Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Hi Joan, I meant " pleura " . It was described to me as the lining around your lungs (pleurisy is inflammation of same). It was accidental-one of the problems when you have residents doing the biopsy-but I guess they have to learn somehow :-) Debbie-OH > > > > I have an appointment 4/4/01 with Dr. Carey. Haven't been there in > > over 10 years. Really scared-all of a sudden I worry that I am at end > > stage. I now am paranoid that the extra weight I have put on is > > ascites(any way to recognize the difference?), that I am about to > > bleed internally(what are symptoms or warning signs for variceal > > bleeding?) > > The scariest thing is that I can't take imuran or prednisone for AIH > > because that would exacerbate the Hep C which calls for interferon or > > similar treatment! It seems that I am doomed-unable to treat either. > > I am fairly new to this group. Am so glad I found you. I can't talk > > about this with anyone I know. Please excuse my fears & paranoia. I > > thought everything was under control; lab tests were slightly > > elevated at times but I still worked 7 days a week, many hours, on 6- > > 7 hours sleep. Don't really do anything relaxing or exercise or eat > > right-I get all my satisfaction from work. I am also afraid to have a > > biopsy again becaue the last time they hit my " pleur " and I could > > hardly draw breaths for several days. Thanks for listening. Debbie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2001 Report Share Posted March 11, 2001 , The group is anxious to hear how you are doing since your episode with the antibiotic. Please write as soon as you can & let us know how you are doing, Debbie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 hi jan, i have been going to cleveland clinic for 4 yrs....my GI is dr. richter and my surgeon is dr. rice.......they are both excellent dr.s......i now live in ohio...so i only have to travel a short distance.......let me know if you need any other questions answered...... karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Hi Jan -- Most of us who have gone to TCC see Dr. Richter, who is a gastroenterologist specializing in the esophagus. Dr. Vaezi is another one that Achalasia patients can see, but most of us see Dr. Richter. http://www.clevelandclinic.org/staff/getstaff.asp?StaffId=1086 http://www.clevelandclinic.org/staff/getstaff.asp?StaffId=3186 Gastroenterology (whichever doctor you see) will decide what tests they want to do themselves, and which ones they will just take your records on (in my case, they did their own barium swallow and manometry, but they didn't do an endoscopy b/c I had just had one four months previous for my ulcer, and I had the doc then take some pictures for me to take to Cleveland) and the Gastroenterology secretary will schedule all your tests for you. After your tests if you're a surgical candidate, then you'll see Dr. Rice, who is a cardiothoracic surgeon. Dr. Rice has done a couple hundred Heller myotomies. http://www.clevelandclinic.org/staff/getstaff.asp?StaffId=718 Hope this helps! Debbi in Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 Thanks to all who replied for the information. If I need to go there, at least I'll know who to seek out! Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2003 Report Share Posted October 30, 2003 HI !! I also use Dr Richter and Dr Rice!! I fly from Oklahoma to see them! My surgery was done in Dec of 2002 Amber CookDebbi <heiser@...> wrote: Hi Jan -- Most of us who have gone to TCC see Dr. Richter, who is a gastroenterologist specializing in the esophagus. Dr. Vaezi is another one that Achalasia patients can see, but most of us see Dr. Richter. http://www.clevelandclinic.org/staff/getstaff.asp?StaffId=1086http://www.clevelandclinic.org/staff/getstaff.asp?StaffId=3186Gastroenterology (whichever doctor you see) will decide what tests they want to do themselves, and which ones they will just take your records on (in my case, they did their own barium swallow and manometry, but they didn't do an endoscopy b/c I had just had one four months previous for my ulcer, and I had the doc then take some pictures for me to take to Cleveland) and the Gastroenterology secretary will schedule all your tests for you.After your tests if you're a surgical candidate, then you'll see Dr. Rice, who is a cardiothoracic surgeon. Dr. Rice has done a couple hundred Heller myotomies.http://www.clevelandclinic.org/staff/getstaff.asp?StaffId=718Hope this helps!Debbi in Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 What about having your Doctors Office call - the one who referred you... If your Doc knows the one he is sending you to - he must be able to work miracles for YOU!?? I would try that route, it is amazing what happens when the right person calls and the service you get! ~guin Cleveland Clinic Well, I finally got the phone answering flunkies to admit that