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Hi Jeff,

Could you explain what active anti-spirochetals you mean??

Thanks,

Dixie

On Tue, Jan 25, 2011 at 7:25 AM, Jeff Hickson <jeffreydhickson@...>wrote:

>

>

> Hi ,

> I have experienced these in the past and I know many Lymies who share

> this experience. The neuro activity of Lyme is well documented. I worked

> very hard to seperate the anxiety from what is actually going on. It was

> incapacitating. My wife, who is also Lyme positive, also shared this

> reaction. It actually could be a form of herxing. Disturb the critters and

> they disturb you. Make sure you are taking active anti-spirochetals and

> actually follow the protocol for healing. Put more information out so the

> group knows what you are taking to give you better feedback.

>

> Jeff

>

>

>

> From: First L <snowgirlvt@... <snowgirlvt%40>>

> Subject: [ ] panic attacks

> < %40>

> Date: Monday, January 24, 2011, 10:19 PM

>

>

>

>

> Okay, 1 month ago I was feeling well and very optimistic about my progress

> with the lyme tea I'm taking for my lyme and bartonella. For 3 weeks now I

> have been having major anxiety and daily panic attacks, or what I think are

> panic attacks. Some days they are so debilitating that I struggle to go to

> work and function. I get horrible muscle tremors, sweating, racing pulse and

> feel like I'm gonna lose my mind at any point or just plain drop dead.

> Somedays I wonder if the misery will ever end. I was taking magnesium and

> holy basil for this but it doesn't seem to be helping anymore. Will it ever

> end? Any recommendations?

>

>

>

>

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Hi ,

I'm sorry to hear you're having such a rough time. Your symptoms are all

too familiar.

One of the keys to controlling symptoms is diet. For example in my case, I

have to scrupulously avoid:

.. Sugar - this is a killer. The correlation is very clear because

the response is almost immediate: twitching, tremors, anxiety, arrhythmia,

etc.

.. Wheat and other glutinous grains - the response is not immediate,

so it's easy to miss what's happening, but these are almost as bad as sugar.

.. Alcohol - I can have a beer every couple of weeks or so, but any

more will lead to trouble.

.. Dairy - triggers autoimmune responses within an hour or so of

eating, noticeable by increased inflammation, burning skin, etc.

.. MSG - a ticket straight to hell. The tricky part is that due to

the " clean labeling initiative " it can be disguised with various names:

autolyzed yeast extract, " natural flavoring " , etc. Soy sauce is not my

friend, nor is Mrs. Bragg's, or just about any processed food, especially if

it seems to be intensely flavorful.

.. Sulfites - worse than MSG.

Environmental triggers can cause a lot of trouble as well - especially mold,

which is every bit as dangerous as Lyme & co. My symptoms improved

significantly when I moved from our beautiful house right next to a creek in

the cool shady woods of southern Michigan. There was mold in our basement

and even in our bedroom walls. Here's a good start for learning about

neurotoxins from mold: http://www.chronicneurotoxins.com/

A shot in the dark: I suspect that B12 deficiency plays a part in most

neuro-lyme. If you are working with a receptive doctor, you might ask for

these two tests: plasma B12 and urinary MMA (methyl-malonic acid). These

two tests in combination give an accurate picture of B12 status. Many

people are low in B12, especially those with digestive issues and those who

have had anaesthesia (surgery, dental procedures).

This is all I can think of at the moment. I hope it helps.

Hang in there. You will get better.

Jeff

From:

[mailto: ] On Behalf Of First L

Sent: Monday, January 24, 2011 9:20 PM

Subject: [ ] panic attacks

Okay, 1 month ago I was feeling well and very optimistic about my progress

with the lyme tea I'm taking for my lyme and bartonella. For 3 weeks now I

have been having major anxiety and daily panic attacks, or what I think are

panic attacks. Some days they are so debilitating that I struggle to go to

work and function. I get horrible muscle tremors, sweating, racing pulse and

feel like I'm gonna lose my mind at any point or just plain drop dead.

Somedays I wonder if the misery will ever end. I was taking magnesium and

holy basil for this but it doesn't seem to be helping anymore. Will it ever

end? Any recommendations?

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Hi , try iherb and woodland essence. I am new to this, but have ordered

from both. I can't do grape either. I am allergic to sulfites and don't eat

concord grapes because the skins make my mouth itch terribly inside...weird i

know, but I am afraid this could turn into a reaction if taken in larger

amounts. best of luck.

Anne

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Jeff,

Thank you for the information around diet and what you have excluded to

alleviate your symptoms. I am working towards building a much cleaner diet and

have been experimenting with what my body can tolerate and cannot. I too must

stay away from sugar, wheat/gluten, alcohol and dairy. I will look into the " two

tests: plasma B12 and urinary MMA (methyl-malonic acid) " when I go to my LLMD

next week.

Glad to hear you're doing better.

Cassano

snowgirlvt@...

PRIVACY &

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Hi Everyone,

I read this groups mail occasionally but not sure Ive posted here, I saw this

topic the other day and meant to reply as Ive had panic disorder about 15-20

years - major anxiety started around the time I first had mono at 16. Full blown

panic attacks at age 20 started after the second mono dx- epsteinbarr (really

bad fatigue in my 20s) Around 25 sought help but drugs dont work so well for me,

if its a bad day I will take klonopin though I try not to as dont want to get

fully addicted) Prior to mono in my pre teens to teens I was constantly on

antibiotics for recurring strep.

Anyway, had lyme after that 2002 dx with rash, ehrlichia in 2006 - a different

rash occurred in the same spot. The docs at Stony Brook NY called in a whole

team of student to check me out that time...And in 2008 (after moving upstate) a

smaller rash in the same spot again after doing clay detox, bad anxiety came

back the month b4, only dx at the time was parasites seen in blood, back and

forth to drs since and it is taking me longer to bounce back. A big contributor

in 2006 and 2008 relapses was stress - had to get a few protection orders, this

last 2 years have been difficult stressfully hard - a drawn out divorce, proxy

stalking, breakins, thank God its over now. Luckily I have a good therapist who

helps with PTSD and identifying and minimizng emotional triggers and memory

triggers, EFT, affirmations and other techniques.

I have been using many of the buhner herbs / protocol as well as hulda clarks

(for parasites) and klinghardt and feel I am getting better, but its taken

awhile. Have neuropsych symptoms that got relly bad in 2009, tics, numbness and

strange headaches, memory... my neuro doc says im much better than last year.

Ive been doing oral chelation since 09 also after having been tested to be high

in metals. Planning to get amalgams removed.

I was retested for lyme and came up negative a few mos ago - it was standard

western blot - wanted igenex but i dont think my insurance covered it so thats

what the doc sent it to. She did however tell me i have chronic epsteinn barr

and a low white blood count, which is improving slowly...

The sugar is a definate trigger for panic attacks for me - Around time I have

noticable CANDIDA flare ups - usually if I cheat and have a little sugar -

infection will go out to my lips as use ACV, GSE, collidal.

It seems to have taken me forever to realise sugar and candida were a big

trigger of panic...for years I was given different psych meds, I was allergic to

many and most didnt work, and believed I was stuck this way with an untreatable

mental disorder, was dx bipolar after an antidepressant made me

manic/hallucinate. Went off depakote a few mos ago because of the white count

and actully feel less panic now fully addressing the candida also (have felt in

a state like that almost daily for 2 years) I also take a good b-complex,

niacin, and a low dose lithium orotate. Herbs and other supplements I use

include andrographis, black walnut, clove, garlic, currys, tumeric, ginger,

digestive enymes, miracle greens - w chorella, spirulina, miracle reds in the am

with fiber 15 mins after herbs.

I recently added in collidal silver and more probiotics, and am more diligant

about keeping off all sugar and am feeling much better, I supplement with some

GABA too and occasionally now the klonopin.

Regular apple and orange juice I have found triggers me also, but I can eat them

alone now. When I was really bad eating 2 apples would make me dizzy from all

the sugars in them.

Another trigger is if I am herxing and not eliminating fast enough (or say I

took too many green supplements - too binding etc) - have noticed the Gerson

therapy for CFS is helpful -(according to the book for CFS chamomile enema is

used instead of coffee) - coffee enemas for me seems to make too fast a detox

and then panic and other symptoms sets in....

For me also wheat was a big trigger - have been Gluten free since 2006

MSG - I avoid too, natural flavorings etc.

I also no longer eat (or tolerate) beef, pork, too many fats, and many other

foods.

For example one day a month ago while out picked up a cup of lipton tea - even

just plain, no sugar or milk triggered one. Now I carry what I know is GF and

MSG free and get hot water (or order a tea and just use my own)

Would say every person has different triggers - foods, environmental, etc, so

everyones will be different, but like the guy says below - those most common

food triggers I would cut out and test one at a time.

White sugars (or all sugars) flours, chocolate, soy, nuts etc...

Some good links thought Id share

http://feingold.org - info on additives

http://www.truthinlabeling.org/SourcesBrochure.pdf

http://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredi\

ents/Page1.html

http://www.drsref.com.au/foodaddcodes.html

http://meatnplace.net/foodadditives.html

http://www.fedupwithfoodadditives.info/factsheets/Factintroduction.htm

http://www.nlm.nih.gov/medlineplus/druginfo/natural/912.html iron

http://www.wildhealthfood.com/Food-Additives-to-Avoid

Hope everyone is getting better lyme or any immune disorder is surely not easy

Jeannine

> One of the keys to controlling symptoms is diet. For example in my case, I

> have to scrupulously avoid:

>

> . Sugar - this is a killer.

> . Wheat and other glutinous grains

> . Alcohol - I can have a beer every couple of weeks or so, but any

> more will lead to trouble.

>

> . Dairy - triggers autoimmune responses

> . MSG - a ticket straight to hell. The tricky part is that

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Jeanine,

I feel for you. We have battled with candida and other parasites as well. When

the immune system is down...all those little guys just feast away.

Due to candida and food allergies, our house is GRAIN free, sugar free, corn and

soy free, additive, color and preservative free. The list goes on, like

oxalates (triggers depression in our son) and other veggies...but if you are

familiar with the gapsdiet, the digestion wellness and food sensitivities go

hand in hand.

When my son eats a high oxalate food, everything makes him cry and sob and

whine. I gave him a gogi berry lollipop (with b-12) in the dr's office without

thinking (lymehead) and he was crying within minutes over nothing.

Everything in our house is now home made with no starch and slow cooked or soft

cooked meats and veggies. It is amazing what you can do with a little

imagination. I am actually writing a cookbook now at the encouragement of my

family and friends :) Of course, this lyme business has made food preperation

soooooo difficult....I barely get dinner ready each day.

Please visit gapsdiet.com and healingnaturallybybee.com for more info on

candida. It did a ton for us since we can't have nuts either, so the whole

pecanbread thing was out.

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