Re: doc appt with new rheumy

[Guest guest]

Hi : I am so happy you found a wonderful Rheumy.. I am glad

she really listened to you, and that she is trying to find the right

" cocktail " of meds. for you. I love my Rheumy too.

I wish you such good luck with the Orencia, Placquenil, and Pred. You

should start to feel a little better soon.

Wishing you many pain free days ahead.

Hugs,

Barbara

--- In , " Massey " <renandstimpy3@...>

wrote:

>

> well after not going to the doctor for over a year I finally broke

down and decided to find a new doctor. She is absolutely wonderful. She

actually listened to everything I had to say. She has decided to put me

on Plaquinel and Orencia. She realizes that the enbrel was just not

cutting it and happy that I have washed it out of my system. Until the

ins co approves the Orencia she has put me on 7.5mg of Prednisone and 2

plaquinel a day. she also said the tingling and so forth that I am

getting from the right side is caused from inflamation due to the RA. I

have to have a nerve conduction test done on the 19th. She told me no

matter what do not let them cut me which I think is a good option. She

listened to everything I had to say even if it had nothing to do with my

RA. She seems like a great doctor and I am happy to have found her.

>

>

>

>

>

[Guest guest]

that is wonderful news. I hope you find relief.

Raniolo

From: Massey <renandstimpy3@...>

Subject: [ ] doc appt with new rheumy

Date: Wednesday, August 12, 2009, 12:44 AM

 

well after not going to the doctor for over a year I finally broke down and

decided to find a new doctor. She is absolutely wonderful. She actually listened

to everything I had to say. She has decided to put me on Plaquinel and Orencia.

She realizes that the enbrel was just not cutting it and happy that I have

washed it out of my system. Until the ins co approves the Orencia she has put me

on 7.5mg of Prednisone and 2 plaquinel a day. she also said the tingling and so

forth that I am getting from the right side is caused from inflamation due to

the RA. I have to have a nerve conduction test done on the 19th. She told me no

matter what do not let them cut me which I think is a good option. She listened

to everything I had to say even if it had nothing to do with my RA. She seems

like a great doctor and I am happy to have found her.

[Guest guest]

,

Congrats on finding a good Rhuemy... I hope she continues to listen and helps

you to find your correct concoction to relieve your discomfort.

Bonnie

In , " Massey " <renandstimpy3@...> wrote:

>

> well after not going to the doctor for over a year I finally broke down and

decided to find a new doctor. She is absolutely wonderful. She actually

listened to everything I had to say. She has decided to put me on Plaquinel and

Orencia. She realizes that the enbrel was just not cutting it and happy that I

have washed it out of my system. Until the ins co approves the Orencia she has

put me on 7.5mg of Prednisone and 2 plaquinel a day. she also said the tingling

and so forth that I am getting from the right side is caused from inflamation

due to the RA. I have to have a nerve conduction test done on the 19th. She

told me no matter what do not let them cut me which I think is a good option.

She listened to everything I had to say even if it had nothing to do with my RA.

She seems like a great doctor and I am happy to have found her.

>

>

>

>

>

[Guest guest]

,

Glad you found a good doctor! I hope the new meds will help you. Keep

us posted on your test,

Tawny

--- In , " Massey " <renandstimpy3@...>

wrote:

>

> well after not going to the doctor for over a year I finally broke

down and decided to find a new doctor. She is absolutely wonderful. She

actually listened to everything I had to say. She has decided to put me

on Plaquinel and Orencia. She realizes that the enbrel was just not

cutting it and happy that I have washed it out of my system. Until the

ins co approves the Orencia she has put me on 7.5mg of Prednisone and 2

plaquinel a day. she also said the tingling and so forth that I am

getting from the right side is caused from inflamation due to the RA. I

have to have a nerve conduction test done on the 19th. She told me no

matter what do not let them cut me which I think is a good option. She

listened to everything I had to say even if it had nothing to do with my

RA. She seems like a great doctor and I am happy to have found her.

>

>

>

>

>

[Guest guest]

Thank you everyone for the well wishes. I will be starting the pred and the

plaqunil friday. I was wondering is there any side effects with the plaqunil

that I should be aware of like upset stomach.

[ ] Re: doc appt with new rheumy

,

Glad you found a good doctor! I hope the new meds will help you. Keep

us posted on your test,

Tawny

>

> well after not going to the doctor for over a year I finally broke

down and decided to find a new doctor. She is absolutely wonderful. She

actually listened to everything I had to say. She has decided to put me

on Plaquinel and Orencia. She realizes that the enbrel was just not

cutting it and happy that I have washed it out of my system. Until the

ins co approves the Orencia she has put me on 7.5mg of Prednisone and 2

plaquinel a day. she also said the tingling and so forth that I am

getting from the right side is caused from inflamation due to the RA. I

have to have a nerve conduction test done on the 19th. She told me no

matter what do not let them cut me which I think is a good option. She

listened to everything I had to say even if it had nothing to do with my

RA. She seems like a great doctor and I am happy to have found her.

>

>

>

>

>

[Guest guest]

,

I was on Plaquenil for awhile, it didn't work for me. I did have blurry

vision on the med. Meds work different for everyone, so it might work

for you. You just have to try, until you get the right one.

Good luck,

Tawny

--- In , " Massey " <renandstimpy3@...>

wrote:

>

> Thank you everyone for the well wishes. I will be starting the pred

and the plaqunil friday. I was wondering is there any side effects with

the plaqunil that I should be aware of like upset stomach.

