I'm new

[Guest guest]

Hi Janna,

Welcome to the group!!! I only had mild psoriasis on my head,

but I've had the arthritis attack every joint in my body. I had a

finger joint that would catch and it also makes grinding noises and I had

an elbow that wouldn't straighten out, like yours, for about a year.

I'm now on Enbrel and can straighten my elbow and I'm pain free in all

my joints except my fingers which still have some stiffness. I have

a finger that won't completely straighten. It's because of the swelling

that is in the joint.

Vicki

Janna wrote:

Hi. My name is Janna and I live in Deer Park,

Texas. I was first

diagnosed with PA in 1991 when I was 16. It started, of course,

with

psoriasis on my head. Not long after that my left elbow started

catching and popping really loudly. A few days later I couldn't

straighten my elbow, and I haven't been able to since. Has anyone

else experienced that problem? If so, I'd love to hear from you.

Have a great day!!!

Janna

Please visit our new web page at:

http://www.wpunj.edu/icip/pa

and attend our weekly chat on Dr Koop at

7 PM EST on Monday evenings!!

Go to the www.Dr.Koop.com website ahead of time and register

as a user that way you can come right in on Monday nights. Hope to

see you there

at the chat!!!

[Guest guest]

Thank you so much for the reply. I'm wondering why my doctor has never mentioned

injecting the joint. He did recommend that I see a doctor about a possible

replacement, but they won't do one because I am so young. I've had e-ray after

e-ray, about 1/2 a dozen MRIs, and physical therapy, but no such luck. I've sort

of gotten used to not being able to use it, but it gets very frustrating when I

want to play volleyball, softball, etc... I'll mention to my doc about possibly

injecting the joint. Someone else in the group mentioned that they were taking

Enbrel for their frozen joint. Do you know anything about that?

God Bless,

Janna

On Fri, 31 Mar 2000 01:51:15 Gillian Rowe wrote:

>Hi Janna

>Welcome to Onelist!

>Well with me it was not the elbow but the left shoulder. The day I was given

>the PA patients leaflet, I think that was supposed to be a diagnosis, the

>Rheumatologist injected my left shoulder because it was frozen. Now over ten

>years later my right shoulder has come out in sympathy, and I am waiting for

>that to be injected. This time I had x-ray on my right shoulder which showed

> " Extensive calcification in my Roto cuff " and I assume if I do not use it, I

>will loose it? Chances are you probably have the same problem in your elbow,

>so get it checked out. Honest after the injection you will be able to fly to

>the Moon solo! I am waiting for two months now and the shoulder makes every

>noise known to man and some of its own. The pain is akin to being 'knifed',

>depending on which direction I am using the shoulder. Enough to take your

>breath away! However I know I have to keep using it, or it will freeze

>completed and I will loose mobility!

>Love and God Bless

>Gillian

>

>

>

>

>

Send FREE April Fool's Greetings to your friends!

http://www.whowhere.lycos.com/redirects/American_Greetings.rdct

[Guest guest]

Thank you for hte reply. I have never heard of Enbrel. Is it new? I thought I'd

taken just about all that was out there. Can you tell me a little more about it?

I'm very interested.

---

Janna

On Thu, 30 Mar 2000 15:46:47 MecoVM@... wrote:

>Hi Janna,

>

>Welcome to the group!!! I only had mild psoriasis on my head, but I've

>had the arthritis attack every joint in my body. I had a finger joint

>that would catch and it also makes grinding noises and I had an elbow

>that wouldn't straighten out, like yours, for about a year. I'm now on

>Enbrel and can straighten my elbow and I'm pain free in all my joints

>except my fingers which still have some stiffness. I have a finger that

>won't completely straighten. It's because of the swelling that is in

>the joint.

>

>Vicki

>

>Janna wrote:

>

>> Hi. My name is Janna and I live in Deer Park, Texas. I was first

>> diagnosed with PA in 1991 when I was 16. It started, of course, with

>> psoriasis on my head. Not long after that my left elbow started

>> catching and popping really loudly. A few days later I couldn't

>> straighten my elbow, and I haven't been able to since. Has anyone

>> else experienced that problem? If so, I'd love to hear from you.

>>

>> Have a great day!!!

>> Janna

>>

>> -----------------------------------------------------------------------

>>

>>

>> -----------------------------------------------------------------------

>> Please visit our new web page at:

>> http://www.wpunj.edu/icip/pa

>>

>> and attend our weekly chat on Dr Koop at

>> 7 PM EST on Monday evenings!!

>> Go to the www.Dr.Koop.com website ahead of time and register as a

>> user that way you can come right in on Monday nights. Hope to see you

>> there

>> at the chat!!!

>

Send FREE April Fool's Greetings to your friends!

http://www.whowhere.lycos.com/redirects/American_Greetings.rdct

[Guest guest]

Hi ,

Jump in any time you want. That is great, you have a good friend!

Sincerely,

a mother of Brittany

[Guest guest]

At 06:26 AM 06/26/2000 EDT, you wrote:

>

>Hi all.

>My name is . My husband and I have 2 children. Brady will be 3

>next month. Abbey is 17 months. We haven't done any vaccinations. Luckily I

>had a casual friend who just mentioned it to me before I had my first. I was

>smart enough to think about what she said and started checking things out. I

>just couldn't go through with them after what I found. I have two wonderful

>and very, very healthy children.

>I'm looking forward to learning more!

>

>www.diapers.bizland.com

>

Welcome ! So glad you were wise to listen! Glad you are here and

can share.

Sheri

--------------------------------------------------------

Sheri Nakken, R.N., MA

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS

MEDICAL OR LEGAL ADVICE. THE DECISION TO

VACCINATE IS YOURS AND YOURS ALONE.

Well Within's Earth Mysteries & Sacred Site Tours

http://www.nccn.net/~wwithin

Bookstore - http://www.nccn.net/~wwithin/bookstor.htm

International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

Education, Homeopathic Education

KVMR Broadcaster/Programmer/Investigative Reporter, Nevada City CA

CEU's for nurses, Books & Multi-Pure Water Filters

[Guest guest]

In a message dated 6/26/00 10:15:14 PM Eastern Daylight Time,

micheleanddwayne@... writes:

<< I'm glad you had the guts to stand up for what you believe in. I have

lots of friends who saw me go through everything I did with Colby. They all

have since had babies of their own and every one of them have been vaccinated

with each vaccine offered. Even the rotovirus one last summer. UGH!

>>

,

I know the feeling. A friend of mine had a baby last Dec. Before she did I

talked to her a little about shots. I tried to stress simply delaying them,

as I knew she would definately want them but in my opinion they should at

least be given later. Give those little immune systems time to build on their

own before you knock them down. Well, she insisted that since her Dr. told

her they were safe at 1 day, 2 months and so forthat that they were the right

thing to do. My neighbor even talked to her about her son's autism possibly

being connected. She didn't care, " The DR. said! "

I have another friend who is due in Oct and I casually talked to her a little

about vaccinations. She does plan on delaying them. So, I feel that was a

success. I will not do them. My mind is set. They will have NONE. But, I at

least feel that I know some people will have them no matter what, so at least

delaying, and doing them seperately seems a bit safter. I read in your case

the poor little guy had. 4. That just seems so hard on their systems, and

I've read somehere that it can throw (or at least could before) thron their

mercury level over toxic when they get a few at a time. I know they are

cutting/removing Thermosol now, so I'm not sure if that's still the case.

I'm sure you have probably read that you will never hear that vaccines are

causing any major problems as WAY too much money is involved. States get more

grants for higher immunization rates. Vaccinations are big business!

And, they know there are side effects and problems, but they are using the

" For the good of teh herd " theory. Well, I just don't want my child to be the

one sacrificed for the good of the herd.

I question everything. Yes, I drive doctors batty

LOL but I want to make sure I know what I'm doing and not jsut go along ith

everything!

www.diapers.bizland.com

[Guest guest]

,

I'm glad you had the guts to stand up for what you believe in. I have lots of friends who saw me go through everything I did with Colby. They all have since had babies of their own and every one of them have been vaccinated with each vaccine offered. Even the rotovirus one last summer. UGH!

Michele

visit Colby's website www.babycolby.homestead.comvisit the Cozart Family website http://cozartfamily.homestead.com/home.html

I'm new

Hi all.My name is . My husband and I have 2 children. Brady will be 3 next month. Abbey is 17 months. We haven't done any vaccinations. Luckily I had a casual friend who just mentioned it to me before I had my first. I was smart enough to think about what she said and started checking things out. I just couldn't go through with them after what I found. I have two wonderful and very, very healthy children. :)I'm looking forward to learning more!www.diapers.bizland.com

[Guest guest]

,

I'm glad you had the guts to stand up for what you believe in. I have lots

of friends who saw me go through everything I did with Colby. They all have

since had babies of their own and every one of them have been vaccinated

with each vaccine offered. Even the rotovirus one last summer. UGH!

Unbelievable. They saw what you went thru!

Denial is VERY VERY Strong.

Sheri

--------------------------------------------------------

Sheri Nakken, R.N., MA

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS

MEDICAL OR LEGAL ADVICE. THE DECISION TO

VACCINATE IS YOURS AND YOURS ALONE.

Well Within's Earth Mysteries & Sacred Site Tours

http://www.nccn.net/~wwithin

Bookstore - http://www.nccn.net/~wwithin/bookstor.htm

International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers

Education, Homeopathic Education

KVMR Broadcaster/Programmer/Investigative Reporter, Nevada City CA

CEU's for nurses, Books & Multi-Pure Water Filters

[Guest guest]

Hi,

I am sorry you are not well.I hope you will let the

lord know you are not feeling well.He will listen.

I an also new to e grp.I am Zimbabwaen .I was

diagonised back in 1996.I have also struggled with

drugs and creams.It always reoccured every month

towards my period.Consequently my hubby got it to..two

yrs now

I gave up on drugs.I turned to e Lord,had a minister

pray for me.E last period I did not get it.

What I suggest is that u ask you GP O THE DIET THAT

will help boost your immune system.The book you

bought.Go over it again.

Please ask e Lord to help.I sound disgusting,it might

help.Be patient.My hubby is still not well.We do not

have a baby,we are not diebitic,I am not taking any

contraception.

Get well soon and keep writing

Anesu

--- dusan@... wrote: > Hi~ I'm new to this

list. I have been having

> chronic yeast problems, and I

> don't know what to do to cure it. I took the

> antibiotic Metronidazole 3

> times between January and June of '99, for what I

> and my doctor believed to

> be a bacterial infection. The yeast infections

> started in sometime after

> that, and there's hardly a week out of the month

> that I don't have a yeast

> infection. I have used: Monistat; Generic brands;

> Vagistat; and the oral

> medication-- can't remember the name right now. It

> just never goes

> completely away. I read a big, thick book last year

> about Candidiasis, by

> Dr. Crook; it helped shed some light on some of the

> horrible symptoms I've

> been enduring. But it's hard finding a doctor who

> will listen, and right now

> I don't have any medical insurance!

>

> I did get yeast infections when I was pregnant 2-1/2

> years ago, in the 3rd

> trimester, and my doctor kept insisting he believed

> I was diabetic. Well, I

> took the Glucose Tolerance Test-- showed only

> borderline results-- and

> although diabetes does run on my father's side of

> the family, I have

> absolutely NO SYMPTOMS other than the recurrent

> vaginal infections.

>

> So that's basically it. I'm at wit's end. But I'm

> so glad I found your

> group!!

>

> Theresa

>

>

>

__________________________________________________

[Guest guest]

hi teresa,

welcome to the group!

i have had similar experiences with western medicine and i only started

getting better when i decided to go to a homeopath/naturopath midwife here

in massachusetts. i don't have insurance either and am on a limited budget

but, i made some changes and sacrifices in order to go. i never had to

barter for care but, i know someone who does - that may be a possibility for

you. most people (well at least homeopaths) are reasonable and may be able

to offer you a payment plan that you can deal with. i have also been doing

much research on my own and feel like these two things (my homeopath and my

research)are the only reasons why i have been able to start on my way to

recovery (and i am, without a doubt on my way). lastly, do not take anymore

antibiotics try to keep you immune strong with boosters like Echinacea.

keep yourself healthy and good luck!

raen

>From: dusan@...

