Always in pain?

[Guest guest]

Hi all, Well actually, I want to know the same thing as Leanne.... I know there

are varying degrees of relief that people achieve on the meds, but when does the

pain end ? I guess this group is for those who are struggling to some extent

and need support. Maybe there are some out there who get total pain relief on

meds and thats why we never hear from them ? Lucky them !

I don't want to be around for long either, if I have to live the way I am now.

I took the meds and I feel worse than if I hadn't. I hope it gets better. Am I

the only one feeling alone and hopeless ? I keep praying to God that he would

let me be anyone else on this planet except me. What a totally desolating

disease to get !! Worse than cancer in my opinion... at least with cancer you

either die or get better.

I hope I can somehow grow stronger from all this, and not fall into a sad and

sorry, useless heap of (whatever;). Sorry about the whinge.

Leonie

>

> Hi all.

>

> Is there such a thing as being pain-free with this disease? I'm not quite 45

years old, and seriously, if this is what it's going to be like for the rest of

my days, I don't want to have too many of them.

>

> I hurt all the time. When I wake up, when I go to bed, in the middle of the

night and all day long. Sometimes it's worse than others, but I hurt when I

move and I hurt when I don't move.

>

> Currently I'm taking prednisone (down to 4mg) and Plaquenil (400mg) and

Tylenol arthritis as needed. I pretty much can't sleep without two of the

Tylenol, and I try not to take it during the day. I can't take

anti-inflammatories because I also have kidney disease. I am also an

insulin-dependent Type II diabetic, thanks in part to prednisone.

>

> I see my rheumy for the third time this coming Friday. What do I tell him?

What do I ask him? I can't go on like this forever. I'm miserable, I'm not

myself, and I'm sure my family doesn't like me much either.

>

> Thanks for listening.

>

> Leanne

>

[Guest guest]

I will be watching for responses for this post with baited breath. As I

could have been witting it myself except for the kidney problem you have

described me perfectly.

Please know that you aren't alone and hopefully we get some good feedback.

There has been times I've asked my husband to please shoot me!

You're friend in pain,

LISA

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

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[Guest guest]

hi leanne

sorry to hear of your pain. you shouldn't have that much pain. tell him

you need more meds. maybe mtx is the next step for you if the disease is

better controlled you shouldn't need to many painkillers prednisone.

feel better

monique

[Guest guest]

Hi ,

I'm so sorry I didn't see your message til after I'd replied to Leanne & Lonie.

If you care to read that as including you too.

x

From: Normsgrl@... <Normsgrl@...>

Subject: [ ] Re:Always in pain?

Date: Sunday, 22 March, 2009, 4:16 PM

I will be watching for responses for this post with baited breath. As I

could have been witting it myself except for the kidney problem you have

described me perfectly.

Please know that you aren't alone and hopefully we get some good feedback.

There has been times I've asked my husband to please shoot me!

You're friend in pain,

LISA

************ **A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola. com/promoclk/ 100126575x122068 5763x1201394209/ aol?redir=

http:%2F% 2Fwww.freecredit report.com% 2Fpm%2Fdefault. aspx%3Fsc% 3D668072%

26hmpgID

%3D62%26bcd% 3DMarchfooterNO6 2)