Dr. appointment

[Guest guest]

I hope all goes well for you.

Good luck

Love,

Leigh

>From: Melinda Sprague <mydragon@...>

>Reply-egroups

>egroups

>Subject: Dr. appointment

>Date: Thu, 25 Jan 2001 22:05:31 -0500

>

> Hi,

>I know i havent written for a bit now. I havent been feeling too good

>still. I went to the Dr. today and we are still working on drying up my

>sinuses so i dont wake up choking on goop every 2 hours at night. Other

>than that i had a bit of a scare. I found a small lump in my arm pit. Dr.

>asked me if i had changed my deodorant, and i told him that i dont use it.

>He asked if i used any powder and I said ya, just baby poweder. He said

>that it probly wasnt that either. He *Thinks* it is a blocked sweat gland

>and to put hot compresses on it, if it doesnt clear up in 2 weeks then i

>have to go back to reevaluate it. so i hope thats all it is. So cross your

>fingers for me. he didnt seem very concerned about it, and seems sure that

>his diagonosis was correct, and i have no reason to not believe him.

>Im also going off my Zoloft so i can start taking Meridian ( diet drug) and

>maybe i can start to lose some of this weight and have myself a baby one of

>these days.

>So just thought id say hi, i miss everybody, i am still reading the posts

>just am too zonked to say a whole lot.

>Melinda

>

>

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[Guest guest]

{{hugs}}

Chelle (michelle4)

[Guest guest]

hi Abby,<br>a few months ago i did a CT to both

knees. i know i have a tilt on my left knee for 12

years, after dislocating it and i have NO tilt on my

right leg-i also have other x-rays and " sky views " to

show it.<br>so when i recieved the ct results i

couldn't stop laughing: they showed NO tilt on the left

leg, but a very nice tilt on my RIGHT!!<br>so here's

the human factor: a technician that put the " R "

insead of the " L " .<br> <br>all OS that i met since agree

that it is a mistake in the hospital..<br><br>although

i do hope those things are rare, if your knees are

in such a bad state, and the mri shows nothing, i

wouldn't rule out the human factor.. still, it's more

logical that your mri just " missed "

pathologies.<br><br>about the alignment:<br>i don't know how bad your CP

is, but if you have a malalignment that causes you so

many problems, did you consider a Tibial tubercle

Transfer?<br>if this op succeeds, it is supposed to stop the

wearing away of cartilage, and all other symptoms that go

with malalignment. after that, you might not need the

TKR.<br><br>a TKR at your age sounds too soon to

me...<br><br>-Sigal

[Guest guest]

Hi Sigal! Yes, the doctor mentioned a tibial

osteomy...but said that it won't be till the alignment was

worse and my legs were bowed more. But the more I think

about it, if they correct the alignment now, that would

possibly prevent worse wear and tear down the road,

wouldn't it? I know their biggest concern is the defect,

not the alignment, but the alignment is what caused

the defect in the first place!!! ARGH!! See, this is

what really frustrates me...what seems common sense to

me, doesn't seem to seem that way to the doctors!! I

have a feeling that at my age, ANY doctor is hesistant

to do surgery, espcially anything major. And I know

a TKR is out for me right now, I've already

resigned myself to that...but I am so ready for a new knee

already!!<br><br>As far as my CP is concern, I FINALLY got to read my

surgery report and the OS said I had a major amount of

CP...but never did give it a grade. <br><br>At this point

I'm really confused at what to do and how to

proceed...also factoring into all of this, my husband will be

getting a new job in March 2002 so I'm really unsure of

have a major operation and having to switch

coverage...possiblity of not being covered because of a pre-existing

condition? WHO KNOWS! LOL I'm starting to get my sense of

humor back about all of this, it's just a day by day

thing at this point!<br><br>Anyway, thanks for your

input, it's greatly appreciated! Take care!<br><br>~Abby

[Guest guest]

Hi! Can certainly sympathize with everyone's

confussion and misguided trust in os and how everyone says

something else. I went in for a mosaiacplasty yesterday and

guess what!? To much damage for it to do any good!! So

he did only the arthroscopic exam and removed some

loose cartilage. now I go in on Monday am to find out

what option B is. I have no idea what will be

recommended next. I am most frustrated with the fact that 14

months ago I went to a different os and he told me to go

home and loose weight that the pain could not be that

bad. Stupid and mad as I was i waited and went back

two months ago when he told me my options were to

loose weight or nothing I finally went to another os

who refered me to the one that did this surgery.

Apparently the damage is to the point of little or no

cartilage left and the bones have already been affected.

