Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 Someone once wrote that enbrel made them feel as though they didn't have RA anymore. Has that been your experience? And did/do you have any concerns about the possible side effects of the med? Sierra > > WOW... i had my appointment today and i was so excited, shoewed up an hour > > early.. *i waited patiently* ha ha ha > > well, anyway... this dr. roberts wa great... he spent over an hour with > > me... wanted to know everything and when and all.... > > he feels the best thing for me to do now that the mtrx has caused me liver > > problems... i should start taking plaquenil and enbrel... i started the > > plaquenil tonight and i had my TB test today and as soon as that is read and > > negative... i can start on the enbrel.... i am afraid to give MYSELF the > > shots... my husband said he can learn and my youngest daughter *going to > > school for RN degree* can give them to me... and maybe one day i will have > > nerve enough to give them my self... ) > > > > he siad he wants me down to 7 1/2 mgs of prednisone... i have been taking > > anywhere from 5 to 20.... so i will start cutting the 5's in half and sart > > taking 7 1/2... > > i forgot to ask how long does it take enbrel to start making you feel > > better?? he told me that plaquenil takes about 6-8 weeks for some relief > > and it does not really do too much... but any help is welcomed... > > > > i am so excited to hopefully start feeling better... soon... > > > > rae, in napa, ca > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 Hi , Sorry my reply is so late. Thanks for the encouragement. My derm actually has me on the MTX, and once I developed the bad chest cold, he had me stop taking the MTX until I was completely well. I am taking 6 pills a week currently. Tamara > > > Hi Tamara, > I was so so scared at the idea of injections...I can totally relate > to your fear. When I started it this past August, I had my husband > do it...within 2 weeks, the improvement was so dramatic that I > started to look forward to getting them. I was eager to see how far > my recovery would go. A month after starting the Enbrel my husband > had to go away for 2 weeks so I had to try it on my own. It > couldn't have been easier. To be completely honest though, since > changing to the 50 mg. shot, I haven't been able to do it myself. > It's not bad, just seems to sting a little more than the 2 25mgs. > I've yet to hear of one other person say this though so it's > probably just me. > > The last time I was at my Reum, my blood work was completely normal > and most importantly, I felt completely symptom free.....zero > psoriasis, zero joint pain. That was after being on Enbrel for 4 > months. > > Now I have a question for you, you mentioned going off the MTX at > one point b/c of a bad chest cold. I've been battling a bad chest > cold since mid December and can't get totally lose it. I had tried > skipping Enbrel a couple times but didn't think to skip the MTX. > Did your Reum. tell you to skip the MTX? Did skipping it help you > get better? I'm only on 7.5 mg. of the MTX but at this point, I'm > thinking I need to skip everything to start feeling better (and in > the meant time cross my fingers that I don't trigger the PA) > > Good luck ! You're going to love the Enbrel ! It totally gave me > my life back ! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 i have read all the side affects, but, i do not want to be all crippled up in a few years, eight... so i will take the chance.. and the really bad side affects are not all that common... i sure hope i fell like i do not have RA anymore...i will do a dance... for sure.. ) rae [ ] Re: Enbrel Someone once wrote that enbrel made them feel as though they didn't have RA anymore. Has that been your experience? And did/do you have any concerns about the possible side effects of the med? Sierra > > WOW... i had my appointment today and i was so excited, shoewed up an hour > > early.. *i waited patiently* ha ha ha > > well, anyway... this dr. roberts wa great... he spent over an hour with > > me... wanted to know everything and when and all.... > > he feels the best thing for me to do now that the mtrx has caused me liver > > problems... i should start taking plaquenil and enbrel... i started the > > plaquenil tonight and i had my TB test today and as soon as that is read and > > negative... i can start on the enbrel.... i am afraid to give MYSELF the > > shots... my husband