Re: Re: reaction to enbrel

[Guest guest]

Hi ,

Sorry I didn't get back to you yesterday. I had my 2nd injection and had to go

to bed. My temp. just seemed to drop within half an hour and I was shaking, then

I became very fatigued and just slept. My husband called the dr out, but

apparently this does happen and to see how I was today. My temp. is back to

normal but I'm still fatigued.

 

Dr. said as you said, that some people get a bit worse before they get the

benefit. At least this time I haven't got the sore throat and flu like symptoms.

It's onwards and upwards, we've got to stay positive and focused. A bit of

quality to our lives is not a lot to ask.

 

How did you get on with your 2nd injection? Aren't we lucky to be able to share

all this with like minded caring people.

I hope you are ok and I'm thinking of you.

Best wishes

x  

From: Sauve <moniquesauve@...>

Subject: [ ] Re: reaction to enbrel

Date: Friday, 20 March, 2009, 8:12 PM

thanks barbara. i did call and left a message with recept. she said he

would call if concerned. he didn't so will proceed with shot on sat. it

seems some feel worse on enbrel b/f they feel better so hopefully that

is what is happening with me.

monique

Hi :

Sorry to read that you aren't feeling so good after your shot. I hope

that is temporary, and that you will feel better tomorrow. Did you call

your Rheumy yet? It might be a good idea to let him/her know what is

going on with you.

Wishing you better days ahead. Please rest when you can.

Hugs,

Barbara

[Guest guest]

Hello ,

 

Sorry to hear that you felt worst after the shot.  How are you feeling today? 

Any fever?  Also, are you taking additional meds along with the Enbrel?   

 

The Enbrel could be giving you that sore throat but stress and anxiety will

definitely make it worst. I wound up with a sore throat as well but I noticed it

the week after my first Enbrel shot.  I didn't have a fever so I rode it out.

When I saw my rheumy he wound up sending me to an ear throat and nose specialist

to make sure I didn't have sores and rule out strep throat.  He found no strep

and no sores which was good news.  But I went back after feeling no relief. 

Turns out that my anxiety level was causing the tightness and soreness in my

throat.   He prescribed an anxiety medicine and thank God I feel fine now.  I

freak out over any meds I take these days, including vitamins, so it made sense

that the anxiety was making the throat soreness worst.

 

Did your doctor call you back?  What did he/she say? 

 

...    

From: Sauve <moniquesauve@...>

Subject: [ ] Re: reaction to enbrel

Date: Friday, March 20, 2009, 4:12 PM

thanks barbara. i did call and left a message with recept. she said he

would call if concerned. he didn't so will proceed with shot on sat. it

seems some feel worse on enbrel b/f they feel better so hopefully that

is what is happening with me.

monique

Hi :

Sorry to read that you aren't feeling so good after your shot. I hope

that is temporary, and that you will feel better tomorrow. Did you call

your Rheumy yet? It might be a good idea to let him/her know what is

going on with you.

Wishing you better days ahead. Please rest when you can.

Hugs,

Barbara

[Guest guest]

Hi ,

Had a better day today. It is Mothers day here in the UK. My son and his wife

and 5 year old grandaughter came with cards and flowers, that was better than

any medication. I also got an email from my other son in Afghanistan, and he is

coming home next month. So to all you mums, Happy Mothers Day. To anyone with

someone in Afghanistan /Iraq, I pray they all come home safe and well.

 To anyone who has lost a loved one, I send you my love and my constant thoughts

and prayers.

Love and best wishes

. x

From: Sauve <moniquesauve@...>

Subject: [ ] Re: reaction to enbrel

Date: Sunday, 22 March, 2009, 5:27 PM

hi thanks all of you for good wishes. 2nd inj was thankfully uneventful.

whew! nothing different today. not even an inj site reaction!! yay! now

if only it will help the arthritis. gotta give it time i know.

sarah - i hope you are feeling better. sorry to hear you felt sick after

2nd inj. hopefully your body wil get used to it and it will help you.

gentle hugs

monique

[Guest guest]

Hi!

 

I was worried about you!  (phew).......but I'm glad you're doing better and

you're 2nd shot was an uneventful one!  And yes....I am the worst person when it

comes to taking meds!  I literally have given myself panic attacks because it! 

lol...It's horrible...but I'm glad I can laugh about it now.  As for the white

coated tongue...not sure if that could be the Enbrel.  My gums on each side of

my mouth had turned white though after the 1st shot...but that subsided and

they're pink again. I drink tons of water though because my mouth can get really

dry when I'm sleeping....so I keep two bottles of water on my nightstand...I've

mastered walking to the bathroom and finding the toilet with my eyes closed now

because of it!  Grrrr.. I too am a walking pharm....I was already one to begin

with, but now....I look like an actual pharmaceutical plant!  I take folic

acids, strovite vitamins, glucosomine chondroitin, anxiety med, ambien cr, and

my

motrin.  Amazing how many pills we have to take just so that we can have a few

hours of feeling normal without pain. 

 

How long have you been battling RA? 

From: Sauve <moniquesauve@...>

Subject: [ ] Re: reaction to enbrel

Date: Sunday, March 22, 2009, 1:29 PM

good to hear that i'm not the only one who freaks out over taking meds.

seems like i am a walking pharm these days though. enbrel, cortisone,

morphine. yoikes. ah well better than being in agony right?

doc didn't call back so i guess it was no big deal. i feel fine now

anyway. i wake up each am though with white coated tongue and chalky

cotton taste. is that the morphine?

thanks

monique

The Enbrel could be giving you that sore throat but stress and anxiety

will definitely make it worst. I wound up with a sore throat as well but

I noticed it the week after my first Enbrel shot. I didn't have a fever

so I rode it out. When I saw my rheumy he wound up sending me to an ear

throat and nose specialist to make sure I didn't have sores and rule out

strep throat. He found no strep and no sores which was good news. But

I went back after feeling no relief. Turns out that my anxiety level

was causing the tightness and soreness in my throat. He prescribed an

anxiety medicine and thank God I feel fine now. I freak out over any

meds I take these days, including vitamins, so it made sense that the

anxiety was making the throat soreness worst.

Did your doctor call you back? What did he/she say?