Enbrel

November 13, 2001

Good news! I heard on the news that Enbrel is up for FDA approval for PA.

Rae

November 13, 2001

That is good news!! Rae, you can also get on it if

your doctor says it is " inflamitory arthritis " .

-scott

--- Larry and Rae Farrell <farrell@...> wrote:

> Good news! I heard on the news that Enbrel is up

> for FDA approval for PA.

> Rae

>

__________________________________________________

December 5, 2001

Emla doesn't take too long to get. It is available at the pharmacy,

getting approval for it may take a bit but certainly not as long as the

Enbrel. We pick *both* up at the pharmacy, you probably will too.

Good luck to you and your dd! I hope this all works out great, I hear

such good things about Enbrel.

Lorie

Enbrel

We too will be starting on Enbrel once we can get approval from the

insurance company and the medication arrives from wherever it comes

from. Our daughter has rapidly ran through the meds and we are on to

this one next. A couple questions--the injections I am fine with, an

insulin syringe twice a week. We will try without EMLA and then if

that does not work go with the EMLA.

A couple questions--how long do you normally have to wait to get the

EMLA? Unfortunately to be in the study you need at least 3 joint

involvements. She had more than those before she went in for the

cortisone injections last week and now has 2 knees. Too bad we can't

back date the forms! Also do they (Immunex) mail it directly to you

or does the pharmacy get it and then call. Our pharamacy is awful but

the only one our insurance company will pay for so we are stuck. The

pharmacist did not really know how it works. We faxed paperwork,

mailed paperwork and delivered more to the pharmacy. I am hoping this

works.

e; mom to 14 y.o. with poly

For links to websites about arthritis and JRA, visit:

http://www.geocities.com/Heartland/Village/8414/Links.html

December 6, 2001

e,

the way it works in terms of getting Enbrel from your pharmacy is that you

need to give your pharmacy your Enbrel ID #, when you need a refill the

pharmacy (at least mine) has to get permission from the insurance company

and then they call their supplier and it is delivered directly to the

pharmacy. It takes a few days so make sure you reorder in plenty of time.

It's not a product that the pharmacy's are allowed to stock. Sometimes mine

has one or two in stock but usually not.

Bonnie

PHD Products, Inc

http://phdproducts.com 1-800-863-3403

Enbrel

> We too will be starting on Enbrel once we can get approval from the

> insurance company and the medication arrives from wherever it comes

> from. Our daughter has rapidly ran through the meds and we are on to

> this one next. A couple questions--the injections I am fine with, an

> insulin syringe twice a week. We will try without EMLA and then if

> that does not work go with the EMLA.

>

> A couple questions--how long do you normally have to wait to get the

> EMLA? Unfortunately to be in the study you need at least 3 joint

> involvements. She had more than those before she went in for the

> cortisone injections last week and now has 2 knees. Too bad we can't

> back date the forms! Also do they (Immunex) mail it directly to you

> or does the pharmacy get it and then call. Our pharamacy is awful but

> the only one our insurance company will pay for so we are stuck. The

> pharmacist did not really know how it works. We faxed paperwork,

> mailed paperwork and delivered more to the pharmacy. I am hoping this

> works.

>

> e; mom to 14 y.o. with poly

>

> For links to websites about arthritis and JRA, visit:

> http://www.geocities.com/Heartland/Village/8414/Links.html

>

December 6, 2001

Dear e,

Sounds like you're doing your job with all the paperwork and enrollment

stuff. Once your pharmacy starts to do their job then hopefully things

will go better. (I remember the hassle we had when we had to switch

pharmacist due to insurance) Usually (hopefully) once all the initial

work is done and they know your daughter will be on it--then it's not as

hard to get it. Our pharmacist will order it about 2 weeks before we

need it just to be sure we have it. Like someone said--make sure to call

them when you are getting low so they can have plenty of time to order

it. Also make sure you get it home and in the refrigerator as soon as

possible. I found in the summer time (when my air conditioner went out

on my van) it helped to take a cooler (just make sure you never " freeze "

it) with me and put it in that as we have at least a 30 minute trip.

(more if we hit road construction etc..) I hope it helps your daughter

as much as it's helped mine. Good Luck!

and Kate--7 severe poly and AVN

December 14, 2001

Hi

looks you have enough info on how to get the embrel, i have found out some

extra stuff that might help.

be sure to call the embrel support # that comes with your med. they can

answer alot of questions and are very good about calling back or letting

you talk to a nurse.they will also sign you up to recive a magazine and a

nice portable cooler to carry your meds in, also they have fridge magnets

to remind you what days to take it.

A big plus is to use there needle only to mix it up then use another one

to inject it , theres are dull and dont go so well.

I dont know the dose that you will be using , but the package says the

solution is only good for a short time after diluted if you are like us we

dont use the full amount in the bottle each time and it seamed like a

waste to through the extra away, I talked to the embrel people and they

said that it could be kept 14 days in the fridge after mixing .

Be sure to use a alcohol swab and a new needle the next time to draw out

the rest.all for now good luck

--- boundforlondon <kmckell@...> wrote: