Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 What are you serving AT YOUR PARTY? i LOVE BLACK RUSSIANS.... Raniolo From: Dennis W <betnden@...> Subject: [ ] Humira- " " < > Date: Wednesday, August 12, 2009, 11:16 PM isn't doing what I thought it would. I'm still taking all my other meds that were controlling my RA and started the Humira 3 months ago. Now I'm having a big flare with angry red, swollen joints on my index fingers at present. I've found no help from Humira but a lot of difference in my pocketbook. I had almost gotten off Prednisone, down to 2.5 mg, but had to go back up to 10 mg per day until the Rheumy says I can drop it back down. This, plus getting chewed up rescuing a dog that was tangled in a fence, and the Prostate Cancer, keeping 6 big dogs that aren't ours, all the rest of the things that I can't get done are driving me to drink (I wish). Even the church group that was supposed to fix our front ramp and add one to the back door never showed up after I bought the materials. I guess I'm having a pity party. Everybody is invited... -- Dennis in eastexas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 (((Dennis))) I'm sorry your having a flare, and the humira doesn't seem to be helping. What other RA meds are you on? I've been on humira for quite awhile. The first time, I didn't feel it worked that well, so they put me on enbrel. It worked for awhile, and then stopped. I was put back on humira, and it's doing ok, with mtx. Talk to your rheumy, if it's not working your just wasting money. Your doctor should find another RA med that will help. I know it's so frustrating, but if you find the right one, it makes your life feel so much better. Oh Dennis, your a dog lover!!! I am too, and I know it's hard for you to take care of all these dogs. Your an angel though, taking care of these dogs, when you don't feel good. If I see a dog on the road, I'll pick it up, bring it home, fatten it up, and find a good home:) There should be in your area, where you can post the dogs on the group, and find them a good home. Some of the people on the group might take them, and foster them. Did you get chewed up bad? Makes sure you doctor it, you sure don't want an infection. I hope the church group gets over there, and gets your ramps fixed. I know it's hard when your not able to do it. Hey, I'm here for the party,lol Take care of yourself, and know your in my thoughts, Tawny > > isn't doing what I thought it would. I'm still taking all my other meds that > were controlling my RA and started the Humira 3 months ago. Now I'm having a > big flare with angry red, swollen joints on my index fingers at present. > I've found no help from Humira but a lot of difference in my pocketbook. I > had almost gotten off Prednisone, down to 2.5 mg, but had to go back up to > 10 mg per day until the Rheumy says I can drop it back down. > > This, plus getting chewed up rescuing a dog that was tangled in a fence, > and the Prostate Cancer, keeping 6 big dogs that aren't ours, all the rest > of the things that I can't get done are driving me to drink (I wish). Even > the church group that was supposed to fix our front ramp and add one to the > back door never showed up after I bought the materials. I guess I'm having a > pity party. Everybody is invited... > > -- > Dennis in eastexas > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 I do too:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 My goodness Dennis...you really have so much to deal with right now. I'm sorry the Humira has let you down. I think you are due for a big rainbow in your sky! Cheryle in Oregon [ ] Humira- isn't doing what I thought it would. I'm still taking all my other meds that were controlling my RA and started the Humira 3 months ago. Now I'm having a big flare with angry red, swollen joints on my index fingers at present. I've found no help from Humira but a lot of difference in my pocketbook. I had almost gotten off Prednisone, down to 2.5 mg, but had to go back up to 10 mg per day until the Rheumy says I can drop it back down. This, plus getting chewed up rescuing a dog that was tangled in a fence, and the Prostate Cancer, keeping 6 big dogs that aren't ours, all the rest of the things that I can't get done are driving me to drink (I wish). Even the church group that was supposed to fix our front ramp and add one to the back door never showed up after I bought the materials. I guess I'm having a pity party. Everybody is invited... -- Dennis in eastexas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Humira worked fine for me it was the cost that made me have to stop using it. Then medicare part-D came along and my RA doctor put in a trial for Rituxin. That worked fine the first time around and now I have been flaring since my last treatment in March of this year. Told my RA doctors Nurse practitioner about it and she just gave me suggestions like losing some weight and the swelling was due to the heat and women swell more during the summer months and that age has a factor in it. I am 49 years old and been menopausal since I was 31. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Good grief, (((((Dennis))))) - when it rains, it pours!! I am so sorry to hear about your flare! Was the dog that chewed you up one of the 6 big dogs you all are caring for? I'd be telling the owners that they have 24 hours to come and get them or they're all going to the Humane Society! Its sad that your church family makes a promise and then doesn't follow through. Have you talked to your pastor? Maybe there is some miscommunication there and they didn't realize you had the materials? You hang in there - and have your pity party all you want. We've all been there/done that/bought the t-shirt and will do it again at some point. We're here for you.....Doreen > > isn't doing what I thought it would. I'm still taking all my other > meds that were controlling my RA and started the Humira 3 months > ago. Now I'm having a big flare with angry red, swollen joints on > my index fingers at present. I've found no help from Humira but a > lot of difference in my pocketbook. I had almost gotten off > Prednisone, down to 2.5 mg, but had to go back up to 10 mg per day > until the Rheumy says I can drop it back down. > > This, plus getting chewed up rescuing a dog that was tangled in a > fence, and the Prostate Cancer, keeping 6 big dogs that aren't > ours, all the rest of the things that I can't get done are driving > me to drink (I wish). Even the church group that was supposed to > fix our front ramp and add one to the back door never showed up > after I bought the materials. I guess I'm having a pity party. > Everybody is invited... > > -- > Dennis in eastexas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Nah - put me in for some good ole' Jack s and Coke! Mmmm, I miss being able to drink that stuff!! What are you serving AT YOUR PARTY? i LOVE BLACK RUSSIANS.... Raniolo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Oh you guys, I miss my Tia over ice. I guess we all chose to save our livers, so no drinks for me in over 6 years. I sooooooooo miss my Tia.......... Hugs to all, Barbara > > I do too:) > > > --- In , CATHERINE RANIOLO <c.raniolo@> wrote: > > What are you serving AT YOUR PARTY? > i LOVE BLACK RUSSIANS.... > Raniolo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Hi Dennis: Thanks for your party invitation. Gosh I was so sorry to read all the troubles you are having. Sorry the Humira is not working for you. What is your next step? I think of you a lot, and so sorry about your Prostrate Cancer. When it rains, it pours. Good Lord, return those dogs. Much to much stress to handle right now. That is not good for you. Wow, you are having a really bad flare, and I feel badly for you. Too much suffering!!! When do you see your Rheumy again? Have you called to tell them how you are feeling, and what is going on? It is good you can vent here. Good to get it off your chest. We are all here for you always, we care about you very much. I pray things settle down for you Dennis. All that stress and suffering is not good for you Praying for you to have pain free days ahead. I care. Hugs, Barbara > > > > isn't doing what I thought it would. I'm still taking all my other > > meds that were controlling my RA and started the Humira 3 months > > ago. Now I'm having a big flare with angry red, swollen joints on > > my index fingers at present. I've found no help from Humira but a > > lot of difference in my pocketbook. I had almost gotten off > > Prednisone, down to 2.5 mg, but had to go back up to 10 mg per day > > until the Rheumy says I can drop it back down. > > > > This, plus getting chewed up rescuing a dog that was tangled in a > > fence, and the Prostate Cancer, keeping 6 big dogs that aren't > > ours, all the rest of the things that I can't get done are driving > > me to drink (I wish). Even the church group that was supposed to > > fix our front ramp and add one to the back door never showed up > > after I bought the materials. I guess I'm having a pity party. > > Everybody is invited... > > > > -- > > Dennis in eastexas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 Oh no she didn't!!! Someone needs to tell that NP to get a grip! We all KNOW that our weight doesn't make things any easier, but the MEDS are a big contributing factor to our weight gain - not to mention the decrease in activity due to the pain! Wow, that just makes my blood boil! I've been telling these doctors for years that my weight came as a result of the pain - not the other way around as they all seem to think. I think I would call back and ask to speak with your Rheumy directly! Or make another appointment. And be sure to tell him what kind of NP he's got working for him! BTW - what is your first name? We all like to know who we're talking to. Best of luck to you. Keep us posted.....Doreen > > Humira worked fine for me it was the cost that made me have to stop > using it. Then medicare part-D came along and my RA doctor put in a > trial for Rituxin. That worked fine the first time around and now I > have been flaring since my last treatment in March of this year. > Told my RA doctors Nurse practitioner about it and she just gave me > suggestions like losing some weight and the swelling was due to the > heat and women swell more during the summer months and that age has a > factor in it. I am 49 years old and been menopausal since I was 31. Quote Link to comment Share on other sites More sharing options...
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