Re: Back to Hosp for me in AM

[Guest guest]

Hi Debs:

I was so sad to read that you are bleeding again, and yet another ulcer.

You sure are having it tough. I am praying you will feel better soon,

and truly start to recover from all this, and all the hospital stays.

I know it is hard to be in the hospital so much. Try to get your

spirits up, and hopefully some more blood will help you recover sooner.

Wishing you much better days and health ahead. I care, and think of you

often. Try to rest if you can. Hard for you under these terrible

times. God Bless you Debs.

Hugs,

Barbara

>

> hang in there debs!!! may you get the help and rest you need

>

> kathy in il

> **************Need a job? Find employment help in your area.

>

(http://yellowpages.aol.com/search?query=employment_agencies & ncid=emlcnt\

usyelp00000005)

>

>

>

[Guest guest]

Hi Debs:

Gee, it is sure raining awful things down on you. So sorry about your

hospital stay, but I am glad you are home. Thank God they found that

blood clot in time. I hope you are on the road to a complete recovery

now.

I wish I had some answers for you regarding your health issues for the

Rheumy. Hopefully, he will be able to help you at your next appt.

Wishing you better health, pain free days ahead, and no more

illnesses!!! You have had more than your share of them.

God Bless you.

Hugs,

Barbara

>

> I finally came home from hospital on Friday. It turned out that one of

> the ulcers had not healed and they had to go in and do whatever it is

> that they do. They also found a bladder infection. Needed some more

> blood.

>

> Thought I would be going home soon and a nurse came in and said that I

> wasn't looking too well and I mentioned that I had some chest pain and

> with the I got whisked to the CT department, large bore IV;s were

> started and a blood clot was found in my lower left lung. Once again,

> heart monitors were installed and I was rushed to ICU. The next day I

> went to surgery to have a filter installed in my neck along wth

> additional central lines.

>

> Now here is my question.......they have taken me off all Celebrex

> minimal prednisore, no aspirin products, none of the new drugs.

> Previously, I have had all the new drugss.....Enbrel: pneumonia;

> Remicade: septicemia, septic shock; cardiac arrest; Orencia: celluitis

> of my abdomen. Won't see Rheumie for about 1 month. Any suggestions to

> brng up to him?

>

> I am gllad to be home, but not making much urine, vomitting, no

> internal blooding, Lovenox injections, and more than anything, my

whole

> body is in pain, can't button a shirt, put an earring in. Going thru

> some tough days. Any suggestions ???????

>

> Welcome to all our new members, you will find information, compassion

> and just great friends.

>

> Gentle, tender, angel hugs to all.......................

>

>

>

> Debs in FL

>

>

> Re: [ ] Re: Back to Hosp for me in AM

>

>

>

>

>

>

> hang in there debs!!! may you get the help and rest you need

>

> kathy in il

> **************Need a job? Find employment help in your area.

>

(http://yellowpages.aol.com/search?query=employment_agencies & ncid=emlcnt\

u

> syelp00000005)

>

>

[Guest guest]

Hi Debs:

I sure hope your dr. has a magic wand!!! You need to be on the road to

a good recovery, and start to feeling better soon. I don't blame you

for being scared...... I would be too. It is awful to be so sick all

the time, and major things happening to you that you can't do a damn

thing about. It is your turn to have better health, and better days

ahead.

Yes, the weather is so perfect here too. My son is busy getting the

pool cleaned, etc. Takes time, that's for sure.

Finally passed papers on the new house, and we moved in last weekend. I

am loving my new home with my family. I am also enjoying doing my new

bedroom here. They painted my bedroom, and it came out great. My

bedroom is a " Martha's Vineyard-Country " sanctuary for me. I did my own

bathroom in a nautical theme. I have been going through 5-10 boxes a

day. I am beat!!!!

Wishing you pain free days ahead, and I pray you get some much needed

help when you see your dr. I hope you are resting when you can. You

have been through way too much. God Bless you Debs.

Hugs,

Barbara

> >

> > I finally came home from hospital on Friday. It turned out that one

of

> > the ulcers had not healed and they had to go in and do whatever it

is

> > that they do. They also found a bladder infection. Needed some more

> > blood.