said he can learn and my youngest daughter *going to > > school for RN degree* can give them to me... and maybe one day i will have > > nerve enough to give them my self... ) > > > > he siad he wants me down to 7 1/2 mgs of prednisone... i have been taking > > anywhere from 5 to 20.... so i will start cutting the 5's in half and sart > > taking 7 1/2... > > i forgot to ask how long does it take enbrel to start making you feel > > better?? he told me that plaquenil takes about 6-8 weeks for some relief > > and it does not really do too much... but any help is welcomed... > > > > i am so excited to hopefully start feeling better... soon... > > > > rae, in napa, ca > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 Good luck, on the Enbrel! Sometimes, meds don't work forever, then you might need to change meds. I have found, if you right your questions down on paper, it helps so much. So, when your there, you don't forget anything. Take care, T > > > I have RA amoung other ailments. I am about to go on Enbrel however, > the information I am reading states it is good for about 5 years. > What happens after that. I am only 45 and I surely hope I live > longer than that :-) Can anyone give me some info. I guess I don't > ask the right questions to my doctor and forget by the time I leave > as to what I was going to ask him. (could me the meds) > thank you for your assistance > > T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2005 Report Share Posted January 30, 2005 I've never read that. Where did you read it? I'm in my 6th year on enbrel and it's still helps. In 5 years, who knows what new treatments will be available? It would help if you wrote down questions for your doctor. It's common to forget when you're in with the doctor. a On Sat, 29 Jan 2005 22:49:38 -0000, tyeakey12041959 <tyeakey12041959@...> wrote: > > > I have RA amoung other ailments. I am about to go on Enbrel however, > the information I am reading states it is good for about 5 years. > What happens after that. I am only 45 and I surely hope I live > longer than that :-) Can anyone give me some info. I guess I don't > ask the right questions to my doctor and forget by the time I leave > as to what I was going to ask him. (could me the meds) > thank you for your assistance > > T. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 Hello a, thank you for your response. Well needless to say I must have read the info wrong. Over the weekend I did more research which helped me to understand Enbrel a little more. However, since you have been on it, does it really make you feel better? I have been told it takes away all the pain, stiffness, swelling and stops the damage RA does to your joints. I have been battling RA as well as other ailments for over 5 years now and I hope this will give me some relief. I am sure you know all about that. T. a <papola@...> wrote: I've never read that. Where did you read it? I'm in my 6th year on enbrel and it's still helps. In 5 years, who knows what new treatments will be available? It would help if you wrote down questions for your doctor. It's common to forget when you're in with the doctor. a On Sat, 29 Jan 2005 22:49:38 -0000, tyeakey12041959 <tyeakey12041959@...> wrote: > > > I have RA among other ailments. I am about to go on Enbrel however, > the information I am reading states it is good for about 5 years. > What happens after that. I am only 45 and I surely hope I live > longer than that :-) Can anyone give me some info. I guess I don't > ask the right questions to my doctor and forget by the time I leave > as to what I was going to ask him. (could me the meds) > thank you for your assistance > > T. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 THANK YOU FOR YOUR RESPONSE. I DID MORE RESEARCH INTO ENBREL THIS WEEKEND AND FOUND OUT A LOT MORE REGARDING THE DRUG. THIS IS MY FIRST TIME (BELIEVE IT OR NOT) TO EVER GO ON LINE AND TALK WITH OTHERS ABOUT RA. I HAVE BEEN DIAGNOSED WITH RA/FIBRO/CTS/ETC, ETC, ETC, FOR 6 YEARS NOW AND FINALLY DECIDED TO TALK TO OTHERS. I DO TALK TO FAMILY MEMBERS BUT AM VERY LIMITED TO WHAT I SAY PLUS WHEN YOU TALK TO SOMEONE WHO DOES NOT HAVE RA, IT IS VERY HARD FOR THEM TO UNDERSTAND. I HAVE A SISTER IN-LAW WHO TOLD ME TO GO ON-LINE YEARS AGO BUT UNFORTUNATELY MY HANDS WERE SO BAD IT WAS VERY HARD FOR ME TO TYPE AND IS STILL SOMEWHAT NOW. I JUST WANT TO THANK YOU AND EVERYONE ELSE. SOMETIMES IT IS NICE TO KNOW YOU ARE NOT THE ONLY ONE OUT THERE. T tdianaok <tdianaok@...