I might be a patient eventually. THIS is why I didn't want to go to the Clinic in the first place. I'm trying to stay calm about it, but I am calmly calling them EVERY SINGLE DAY until I get an appointment.Bridget Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 I did call my docs office and they were going to call too. If I don't have at least an appointment by the end of the week, I'm going to call my doc again and ask for HIM personally to help. Bridget > What about having your Doctors Office call - the one who referred you... If your Doc knows the one he is sending you to - he must be able to work miracles for YOU!?? > I would try that route, it is amazing what happens when the right person calls and the service you get! > ~guin > Cleveland Clinic > > > Well, I finally got the phone answering flunkies to admit that I > might be a patient eventually. THIS is why I didn't want to go to > the Clinic in the first place. > > I'm trying to stay calm about it, but I am calmly calling them EVERY > SINGLE DAY until I get an appointment. > > Bridget > > > > Please visit the Zapper homepage at > http://www.ZapLife.org > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2004 Report Share Posted August 16, 2004 Hey, keep me posted (stat1951@...) reference any luck that you have with the Cleveland Clinic people (if you go that route). I live in a county adjacent to where the Cleveland Clinic is located and have considered trying to work a referral to one of their people. Unfortunately I am right in the middle of a specific round of testing with my newly obtained Endo and changing right at this time would be impractical. I already have some (major) concerns with this current Endo as he " won't test for estrogen " as he " doesn't do anything to treat higher estrogen levels anyway " (i.e., no arimidex type estrogen blockers). I am getting ready to start a big push to get him to at least do the testing for estrogen levels, pointing out that there are natural supplements I can self-medicate with if we're not talking significant estrogen levels. Anyway, here's one name from Cleveland Clinic doctors that came off of the " National Testosterone Tune-Up " web site: Dr. Shyam Allamaneni A 191 Cleveland Clinic Foundation 9500 Euclid Avenue Cleveland, OH 44195 (No phone number listed) Cleveland Clinic Department of Endocrinology 9500 Euclid Avenue #A53 Cleveland, Ohio 44195 (216) 444-9428 (216) 444-7261 (FAX) Another strong possibility is the following (Cleveland Clinic) individual who was obtained from the web site " Hormone Foundation " : S Zimmerman, MD General Endocrinology Staff Endocrinologist Cleveland Clinic 9500 Euclid Ave Suite A53 Cleveland OH 44195 Phone: 216-444-9428 Website: www.rszimmerman.yourmd.com Dr. Zimmerman's web site is interesting - see especially: http://www.rszimmerman.yourmd.com/ypol/user/userMain.asp?siteid=1736534 & content=\ userViewContentInFramework & bcx=My%20Doctor^TAB~Web%20Site^MNU~Dr%20R.%20Zimmerma\ n^PST^1736534~Home%20Page^CAT^1~Article^MAP^ZZZO7PDVDLC & cid=ZZZO7PDVDLC & secure=2\ & rndm=0.907685 Hope this information helps. Like I said, if you go that direction, keep me posted.... I might be right behind you! :-\ I would use the protocol listed by Life Extension Foundation (Male Hormone Modulation Therapy) at following web site as your guideline to test the new Endo's protocol: http://www.lef.org/protocols/prtcls-txt/t-prtcl-130.html LRS P.S. As to your current sleepiness, is it possible that your use of Testim has introduced an element of sleep apnea? If you have it quite severe, it can interfere with your sleep (heavy snoring, catching your breath as you snore, etc.). You don't realize it at night but in reality you do NOT get a good night's sleep... night after night after night. You end up tired and sleepy all day - and worse. I was diagnosed with sleep apnea about 8 years ago (long before the recent demon of low T showed up) and probably actually had it for about 20 year before that, with it getting worse each year. My wife finally insisted that I see a specialist and I had a " sleep test " conducted. I ended up with a C-Pap machine and have slept like a baby ever since then. >Message: 2 > Date: Sun, 15 Aug 2004 14:34:21 -0000 > From: kennysc9999 >Subject: Cleveland Clinic??? > >Hello all, > >I need to find a doctor that knows about hypogonadism asap. I have been so tired that I have to pull off the road for naps. My PCP gave >me Provigil to help, but so far it actually makes me more sleepy and very dizzy. I am going to have to take a leave from work with no >pay This is why I need to find a reputable doc in my area (within 100-200 miles). > >I found a site talking about 'The Cleveland Clinic' Anyone hear anything good or bad about this place for our problems. It looks as >though they have doctors that treat this condition, but I haven't much about the place on this board. I am at the point that I need to >do something right away. I don't