Sore feets and things

[Guest guest]

Hey all - do we all have sore, painful feet? I was diagnosed with fibro last

August (which means I've been sick for a few years), and my sore feet have

gradually gotten worse, along with most of my other symptoms. My locked up

shoulders that I thought might have been torn rotator cuffs

got well - later found out that my half sister had the exact same thing happen

with her shoulders. She " had " (?) fibro, now has Chronic Fatigue. Around the

time my shoulders were getting better, some one stuck an ice pick in my left hip

and left it there. That same fibro monster took a hammer to my feet and beats

the snot out of them every night while I'm asleep, so that I can barely walk the

next day. Waaahhhhhhh.

[Guest guest]

Hi ~ I totally have the sore feets! First thing in the morning is the worst!

Any ideas out there on how to make them feel better???? Kathy in NY

[Guest guest]

I get sore feet. Mine feels either like I've been running on concrete

(focused in the heel) or like I've got got a huge rock in my arch. I usually

get this before a flare up that's going to last a while.

Tami Brady in Calgary, Canada

>From: Fibromyalgia_Support_Group

>Reply-To: " No Reply " <notify-dg-Fibromyalgia_Support_Group >

>To: Fibromyalgia_Support_Group

>Subject: Digest Number 2921

>Date: 2 Jul 2006 08:23:57 -0000

>

>

>There are 14 messages in this issue.

>

>Topics in this digest:

>

>1. Re: New here: an Introduction-

> From: River DeHart

>

>2a. Re: New to Group

> From: supermommy76

>2b. Re: New to Group

> From: Misty Ling

>2c. Re: New to Group

> From: Lynn

>

>3. Re: New here: an Introduction

> From: um_naseem

>

>4. Had my surgery yesterday

> From: um_naseem

>

>5. People With Disabilities - Living In A " Normal World "

> From: poodiejoe

>

>6. Fwd: Blessed Day

> From: Kathleen

>

>7. sorry everyone

> From: Amber And Ruby

>

>8. Sore feets and things

> From: Sands

>

>9. File - Help With Yahoo Issues.rtf

> From: Fibromyalgia_Support_Group@...

>

>10. File - Posting to group reminders

> From: Fibromyalgia_Support_Group@...

>

>11. File - New Members READ!

> From: Fibromyalgia_Support_Group@...

>

>12. File - How to contact us

> From: Fibromyalgia_Support_Group@...

>

>

>Messages

>________________________________________________________________________

>

>1. Re: New here: an Introduction-

> Posted by: " River DeHart " riverdehart@... riverdehart1

> Date: Sat Jul 1, 2006 2:57 am (PDT)

>

>You're welcome, glad the day got better. I found that if I got through two

>weeks of the carb-cravings, without actually eating the carbs, I felt

>better (less pain, less fog), and the cravings became a mental thing rather

>than a physical thing. I still eat high quality carbs...like baked sweet

>potatoes, fruit, honey, a little real (100%) maple syrup, whole grain

>non-wheat breads. Well, I'm finding that really I can't do grains much at

>all without getting sick. But the cravings lessen with getting your body

>detoxed from the high sugar carbs: sugar, white potatoes, bread, pasta,

>etc. I still want these sometimes, but the wanting goes away if I look at

>what I really want (to feel better, comfort, sleep, food that's not carbs)

>and just acknowledge that I want it, but it won't really help. It also

>helps with dropping the excess weight. Carbs are worse than fat in your

>diet for weight gain, and making you feel sluggish.

>

> As far as the weight and endurance, they will most likely reverse

>themselves if you take good care of yourself...exercising enough without

>overdoing it. The overdoing***whatever***is what got many of us as sick as

>we are. We are, by and large, overachievers. Pushing a body with FM,

>whether its exercise, deep massage, the wrong meds, the wrong foods, or too

>much work, is just counter-productive. I think its amazing that you can run

>(RUN!) for two miles. I ran track in high school, and then told my story

>with my ex (happened in my late 20s). Through my thirties I pushed by

>working almost full-time and going to school anywhere from half to full

>time, and trying to have a social life too.

>

> Now, mostly I do school, but insist on being with friends at least every

>other weekend for at least half a day. Tomorrow I'm driving to a friend's

>mountain cabin about 45 minutes away (Blue Ridge mtns.) and sitting on

>their deck, watching a movie, or looking for fireworks going off across the

>mtns., working on my papers, talking, eating good food, and soaking in all

>the love I can. I may give her husband a massage, and if I have the energy,

>one for her too. I may bead a necklace for myself, or just play with the

>beads as I watch her do beadwork. Monday, when everyone else is headed out

>of town, I will go back into town and spend Tuesday writing and

>reading...if its not too hot, out in the garden. Yesterday as I sat on the

>patio working, a wren came down to get some seed that had spilled, just a

>few feet from where I sat. Before FM, I could never have sat quietly enough

>to have a wild animal get that close to me. Maybe that is a gift, learning

>to sit quietly, allowing the

> shy creatures to come close. Definitely learning to put my needs before a

>spouse's or friend's wants.

>

> A peaceful day to you,

> River Grace

>

>

>

> DeLoria wrote:

> Thank you for your support. Like I said, I started out having a bad day.

>As the day wore on, and I received a lot of welcomed support from this

>group, I started feeling better about things. My workload is still crazy -

>I'm a certified paralegal in a small law office and do primarily probate

>and estate planning work with an attorney that does mainly real estate,

>and I've got four probates closing *right now!!*, all at the same time.

>Feeling a little stressed.

>

>I managed to burn off a little stress with a 2-mile run during lunch,

>which helped my attitude some. DH is peeved because I'm up ten pounds from

>a year ago (putting me at about 165 on a 5'3 " frame - too darn high), and

>my endurance is less than half of what it was. We moved out to the

>rainforest in the Pacific NW mainly to be able to hike the mountains right

>from our backdoor, and we're now up to our jawlines in building a house.

>

>I guess I'm pretty lucky - my FM is pretty mild, and I rarely am sidelined

>for more than a day at a time. Now if I could just manage the brain fog &

>carb cravings!

>

>Thanks again.

>

>mary

>

>

>On Fri, 30 Jun 2006 17:13:12 -0700, River DeHart

>wrote:

>

> > You sound remarkably positive...

> > I have a comment for your husband. When he can climb inside your skin,

> > and feel what you feel, then he has the right to an opinion about you

> > increasing your running time. My ex thought I should lose weight, and

> > insisted that I run four miles a day, every day, and eight miles a day

> > on weekends. He insisted that I wear the Chuck s he bought me

> > 'cause he thought they were sexy. I now have plantar fascitis so bad

> > that I can't run at all, and haven't been hiking in three years.

> > Sometimes walking through the grocery store is too much, and just

> > walking to the door to let my cat out can be excruciating. Maybe your

> > husband should consider this, before he rags you any more about running.

> > Does he want a mildly plump wife who can take a stroll with him, or a

> > skinny wife who can't get herself to the bathroom?

> > OK, that was my rant for the day. I'm off my soapbox for now. My

> > apologies if I offended anyone with FM with that. Those of you who

> > " know " me know I get snarly when I have a paper due, and I have two due

> > Wednesday, plus four more short ones by the following Wednesday. What

> > was I thinking when I went back to school....?

> > River Grace

>

>

>

>

>

>

>1. While it is wonderful to share our experiences with everyone on the list

>as to what treatments do and don't work for us, pls always check with your

>dr. Some treatments are dangerous when given along with other meds as well

>as to certain health conditions or just dangerous in general.

>

>2. If you are in a difficult situation (doesn't matter what it is) pls

>don't be afraid to ask for help. It is the first step to trying to make

>that situation better.

>

>3. To unsubscribe the e-mail is:

>Fibromyalgia_Support_Group-unsubscribe

>

>4. Also, it is not uncommon for more than one member to be feeling bad at

>the same time when it comes to flares and b/c of that potentially take

>something another member says the wrong way. And that includes the things

>that one member may find funny (even if it's laughing at fibro itself) even

>though we who deal with illness whether one such as fibro or multiple

>illnesses try to keep a sense of humor.

>

>5. Pls let's be gentle with each other, and if you are having a bad day pls

>let us know so that we can do our best to offer our support.

>

>Have a nice day everyone.

>

>

[Guest guest]

The thing that helped me was buying wide width tennis shoes with a

little more cushioning than what I was used to before. I ended up

with a pair a L.A. Gear from Kohl's & it hasn't completely fixed the

problem with my feet but they are waaaaaaaaaaaaaaaaay better than

before. At least now I can wear shoes.

Amy

>

> Hi ~ I totally have the sore feets! First thing in the morning is

the worst!

> Any ideas out there on how to make them feel better???? Kathy in NY

>

>

>

[Guest guest]

Wow! I am SOOOO glad I joined this group. Every day is another

revelation. I have a BIG problem with sore feet. In the morning, there

are days I can barely walk on them when I get out of bed. Also, if I'm

sitting for any length of time, they get the same way. I thought it

was just arthritis, but maybe this is all connected to my fibro.....

