Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Joyce, I have a friend who tells me sometimes, " it sucks to be you " . She means and I agree and sometimes even smile a little. Well, it is worse to be you, today and I'm really, really sorry. You have been fighting this fight for a long, long time. Today has been an ugly day for you yet you always have time to listen and give us a little bit of hope or advice. You are in my prayers, Joyce. Sleep well, Kathie WA nsip '96 > > Hi Joyce, > > I just Wished you could stay home and not go back to the hospital. Vent as much as you want my friend...I'm always thinking of you! > I Wish you a Speedy recovery my friend! > > Irene > > ---- Original Message ---- > > To: Breathe-Support > Sent: Thu, 3 Apr 2008 8:17 pm > Subject: My Not so Great News > > > > > > > > > Hi to anyone who will listen to me whine, > > As you all know, I am waiting on a call to go back to the hospital for more bloody adventures.? > > ?Well, my day started yesterday by a big filling falling out of my tooth.? I knew my teeth were suffering, but stuck my head in the sand.? Too much to deal with.? I have Sjogren's Syndrome (among my many maladies).? It reduces saliva in the mouth and is devastating to teeth.? I have worked at a losing battle for so long.? My dentist that worked with me so closely got breast cancer and has never returned to her practice.? I have already lost one tooth since she left and now there are 4 more that have to come out.? Some are so bad that the dentist and oral surgeon think it should precede the other procedures.? The docs are talking now.? > > Then today I got up with a bloody nose that has not stopped.? I have spent the day with toilet paper in my nose.? It will not stop.? They have my blood so thinned.? It is just scarry.? Too darn much going on.? I want it all to be over.? > > I am being a big baby, but I am asking for your prayers anyway.? Ginger's prayer says, " Lord make me brave, much braver than this " .? That is my prayer.? For bravery in the face of too many arrows striking at one time.? Enough already! ? > > Hugs, Joyce D. > Pulmonary Fibrosis 1997??? Bronchiectasis 2004??? Pulmonary Hypertension 2008 ? Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc)? Rejected for Transplant 2006? > .....I will not forget you.? Behold, I have engraved you on the palm of my hands.? Isaiah 49: 15-16 > > > > > > ________________________________________________________________________ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment ? with a Canadian perspective. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Hugs and prayers for you Joyce. How frightening that must be to not be able to get your nose to stop bleeding! And it must be painful to lose the filling. 4 teeth? Yuck and double yuck. Maybe tomorrow will be better for you. Try to rest. S, Lubbock, TX NSIP w/PF Celiac type 2 diab > > > Hi to anyone who will listen to me whine, > > As you all know, I am waiting on a call to go back to the hospital for > more bloody adventures. > > Well, my day started yesterday by a big filling falling out of my > tooth. I knew my teeth were suffering, but stuck my head in the sand. > Too much to deal with. I have Sjogren's Syndrome (among my many > maladies). It reduces saliva in the mouth and is devastating to teeth. > I have worked at a losing battle for so long. My dentist that worked > with me so closely got breast cancer and has never returned to her > practice. I have already lost one tooth since she left and now there > are 4 more that have to come out. Some are so bad that the dentist and > oral surgeon think it should precede the other procedures. The docs are > talking now. > > Then today I got up with a bloody nose that has not stopped. I have > spent the day with toilet paper in my nose. It will not stop. They > have my blood so thinned. It is just scarry. Too darn much going on. > I want it all to be over. > > I am being a big baby, but I am asking for your prayers anyway. > Ginger's prayer says, " Lord make me brave, much braver than this " . That > is my prayer. For bravery in the face of too many arrows striking at > one time. Enough already! > > Hugs, Joyce D. > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension > 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) > Rejected for Transplant 2006 > .....I will not forget you. Behold, I have engraved you on the palm of > my hands. Isaiah 49: 15-16 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Dear Lord, Please help my new friend Joyce who needs you right now to be with her and comfort her, and strengthen her. Father you know that we who are on earth need to know that you are with us. Show her Lord in a mighty way that you are right there beside her. Father, we are trusting you to show her your power. In the name of Jesus. lsmith7892006 wrote: Hugs and prayers for you Joyce.How frightening that must be to not be able to get your nose to stop bleeding! And it must be painful to lose the filling.4 teeth? Yuck and double yuck.Maybe tomorrow will be better for you. Try to rest. S, Lubbock, TXNSIP w/PF Celiac type 2 diab>> > Hi to anyone who will listen to me whine,> > As you all know, I am waiting on a call to go back to the hospital for> more bloody adventures.