want to find a doc that wants to experiment one drug at a time and wait a month and then try something >else if it fails. Y'all know what I mean. I have been tested and have low T but thats all I know so far. He put me on Testim once a >day but hasn't tested again. He (PCP) hasn't heard of the protocols so I'd really like to get to someone that can help in a hurry. > >Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 Dear Leanne, Don't give up on all the hospitals just because of my experience. Like you, I had only heard good things about the Cleveland Clinic, and part of me didn't even want to tell anyone how the trip actually went. I knew though that it wasn't right to tell people it was great when it was a lousy experience. On the positive side, I've only heard great things about Mayo's and I guess that's where I should have gone in the first place. I let my insurance coverage decide where to go and that's never a wise choice. I would hate for Owen to miss out on someone who might help him just from my experience. There are probably people who do just great at the Cleveland clinic, though I doubt it if they saw the three doctors I did. I'm sure the main office or main hospital is probably top of the line. They are actually rated number 1 in heart surgery here, so maybe I just chose the wrong field to see them about. As far as throwing one hell of a stink, I guess part of me still wonders why I didn't complain more than I did at the time. Looking back, all I can say is I was in a state of shock and of course pain. I kept thinking if the " experts " feel this way about me, maybe I am to blame for all my problems and I've gone about this all wrong from the beginning. Once I got away from their environment I realized just how wrong they were. I'm writing them a letter now, and I " m sure it will be a sort of therapy before it's all over. Thanks for being so supportive and I hope Owen is doing as well as he can. I've thought of him often and hope and pray his road is easier in the future. Love, Fran ----Original Message----- From: taschic6 [mailto:cookie6@...] Sent: Monday, September 20, 2004 6:06 PM Subject: [ ] Cleveland Clinic Isn't it pathetic! Even in Australia (due to the internet)I know of the Cleveland Clinic.Alot of the information, on PA, comes from there, and yet the staff sound truly ignorant.I had actually thought about saving up and taking Owen to somewhere like that if his PA continues to be as aggressive as it currently is. Now...stuff that.If I'd gone ahead and taken him there and got that response, I'd throw one hell of a stink. How dare they! I'd like to add a hug to you all, as everyone takes news like that badly. Leanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2004 Report Share Posted September 21, 2004 Dear , I seemed to have really touched a nerve with my email. I guess it's because all of us like you said have bad doctor stories. It is true that I had three all at once, but to give the first doctor credit he wasn't cruel, he just didn't know anything about my illness. It's scary when you think you know more than your current doctor. I had to tell him that he could look up erythromelalgia in NORD, The National Organization for Rare Diseases, to prove to him it existed. He also left before he spoke to me again which he had said he wanted to do after he researched the illness, so that was frustrating, but he wasn't mean like the other two were. I feel for your Dad and so many times I can't understand doctors. I would think by now that they would have seen so much they would know not to judge people, but still some of them do. I guess their egos just can't admit defeat, so it's easier to just scare away the hard patients. I'm glad you found someone to help your dad and I understand totally how he felt. I recently saw an endocrinologist here locally about a month ago. Normally they are pretty educated physicians and can be sort of intimidating as well. This lady was the nicest doctor I've ever met on the first appointment. She told me half way into the appointment that everyday she becomes a better doctor because her son was recently diagnosed with PA of the spine. She said it kills her because he is in pain all the time and she knows what the future holds for him. He is grown and away at college, but she worries about him everyday and said since that happened to her and her family, she felt like for the first time she really became a good doctor. I told her I bet she was good before because some people wouldn't even let that change them, and it was obvious it moved her to tears in front of me. She told me more about my disease and problems than all three of those jerks at the Cleveland Clinic combined. So as far as I'm concerned now, I'm going by reputation of the doctor, not the clinic. Anyway, thanks again for being so sweet and everyone sure has helped me feel better with all these great emails. Thanks again, Fran [ ] Cleveland Clinic