>Reply-candidiasisegroups

>candidiasisegroups

>Subject: I'm New

>Date: Fri, 15 Sep 2000 10:43:14 +0200

>

>Hi~ I'm new to this list. I have been having chronic yeast problems, and

>I

>don't know what to do to cure it. I took the antibiotic Metronidazole 3

>times between January and June of '99, for what I and my doctor believed to

>be a bacterial infection. The yeast infections started in sometime after

>that, and there's hardly a week out of the month that I don't have a yeast

>infection. I have used: Monistat; Generic brands; Vagistat; and the oral

>medication-- can't remember the name right now. It just never goes

>completely away. I read a big, thick book last year about Candidiasis, by

>Dr. Crook; it helped shed some light on some of the horrible symptoms I've

>been enduring. But it's hard finding a doctor who will listen, and right

>now

>I don't have any medical insurance!

>

>I did get yeast infections when I was pregnant 2-1/2 years ago, in the 3rd

>trimester, and my doctor kept insisting he believed I was diabetic. Well,

>I

>took the Glucose Tolerance Test-- showed only borderline results-- and

>although diabetes does run on my father's side of the family, I have

>absolutely NO SYMPTOMS other than the recurrent vaginal infections.

>

>So that's basically it. I'm at wit's end. But I'm so glad I found your

>group!!

>

>Theresa

>

>

_________________________________________________________________________

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[Guest guest]

Welcome! My daughter (17 mos) was recently diagnosed, and this group has

provided me with so much information, and has helped me accept that the

diagnosis is not the end of the world. It's good to hear your daughter is

doing well. One question -- I thought that with pauciarticular arthritis,

the same joint is not usually affected on both sides. Were your daughter's

two knees affected at different times? I'm curious because my daughter is

currently affected in only one knee.

Diane

[Guest guest]

Welcome! This is a great site, with lots of good information and nice people.

I think most of us here have had the great debate about steriods. I REALLY

don't like that my son takes them. Every time I see my son's specialists

I have them explain to me again that more damage will result from the

JRA then low dose Prednisone. I have come to believe in aggressive

drugs for JRA, as you said, having joints replaced isn't a great option.

That said, my son is at last decreasing Prednisone and intends to go all

the way off it. (5mg a day for 5 years.) We are able to do this

because MTX and Enbrel are working. Thanks, Jana

[Guest guest]

Hi, and welcome! My daughter, Kelsey is 3 and has polyarticular jra. She

was just diagnosed this past April, but started having her first symptom

about a year prior. She, too, has been going to pool therapy, which she

loves, and is taking Naprosyn. I'm thinking swimming will be an excellent

sport for her if she's interested, at what age did your daughter start

lessons and swimming on a team? My other daughter is 8 and took some lessons

last year, but was basically taught by us and other family members. She's

like a little fish now! I know they offer lessons for babies even, so I'm

thinking about calling and at least getting some info.

I look forward to hearing more from you, and since you're a nurse I'm sure

I'll have questions for you sometime Have a nice evening,

[Guest guest]

Yikes. I keep praying nothing shows up in any other joint. So far so good,

but we're only about 2 months into it. Looks like the disease doesn't always

fit into its neat categories and obey the " rules. "

Diane

[Guest guest]

Dear wildbick,

Welcome to the list!

Could you possibly share your name with us?

