Guest guest Posted December 7, 2010 Report Share Posted December 7, 2010 run, don't walk, to at least do the doppler ultrasound. if you have ms you most likely will have ccsvi. catch it early before the disease robs you of your quality of life...to heck with the cost. i think the ultrasound isn't the expensive part. if you have insurance it might even cover it. Curious - CCSVI hey everyone, i am very interested in this procedure. im 24 years old and i had 63 symptoms of MS before i had my amalgams removed. my great grandmother died of MS but i have never been diagnosed. i now have maybe 20 symptoms. the chronic fatigue and weakness cause me much distress. i am looking to start the andy cutler chelation protocol soon. as for the CCSVI, does insurance cover this procedure at all in the US? how much does it cost on average? what are the potential side effects and what side effects have you experience? do you have to have a formal MS diagnosis to receive the procedure? thanks kindly for the feedback. aerika Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2010 Report Share Posted December 7, 2010 thank you. the cost is what i'm worried about solely for the fact that i live on 700 a month and my rent is 400. will they do it and bill you or is it out of pocket? did you have it done? what kinds of things will they do to diagnose ms? thanks again!! > > run, don't walk, to at least do the doppler ultrasound. if you have ms you > most likely will have ccsvi. catch it early before the disease robs you of > your quality of life...to heck with the cost. i think the ultrasound isn't > the expensive part. if you have insurance it might even cover it. > > > > > > > > > Curious - CCSVI > > > > > > hey everyone, i am very interested in this procedure. im 24 years old > and i had 63 symptoms of MS before i had my amalgams removed. my great > grandmother died of MS but i have never been diagnosed. i now have > maybe 20 symptoms. the chronic fatigue and weakness cause me much > distress. i am looking to start the andy cutler chelation protocol > soon. as for the CCSVI, does insurance cover this procedure at all in > the US? how much does it cost on average? what are the potential side > effects and what side effects have you experience? do you have to have > a formal MS diagnosis to receive the procedure? thanks kindly for the > feedback. aerika > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2010 Report Share Posted December 7, 2010 Aerika, Try to make sure you get the procedure done as close to home as possible! I hope the information that I sent you gives you more inormation about CCSVI and some trustworthy information about where/how best to get it done. Just ensure that you study it all and know the ins and outs of the procedure back-to-front so you know EVERYTHING about it. Research the doctor once you've decided on where you're getting it done and who'll be scanning and actually doing the procedure. It's important that YOU know all that will be done and that you also give your doctors your FULL medical history. Don't leave anything out and ask all the questions of them you can regarding everything!! Maybe it's just MY way (and I AM a bit of a 'control freak') but I knew absolutely EVERYTHING and asked a million questions in order to prove to myself that the person who was doing my procedure was as good as he'd been said to be. My procedure went without a hitch and I am REALLY happy with my result. Complications seem to only arise when people don't know enough, or when they withold their personal medical information - so make sure you educate yourself and educate your doctor about you too! You'll be fine I'm sure. 'What we do in life, echoes through eternity.' MARCUS AURELIUS (121 - 180 A.D.) To: mscured From: DSP592@... Date: Tue, 7 Dec 2010 18:14:27 -0500 Subject: Re: Curious - CCSVI run, don't walk, to at least do the doppler ultrasound. if you have ms you most likely will have ccsvi. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2010 Report Share Posted December 7, 2010 thank you for all the information rachael! i appreciate it. i dont have internet at my home but i will study it as soon as i can get to the library. -aerika. > > Aerika, > Try to make sure you get the procedure done as close to home as possible! > I hope the information that I sent you gives you more inormation about CCSVI > and some trustworthy information about where/how best to get it done. > > Just ensure that you study it all and know the ins and outs of the procedure > back-to-front so you know EVERYTHING about it. Research the doctor once > you've decided on where you're getting it done and who'll be scanning and > actually doing the procedure. It's important that YOU know all that will be > done and that you also give your doctors your FULL medical history. Don't > leave anything out and ask all the questions of them you can regarding > everything!! > > Maybe it's just MY way (and I AM a bit of a 'control freak') but I knew > absolutely EVERYTHING and asked a million questions in order to prove to > myself that the person who was doing my procedure was as good as he'd been > said to be. > > My procedure went without a hitch and I am REALLY happy with my result. > > Complications seem to only arise when people don't know enough, or when they > withold their personal medical information - so make sure you educate > yourself and educate your doctor about you too! You'll be fine I'm sure. > > > 'What we do in life, echoes through eternity.' > MARCUS AURELIUS (121 - 180 A.D.) > > > > > > > To: mscured > From: DSP592@... > Date: Tue, 7 Dec 2010 18:14:27 -0500 > Subject: Re: Curious - CCSVI > > > > > > > > run, don't walk, to at least do the doppler ultrasound. if you have ms you > most likely will have ccsvi. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2010 Report Share Posted December 8, 2010 From what I have heard many private health insurances in the U.S. are covering the procedure, for those of us in the U.S. with health insurance.. It is diagnosed and billed from the doctor's office as a venous blockage, not as a treatment for MS and hence an MS diagnosis is not needed. Usually the doctor's office can tell you beforehand for sure. I won't try it unless health insurance covers it and I am told that by the doc's office beforehand, especially given that the treatment does not work for everyone. As far as coverage outside the U.S., I'm not sure how that works. ________________________________ To: mscured Sent: Tue, December 7, 2010 7:03:15 PM Subject: Re: Curious - CCSVI  thank you. the cost is what i'm worried about solely for the fact that i live on 700 a month and my rent is 400. will they do it and bill you or is it out of pocket? did you have it done? what kinds of things will they do to diagnose ms? thanks again!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2010 Report Share Posted December 9, 2010 i did have it done and my dr billed my insurance and i paid the rest. Curious - CCSVI > > > > > > hey everyone, i am very interested in this procedure. im 24 years old > and i had 63 symptoms of MS before i had my amalgams removed. my great > grandmother died of MS but i have never been diagnosed. i now have > maybe 20 symptoms. the chronic fatigue and weakness cause me much > distress. i am looking to start the andy cutler chelation protocol > soon. as for the CCSVI, does insurance cover this procedure at all in > the US? how much does it cost on average? what are the potential side > effects and what side effects have you experience? do you have to have > a formal MS diagnosis to receive the procedure? thanks kindly for the > feedback. aerika > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2010 Report Share Posted December 10, 2010 , A couple things. You should get an MRI of your brain, neck and lumbar if you havent already done so. A diagnosis is important for you so get it. MS is frustrating enough all on its own. There's nothing more frustrating than fear of the unknown. Its hard enough to follow any of the natural therepies techniques discussed in here. Many folks don't see immediate results. Go into all these things with the knowledge you've been definitively diagnosed. This way when your asking yourself " is any of this stuff even working? " , you can't also say " I don't even know if I have MS " to confuse things and frustrate you furthur. Second, with an MS diagnosis I can tell you first hand it's difficult getting anywhere in medical circles let alone being undiagnosed on top of it. Third, its my belief that any facility you find in the US that is treating CCSVI is doing so with the understanding that their correcting a vascular abnormality. The minute the FDA has proof that it is being associated with MS the facility gets 86'd from doing the corrective procedure outside a study setting which is a whole other animal. I recommend to any1 out there looking to get treated to DO YOUR RESEARCH. Go on You Tube and see videos, read testimonials. GET TESTED for MS and CCSVI at a trained facility. Interventional Radiologists not Nuerologists are the ones to speak to about CCSVI. A nuero can diagnose MS. Hope that sheds a little light. -M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2010 Report Share Posted December 11, 2010 Picking up on just one part of this - how many health insurances are covering CCSVI in the US - they do the treatment granted, but there are many who throw people out after an hour or two. My advice is to stay prone for as long as you can. I was advised to lie on my back for 6 hours then another 6 lying and trying not to turn, not to fly for at least 3 days then a month of taking it easy with no exercise. Standing or lying is preferable to sitting. In that way you will let the groin incision heal properly and let the body find its new equilibrium. Taking it easy is what pays dividends. Janet PS In my 7th week since treatment, all my initial successes have stayed, and every day there are more. I can now walk a few steps with the walker every day but the exerise is hard (but worth it). To: mscured From: alansamston@... Date: Wed, 8 Dec 2010 09:47:23 -0800 Subject: Re: Curious - CCSVI From what I have heard many private health insurances in the U.S. are covering the procedure, for those of us in the U.S. with health insurance.. It is diagnosed and billed from the doctor's office as a venous blockage, not as a treatment for MS and hence an MS diagnosis is not needed. Usually the doctor's office can tell you beforehand for sure. I won't try it unless health insurance covers it and I am told that by the doc's office beforehand, especially given that the treatment does not work for everyone. As far as coverage outside the U.S., I'm not sure how that works. ________________________________ To: mscured Sent: Tue, December 7, 2010 7:03:15 PM Subject: Re: Curious - CCSVI thank you. the cost is what i'm worried about solely for the fact that i live on 700 a month and my rent is 400. will they do it and bill you or is it out of pocket? did you have it done? what kinds of things will they do to diagnose ms? thanks again!! Quote Link to comment Share on other sites More sharing options...
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