> wrote: Good luck, on the Enbrel! Sometimes, meds don't work forever, then you might need to change meds. I have found, if you right your questions down on paper, it helps so much. So, when your there, you don't forget anything. Take care, T > > > I have RA among other ailments. I am about to go on Enbrel however, > the information I am reading states it is good for about 5 years. > What happens after that. I am only 45 and I surely hope I live > longer than that :-) Can anyone give me some info. I guess I don't > ask the right questions to my doctor and forget by the time I leave > as to what I was going to ask him. (could me the meds) > thank you for your assistance > > T. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 i sure hope it last for more thzn five years... nobody has told me that... i will ask my doctor when i see him.... rae Re: [ ] enbrel I've never read that. Where did you read it? I'm in my 6th year on enbrel and it's still helps. In 5 years, who knows what new treatments will be available? It would help if you wrote down questions for your doctor. It's common to forget when you're in with the doctor. a On Sat, 29 Jan 2005 22:49:38 -0000, tyeakey12041959 <tyeakey12041959@...> wrote: > > > I have RA amoung other ailments. I am about to go on Enbrel however, > the information I am reading states it is good for about 5 years. > What happens after that. I am only 45 and I surely hope I live > longer than that :-) Can anyone give me some info. I guess I don't > ask the right questions to my doctor and forget by the time I leave > as to what I was going to ask him. (could me the meds) > thank you for your assistance > > T. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 HI RAE, I GUESS I DID NOT READ THE INFO CAREFULLY ON ENBREL. YES IT DOES LAST LONGER THAN 5YRS. I HAVE SUFFERED WITH RA/FIBRO/CTS AND A NUMBER OF OTHER AILMENTS AS YOU WELL KNOW FOR MANY YEARS. SO STARTING ENBREL IS KIND OF EXCITING AND A BIT NERVE RACKING. (THE SHOTS) HOWEVER, I GIVE MYSELF SHOTS FOR ALLERGIES SO I THINK I WILL BE ABLE TO FOR ENBREL. THIS IS MY FIRST TIME WITH A SUPPORT GROUP AND IT IS PRETTY AMAZING HOW MANY OTHERS ARE GOING THROUGH OR WENT THROUGH THE THINGS I DID. I AM SO GLAD I FOUND RA SUPPORT EVERYONE HAS BEEN SO NICE. TY Rae Sandberg <Raes_Yorkies@...> wrote: i sure hope it last for more thzn five years... nobody has told me that... i will ask my doctor when i see him.... rae Re: [ ] enbrel I've never read that. Where did you read it? I'm in my 6th year on enbrel and it's still helps. In 5 years, who knows what new treatments will be available? It would help if you wrote down questions for your doctor. It's common to forget when you're in with the doctor. a On Sat, 29 Jan 2005 22:49:38 -0000, tyeakey12041959 <tyeakey12041959@...> wrote: > > > I have RA among other ailments. I am about to go on Enbrel however, > the information I am reading states it is good for about 5 years. > What happens after that. I am only 45 and I surely hope I live > longer than that :-) Can anyone give me some info. I guess I don't > ask the right questions to my doctor and forget by the time I leave > as to what I was going to ask him. (could me the meds) > thank you for your assistance > > T. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 Hi T. I am lucky that Enbrel has helped so much. We have many members that tried it and it did nothing, but we have others that it's helped a lot. No one can predict who it will work for or for how long it will work. Enbrel has been good to me, but I've still had progression of the disease, so it hasn't stopped it. I always know when it is time to take my enbrel because my joints tell me. I hope you are as lucky as I am. a On Mon, 31 Jan 2005 06:38:17 -0800 (PST), t y <tyeakey12041959@...> wrote: > > Hello a, thank you for your response. Well needless to say I must have > read the info wrong. Over the weekend I did more research which helped me > to understand Enbrel a little more. However, since you have been on it, > does it really make you feel better? I have been told it takes away all the > pain, stiffness, swelling and stops the damage RA does to your joints. I > have been battling RA as well as other ailments for over 5 years now and I > hope this will give me some relief. I am sure you know all about that. > T. > > > a <papola@...> wrote: > I've never read that. Where did you read it? I'm in my 6th year on > enbrel and it's still helps. In 5 years, who knows what new > treatments will be available? It would help if you wrote down > questions for your doctor. It's common to forget when you're in with > the doctor. > a > > > On Sat, 29 Jan 2005 22:49:38 -0000, tyeakey12041959 > <tyeakey12041959@...> wrote: > > > > > > I have RA among other ailments. I am about to go on Enbrel however, > > the information I am reading states it is good for about 5 years. > > What happens after that. I am only 45 and I surely hope I live > > longer than that :-) Can anyone give me some info. I guess I don't > > ask the right questions to my doctor and forget by the time I leave > > as to what I was going to ask him. (could me the meds) > > thank you for your assistance > > > > T. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2005 Report Share Posted January 31, 2005 ty... i am going to get my 2nd injection tomorrow.. i can hardly wait.. i think with each injection.. i am going to feel better.. i went to the gym today and got everything set up... i go back on wednesday and then i can get started..oh i hope i feel even better after the 2nd injection... rae Re: [ ] enbrel I've never read that. Where did you read it? I'm in my 6th year on enbrel and it's still helps. In 5 years, who knows what new treatments will be available? It would help if you wrote down questions for your doctor. It's common to forget when you're in with the doctor. a On Sat, 29 Jan 2005 22:49:38 -0000, tyeakey12041959 <tyeakey12041959@...> wrote: > > > I have RA among other ailments. I am about to go on Enbrel however, > the information I am reading states it is good for about 5 years. > What happens after that. I am only 45 and I surely hope I live > longer than that :-) Can anyone give me some info. I guess I don't > ask the right questions to my doctor and forget by the time I leave > as to what I was going to ask him. (could me the meds) > thank you for your assistance > > T. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 RAE, I AM SO HAPPY FOR YOU. I AM GLAD YOU ARE EXCITED AND I HOPE TO HAVE THE SAME POSITIVE ATTITUDE AS YOU. AS WELL, I HOPE YOU START FEELING BETTER SOON AND YOU HAVE TO KEEP ME POSTED. I AM STILL WAITING FOR MY CHEST X-RAYS TO COME BACK FOR THE TB TEST. ONCE THAT IS COMPLETE THEN MY DOC WILL CONTACT MY INSURANCE COMPANY AND REQUEST MY MEDICATION BE COVERED AND SENT. MAYBE A MONTH BEFORE I GET STARTED. I AM A LITTLE ANXIOUS ABOUT THIS BUT BY YOU KEEPING YOUR SPIRITS UP GIVES ME HOPE. I AM GOING TO TRY AND GIVE MYSELF THE INJECTIONS. I GIVE MYSELF ALLERGY SHOTS AND I THINK IT WILL BE OK. MY SON AND MY FIANCE SAID THEY WILL LEARN HOW TO GIVE ME SHOTS AS WELL. WELL, GOOD LUCK AND LET ME KNOW HOW IT GOES.. TY Rae Sandberg <Raes_Yorkies@...> wrote: ty... i am going to get my 2nd injection tomorrow.. i can hardly wait.. i think with each injection.. i am going to feel better.. i went to the gym today and got everything set up... i go back on wednesday and then i can get started..oh i hope i feel even better after the 2nd injection... rae Re: [ ] enbrel I've never read that. Where did you read it? I'm in my 6th year on enbrel and it's still helps. In 5 years, who knows what new treatments will be available? It would help if you wrote down questions for your doctor. It's common to forget when you're in with the doctor. a On Sat, 29 Jan 2005 22:49:38 -0000, tyeakey12041959 <tyeakey12041959@...> wrote: > > > I have RA among other ailments. I am about to go on Enbrel however, > the information I am reading states it is good for about 5 years. > What happens after that. I am only 45 and I surely hope I live > longer than that :-) Can anyone give me some info. I guess I don't > ask the right questions to my doctor and forget by the time I leave > as to what I was going to ask him. (could me the meds) > thank you for your assistance > > T. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2005 Report Share Posted March 20, 2005 In a message dated 3/19/2005 6:24:36 P.M. Pacific Standard Time, winchester19572004@... writes: for all of you who take enbrel . if you get any illness . talk to your doc and see if he/she wants you to stop taking it. mine didn't and it's hung on for 3 weeeks now. so i stoped taking it till i get better. i'm surprised they didn't put me in the hospital. good luck to all mike I was told to stop taking it for at LEAST one week after I caught the worst cold i've had in a long time. Abby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 I used Enbrel for a year and a half. I don't know if I