[ & Skyler]

I'm NEW

Hi all....just found this list, and I'm thrilled! My daughter was diagnosed just over 5 years ago at the age of 2 and a half with pauci-articular. She's incredibly resilient and the past couple of years it's been very well managed, and she's had very little discomfort. I have so far refused to let her be treated systemically with steroids, and have stuck with NSAIDs and a couple of aspiration/steroid injections to the most severly affected sites(both knees so far, her affected wrist and ankle are OK...knock on wood). She swims on a swim team during the winter, and I truly believe that her love for swimming and some of her ability came from the pool therapy she had for 2 years, when first diagnosed. My concerns are for her future and what the long term affects willbe. The damage done to her knees certainly will not regenerate itself, and I cringe when I think of her having knee replacements before the age of 30.I'm tickled to have found this site and I'm more than open to having anyone contact me to share experiences and support!For links to websites with JRA info visit: http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

> Welcome! My daughter (17 mos) was recently diagnosed, and this

group has

> provided me with so much information, and has helped me accept that

the

> diagnosis is not the end of the world. It's good to hear your

daughter is

> doing well. One question -- I thought that with pauciarticular

arthritis,

> the same joint is not usually affected on both sides. Were your

daughter's

> two knees affected at different times? I'm curious because my

daughter is

> currently affected in only one knee.

>

> Diane

Hi Diane....thanks for the welcome! No, the diagnosis is definitely

NOT the end of the world, and I believe it makes our children

stronger for having to endure and overcome.

To answer your question: YES. Hannah's knees were affected at

different times. Her left knee was the original site, and I was told

at the time of diagnosis that if it did not spread within 6 months,

that it wouldn't.....WELL.....18 months later her right knee was

affected.

I'm happy to share any info I have with you...it's soooooooo nice to

have people in the same boat as us.

[Guest guest]

Diane

your right on that lololol its springs things when you least expect it

Robbin

[Guest guest]

Welcome

i am Robbin i live in atlanta ga

i have a 13 year old daughter melissa

who has JRA poly

ask anything here we are a team here

glad you found us

Robbin

[Guest guest]

Welcome to the group and I hope it's a big help to you and if you have sone

questions feel free to post them and we'll answer them as best we can.

[Guest guest]

Welcome to the group. My daughter also has pauciarticular JRA, which

only has affected her left knee. This group is full of knowledge and good

advice. I am sure you will enjoy the group

Teri

[Guest guest]

In a message dated 09/21/2000 1:37:20 PM Central Daylight Time,

pkvam@... writes:

<< My question is should I get the Diflucan Rx filled? or is it a waste

of money? >>

In my experience, it was a waste of money, but having since *kinda* following

the anti-candida diet, I've NOT had that aanoying (if not embarrassing!!!!!!)

itch that had plagued me for years.

Sorry for briefness of this note =)

Hope you feel better soon =)

love,

Ontario, Canada

--

Some people come into our lives and quickly go

Leaving bruises and scars on our hearts and souls

Some stay awhile and leave gentle footprints

Of Love and Respect on our hearts

And we are never, ever the same.

(^..^)~ (^..^)~ (^..^)~ (^..^)~ (^..^)~

[Guest guest]

welcome to the group ...... I know I always look foward to new memebers

because we all have something different & special to contribute!!!! Kris (

Ashton poly JRA )

[Guest guest]

In a message dated Thu, 21 Sep 2000 2:37:23 PM Eastern Daylight Time,

pkvam@... writes:

My question is should I get the Diflucan Rx filled? or is it a waste

of money? I am overwhelmed at the thought of having to go on the

strict diet which I felt terrible on 20 years ago, altho it did cure

me. Has anyone taken Diflucan at the same time as SF-722? I am a

confirmed sugarholic and carboholic, not a big meat eater, and I love

fruit, but am coming to the conclusion that I need to nip this in the

bud before my whole body is overtaken by yeast if it isn't

already.

Sorry this is so long. Any advice? Thanks, a, Washington State

Hi a~ I'm in Wash state too, Tri-Cities area. Don't you just hate that

never- ending itch! Used Vagistat twice in one month, myself. I'm having

terrible lower abdominal pain for 2 wks now, have been to doctor, will get an

ultrasound next week just in case it's a fibroid. But I know darned good and

well it could be just the yeast making more misery. I too am not a big meat-

eater; gall bladder removal makes it too hard to digest. I love carbs too,

don't know how to really give them up. I'd like to find a simpler way of

knocking out the yeast than giving up the foods we love. I've never tried

Nystatin but would like to. Good luck to you.

Theresa

[Guest guest]

FYI, candida can cause fibroids, so if you have one don't panic. Keeping to

the diet and avoiding dairy can really help.