> >

> > Thought I would be going home soon and a nurse came in and said that

I

> > wasn't looking too well and I mentioned that I had some chest pain

and

> > with the I got whisked to the CT department, large bore IV;s were

> > started and a blood clot was found in my lower left lung. Once

again,

> > heart monitors were installed and I was rushed to ICU. The next day

I

> > went to surgery to have a filter installed in my neck along wth

> > additional central lines.

> >

> > Now here is my question.......they have taken me off all Celebrex

> > minimal prednisore, no aspirin products, none of the new drugs.

> > Previously, I have had all the new drugss.....Enbrel: pneumonia;

> > Remicade: septicemia, septic shock; cardiac arrest; Orencia:

celluitis

> > of my abdomen. Won't see Rheumie for about 1 month. Any suggestions

to

> > brng up to him?

> >

> > I am gllad to be home, but not making much urine, vomitting, no

> > internal blooding, Lovenox injections, and more than anything, my

> whole

> > body is in pain, can't button a shirt, put an earring in. Going thru

> > some tough days. Any suggestions ???????

> >

> > Welcome to all our new members, you will find information,

compassion

> > and just great friends.

> >

> > Gentle, tender, angel hugs to all.......................

> >

> >

> >

> > Debs in FL

> >

> >

> > Re: [ ] Re: Back to Hosp for me in AM

> >

> >

> >

> >

> >

> >

> > hang in there debs!!! may you get the help and rest you need

> >

> > kathy in il

> > **************Need a job? Find employment help in your area.

> >

>

(http://yellowpages.aol.com/search?query=employment_agencies & ncid=emlcnt\

\

>

> u

> > syelp00000005)

> >

> >

[Guest guest]

Debs,

If you haven't called your Rheumy to let him know, you should. Don't Assume

that the hospital called your Rheumy.

Hope your body decides to be healthy soon.

[Guest guest]

Hi Debs:

I feel so badly that you are in such awful pain. I too, wish your dr.

could give you something to ease your pain and suffering. These knees

can have such unbearable pain. I too, hate all that pain and suffering.

I know just what you are going through.

I think of you so often, and so want you to be feeling much better soon.

You have been through so much pain, and I wish it would all go away.

One person should not have to suffer like you do.

Praying for you to feel better soon, and that your pain will go away.

God Bless you, and take care.

Hugs,

Barbara

> > Thanks , we have been through a lot over the years and I value

the

> > information. Of course,as usual, called my rheumy for an appt and

> > can't be seen until next month (typical); but at least I will have

> > something to bring up and not feel so inadequate.

> >

> > I can't tell you the amount of pain that I am in between my joints

and

> > my broken knee cap.

> >

> > They are having trouble regulating the anticoagulant, so it is a

battle

> > right now.

> >

> > Thank you again my friend. As always..................

> >

> > Debs

>

[Guest guest]

Hi Debs:

Thanks, and the new house sure does lift my spirits! I too, love

decorating. They had to paint my bedroom as I am in so much pain I

couldn't stand to do it.

How wonderful to have the baby everyday. When I went home in Aug. the

best part of my 2 1/2 month hospital stay, was seeing my grandbabies

all the time, and my friends and family. Enjoy each minute you have

with her. She is a lucky girl to have you to play with!

Wishing you pain free days ahead. Always nice to hear from you.

Hugs,

Barbara

> > >

> > > I finally came home from hospital on Friday. It turned out that

one

> of

> > > the ulcers had not healed and they had to go in and do whatever it

> is

> > > that they do. They also found a bladder infection. Needed some

more

> > > blood.

> > >

> > > Thought I would be going home soon and a nurse came in and said

that

> I

> > > wasn't looking too well and I mentioned that I had some chest pain

> and

> > > with the I got whisked to the CT department, large bore IV;s were

> > > started and a blood clot was found in my lower left lung. Once

> again,

> > > heart monitors were installed and I was rushed to ICU. The next

day

> I

> > > went to surgery to have a filter installed in my neck along wth

> > > additional central lines.

> > >

> > > Now here is my question.......they have taken me off all Celebrex

> > > minimal prednisore, no aspirin products, none of the new drugs.

