystal > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2010 Report Share Posted November 14, 2010 Janet, I am SO happy for you! This is one more tool in our road to recovery from ms. My husband and I are saving up so I can be evaluated. It's going to take us a while, but with the successes I've read, I believe every one of us should look into the Liberation therapy. Yvette On Sun, Nov 14, 2010 at 10:50 AM, Janet Orchard wrote: > > Sorry , not walking yet but it is only 3 weeks. > ALL my other improvements still stand and are even stronger. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2010 Report Share Posted November 14, 2010 Thanks Yvette. Yes, that is how I felt. Well worth the expenditure. (I'm already saving on supplements as there are so many not recommended with blood-thinning drugs). I believe that millions of us have been wrongly diagnosed, and have/had CCSVI rather than MS. Where that leaves MS per se, I don't yet know. Is there such a thing or is it mainly untreated CCSVI? For those who have no CCSVI, I would question the symptoms, are they MS or perhaps Lyme or heavy metals or food allergies or something else. Janet To: mscured From: atlanteanproductions@... Date: Sun, 14 Nov 2010 11:00:45 -0600 Subject: Re: Re: CCSVI/BBD supplements Janet, I am SO happy for you! This is one more tool in our road to recovery from ms. My husband and I are saving up so I can be evaluated. It's going to take us a while, but with the successes I've read, I believe every one of us should look into the Liberation therapy. Yvette On Sun, Nov 14, 2010 at 10:50 AM, Janet Orchard wrote: > > Sorry , not walking yet but it is only 3 weeks. > ALL my other improvements still stand and are even stronger. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2010 Report Share Posted November 15, 2010 We used deep pressure massage to get my feet to stop hurting. Back when I was really having ms problems, the bottoms of my feet felt like I was stepping on nails. Walking brought tears, it hurt so bad. We combined deep pressure massage with acupressure to relieve the pain. Yvette. On Mon, Nov 15, 2010 at 2:08 PM, Janice Hoover wrote: > > > Janet, > > Can I recommend that you try deep pressure to regain 'feeling' to your leg? > > Worth a shot! > > Has " anyone " in this group ever tried deep pressure to regain neurological > connection to the limbs? > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.