Again I am not sure to what extent or exactly what,

when your coming out of surgery is a hard time to try

to wake up and fully comprehend what they are

saying. I will know more monday and for right now I have

a very painful swollen knee to take care of so best

get to a place where I can elevate it. Blessings to

all and hope your day is better than mine!

[Guest guest]

Mike, I'm so sorry to hear that you couldn't have

the surgery! I wonder if they can't do the OATS, if

they can't do the carticel too? I guess not since

there isn't much cartlige left. Do you think maybe now

they will suggest a TKR?? <br><br>I just have to

chuckle at the losing weight comment. Even though it may

not be a bad idea for alot of reasons, that seems to

be all doctor's answers when they either don't want

to investigate or they don't know what the problem

is! I even got that from a doctor that checked me out

for gallbladder disease and he already knew there

were no stones! LOL He was just to lazy to order a

functional test for me. <br><br>Anyway, keep us posted on

what the doctor says on Monday! Take care of you knee

and kick back and relax!<br><br>~Abby

[Guest guest]

hi Abby,<br>i think that i understand why your

doctor is reluctant to do Tibial TT. i'm also a

candidate for it (on both knees) went to several OS, and

those who were against it said that it is a very

difficult procedure that they prefer to do only in extereme

cases. <br>they cut the tuberosity bone (which is

located just below the patella) and move the patella &

it's tendon to the middle of the knee and screw it to

the bone. <br>basically, they reconstruct your

knee.<br><br>i was told i should do it only when i have pain on

a daily basis & cannot take it anymore. (in other

words, when i start crawling on the

ground..).<br><br>again, i don't know how bad your cp is,in what pain you

are, and i'm not an OS or Theparist, but if i had to

choose between a total knee replacement and the TTT - i

would go for the TTT. you can always replace your knee,

but once you have done that there is no turning

back.<br><br>i have to say that it does sound odd to me that

your OS tells you u'll need a TKR, but refuses to give

you TTT which might save you the trouble and pain to

replace the knee. i was offered TTT in order to PREVENT

patellosectomy, TKR, etc.<br>did u consult other OS??

<br><br>there are other measures to help cp such as synvisc

injections. i know a person who took them and it really

helped her. did your OS offer you these? if you suffer

from a constant daily pain maybe you should check

about them..<br><br>-sigal

[Guest guest]

No, I don't want to have a TTT unless it is

ABSLOUTLY the last thing they can do for me. As far as I'm

concerned that isn't even on my agenda at this point in the

game. Right now my main problem is this defect and the

constant pain. My only options right now are going to

probably be either OATS or Carticel or soemthing along

those lines. At this point, I don't care as long as it

gets rid of the pain. I have tried the synvisc

injections, and they may as well have put water in there for

all the good it did me. I was really hopeing for

better results. <br><br>Like I said, after they do the

MRI, hopefully the Dr will have a better idea as to

what to do. From the x-rays, my alignment isn't bad

enough to do the TTT anyway, and because of my age,

there is no way any doctor will even think of doing a

TKR. So right now, like the dr said, I'm just buying

time till I get older and the degeneration and the

alignment gets worse. It's a very frustrating situation to

be told I will need all of these things and

basically just wait till I can hardly walk to do anything

about it.<br><br>My husband did bring up a point, the

dr said they want to find out what exactly caused

the defect in the first place (I didn't have any

specific accident) and try to treat that along w/the

defect. From the way the dr talked, she didn't seem to

think the alignment was what caused it. SO...till they

get the MRI, I feel like I'm stuck in Lala land

wondering what is going to happen next and what my options

are going to be. I will get a second (and third and

fourth if necessary) opinion after the MRI is done and I

see exactly what this Dr.

thinks!<br><br>Thanks!<br>~Abby

[Guest guest]

In a message dated 12/20/2003 8:19:54 PM Central Standard Time,

tmac@... writes:

> I hope everyone who has had colds or flu are feeling better. Kathy,

> you and Sara are still in my prayers.