> > > Previously, I have had all the new drugss.....Enbrel: pneumonia;

> > > Remicade: septicemia, septic shock; cardiac arrest; Orencia:

> celluitis

> > > of my abdomen. Won't see Rheumie for about 1 month. Any

suggestions

> to

> > > brng up to him?

> > >

> > > I am gllad to be home, but not making much urine, vomitting, no

> > > internal blooding, Lovenox injections, and more than anything, my

> > whole

> > > body is in pain, can't button a shirt, put an earring in. Going

thru

> > > some tough days. Any suggestions ???????

> > >

> > > Welcome to all our new members, you will find information,

> compassion

> > > and just great friends.

> > >

> > > Gentle, tender, angel hugs to all.......................

> > >

> > >

> > >

> > > Debs in FL

> > >

> > >

> > > Re: [ ] Re: Back to Hosp for me in AM

> > >

> > >

> > >

> > >

> > >

> > >

> > > hang in there debs!!! may you get the help and rest you need

> > >

> > > kathy in il

> > > **************Need a job? Find employment help in your area.

> > >

> >

>

(http://yellowpages.aol.com/search?query=employment_agencies & ncid=emlcnt\

\

>

> \

> >

> > u

> > > syelp00000005)

> > >

> > >

[Guest guest]

Hi Debs:

I can understand your reluctance to pick up the baby, etc. When I go

home, my RA flares so bad, and I get so sick each time. There were days

when I could not pick her up, etc. My daughter had to put her in my

arms. It killed me because I waited 10 years for her arrival!! She had

2 babies in 2 years, both born in April. I went home each time to stay

and help out. A joyous time, but my RA was in full swing each time.

Damn it!!!

I will be so happy for you the day I read that you are feeling better,

and your pain is lessening. I just wish it didn' take so long!! These

diseases have a mind of their own!!! I so want you to be better, so you

can enjoy your life, and all the time with the baby. I just love

children, and anytime I can spend with them, is just the best days.

Please take care of yourself, and rest when you can. It is a good thing

you do for yourself. Remember I care about you, and pray you will feel

better soon. I hope you have a good day today.

Hugs,

Barbara

> > > Thanks , we have been through a lot over the years and I value

> the

> > > information. Of course,as usual, called my rheumy for an appt and

> > > can't be seen until next month (typical); but at least I will have

> > > something to bring up and not feel so inadequate.

> > >

> > > I can't tell you the amount of pain that I am in between my joints

> and

> > > my broken knee cap.

> > >

> > > They are having trouble regulating the anticoagulant, so it is a

> battle

> > > right now.

> > >

> > > Thank you again my friend. As always..................

> > >

> > > Debs

> >

>

[Guest guest]

Hi Debs:

I wish the same for you. Where are you in Fla.? I am on the South West

Coast. Very lovely day. Lots of sun, cool breeze's, dry air. Just

perfect.

I am down for the count with this knee. It is just so awful, and I

can't wait for my new knee. I am living on Percoset!!! What a life!!

I hope you feel better, and enjoy this fine day.

Hugs,

Barbara

> > > >

> > > > I finally came home from hospital on Friday. It turned out that

> one

> > of

> > > > the ulcers had not healed and they had to go in and do whatever

it

> > is

> > > > that they do. They also found a bladder infection. Needed some

> more

> > > > blood.

> > > >

> > > > Thought I would be going home soon and a nurse came in and said

> that

> > I

> > > > wasn't looking too well and I mentioned that I had some chest

pain

> > and

> > > > with the I got whisked to the CT department, large bore IV;s

were

> > > > started and a blood clot was found in my lower left lung. Once

> > again,

> > > > heart monitors were installed and I was rushed to ICU. The next

> day

> > I

> > > > went to surgery to have a filter installed in my neck along wth

> > > > additional central lines.

> > > >

> > > > Now here is my question.......they have taken me off all

Celebrex

> > > > minimal prednisore, no aspirin products, none of the new drugs.

> > > > Previously, I have had all the new drugss.....Enbrel: pneumonia;

> > > > Remicade: septicemia, septic shock; cardiac arrest; Orencia:

> > celluitis

> > > > of my abdomen. Won't see Rheumie for about 1 month. Any

> suggestions

> > to

> > > > brng up to him?

