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RE: Re: Could clogged ears be from CCSVI ?

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Same here Mike. My neck, running down from my ear to my collar bone also

hurts constantly. It's very different from getting a stiff neck, usually at

the top of the spine, due to stress.

And my ears have been tested ... there is no wax, etc. involved with the

clogging sensation. I was just told it was due to ms damaging the nerves.

Happy holidays back at you :)

Cait

On Tue, Dec 7, 2010 at 8:36 AM, Macchiarella <

mmacchiarella@...> wrote:

>

>

> I can tell you with a fair amount of confidence that in the past year (had

> MS since '06) I've noticed a clogging in my ears at times. My hearing is

> affected dramatically during these spells. I also suffer from severe stiff

> necks. The two seem to happen simultaneously more often than not. Now I

> think stress is a factor but I can tell you if I get worked up the first

> thing to be affected is my stiff neck. oddly at random times if talking to

> someone my ears clog and my neck gets very stiff.

> I was Liberated via angio on Dec 3rd so I'm patiently anxious to see some

> remittance of these issues. Your not alone. Whether the two are connected

> to CCSVI is a great question. Time will tell.

> Best wishes and Happy Holidays!

>

> Mike Macchiarella

>

>

>

>

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Hi, I am always quiet but I am jumping in here.  My neck hurts from the back of

my head down to my mid back.  My ear has pressure in it and has had it for

years.   I do have ringing in the ears.  No one has ever told me why.  My

cholesterol level has always been good so if so is it still possible to need

ccsvi?  More recently I am having increased numbeness in my neck, back,

shoulders, head, face, arms.  The neuro's nurse says the lesions in my neck

shouldn't cause neck pain.  When I flare the neck pain gets worse.  Any ideas.

________________________________

To: mscured

Sent: Tue, December 7, 2010 3:54:12 PM

Subject: Re: Re: Could clogged ears be from CCSVI ?

 

Same here Mike. My neck, running down from my ear to my collar bone also

hurts constantly. It's very different from getting a stiff neck, usually at

the top of the spine, due to stress.

And my ears have been tested ... there is no wax, etc. involved with the

clogging sensation. I was just told it was due to ms damaging the nerves.

Happy holidays back at you :)

Cait

On Tue, Dec 7, 2010 at 8:36 AM, Macchiarella <

mmacchiarella@...> wrote:

>

>

> I can tell you with a fair amount of confidence that in the past year (had

> MS since '06) I've noticed a clogging in my ears at times. My hearing is

> affected dramatically during these spells. I also suffer from severe stiff

> necks. The two seem to happen simultaneously more often than not. Now I

> think stress is a factor but I can tell you if I get worked up the first

> thing to be affected is my stiff neck. oddly at random times if talking to

> someone my ears clog and my neck gets very stiff.

> I was Liberated via angio on Dec 3rd so I'm patiently anxious to see some

> remittance of these issues. Your not alone. Whether the two are connected

> to CCSVI is a great question. Time will tell.

> Best wishes and Happy Holidays!

>

> Mike Macchiarella

>

>

>

>

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Share on other sites

Cholesterol has nothing to do with it. (My cholesterol levels have always been

very low.)

The CCSVI'd veins are usually narrowed, twisted or malformed in some way which

is very different to clogged arteries.

Wait for to jump in here, as I am sure she will, who knows far more

about CCSVI than I do.

Janet

To: mscured

From: yourbeamofsunshine@...

Date: Tue, 7 Dec 2010 21:15:39 -0800

Subject: Re: Re: Could clogged ears be from CCSVI ?

Hi, I am always quiet but I am jumping in here. My neck hurts from the back of

my head down to my mid back. My ear has pressure in it and has had it for

years. I do have ringing in the ears. No one has ever told me why. My

cholesterol level has always been good so if so is it still possible to need

ccsvi? More recently I am having increased numbeness in my neck, back,

shoulders, head, face, arms. The neuro's nurse says the lesions in my neck

shouldn't cause neck pain. When I flare the neck pain gets worse. Any ideas.

________________________________

To: mscured

Sent: Tue, December 7, 2010 3:54:12 PM

Subject: Re: Re: Could clogged ears be from CCSVI ?

Same here Mike. My neck, running down from my ear to my collar bone also

hurts constantly. It's very different from getting a stiff neck, usually at

the top of the spine, due to stress.

And my ears have been tested ... there is no wax, etc. involved with the

clogging sensation. I was just told it was due to ms damaging the nerves.

Happy holidays back at you :)

Cait

On Tue, Dec 7, 2010 at 8:36 AM, Macchiarella <

mmacchiarella@...> wrote:

>

>

> I can tell you with a fair amount of confidence that in the past year (had

> MS since '06) I've noticed a clogging in my ears at times. My hearing is

> affected dramatically during these spells. I also suffer from severe stiff

> necks. The two seem to happen simultaneously more often than not. Now I

> think stress is a factor but I can tell you if I get worked up the first

> thing to be affected is my stiff neck. oddly at random times if talking to

> someone my ears clog and my neck gets very stiff.

> I was Liberated via angio on Dec 3rd so I'm patiently anxious to see some

> remittance of these issues. Your not alone. Whether the two are connected

> to CCSVI is a great question. Time will tell.

> Best wishes and Happy Holidays!

>

> Mike Macchiarella

>

>

>

>

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Share on other sites

Have you had testing for CCSVI yet? That would be the first step I'd reckon.

Next, stop listening to your Neuro and his nurse if they're closed-minded to

CCSVI.

Get tested and do your own research so YOU are in control of making your

decisions (financially AND otherwise).

Also everyone, whilst yes, the things you're bringing up could have a

relationship or could be worsened by us having a predisposition for CCSVI, but

let's also remember that sore necks can be caused by many things - injured

muscles, dislocaed vertebrae etc etc - even injuries you thought were 'just a

sprain' or 'nothing to worry about'.

I'm not trying to be a nay-sayer, just trying to get people to NOT jump to

conclusions!! :)

CCSVI is NOT a 'cure all' and will NOT fix all of everyone's problems and aches

and pains.

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: yourbeamofsunshine@...

Date: Tue, 7 Dec 2010 21:15:39 -0800

Subject: Re: Re: Could clogged ears be from CCSVI ?

Hi, I am always quiet but I am jumping in here. My neck hurts from the back of

my head down to my mid back.

..

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