Re: No neuro (was Tysabri. Evil?)

[Guest guest]

It occurred to me, how many on this site actually don't have neuros?

I have always felt I'd leave myself exposed without one, right from the word go

of being diagnosed.

I wanted to keep on his books in case some miracle cure turned up.

I used him for sending me for various blood tests (vitamin D, mercury levels,

other heavy metals, food sensitivities, Lyme, , etc., etc.), a follow up

MRI, and some physio a while back.

Now 15 years later I have learnt a hell of a lot (much of it from this group -

thanks everyone) and feel far happier treating myself.

I realise that they are (mine certainly is anyway) no more than drug pushers.

Any miracle cure would no doubt be in the form of Big Pharma. The tests they get

you aren't always correct, the physio next to useless and the MRI really just

tells you what you intuitively know and what are you going to do about it

anyway?

My family doctor can order repeat tests for me.

I feel so " liberated " that I have taken ownership of my own health. (Bet you

all thought I was about to go on about CCSVI again there )

Janet

> To: mscured

> From: atlanteanproductions@...

> Date: Tue, 4 Jan 2011 20:15:04 -0600

> Subject: Re: Tysabri. Evil?

>

> If your dr. insists, you can always look for a new dr.. or go it alone and

> do your own research. Which is what I have had to do. When I moved from Az

> to Ne 3 years ago, I could not find a neuro in Nebraska willing to treat me

> if I refused standard drugs.

>

> So, I gave up the neuro, and do my own research. I'm healthier for it.

> Doctors recommend drugs from the companies that give them perks.. and those

> are not always (okay.. usually NOT) the best med for the patient.

>

>

[Guest guest]

Hi Janet,

I don't have a neurologist.

Dudley Delany

http://profiles.yahoo.com/dudley_delany

[Guest guest]

I have seen my neuro about 7 times since diagnosis in 2006. I don't feel he has

anything to offer me at all. The only reason I continue to see him occasionally

(about 1x per year now) is that if I apply for state disability in the future, I

will need his cooperation/medical records/recommendation, etc. I almost always

decline repeat MRIs as they are not only useless when we already know we have

MS, but they are also harmful in terms of the gad contrast agent.

________________________________

To: MS-Cured <mscured >

Sent: Wed, January 5, 2011 10:06:30 AM

Subject: RE: No neuro (was Tysabri. Evil?)

It occurred to me, how many on this site actually don't have neuros?

[Guest guest]

No neuro for me either. I was diagnosed by an internal medicine dr and he

didn't mention referring me to a neuro.

Cait

On Wed, Jan 5, 2011 at 10:06 AM, Janet Orchard wrote:

>

>

>

> It occurred to me, how many on this site actually don't have neuros?

>

> I have always felt I'd leave myself exposed without one, right from the

> word go of being diagnosed.

> I wanted to keep on his books in case some miracle cure turned up.

> I used him for sending me for various blood tests (vitamin D, mercury

> levels, other heavy metals, food sensitivities, Lyme, , etc., etc.), a

> follow up MRI, and some physio a while back.

>

> Now 15 years later I have learnt a hell of a lot (much of it from this

> group - thanks everyone) and feel far happier treating myself.

> I realise that they are (mine certainly is anyway) no more than drug

> pushers. Any miracle cure would no doubt be in the form of Big Pharma. The

> tests they get you aren't always correct, the physio next to useless and the

> MRI really just tells you what you intuitively know and what are you going

> to do about it anyway?

>

> My family doctor can order repeat tests for me.

>

> I feel so " liberated " that I have taken ownership of my own health. (Bet

> you all thought I was about to go on about CCSVI again there )

> Janet

>

> > To: mscured <mscured%40yahoogroups.com>

> > From: atlanteanproductions@... <atlanteanproductions%40gmail.com>

> > Date: Tue, 4 Jan 2011 20:15:04 -0600

> > Subject: Re: Tysabri. Evil?

> >

> > If your dr. insists, you can always look for a new dr.. or go it alone

> and

> > do your own research. Which is what I have had to do. When I moved from

> Az

> > to Ne 3 years ago, I could not find a neuro in Nebraska willing to treat

> me

> > if I refused standard drugs.

> >

> > So, I gave up the neuro, and do my own research. I'm healthier for it.

> > Doctors recommend drugs from the companies that give them perks.. and

> those

> > are not always (okay.. usually NOT) the best med for the patient.

> >

> >

>

>

[Guest guest]

well first of all, congrats Janet.

I found that using an acam.org dr. has

worked out really well for me, they are

real doctors/MD but treat alternatively.

So they can prescribe LDN if needed

or order tests or do chelation or whatever

you need but they don't try to prescribe

any toxic drugs for purposes of selling

out to big pharma.

[Guest guest]

I was referred to a neurologist when I was diagnosed by my family physician

nearly 17 years ago and I mentally fired him on the first visit. I had done

frantically been searching for hope and had found Swank's research and

anecdotes of people with MS who used diet/supplements to get or stay

healthy. In the midst of my angst over learning I had MS, this had been a

source of hope. So I asked the neurologist about it. He folded his arms

across his chest and said dismissively, " If this is so effective, why don't

they teach it in medical schools. " Then he got out his prescription

pad---Betaseron (which I never took).

Instead, I searched and put together a team consisting of a physician who

was a member of the American Academy of Environmental Medicine (he advocated

diet, supplements, and avoiding environmental toxins---including

recommending I get my mercury amalgams removed), a biochemist who I've

written about previously, and my family physician, who was curious about

what I was doing and supported me.

On reflection, I decided to go back to the neurologist periodically so that

he---and I--- had documentation of my progress in one place. I've seen him

about four times over the years. I get nothing useful from the visits, but

he has my history. The last time I saw him a few years ago, I took copies

of my most recent MRI to add to my record. He looked at the results and

said, " If you had been on the ABC drugs, we'd consider you a real success

story. God has been VERY good to you. " And I thought, " Well, I'm grateful

to God, but I don't think God could have done it without me! I have been

VERY good to me, too. I follow the diet. I followed through and got my

amalgams removed. I pay for and take the supplements...etc.

As I wrote this, I realize I do a lot of internal talking to myself when I'm

with the neurologist. If I ever go back, I need to say some things out

loud!

[Guest guest]

Hi Cait

Congrats on going it alone without a neuro. I've always admired Janet for doing

it, now I'll admire the both of you!

Mine's lovely so I'm REALLY lucky he thinks enough of his 'MS'ers to fight off

the Pharm rulebook and other Neuros' pressures - he's supportive and he is one

of the world's leading Neuros. HE is perhaps the start of the new wave of Neuros

through the world? Guys like HIM will be the way forward and will advance both

sides (the 'alternative' AND the traditionally accepted drug way) of the 'MS'

fight.

Just as a side note, it's always a good idea to erase previous messages from

your reply - just leave the first line of the message YOU are responding to (or

just a sentence explaining the main crux of the person's point).

'What we do in life, echoes through eternity.'

MARCUS AURELIUS (121 - 180 A.D.)

To: mscured

From: cdnxstitcher@...

Date: Wed, 5 Jan 2011 20:37:47 -0500

Subject: Re: No neuro (was Tysabri. Evil?)

No neuro for me either.