officially reached remission but I had very few flares while using it after about 6 months. The flares I had were very mild. I went off in August because I was concerned about sideaffects. I am not at my worst right now but flares are much more severe and I usually have some pain everyday. joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 hi jACALYN, MY SON ALSO TAKES ENBREL..ITS BEEN A YEAR WITH NO SIDE EFFECTS..i WISH WE HAD IT BEFORE HIS HIP WAS DAMAGED FROM THE ARTHRITIS,,, WHAST KIND OF INSURANCE DO YOU HAVE ? WE PAY 12.00 A MONTH FOR IT.. LET ME KNOW BECAUSE MY HUSBAND IS A SOCIAL WORKER SUPERVISOR FOR THE STATE OF R,I, AND DEALS WITH ALL KINDS OF MEDICAL BENEFITS AND KNOWS ALL THE LOOP HOLES TO GET MEDICATION, ESPECIALLY FOR A CHILD.. LET ME KNOW WHAT STATE YOU LIVE IN.. THANKS JANE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 Jacalyn, My son has been taking Enbrel for 2 1/2 yrs since shortly after turning 4.He hasn't had any problems with it,nothing major anyway and it was like a magic potion. I don't know why your rheumy said it was $3000 a month.The average price for adults is $1200. takes exactly half that dose and I asked our pharmacy what it would cost if we didn't have insurance($691).The price seems to vary from state to state. Insurance companies are getting better and better about letting patients have Enbrel so don't give up hope yet.Most likely a call from your rheumy and medical records will get you approved. Hanfg in there. Hugs Becki and 6 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 I'm a lot older then your daughter so I doubt this will be comforting but I have been on Enbrel for 2 years and it has done wonders for me. Luckily my insurance is pretty good so I only pay $40, I think the med is technically without insurance like $1500 which is still expensive. The side effects are minimal a little more risk of infection but so far nothing to bad. I too have very little fat, but surprisingly I dont bruise that much for each shot.. I hope someoen has more answers. Love always (poly jra and spondy, 20) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 Garrett has been on Enbrel for a year as as we had hoped, it was Harry Potter's Magic Wand. The cost is expensive, but well worth it. One thing to also remember, is at his age, the cost is less because of the dosage. Here it would have been for Garrett, 3 about $600 without insurance. Now for a posible solution to the cost. Patients may call (888)—436—2735 to get information about financial assistance. AMGEN, INC. ENcourage Foundation : 1-888-436-2735 Pharmaceutical Company Wyeth-Ayerst Laboratories - Rheumatoid Arthritis Assistance Foundation Program Address Wyeth-Ayerst Laboratories - Rheumatoid Arthritis Assistance Foundation PO Box 2973 Phoenix AZ 85062 Toll Free Phone Number 800-282-7704 There are also other alternatives too depending on your state. Hope this helps and have faith. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2005 Report Share Posted May 15, 2005 Jacalyn, My daughter was on Enbrel for a little over 1.5 years. We had problems with respiratory infections on and off the whole time. She just recently came off it when we switched docs and found out that her first was overmedicating her with it.. (somewhere around 7x the dose she needed.) She may well end up back on it if she flares again.. It was the wonder drug for her too.. it really helped. My kids have NYS Child Health Plus insurance so it is totally covered for them.. Next year we will be puting htem on our MVP insurance and the copay for the enbrel would be 30 dollars a month.. I hope you can figure out a way to get it.. given right it is a great benefit to these kids... good luck, Emilie ( 5 Poly) Enbrel > Hi all, > I see some post that their children are on Enbrel. Our > rheumatologist has us prepared to possibly start this in 3 months, > if we don't get better inflamation improvement in out almost-three- > year-old, to avoid the damage to her joints. She's shared with us a > lot about it. Of course, the side effects worry us! But, they do on > the other things she takes now! It's a trade off we have to take, to > try keep her from growing up with major problems! Anyways, the other > thing that was SHOCKING was the cost of Enbrel! I hate to have to > get so personal, but if anyone would be willing to share, even > private email off list, I would love to know how you afford it! My > husband has a decent job, but we couldn't afford the $3000 a