> > Well, my day started yesterday by a big filling falling out of my> tooth. I knew my teeth were suffering, but stuck my head in the sand. > Too much to deal with. I have Sjogren's Syndrome (among my many> maladies). It reduces saliva in the mouth and is devastating to teeth. > I have worked at a losing battle for so long. My dentist that worked> with me so closely got breast cancer and has never returned to her> practice. I have already lost one tooth since she left and now there> are 4 more that have to come out. Some are so bad that the dentist and> oral surgeon think it should precede the other procedures. The docs are> talking now.> > Then today I got up with a bloody nose that has not stopped. I have> spent the day with toilet paper in my nose. It will not stop. They> have my blood so thinned. It is just scarry. Too darn much going on. > I want it all to be over.> > I am being a big baby, but I am asking for your prayers anyway. > Ginger's prayer says, "Lord make me brave, much braver than this". That> is my prayer. For bravery in the face of too many arrows striking at> one time. Enough already!> > Hugs, Joyce D.> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension> 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) > Rejected for Transplant 2006> .....I will not forget you. Behold, I have engraved you on the palm of> my hands. Isaiah 49: 15-16> K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14 You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 beautiful Love and Prayers, Peggy"Worry looks around, Sorry looks back,  Faith looks up." Dear Lord,Please help my new friend Joyce who needs you right now to be with her and comfort her, and strengthen her.  Father you know that we who are on earth need to know that you are with us. Show her Lord in a mighty way that you are right there beside her.  Father, we are trusting you to show her your power.In the name of Jesus. lsmith7892006 <lbsmith789sbcglobal (DOT) net> wrote:Hugs and prayers for you Joyce.How frightening that must be to not be able to get your nose to stop bleeding! And it must be painful to lose the filling.4 teeth? Yuck and double yuck.Maybe tomorrow will be better for you. Try to rest. S, Lubbock, TXNSIP w/PF Celiac type 2 diab>> > Hi to anyone who will listen to me whine,> > As you all know, I am waiting on a call to go back to the hospital for> more bloody adventures.> > Well, my day started yesterday by a big filling falling out of my> tooth. I knew my teeth were suffering, but stuck my head in the sand. > Too much to deal with. I have Sjogren's Syndrome (among my many> maladies). It reduces saliva in the mouth and is devastating to teeth. > I have worked at a losing battle for so long. My dentist that worked> with me so closely got breast cancer and has never returned to her> practice. I have already lost one tooth since she left and now there> are 4 more that have to come out. Some are so bad that the dentist and> oral surgeon think it should precede the other procedures. The docs are> talking now.> > Then today I got up with a bloody nose that has not stopped. I have> spent the day with toilet paper in my nose. It will not stop. They> have my blood so thinned. It is just scarry. Too darn much going on. > I want it all to be over.> > I am being a big baby, but I am asking for your prayers anyway. > Ginger's prayer says, "Lord make me brave, much braver than this". That> is my prayer. For bravery in the face of too many arrows striking at> one time. Enough already!> > Hugs, Joyce D.> Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension> 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) > Rejected for Transplant 2006> .....I will not forget you. Behold, I have engraved you on the palm of> my hands. Isaiah 49: 15-16> KCentral IlHubby ipf- 2006As for me and my house, we will serve the Lord 14You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2008 Report Share Posted April 3, 2008 Joyce, I will always be glad to listen to you...whining or not...happy or sad...I care not as long as you are posting! Oh, well, I mean I CARE how you feel, but..oh heck, you KNOW what I mean! I am in complete understanding of your teeth situation. My sjogrens is also doing a number on my teeth. I have at this moment 3 that need root canals and one that probably just needs to be pulled...and have already lost 3 to being pulled. Blegh!!! I didn't know Ginger, but I like that prayer. I will use it, a lot. And anyone who has dealt with a bloody nose all day has the perfect right to whine...how frustrating that must be! I pray that Friday is a much better day. And that your teeth will be fixed painlessly. And definitely I pray that your nose has stopped its nonsense and let you alone.... And I hope you can feel the big hugs being sent to you all the way from Texas! Babs > > > Hi to anyone who will listen to me whine, > > As you all know, I am waiting on a call to go back to the hospital for > more bloody adventures. > > Well, my day started yesterday by a big filling falling out of my > tooth. I knew my teeth were suffering, but stuck my head in the sand. > Too much to deal with. I have Sjogren's Syndrome (among my many > maladies). It reduces saliva in the mouth and is devastating to teeth. > I have worked