Lynn in IL

[Guest guest]

I have been diagnosed with FMS for about 8 years, even though I

couldn't get anyone to do anything about it. Feet hurt every night

and morning, ankles feel like risens and toes cramp unless I wear

socks all the time. When my knees started hurting I could hardly

walk the PCD decided to send me to ortho as she was sure it was

something I would need surgery for. Two days before I was to go the

pain let up no more problems with knees. I have found out over the

years that all the pains everywhere is caused by the fibro flare

ups. What is really fun is when everything flares up at one time,

then the pain is whole body instead of one or the other place.

I have been in a flare up now for about four months with no relief

even though the doctor has me on duragesic patches. they just don't

help at all. If he doesn't increase them to 100mcg per 72 hours

then I want him to take me off them. I don't even know that the 100

will do any good.

Diane

>

> Hey all - do we all have sore, painful feet? I was diagnosed with

fibro last August (which means I've been sick for a few years), and

my sore feet have gradually gotten worse, along with most of my

other symptoms. My locked up shoulders that I thought might have

been torn rotator cuffs

> got well - later found out that my half sister had the exact same

thing happen with her shoulders. She " had " (?) fibro, now has

Chronic Fatigue. Around the time my shoulders were getting better,

some one stuck an ice pick in my left hip and left it there. That

same fibro monster took a hammer to my feet and beats the snot out

of them every night while I'm asleep, so that I can barely walk the

next day. Waaahhhhhhh.

>

>

>

[Guest guest]

Hi Diane,

I am so sorry to hear about your pain. I have been going thru the same thing

for about 6 months now. I have always had feet problems, pretty much since I

was 18 and working in a shoe store standing up 8 hours a day. I have had

several surgery's on both feet and nothing has ever helped. My knees have

always been a problem also. They will hurt so bad that I will go days without

being able to sleep. I hate pain pills and they way they make me feel so I

never take them. I have tried a couple of times but they knock me out and then

I feel worse when I wake up since I have been laying in the same position for to

long. It is such a horrible cycle that we all go thru.

I started PT 2 weeks ago because I have muscle weakness in my legs. At least

that what we think it is. I have not noticed much of a change, accept I now

have on my right foot a big swollen toe and I can't even step on my foot now.

The Dr's say I must have iterated the never and it should go down in a couple of

days. We are now on day 5 and still no change except for the pain is now going

up my leg and into my back. Luck Lucky me. LOL

I hope this will pass for you quickly and you can have some good days. I so

look forward to them.

Can I ask if you work? I have not been able to for 2 years now. I have filed

for SSD and should have my hearing in about 8 months. I still hope for a cure

before then.

Breault

disartain46 wrote:

I have been diagnosed with FMS for about 8 years, even though I

couldn't get anyone to do anything about it. Feet hurt every night

and morning, ankles feel like risens and toes cramp unless I wear

socks all the time. When my knees started hurting I could hardly

walk the PCD decided to send me to ortho as she was sure it was

something I would need surgery for. Two days before I was to go the

pain let up no more problems with knees. I have found out over the

years that all the pains everywhere is caused by the fibro flare

ups. What is really fun is when everything flares up at one time,

then the pain is whole body instead of one or the other place.

I have been in a flare up now for about four months with no relief

even though the doctor has me on duragesic patches. they just don't

help at all. If he doesn't increase them to 100mcg per 72 hours

then I want him to take me off them. I don't even know that the 100

will do any good.

Diane

>

> Hey all - do we all have sore, painful feet? I was diagnosed with

fibro last August (which means I've been sick for a few years), and

my sore feet have gradually gotten worse, along with most of my

other symptoms. My locked up shoulders that I thought might have

been torn rotator cuffs

> got well - later found out that my half sister had the exact same

thing happen with her shoulders. She " had " (?) fibro, now has

Chronic Fatigue. Around the time my shoulders were getting better,

some one stuck an ice pick in my left hip and left it there. That

same fibro monster took a hammer to my feet and beats the snot out

of them every night while I'm asleep, so that I can barely walk the

next day. Waaahhhhhhh.

>

>

>

[Guest guest]

Thanks for all the info. I actually had a bad bout with PF a few years ago

and did exercises and had a night splint. I wasn't thinking this was quite the

same thing. I'll try the exercised and splint and see if they help.