month > our doctor said it costs! And, our insurance won't cover it. Even if > they did, we couldn't afford the 20% copay! So, if it will stop our > daughter from having deformity in her joints and knock this ugly > disease into a quiet mode, we'd want to do it for her, but HOW?! > Also, I'd like to hear how some of the children are dealing with > Enbrel, side effects, etc. Our daughter has NO FAT to inject the > Enbrel into! I guess mid torso on the side is the spot. This sounds > awful too! Thanks in advance for your help and input! > Blessings, > Jacalyn > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2005 Report Share Posted May 17, 2005 jacalyn.. Enbrel is not as expensive as your doctor is indicating, but its not cheap either. I would check with your insurance company again to see if it will be covered or what you have to do to appeal it. Your doctor can write to them stating its a " medical nesecsity " and a lot will cover things if this is the case. Dont take the 1st answer they give you. Just ask to go further up the chain of superiors. It doesnt make sense to me why insurances will deny something that could help keep your costs down in the long run. Also check to see if your insurance has a pharmacy plan too... Mine does and I am able to get 3 months of medications for 2 months co- pay ( last year it was 3 months for 1 month co pay) I pay $40 for 3 months of enbrel, which because of his dose lasts me even longer. Enbrel has worked wonders for , hes soo much better since he started it right before xmas. No complications except for a injection sight recation that happened for 3-4 weeks and stopped as quickly as it started ( i just gave benedryl) Good luck and let us know... its good to get this all straightened out before you actually need the enbrel. At least you have some time to work on your insurance people. let us know how it goes... hugs Helen and (7,systemic) > Hi all, > I see some post that their children are on Enbrel. Our > rheumatologist has us prepared to possibly start this in 3 months, > if we don't get better inflamation improvement in out almost-three- > year-old, to avoid the damage to her joints. She's shared with us a > lot about it. Of course, the side effects worry us! But, they do on > the other things she takes now! It's a trade off we have to take, to > try keep her from growing up with major problems! Anyways, the other > thing that was SHOCKING was the cost of Enbrel! I hate to have to > get so personal, but if anyone would be willing to share, even > private email off list, I would love to know how you afford it! My > husband has a decent job, but we couldn't afford the $3000 a month > our doctor said it costs! And, our insurance won't cover it. Even if > they did, we couldn't afford the 20% copay! So, if it will stop our > daughter from having deformity in her joints and knock this ugly > disease into a quiet mode, we'd want to do it for her, but HOW?! > Also, I'd like to hear how some of the children are dealing with > Enbrel, side effects, etc. Our daughter has NO FAT to inject the > Enbrel into! I guess mid torso on the side is the spot. This sounds > awful too! Thanks in advance for your help and input! > Blessings, > Jacalyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Congratulations, Kathe! That's such good news. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Enbrel > Hi All: > > Some of you who have been on the board for a while > know that I had to discontinue Enbrel about a year ago > when my husband changed jobs and the insurance called > for a $400.00 per month copay. Well, he has been > working for a new company since January and they > upgraded the insurance, and now Enbrel is once again > covered at only a $30.00 copay. Hurray! I am back on > it as of next week - I am so excited to be starting it > again, and hope that it works as well for me now as it > did for the few months I was taking it before. > Hopefully, I will be able to lower my 20mg. dosage of > Methotrexate once the Enbrel kicks in - that would be > great. > > Kathe in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Kathe, Enbrel has co-pay assistance program now for about a year. Did know if you knew that..but just FYI for future use. They help with any co-pay for Rheumatoid meds above $50 per month. I learned about this but had stopped Enbrel....so I am being switched to Humia when ever I get the nerve up to orther the posion and be the guinnia pig! LOL Toni In a message dated 6/11/2005 4:53:48 AM Central Daylight Time, writes: Date: Fri, 10 Jun 2005 12:33:41 -0700 (PDT) From: Kathe Sabetzadeh <lv2ryd@...