Fran, I am so very sorry to read all about your horrible time at the Cleveland Clinic. I know from past experiences with my father, who also had a rare disease, that he was mishandled and accused of being addicted to pain meds, etc. at several of the so-called great facilities. He was a proud, hard working man and this hurt him to the deep part of his soul. He wanted to just give up, but luckily we found a doctor who knew his disease at the Houston Medical Center. Doctors can be so cold and cruel. Don't let this get you down Fran. We all know some bad doctor stories, it is just unfortunate that yours were all at once! Many hugs to you..... in Poulsbo, WA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 In a message dated 9/21/2004 2:58:46 PM Eastern Standard Time, fran@... writes: Anyway, thanks again for being so sweet and everyone sure has helped me feel better with all these great emails. Thanks again, Fran Hi Fran...I am kind of catching up late to these emails (traveling, then Hurricane Jeanne)...I don't know how far you are willing to travel for a great doctor, but I have a great one on the southwest side of Orlando. She is a rheumatologist by training, but currently treats " random " diseases, including those with rheumatological origins. She is very good at handling multiple autoimmune diseases, and really works as a detective with you...she doesn't take any insurance (I submit the claim myself and get reimbursed 80%), but she only does that so she can spend the time she wants with each patient. The first visit with her is 3 hours, then after that you never see her for less than an hour. She has a lot of fibro patients, chronic fatigue patients, and autoimmune patients. Her name is Maclay 407 299 2882. If you call, her receptionist can be a little gruff so don't be put off. But she is truly wonderful...and she helps " manage " all of the other specialists you have to see, so for me she coordinates the endocrinologist, dermatologist and hematologist. She's also the one that gave me the " reading list " of books, including the stress book I've written about before, when I first started seeing her. She is a big fan of helping her patients educate themselves and having a say in their treatment. And she is the one who ordered copies of the biologic trials to read and then decided that I was a high risk candidate for biologics (after a few other doctors recommended them)... I think you said your daughter with fibro is now in Orlando so maybe she can check her out for you... Maybe another trip to a really great doctor would help you get over the Cleveland experience faster... PS, Maclay is so great, I have a vendor who lives in Boston who comes down to see her! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Dear , thanks for the info on the doctor in Orlando too. That at least seems possible since traveling is so hard on me now. She sounds like a wonderful doctor and I don't mind paying cash because my company will pay us back pretty quickly. I'll save the email and when I'm ready to start doctor searching again, she'll be the first one I call. Right now I just want to try and deal with my home doctors for awhile, give Arava more time to work and see how I do. I really do appreciate your help and your emails. Thanks for being so helpful and for thinking of me. Love, Fran Re: [ ] Cleveland Clinic In a message dated 9/21/2004 2:58:46 PM Eastern Standard Time, fran@... writes: Anyway, thanks again for being so sweet and everyone sure has helped me feel better with all these great emails. Thanks again, Fran Hi Fran...I am kind of catching up late to these emails (traveling, then Hurricane Jeanne)...I don't know how far you are willing to travel for a great doctor, but I have a great one on the southwest side of Orlando. She is a rheumatologist by training, but currently treats " random " diseases, including those with rheumatological origins. She is very good at handling multiple autoimmune diseases, and really works as a detective with you...she doesn't take any insurance (I submit the claim myself and get reimbursed 80%), but she only does that so she can spend the time she wants with each patient. The first visit with her is 3 hours, then after that you never see her for less than an hour. She has a lot of fibro patients, chronic fatigue patients, and autoimmune patients. Her name is Maclay 407 299 2882. If you call, her receptionist can be a little gruff so don't be put off. But she is truly wonderful...and she helps " manage " all of the other specialists you have to see, so for me she coordinates the endocrinologist, dermatologist and hematologist. She's also the one that gave me the " reading list " of books, including the stress book I've written about before, when I first started seeing her. She is a big fan of helping her patients educate themselves and having a say in their treatment. And she is the one who ordered copies of the biologic trials to read and then decided that I was a high risk candidate for biologics (after a few other doctors recommended them)... I think you said your daughter with fibro is now in Orlando so maybe she can check her out for you... Maybe another trip to a really great doctor would help you get over the Cleveland experience faster... PS, Maclay is so great, I have a vendor who lives in Boston who comes down to see her! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 Kathy, It can take some time to get in, but you can ask them to call you if they have a cancellation if you can get there in a reasonable amount of time. I made my appt about 2 months ago, I’m going in 2 weeks. Which reminds me I need to call back and make sure that they can do a procedure during the time that I’m there since I live in Indiana. I use to see Dr. Richter, LOVED HIM, I will be seeing Dr. A this time. I’m not sure how I’ll like him but I’ll let everyone know when I get back. in Indiana From: achalasia [mailto:achalasia ] On Behalf Of kmlyons1946 Sent: Sunday, April 30, 2006 8:42 PM achalasia Subject: Cleveland Clinic I have read many messages from people who have gone to the Cleveland Clinic for treatment. Is that the best place for achalasia treatments? How long does it take to get in for an appointment and then how long before treatments or surgery can be scheduled? Which doctor should I contact? I would appreciate any information possible. I seem to have trouble getting my s Hopkins specialist, Dr. Ravich, to respond to my phone calls. I had decided to try balloon dilation first, but I have not been able to have it scheduled and I am getting frustrated! Kathy SPONSORED LINKS Article health wellness Center for health and wellness Health and wellness Health and wellness program Health wellness product Health and wellness job Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Kathy, According to the Cleveland Clinic website, they probably treat the most cases of achalasia of anyplace in the country. That's why my husband and I went there on 3 separate occasions. The first time, last August, it took about 6 weeks to get in to see Dr. Edgar Achkar. We were told that the wait was because of summer vacations. For our last visit, tests and a consult with Dr. Rice, it took only a few weeks to get in. They've really worked hard to schedule tests for my husband while we're in town. If you're driving a ways, like we did, make sure to mention this to whomever you speak with about appointments. For the first visit, we were told to plan on staying overnight afterwards, so that any necessary tests could be done the day after the first consultation. By 2:30 the next day, had finished his last test (barium swallow), and by 3:30 that afternoon, we were in Dr. Achkar's office discussing the results. We were impressed with that! I hope you can get in somewhere soon. Take care! in Michigan > > I have read many messages from people who have gone to the Cleveland > Clinic for treatment. Is that the best place for achalasia > treatments? How long does it take to get in for an appointment and > then how long before treatments or surgery can be scheduled? Which > doctor should I contact? > > I would appreciate any information possible. I seem to have trouble > getting my s Hopkins specialist, Dr. Ravich, to respond to my > phone calls. I had decided to try balloon dilation first, but I have > not been able to have it scheduled and I am getting frustrated! > > Kathy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 Danni, My Dr. is talking about the cleveland clinic or the mayo clinic for me as the next step if we don't see improvement soon. I have some questions...which is better? Are they both research clinics? How long do you have to stay? Is it something I'd have to take a long medical leave for, or would it be diagnostics, then sent home with a treatment plan? I know I would be different than what you experienced because we're all different...but from your reference point can you tell me about your experience? Thank you! shannon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2007 Report Share Posted July 8, 2007 Danni, My Dr. is talking about the cleveland clinic or the mayo clinic for me as the next step if we don't see improvement soon. I have some questions...which is better? Are they both research clinics? How long do you have to stay? Is it something I'd have to take a long medical leave for, or would it be diagnostics, then sent home with a treatment plan? I know I would be different than what you experienced because we're all different...but from your reference point can you tell me about your experience? Thank you! shannon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2007 Report Share Posted July 9, 2007 I went to Mayo Clinic in March, after being diagnosed in December. The appt. began in the internal medicine department. Then, the other departments were scheduled in a matter of a few hours or a couple days--all outpatient. The entire process took only four days, and wasn't anything brand new--lots of confirmation of what I was already doing and some new recommendations regarding medication and ongoing treatment. The Rheumatology department at Mayo is very knowledgeable about Stills Disease and very helpful. The whole process at Mayo is really streamlined well and efficient time wise. The motels and services in Rochester MN are great as well. Good luck!!!! > > > Danni, > My Dr. is talking about the cleveland clinic or the mayo clinic for me as the next step if we don't see improvement soon. I have some questions...which is better? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 , ??? The cleveland clinic does a comprehensive outpatient exam. After the exam they talk to you about treatment options. They give you a number of options. I was treated at the mayo clinic for my bleeding disorder.The mayo clinic does more research then cleveland. You or your doctor can call both and see what they have going on or stills. Both outpatient for me but everyon is different. I hope this helps. Danni ________________________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 , ??? The cleveland clinic does a comprehensive outpatient exam. After the exam they talk to you about treatment options. They give you a number of options. I was treated at the mayo clinic for my bleeding disorder.The mayo clinic does more research then cleveland. You or your doctor can call both and see what they have going on or stills. Both outpatient for me but everyon is different. I hope this helps. Danni ________________________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 , ??? The cleveland clinic does a comprehensive outpatient exam. After the exam they talk to you about treatment options. They give you a number of options. I was treated at the mayo clinic for my bleeding disorder.The mayo clinic does more research then cleveland. You or your doctor can call both and see what they have going on or stills. Both outpatient for me but everyon is different. I hope this helps. Danni ________________________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 Thank you, I'm hpping it doesn't get to that point. But yes, this helps a lot. Esp the time frame. I think my dr is leaning towards Cleveland. I'll have to ask why. Re: Cleveland clinic , ??? The cleveland clinic does a comprehensive outpatient exam. After the exam they talk to you about treatment options. They give you a number of options. I was treated at the mayo clinic for my bleeding disorder.The mayo clinic does more research then cleveland. You or your doctor can call both and see what they have going on or stills. Both outpatient for me but everyon is different. I hope this helps. Danni __________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 Thank you, I'm hpping it doesn't get to that point. But yes, this helps a lot. Esp the time frame. I think my dr is leaning towards Cleveland. I'll have to ask why. Re: Cleveland clinic , ??? The cleveland clinic does a comprehensive outpatient exam. After the exam they talk to you about treatment options. They give you a number of options. I was treated at the mayo clinic for my bleeding disorder.The mayo clinic does more research then cleveland. You or your doctor can call both and see what they have going on or stills. Both outpatient for me but everyon is different. I hope this helps. Danni __________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2007 Report Share Posted July 10, 2007 Thank you, I'm hpping it doesn't get to that point. But yes, this helps a lot. Esp the time frame. I think my dr is leaning towards Cleveland. I'll have to ask why. Re: Cleveland clinic , ??? The cleveland clinic does a comprehensive outpatient exam. After the exam they talk to you about treatment options. They give you a number of options. I was treated at the mayo clinic for my bleeding disorder.The mayo clinic does more research then cleveland. You or your doctor can call both and see what they have going on or stills. Both outpatient for me but everyon is different. I hope this helps. Danni __________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2007 Report Share Posted October 17, 2007 Jan The doctors I see at the clinic are Dr. Vargo (Gastro) and my surgeon is Dr. Rice. I'm going on 3 yrs since my second myotomy. I don't post much but read the board everyday. If you have any questions this is the place to find the answers and to help you realize that you are not the only one. Central KY > > Hi, > I was wondering for those of you members who have written about > recieving treatment at the Cleveland Clinic- > Who are the doctors there that are well experienced in motility > disorders, and what is their specialty- surgery or GI.? > Thanks, > Jan from N.KY > > Quote Link to comment Share on other sites More sharing options...
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