at a losing battle for so long. My dentist that worked > with me so closely got breast cancer and has never returned to her > practice. I have already lost one tooth since she left and now there > are 4 more that have to come out. Some are so bad that the dentist and > oral surgeon think it should precede the other procedures. The docs are > talking now. > > Then today I got up with a bloody nose that has not stopped. I have > spent the day with toilet paper in my nose. It will not stop. They > have my blood so thinned. It is just scarry. Too darn much going on. > I want it all to be over. > > I am being a big baby, but I am asking for your prayers anyway. > Ginger's prayer says, " Lord make me brave, much braver than this " . That > is my prayer. For bravery in the face of too many arrows striking at > one time. Enough already! > > Hugs, Joyce D. > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension > 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) > Rejected for Transplant 2006 > .....I will not forget you. Behold, I have engraved you on the palm of > my hands. Isaiah 49: 15-16 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 Joyce, you are not whining, but sharing how when things pile up they make you want to implode...Joe's attitude has been to make a comment under his breath to me when something upsets him. For example, waiting in line to check out at a store and some idiot in front of us starts putting items back in the cart Joe will say doesn't she know I have a fatal disease and I cannot wait all day? And I have had a 2 week bronchitis episode and when I would say how bad I felt, Joe would say I know what you mean but I am dying. So we try to make light of it in conversation between us and now I will say something like I know I am not dying, but my knee is killing me and is so swollen I have to get off it. MRI for me today....so come here when ever, for whatever, and know that you are relating to a lot of people... Hugs, Joanie husband 1/08 IPF -- My Not so Great News Hi to anyone who will listen to me whine, As you all know, I am waiting on a call to go back to the hospital for more bloody adventures. Well, my day started yesterday by a big filling falling out of my tooth. I knew my teeth were suffering, but stuck my head in the sand. Too much to deal with. I have Sjogren's Syndrome (among my many maladies). It reduces saliva in the mouth and is devastating to teeth. I have worked at a losing battle for so long. My dentist that worked with me so closely got breast cancer and has never returned to her practice. I have already lost one tooth since she left and now there are 4 more that have to come out. Some are so bad that the dentist and oral surgeon think it should precede the other procedures. The docs are talking now. Then today I got up with a bloody nose that has not stopped. I have spent the day with toilet paper in my nose. It will not stop. They have my blood so thinned. It is just scarry. Too darn much going on. I want it all to be over. I am being a big baby, but I am asking for your prayers anyway. Ginger's prayer says, "Lord make me brave, much braver than this". That is my prayer. For bravery in the face of too many arrows striking at one time. Enough already! Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2008 Report Share Posted April 4, 2008 joyce poor you. i wont say i know how you feel cos i dont. i'm just sorry that the side effects of meds are so bad. i've never had nose bleeds believe it or not but my daughter used to get them a lot when she was younger and it was always frightening. she just coped and i panic'd.... may uip 0606 glasgow scotland > > > Hi to anyone who will listen to me whine, > > As you all know, I am waiting on a call to go back to the hospital for > more bloody adventures. > > Well, my day started yesterday by a big filling falling out of my > tooth. I knew my teeth were suffering, but stuck my head in the sand. > Too much to deal with. I have Sjogren's Syndrome (among my many > maladies). It reduces saliva in the mouth and is devastating to teeth. > I have worked at a losing battle for so long. My dentist that worked > with me so closely got breast cancer and has never returned to her > practice. I have already lost one tooth since she left and now there > are 4 more that have to come out. Some are so bad that the dentist and > oral surgeon think it should precede the other procedures. The docs are > talking now. > > Then today I got up with a bloody nose that has not stopped. I have > spent the day with toilet paper in my nose. It will not stop. They > have my blood so thinned. It is just scarry. Too darn much going on. > I want it all to be over. > > I am being a big baby, but I am asking for your prayers anyway. > Ginger's prayer says, " Lord make me brave, much braver than this " . That > is my prayer. For bravery in the face of too many arrows striking at > one time. Enough already! > > Hugs, Joyce D. > Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension > 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) > Rejected for Transplant 2006 > .....I will not forget you. Behold, I have engraved you on the palm of > my hands. Isaiah 49: 15-16 > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.