Re: I'm new

In a message dated Thu, 21 Sep 2000 2:37:23 PM Eastern Daylight Time,

pkvam@... writes:

My question is should I get the Diflucan Rx filled? or is it a waste

of money? I am overwhelmed at the thought of having to go on the

strict diet which I felt terrible on 20 years ago, altho it did cure

me. Has anyone taken Diflucan at the same time as SF-722? I am a

confirmed sugarholic and carboholic, not a big meat eater, and I love

fruit, but am coming to the conclusion that I need to nip this in the

bud before my whole body is overtaken by yeast if it isn't

already.

Sorry this is so long. Any advice? Thanks, a, Washington State

Hi a~ I'm in Wash state too, Tri-Cities area. Don't you just hate that

never- ending itch! Used Vagistat twice in one month, myself. I'm having

terrible lower abdominal pain for 2 wks now, have been to doctor, will get

an ultrasound next week just in case it's a fibroid. But I know darned good

and well it could be just the yeast making more misery. I too am not a big

meat- eater; gall bladder removal makes it too hard to digest. I love carbs

too, don't know how to really give them up. I'd like to find a simpler way

of knocking out the yeast than giving up the foods we love. I've never

tried Nystatin but would like to. Good luck to you.

Theresa

Send blank message to candidiasis-unsubscribeonelist if you want to

UNSUBSCRIBE !

[Guest guest]

Hey a,

I have never heard of Diflucan as a matter of fact, all of the " western

medicine " type doctors that i have seen refused to admit that i had anything

wrong with me, let alone try to treat it. it wasn't until i went to a

homeopath/naturopath that i had even heard of candida. she told me about

the diet and it took me four months to mentally prepare to quit sugar. But,

i am here to encourage you to stick to the diet i have been on it for about

9 weeks and am feeling fabulous. it was very difficult for me because i am

vegan to begin with...so you can imagine. but, i am willing to stay on this

diet for the rest of my life if it means being a healthy normal girl (libido

and all-thanks you guys for all the humor). anyway back to the

encouragement: just think of it as an investment into yourself. candida

makes one cantankerous and causes premature aging and all sorts of nasties.

stick to the diet! and when your feeling down go and get a massage or some

good smelling aromatherapy essential oil (like peppermint which is supposed

to be good for candida sufferers). i read julia butterfly hill's book -the

legacy of luna. this book gave me tons of inspiration i figure, if

butterfly can hang out in an ancient redwood tree through two winters

completely vulnerable to the elements, i can stave off a seemingly

insignificant unhealthy addiction...and you can too.

>From: pkvam@...

>Reply-candidiasisegroups

>candidiasisegroups

>Subject: I'm new

>Date: Thu, 21 Sep 2000 18:35:07 -0000

>

>Hi all,

>

>I'm glad to find your group and hopefully learn from your

>experiences. Briefly, I had candidiasis about 20 years ago, a 2 year

>vaginal yeast infection with multiple other symptoms. In a desperate

>state, I found a Dr. who put me on a low-carb, no sugar diet for 3

>weeks and drank Nystatin powder in water 3 x a day as well as

>other supplements which I can't remember now. I was cured at that

>time and have had no infections that didn't clear up easily till

>about 3 months ago.

>

>I have now had that annoying itch since mid-July. Have used cream &

>taken Diflucan twice and my Dr. just called in a Rx to take Diflucan

>once per week x 4. Then I got on the computer and found your site,

>also info on SF-722.

>

>My question is should I get the Diflucan Rx filled? or is it a waste

>of money? I am overwhelmed at the thought of having to go on the

>strict diet which I felt terrible on 20 years ago, altho it did cure

>me. Has anyone taken Diflucan at the same time as SF-722? I am a

>confirmed sugarholic and carboholic, not a big meat eater, and I love

>fruit, but am coming to the conclusion that I need to nip this in the

>bud before my whole body is overtaken by yeast if it isn't

>already.

>

>Sorry this is so long. Any advice? Thanks, a, Washington State

>

_________________________________________________________________________

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