Kathy in NY

[Guest guest]

Hi folks...this sore foot thing is called plantar fascitis (PF). Plantar means

the bottom of the foot, fascia is the connective tissue that holds the bone,

muscle, tendon and all that together. Have you have cleaned a chicken and pulled

the skin off? That thin whitish membrane between the skin and muscle is fascia.

It runs throughout the body, through muscle tissue as well as around it. When it

gets tight it gets inflamed, and inflammation hurts (no...say it ain't so River

Grace) Yup. Its true. I've had PF for about sixteen years. Wearing shoes without

adequate support makes it worse...as does going barefoot. I have store-bought

orthotics that cost about $30 a pair that I replace the usual shoe inserts with,

they help some. Custom orthotics, made by a foot doctor or orthopedic doctor

cost $300 to $600 and can require buying special shoes to put them in.

What else helps? If you can tolerate ice on your feet, fill a one litre

plastic bottle (20 oz. is big enough, too) with water and freeze it. Then put it

on the floor and roll your foot over it, like one of those foot massage roller

things, with as much pressure as is comfortable for you. You can wear socks to

do this if its too cold on your foot, or better yet, put the sock on the water

bottle, then it won't stick to your foot as it thaws. If you like ice, you can

just take a cube and rub it directly on the bottom of your foot. If ice is too

intense, cool foot soaks with epsom salts can help. So can rubbing your feet

with Tiger Balm (at Wal-Mart, on the shelf near the Salonpas patches) I have

even slept with the patches stuck to my feet. When I get up in the morning,

before I put my feet down I gently stretch, by pulling my toes toward my head.

After getting up (and taking a potty break) I do calf stretches.

Massage or physical therapy helps. Heat usually isn't helpful, but the gentle

warmth of ultrasound therapy can feel great. OK, I'll take off my massage

therapist with FM/PF hat now. I hope some of this helps. PF, like FM, is a drag.

One more thing that I'm beginning to find helpful is called Somatic

Experiencing. Its a type of bodywork, but the practitioner doesn't have to even

touch you. I don't know how to do it, and have only had a couple of sessions,

but its helping with pain in general.

I do love you guys, even when I sound like a snotty pain in the a**.

River Grace

KAM1119@... wrote:

Hi ~ The sore feet are really a problem for me these days. Any ideas

on what

specifically causes it and what we can do? Kathy in NY

[Guest guest]

I didnt know sore feet went along with FM but maybe I need to check the

points. Someone at work has it and so far only in the knees. I have

pain across the top of my foot and it gets big. I do exercise like

roll my feet up so Im on my toes and back on my heal. I also get

cramps in my toes and upper feet and it really hurts. I do stand a lot

sometimes at work. I need to check it out with a dr and then it gets

better and I dont go. I wear a good shoe all the time.

I like this site Im new here but Ive been reading for awhile. I first

got this after a small wreck and I got worse when my Mom died. I

thought I had MS or something. I was lucky as my Dr knew what it was

after he eliminated all other things. I still dont get much help. I

took elavil gained weight so quit. I take flexeril at times. Mostly now

I just try to walk and take advil. I have been feeling better and this

summer our weather has changed so much it has been worse.

I also wondered if anyone has problems with balance. I have had this a

lot this summer. Thanks Janie

[Guest guest]

My son and I have terrible pain in our feet, worse when the Raynauds

decides to hit too. I just figured it was part of having so much along with

Fibro. MY doctors think its nerve damage thanks to the illnesses.

If any one hears more on this please let me know. I am talking so sore we

cant walk on some rubs, wearing shoes and walking on gravel still hurts.

Thank you

Christie

Fibro girl in Ohio USA

-- Re: Sore feets and things

I didnt know sore feet went along with FM but maybe I need to check the

points. Someone at work has it and so far only in the knees. I have

pain across the top of my foot and it gets big. I do exercise like

roll my feet up so Im on my toes and back on my heal. I also get

cramps in my toes and upper feet and it really hurts. I do stand a lot

sometimes at work. I need to check it out with a dr and then it gets

better and I dont go. I wear a good shoe all the time.

I like this site Im new here but Ive been reading for awhile. I first

got this after a small wreck and I got worse when my Mom died. I

thought I had MS or something. I was lucky as my Dr knew what it was

after he eliminated all other things. I still dont get much help. I

took elavil gained weight so quit. I take flexeril at times. Mostly now

I just try to walk and take advil. I have been feeling better and this

summer our weather has changed so much it has been worse.

I also wondered if anyone has problems with balance. I have had this a

lot this summer. Thanks Janie