Re: Big Pharma, neurologists and CCSVI, was: Re: PLM discussion forum,

[Guest guest]

I think most of us are rather pissed at neurologists! The one I used to see

wanted to know what supplements I was taking, then when I gave him a long list,

he said I shouldn't bother with any of them, as anything they might seem to do

was merely placebo!

And yes, I'd really like to see Big Pharma get its comeuppance as well. They are

controlling more and more of health care and medical school education in the US,

Canada and Europe as time goes on. They keep trying to make herbs and other

supplements harder to obtain, and push everybody onto their poisons, all for

their huge profit$$$$.

I really want to see CCSVI available in more places. It's finally now available

in my city, so I jumped at the chance. I didn't relish the idea of long plane

flights, etc.

For anyone who hasn't found a place in the US, check out Vascular Access

Centers, which has brought the procedure to 22 cities so far. They don't require

a referral from a neurologist, or any other doctor for that matter, although

they do ask for the name of your primary care doc.

They do give you about 20 pages of paper to fill out, and their well-experienced

interventional radiologists travel to different cities to meet the demand. Their

chief doctor will be here all this coming week to do primarily CCSVI treatments.

And their cost is a bit less than other places I've been quoted.

http://www.vascularaccesscenters.com/PublicPages/ChronicCerebrospinalVenousInsuf\

ficiency.aspx

(And I made a typo regarding my date....it's January 4th!)

Best wishes to all for 2011!

Alice

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> > When I posted my data on the Patients Like Me (PLM) MS board, it was amazing

how many people threw " flames " at me ! Didn't apologize. Just brought up more

links to posts where it didn't work.

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> I occasionally look at the forum there (although I very seldom post) and have

observed lots of flaming directed at those with " unorthodox " views. It seems,

for example, that several pro-CCSVI people have been chased away. As have been

those who talked of removing mercury amalgam filings to deal with MS, and other

alternatives.

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> But then, since the site is funded by selling data on members for research

purposes, I guess the orthodox orientation should not be surprising. I suspect

that there are several " plants " on the forum as well. Lots of people talk about

always checking with your neurologist before you do anything new, like taking a

vitamin pill....what rubbish!

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> I haven't seen a neurologist in more than 2 years....and I'm scheduled for

CCSVI next Tuesday, January 5th! ;-)

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> Alice

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