Always in pain?

[Guest guest]

Hi all.

Is there such a thing as being pain-free with this disease? I'm not quite 45

years old, and seriously, if this is what it's going to be like for the rest of

my days, I don't want to have too many of them.

I hurt all the time. When I wake up, when I go to bed, in the middle of the

night and all day long. Sometimes it's worse than others, but I hurt when I

move and I hurt when I don't move.

Currently I'm taking prednisone (down to 4mg) and Plaquenil (400mg) and Tylenol

arthritis as needed. I pretty much can't sleep without two of the Tylenol, and

I try not to take it during the day. I can't take anti-inflammatories because I

also have kidney disease. I am also an insulin-dependent Type II diabetic,

thanks in part to prednisone.

I see my rheumy for the third time this coming Friday. What do I tell him?

What do I ask him? I can't go on like this forever. I'm miserable, I'm not

myself, and I'm sure my family doesn't like me much either.

Thanks for listening.

Leanne