> > > >

> > > > I am gllad to be home, but not making much urine, vomitting, no

> > > > internal blooding, Lovenox injections, and more than anything,

my

> > > whole

> > > > body is in pain, can't button a shirt, put an earring in. Going

> thru

> > > > some tough days. Any suggestions ???????

> > > >

> > > > Welcome to all our new members, you will find information,

> > compassion

> > > > and just great friends.

> > > >

> > > > Gentle, tender, angel hugs to all.......................

> > > >

> > > >

> > > >

> > > > Debs in FL

> > > >

> > > >

> > > > Re: [ ] Re: Back to Hosp for me in AM

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > hang in there debs!!! may you get the help and rest you need

> > > >

> > > > kathy in il

> > > > **************Need a job? Find employment help in your area.

> > > >

> > >

> >

>

(http://yellowpages.aol.com/search?query=employment_agencies & ncid=emlcnt\

\

>

> \

> >

> > \

> > >

> > > u

> > > > syelp00000005)

> > > >

> > > >

[Guest guest]

Hi Debs - I live in East Central Florida and I can honestly say you have hit the

nail on the head with your words. I really feel like Florida sucks when it comes

to Healthcare and Education! But, here we are and will do the best we can with

what we have available to us.

Best of luck to you.....Doreen

Re: [ ] Re: Back to Hosp for me in AM

as you know, FL is not the medical mecca of

America........................Debs

[Guest guest]

And here I thought I was doing so great getting to go to FL to see my Rheumy! I

much prefer the doctors who work out of Florida Hospital South as I have always

had good experiences with their system. Maybe I just feel better because I get

to see my family when I go to FL for my dr visits!

 

Betsy

[Guest guest]

Hi :

I know you have been through it all these last months. I was so happy

to see you posted today. I think of you so often, and am praying for

you for a full recoverey. How wonderful you got such good care at a

most critical time in your life. I hope you feel better and better each

day. So very happy you are alive and doing so much better. It seems

like each day with these auto immune diseases is a challenge for all of

us.

Thanks for the welll wishes for my upcoming knee surgery. When I see

the surgeon Mon. I hope he has a very quick date for me. I can't wait

to get out of all this pain and suffering.

You know , it is just awful that you had to go through so much

like me. I still find it so hard to believe that my husband could and

did that to me with his w---e. He asked me yesterday, " Are we getting

divorced " ? Hello!!!! I am totally done with all that and him. He made

a choice, as bad as it is. I could never trust him again, nor could I

ever go through all this again. He wants me to forgive him, but I just

can't.

We all have to move on, as hard as it is. I am living a good life now

with my family, and loving our new home. Yes, I am very sad that my

marriage is over, and sad that I had to give up my home. But my life

has changed, and I am going forward, just like you did.

I hope you have a wonderful day , and continue feeling better

and better each day. Always so nice to talk with you. God Bless you in

all ways.

Love and hugs,

Barbara

>

> From: Mimi mimi212@...

> Subject: [ ] Re: Back to Hosp for me in AM

>

> Date: Thursday, March 19, 2009, 7:22 PM

>

>

>

>

>

>

> Hi Debs - I live in East Central Florida and I can honestly say you

have hit the nail on the head with your words. I really feel like

Florida sucks when it comes to Healthcare and Education! But, here we

are and will do the best we can with what we have available to us.

>

> Best of luck to you.....Doreen

>

> Re: [ ] Re: Back to Hosp for me in AM

>

> as you know, FL is not the medical mecca of

> America..... ......... ......... .Debs

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Debs:

I thought I would send you a post as I have been thinking about you all

day. How are you feeling today? I pray you are feeling somewhat

better. You so need to have some good days. You need your spirits to

be lifted.

Weather here today is absolutley gorgeous. 70, very breezy, sunny, and

dry. Our new house gets great cross breezes, no need for A.C. since we

moved in here 2 weeks ago.

Off my feet today and yesterday. My knee pain is just untolerable. No

amount of pain meds. helps. Can't wait for my Mon. appt. with my knee

surgeon. Slept poorly again last night. My knee pain is relentless.

You know all about that!!

Hoping and praying you are having a good day. You certainly deserve it.

