RE: Re: CCSVI (Pinda)

[Guest guest]

Thanks Pinda. All reassurances of my wish to depart with the savings in our

bank account are welcome!

If I don't follow it up, I'd never know and I think my veins are as buggered as

the next persons (with MS).

Hope your wife is doing well.

Janet

To: mscured

From: nagra101@...

Date: Thu, 7 Oct 2010 16:17:34 +0000

Subject: Re: CCSVI

Hi Janet,

A friend of mine had a similar experience here in the UK. A vascular surgeon who

no longer carries out the scan was adamant there was no blockage - when my

friend went to Poland they found blockages via the Doppler.

Having said that when my wife had her procedure another patient, an American

lady, had her Doppler and they found no issues. Dr Simka suggested they do the

venography regardless and they found occulsions very high up near her ears on

both sides.

Another patient was told she only had a minor blockage via the Doppler but when

they did the venography they found a major blockage in one of the jugulars and

one in the Azygos (which cannot be detected by a Doppler).

The Doppler is usually a good indicator of blockages but the Venography is the

GOLD standard.

Cheers,

Pinda

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> I had a test a few weeks ago at a local hospital here in Spain and was told I

don't have CCSVI. However, I also found out that none of the MS people they had

tested had it, nor any in the general populace, and it therefore did not exist!

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> I do not believe this for one second and presume they are not doing the tests

correctly, no doubt to disprove the theory.

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> I am down for CCSVI testing and treatment in a couple of weeks' time in

Poland. If I can just prove my neurologist wrong I shall be very pleased;

walking will be a further benefit.

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> I'll keep you updated.

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> Janet

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