>

> Tena

HI Tena

My prayers are with you and everyone here is getting better Sara has

had no temp since Thursday !!!!!!!, I even took her Christmas shopping yesterday

with the help of my 25 yr. old son. She tired easily but so did I lolol I

have most of my shopping done, about 10 more gifts to buy, which I'll do today

and Monday. I must have worn Sara out, she's still asleep lol

I am so impressed with how the school has cared for Sara, everyone has sent

her a Christmas card, even the administration, and principal she runs to the

mailbox now looking for her name. All I need now is some ear plugs .........

you'll never know how annoying the coughing sound is when you have 6 family

members barking heehee (I am greatful though with coughing there is life)

Kathy mom to Sara 12

¸...¸ ___/ /\ \___ ¸...¸

,·´º o`·, /__/ _/\_ \__\ ,·´º o`·,

```)¨(´´´ | | | | | | | | | ```)¨(´´´

¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸

As for me and my house, we will serve the Lord.

Josh. 24:15

[Guest guest]

In a message dated 12/21/03 11:49:34 AM Eastern Standard Time,

b4alltoday@... writes:

> you'll never know how annoying the coughing sound is when you have 6 family

>

> members barking heehee

You could try for a barking family Christmas song like that dog one it would

be unique!!!

[Guest guest]

It does seem that you're on a lot of meds aimed at the same problem. I've got

little room to talk but it seems that mine are treaing various symptoms; I don't

know. Aren't

3 of yours used for anti-rejection?

I take Vit.D w/ calcium (1500 mg./day) and Fosomax for bone density-have

osteopenis in my spine & osteoporosis in my hips.Recently fractured a rib while

scrubbing the bathroom (just leaning over the toilet seat to reach an area).Have

paiin meds for this & also had meds for itching increased as this problem has

gotten worse.

It'll be winter before we know; so being indoors alot won't bother me as

badly.

Connie <angel34@...> wrote:

I had my 4 month check up with my hept. Dr. Monday. It went well. MY

labs are still in the normal range, so I get to decrease the

Prednisone to 15mg. For once in a 1 1/2years the Doc was serously

wanting to get me off the Prednisone. The Prograff that I am taking is

working great, along with the CellCept. I also had to see the bone

Dr. my bone dencity test came back great it was .4, so I just have to

keep taking my calcium with vit. D and see him again in a year. It is

such a long trip to Kansas City. It takes 6 hours to get there. Good

thing I have all my labs done back home and then they fax them to

Kansas City. I am also used to my small clinic, I get my results with

in 20 min. In Kansas City I asked for the results and they told me I

have to go through my Dr to get them and then he will send them to me.

I guess I am spoiled with our small clinic.

Connie

[Guest guest]

I am so tired of the lower back pain that I have had for several years

now. At first it was very infrequent, but now it just seems to hurt

most of the time. At my last visit my rheumy sent me for ex-rays, which

indicated spondylolisthesis, or a slipped vertebra. My next visit to

him is not until March, and he has never seemed very concerned about

it, anyway.

So I googled and found an orthopedic surgeon at a Spine and Scoliosis

Center in a nearby city. I called and got an appointment for January

14. I thought that I'd probably have to wait longer, but they

apparently save some slots for new patients.

I certainly don't want to have surgery, and the website sounded as

though they use that as a last resort. I hope that I will get some

relief soon. I knew what kind of doctor to look for, as my

brother-in-law recently went to an orthopedic surgeon for his back

pain, and he got some epidural shots, which have alleviated at least

some of his pain.

Sue

[Guest guest]

- my Rheumy wasn't concerned with my back pain either (for his

treatments). He told me that I need to see an orthopaedic because it

is mechanical. But, because I don't have insurance, I can't afford an

orthopaedic, so I am stuck with excruciating back pain that is getting

worse by the day and neither the Rheumy or my PC are willing to hear

what I am trying to tell them.

For that I am glad Christmas is over with. Now my goal is to try to

get the credit card paid down enough so I can go to an orthopaedic.

Sue - I wish you the best of luck with your January appointment. I

know how you are feeling. There are times I almost feel the back pain

is worse than the RA/FMS.

Doreen

> > I am so tired of the lower back pain that I have had for several

> > years now. At first it was very infrequent, but now it just seems

> > to hurt most of the time. At my last visit my rheumy sent me for

> > ex-rays, which indicated spondylolisthesis, or a slipped

> > vertebra. My next visit to him is not until March, and he has

> > never seemed very concerned about it, anyway.

> >

> > So I googled and found an orthopedic surgeon at a Spine and

> > Scoliosis Center in a nearby city. I called and got an

> > appointment for January 14. I thought that I'd probably have to

> > wait longer, but they apparently save some slots for new patients.

> >

> > I certainly don't want to have surgery, and the website sounded as

> > though they use that as a last resort. I hope that I will get some

> > relief soon. I knew what kind of doctor to look for, as my

> > brother-in-law recently went to an orthopedic surgeon for his back

> > pain, and he got some epidural shots, which have alleviated at

> > least some of his pain.

> >

> > Sue