>

>

[Guest guest]

its the one med I'm leary about taking. I have heard so many bad things about

plaquenil from everyone here and a bit scared about it. But the one thing I

have always done with meds is try it once and see if it works if not then move

to the next. I realize that RA is a pain haha pun there and that I will have to

live with it for the rest of my life. for a long time I got relief from enbrel

before that i was alway in pain. I was on mtx first oral and that made me sooo

sick even with 5mg of folic acid. As they increased it I got worse. Then I

tried the injectables and broke out in to full body hives so had to stop taking

it altogether. after that I tried enbrel which worked for about a 1 year and a

half when it stopped working I talked to my doc who I was transfered to because

my old one was leaving and found he was a jerk, my doc said in more words when

she found who he was that he was a dick. my thoughts exactly lol. Now I'm just

trying to survive. I work 40 hours a week or more and have 2 small kids 4 and 6

and my boyfriend is blind, don't I have my hands full. He minimumly helps around

the house he thinks watching the kids while I'm at work is part of house care

haha what an ass if I didn't love him so much would kick him out for the second

time. anyways, the new ra doc found me extremely informed and I would like to

thank everyone here for that, without this group I would probably not know as

much information as I do about the various RA drugs.

[ ] Re: doc appt with new rheumy

,

I was on Plaquenil for awhile, it didn't work for me. I did have blurry

vision on the med. Meds work different for everyone, so it might work

for you. You just have to try, until you get the right one.

Good luck,

Tawny

>

> Thank you everyone for the well wishes. I will be starting the pred

and the plaqunil friday. I was wondering is there any side effects with

the plaqunil that I should be aware of like upset stomach.

>

>

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18:12:00

[Guest guest]

You are a very busy girl. Your right though, try it, and if it don't

work, go on to something else. With your new doctor, she will find

something for you. You've had some problems with some of the meds, and

that is common. Just keep on, till you find the one.

I wish you lots of luck,

Tawny

--- In , " Massey " <renandstimpy3@...>

wrote:

>

> its the one med I'm leary about taking. I have heard so many bad

things about plaquenil from everyone here and a bit scared about it. But

the one thing I have always done with meds is try it once and see if it

works if not then move to the next. I realize that RA is a pain haha pun

there and that I will have to live with it for the rest of my life. for

a long time I got relief from enbrel before that i was alway in pain. I

was on mtx first oral and that made me sooo sick even with 5mg of folic

acid. As they increased it I got worse. Then I tried the injectables and

broke out in to full body hives so had to stop taking it altogether.

after that I tried enbrel which worked for about a 1 year and a half

when it stopped working I talked to my doc who I was transfered to

because my old one was leaving and found he was a jerk, my doc said in

more words when she found who he was that he was a dick. my thoughts

exactly lol. Now I'm just trying to survive. I work 40 hours a week or

more and have 2 small kids 4 and 6 and my boyfriend is blind, don't I

have my hands full. He minimumly helps around the house he thinks

watching the kids while I'm at work is part of house care haha what an

ass if I didn't love him so much would kick him out for the second time.

anyways, the new ra doc found me extremely informed and I would like to

thank everyone here for that, without this group I would probably not

know as much information as I do about the various RA drugs.

>

>

[Guest guest]

, 

You'll want to see your eye doctor I believe every 6 months but I might be wrong

on that, someone here will correct me please if i am but you have to stay on top

of your eyesight with Plaqunil (sp?).  Good luck.

in PA

[ ] Re: doc appt with new rheumy

,

Glad you found a good doctor! I hope the new meds will help you. Keep

us posted on your test,

Tawny

--- In , " Massey " <renandstimpy3@...>

wrote:

>

> well after not going to the doctor for over a year I finally broke

down and decided to find a new doctor. She is absolutely wonderful. She

actually listened to everything I had to say. She has decided to put me

on Plaquinel and Orencia. She realizes that the enbrel was just not

cutting it and happy that I have washed it out of my system. Until the

ins co approves the Orencia she has put me on 7.5mg of Prednisone and 2

plaquinel a day. she also said the tingling and so forth that I am

getting from the right side is caused from inflamation due to the RA. I

have to have a nerve conduction test done on the 19th. She told me no

matter what do not let them cut me which I think is a good option. She

listened to everything I had to say even if it had nothing to do with my

RA. She seems like a great doctor and I am happy to have found her.

>

>

>

>

>

[Guest guest]

Hi : Before I started the Placquenil I had my eyes examed by my

eye surgeon. My Rheumy wanted me to do so.

I have taken it successfully now for 2 years, and no problems with it at

all.

Hope this med. helps you. Wishing you many pain free days ahead.

Hugs,

Barbara

> >

> > well after not going to the doctor for over a year I finally broke

> down and decided to find a new doctor. She is absolutely wonderful.

She

> actually listened to everything I had to say. She has decided to put

me

> on Plaquinel and Orencia. She realizes that the enbrel was just not

> cutting it and happy that I have washed it out of my system. Until the

> ins co approves the Orencia she has put me on 7.5mg of Prednisone and

2

> plaquinel a day. she also said the tingling and so forth that I am

> getting from the right side is caused from inflamation due to the RA.

I

> have to have a nerve conduction test done on the 19th. She told me no

> matter what do not let them cut me which I think is a good option. She

> listened to everything I had to say even if it had nothing to do with

my

> RA. She seems like a great doctor and I am happy to have found her.

> >

> >

> >

> >

> >

[Guest guest]

, that sounds about like what my Rheumy told me too when I first started on

the plaquenil. I had to stop taking it though, it made my eyesight blurry.

Then he put me on Sulfasalazine and later added the MTX. - best of luck

to you. Keep us posted.....Doreen

, 

You'll want to see your eye doctor I believe every 6 months but I might be

wrong on that, someone here will correct me please if i am but you have to stay

on top of your eyesight with Plaqunil (sp?).  Good luck.

in PA