> Subject: Enbrel Hi All: Some of you who have been on the board for a while know that I had to discontinue Enbrel about a year ago when my husband changed jobs and the insurance called for a $400.00 per month copay. Well, he has been working for a new company since January and they upgraded the insurance, and now Enbrel is once again covered at only a $30.00 copay. Hurray! I am back on it as of next week - I am so excited to be starting it again, and hope that it works as well for me now as it did for the few months I was taking it before. Hopefully, I will be able to lower my 20mg. dosage of Methotrexate once the Enbrel kicks in - that would be great. Kathe in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Good luck to you Kathe! Enbrel has helped me a lot, even though I am having trouble getting used to the 50 mg dose which I just started about a month ago. Is that the one you will taking when you start it again? I hope it " kicks in " for you right away! > Hi All: > > Some of you who have been on the board for a while > know that I had to discontinue Enbrel about a year ago > when my husband changed jobs and the insurance called > for a $400.00 per month copay. Well, he has been > working for a new company since January and they > upgraded the insurance, and now Enbrel is once again > covered at only a $30.00 copay. Hurray! I am back on > it as of next week - I am so excited to be starting it > again, and hope that it works as well for me now as it > did for the few months I was taking it before. > Hopefully, I will be able to lower my 20mg. dosage of > Methotrexate once the Enbrel kicks in - that would be > great. > > Kathe in CA > > > Kathe in CA > > > > > __________________________________ > Discover > Use to plan a weekend, have fun online and more. Check it out! > http://discover./ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Great news Kathe! I know well it worked for you before. a On Jun 10, 2005, at 3:33 PM, Kathe Sabetzadeh wrote: > Hi All: > > Some of you who have been on the board for a while > know that I had to discontinue Enbrel about a year ago > when my husband changed jobs and the insurance called > for a $400.00 per month copay. Well, he has been > working for a new company since January and they > upgraded the insurance, and now Enbrel is once again > covered at only a $30.00 copay. Hurray! I am back on > it as of next week - I am so excited to be starting it > again, and hope that it works as well for me now as it > did for the few months I was taking it before. > Hopefully, I will be able to lower my 20mg. dosage of > Methotrexate once the Enbrel kicks in - that would be > great. > > Kathe in CA > > > Kathe in CA > > > >           > __________________________________ > Discover > Use to plan a weekend, have fun online and more. Check it out! > http://discover./ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 kathe i know what you mean about high copay. i have to pay 10% for a 3 mos. supply it relly hurts the old billfold. i'm glad somebody is getting a little relief from the HIGH COST of these meds. i'm happy for you . mike aclavern33@... wrote:Kathe, Enbrel has co-pay assistance program now for about a year. Did know if you knew that..but just FYI for future use. They help with any co-pay for Rheumatoid meds above $50 per month. I learned about this but had stopped Enbrel....so I am being switched to Humia when ever I get the nerve up to orther the posion and be the guinnia pig! LOL Toni In a message dated 6/11/2005 4:53:48 AM Central Daylight Time, writes: Date: Fri, 10 Jun 2005 12:33:41 -0700 (PDT) From: Kathe Sabetzadeh <lv2ryd@...> Subject: Enbrel Hi All: Some of you who have been on the board for a while know that I had to discontinue Enbrel about a year ago when my husband changed jobs and the insurance called for a $400.00 per month copay. Well, he has been working for a new company since January and they upgraded the insurance, and now Enbrel is once again covered at only a $30.00 copay. Hurray! I am back on it as of next week - I am so excited to be starting it again, and hope that it works as well for me now as it did for the few months I was taking it before. Hopefully, I will be able to lower my 20mg. dosage of Methotrexate once the Enbrel kicks in - that would be great. Kathe in CA Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.