Hugs,

Barbara

> > > > Thanks , we have been through a lot over the years and I

value

> > the

> > > > information. Of course,as usual, called my rheumy for an appt

and

> > > > can't be seen until next month (typical); but at least I will

have

> > > > something to bring up and not feel so inadequate.

> > > >

> > > > I can't tell you the amount of pain that I am in between my

joints

> > and

> > > > my broken knee cap.

> > > >

> > > > They are having trouble regulating the anticoagulant, so it is a

> > battle

> > > > right now.

> > > >

> > > > Thank you again my friend. As always..................

> > > >

> > > > Debs

> > >

> >

>

[Guest guest]

Hi :

I was happy to read that you are feeling better. You have had it hard

for the last few months. I am also glad you have some good strong meds.

and that it is helping you with your pain. Also good that it makes you

sleep.

I too, wish that the Diabetes is just temporary for you. Wouldn't that

be wonderful!

I do hope you are resting as much as you can each day. God Bless you

, and wishing you pain free days ahead.

Hugs,

Barbara

> > I have been too ill to write but need to respond.

> > Last month. I almost died from internal bleeding and celebrex,

prednisone/

> > induced diabetes. My blood sugar was over 1100,

> > It was a miracle I did not stroke out. Last rights were recommended.

I had

> > many blood transfusions and days of IV,s to flush the sugar out of

my

> > system.

> > I did not go to one of the " nice,comfy " hospitals near by.

> > I went to Tampa General. Those on staff were awesome while I was in

cricis.

> > I could not have gotten better care anywhere.

> >

> > As I recovered the care diminished but I did not mind. They were

catering to

> > many others in cricis.

> >

> > Barbara I so enjoy you, and wish you well with your knee.

> >

> > I had a similar . emotional adjustment after 26 years of marriage,

What

> > seemed like a nightmare became a blessing. The transition was

torture. I do

> > believe the worst is over for you. You realize the w----e did not

get a

> > prize package. Reality will enlighten her.

> >

> > To the group...I understand the desire for NSAID's and steroids.

Please

> > remember there are prices to pay for many.

> >

> > God Bless....

> >

> >

> > Raniolo

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi :

No, I haven't scheduled my knee surgery. I had a accident while in the

garage Sat. A loose leg from a table, fell, and hit my shin on the

outside. Left 2 huge holes in my leg. Very painful. My surgeon looked

at it yesterday, had the nurse re-dress it to his specifications. I will

see him this Mon. to see how the wound is doing. I can't have my

surgery until the wound is closed and much better. I change the

dressing 2x a day. Still pretty messy. Just my luck to have a freak

accident.

I am glad you are doing better, and like me, taking one day at a time. I

hope you continue to do better and better each day.

You must be enjoying all this great weather right now. I love it!

I am still off my feet, and on the couch with my legs up. My knee pain

is just outrageous. Can't wait for my surgery. Then I will be on the

road to another great recovery, and have 2 good knee's again.

Take care, and get lots of much needed rest. Talk soon.

Hugs,

Barbara

> > > I have been too ill to write but need to respond.

> > > Last month. I almost died from internal bleeding and celebrex,

> prednisone/

> > > induced diabetes. My blood sugar was over 1100,

> > > It was a miracle I did not stroke out. Last rights were

recommended.

> I had

> > > many blood transfusions and days of IV,s to flush the sugar out of

> my

> > > system.

> > > I did not go to one of the " nice,comfy " hospitals near by.

> > > I went to Tampa General. Those on staff were awesome while I was

in

> cricis.

> > > I could not have gotten better care anywhere.

> > >

> > > As I recovered the care diminished but I did not mind. They were

> catering to

> > > many others in cricis.

> > >

> > > Barbara I so enjoy you, and wish you well with your knee.

> > >

> > > I had a similar . emotional adjustment after 26 years of marriage,

> What

> > > seemed like a nightmare became a blessing. The transition was

> torture. I do

> > > believe the worst is over for you. You realize the w----e did not

> get a

> > > prize package. Reality will enlighten her.

> > >

> > > To the group...I understand the desire for NSAID's and steroids.

> Please

> > > remember there are prices to pay for many.

> > >

> > > God Bless....

> > >

> > >

> > > Raniolo

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >