Guest guest Posted January 20, 2001 Report Share Posted January 20, 2001 Hi , I'm in Florida, a 45 yr old widow with 2 teenagers (there are many of us at this age with AIH). My mom (a self taught " herbologist " ) keeps asking me if I hear from meds or treatments used in the UK, or India, or other lands that seem more sophisticated and supportive of alternative methods for liver disease. As you know, the US FDA is very slow to approve of treatment that may be beneficial to us all. I pray for you and all of us in this loving group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2001 Report Share Posted January 20, 2001 Don't let fool you , she's a 25 year old man named Dennis. I talked to her on the phone today. LOL Just kidding! Genny/Jodi's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2001 Report Share Posted April 15, 2001 > My doc is going to put me on the rebetron and interferon. He hasn't > mentioned the peg treatment yet. >>>****Dear , I know lots of people who've told me that they've responded to that, I didn't, but people with livers that are more damaged have. My liver is between a 1-2/4 I don't know what that means, but that was the biopsy report. I don't know what genotype I have, but I had close to a million PCR when I started the tx. I hope and pray that it works for you. If you need someone to talk to or complain to about the tx, you can email me at: @... I'm always here. Take care,,,and " Happy Easter " to you and everyone reading this!!! Hepper Hugz*** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 Hi , I recognise the problem with the abdomen when I used a high doses of pred. Good news is that all is gone now that I use 10mg per day. So there is hope. And going to the gym almost every day thats wonderful. I really admire you for that! Keep up the good work and loose the water. I am sure they can will find something for you! With love Loes, the netherlands Re: [ ] > Hi everyone. Sorry I haven't posted anything in a while, my life has been > crazy!! But a good crazy. Just last week my doctor lowered the prednisone > to 5mg a day. I was excited because he had told me that once I got down to > 5mg a day, that's when I should start noticing some weight loss. Does > anyone know if this is true. Did this happen to anyone? I sure hope so. > But recently I've been noticing that I gained weight, but only in my abdomen > area. I've been going to the gym almost every day, but I weigh more know > than I ever did. I told the nurse for my doctor this and she said that it > sounds like I have abdominal swelling which is caused by all the water > starting to be retained mostly in my abdomen. Lucky me. She said she was > going to talk to the doctor and get back to me. She said that he might > increase my water pills and put me on another medication to help with the > water loss. She called me back and said that the doctor wants me to have an > ultrasound of the abdomen and liver done to make sure that nothing's wrong, > before he goes changing dosages of certain medications or putting me on > something else. I hope that nothing is wrong. Anyone else experience this > side effects? > > Thanks, > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2001 Report Share Posted May 4, 2001 I just loved your post about " one year later " . You made my day and I'm glad you didn't sit it out, DANCED Rebekah Mobile, AL 3/15/01 -34 pounds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 Dear , Why do you say that? Luring in what respect? I'm not trying to catch anything. You appear to be an advocate of Dr. and I thought you could answer my question. Can you? Mahkti > Mahkti, > > Your questions sound like a lure to me, to put it > politely. > > > > > > According to Dr. Hulda any Cancer can be cured > > in 5 Days simply > > by ordering one of her Cancer Specific Cancer Cure > > Kits. > > > > Has anyone in this group been cured or knows of > > someone who has been > > cured using Dr 's Kit? > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 Find information at the following link; http://www.curecancer.com/ > > > Mahkti, > > > > > > Your questions sound like a lure to me, to put it > > > politely. > > > > > > > > > > > > > > > > According to Dr. Hulda any Cancer can be > > cured > > > > in 5 Days simply > > > > by ordering one of her Cancer Specific Cancer > > Cure > > > > Kits. > > > > > > > > Has anyone in this group been cured or knows of > > > > someone who has been > > > > cured using Dr 's Kit? > > > > > > > > > > > > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2001 Report Share Posted May 16, 2001 > > Mahkti, > > > > Well Mahkti, I owe you an apology then if you say you > > ate not anyone's puppet. I do not think I am more > > insightful than anyone else here. We all have > > different areas of knowledge. I have been to Dr. > > 's clinic and I have seen her and have been > > tested by her, so I can relay information about her > > first hand, and I know the style of her opponents. > > > > Your wording of " any Cancer can be cured in 5 Days > > simply by ordering one of her Cancer Specific > > Cancer Cure Kits " sounded suspect to me. > > > > I still don't know where at that website you got that > > phrase. Could you copy and paste that paragraph here? > > > > > > > > > > > > > > > I am no ones puppet. I am not as insightful as you. > > > I took the site > > > at face value. Thank you for the clarification. I > > > will check these > > > sites out. > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2001 Report Share Posted June 8, 2001 Christel, here is what I think is important: He says to drink apple cider vinegar w/honey 2x per day. On the OxyPlus site, Jim said to do the same thing - it reduces lactic acid. In TCAD, Dr. says it helps with digestion, and she says in the Syncromer Manual that it reduces phenol from benzene in the body. Dr. Barefoot says the body needs lots of salt to help with digestion! ===== , thanks for your long letter. I for one can't even think of taking anything related to that cleanse. It was to drastic for me. I am taking my Fiberblend and DR Schulzés # 1. I am still juicing, taking my garlic and cayenne. My vinegar with honey, digestive enzymes, probiotics, calcium , colostrum, celtic seasalt , ozonated water,colemas and you name it..... I still have the same problem. Had some good results with the overdose on Homozon but had to give it up because I have not been able to get more due to some breakdown somewhere. My problem is really always in the same spot. Real high, almost under my ribcage. It is always swollen and gives me the feeling of being full. Even when I don't eat. One day I will figure it out. ===== We obviously don't have the right bowel bacteria ====== That is true and due to all the cleansing we have done. ===== don't like the instructions we got with the 7 Day Cleanse - they make you think the other stuff isn't necessary but it is! ===== I never followed those at all. I did my cleanse strictly by the book, including the supplements he has listed that Sonne does not have. I am glad something is working for you now. You obviously still have lots of parasites. Me too, I think mine were liverflukes but I am not sure. Keep up the good work. I am leaving town next Wednesday for 4 days. My first outing since Christmas. Having to eat food without making my own stuff. I know it will set me back and I have to start all over when I return. But by that time I hope to have my Homozon and will go to work with it. Take good care of yourself. Thanks for the post on the #4 position. OLDER people have trouble with that. :-(( This old lady has no problem working out, dancing, playing tennis. But the only way I can do that pose is putting my hands further back than instructed. Tschüss, bis bald Christel Are you just doing clay and psyllium now? Or are you taking the nasty greenlife and the other things too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2001 Report Share Posted June 8, 2001 Hi , Thanks for writing to me...BTW, my name is ........I also have seen your posts and am quite empathetic to what you are dealing with. It does help to know that there are other folks trying to come to terms with this illness in a beneficial way. I have great strength in my faith that we will survive these physical and emotional trials. Having the support and love from this group has been a saving grace for me as well. My kids (girl 13 and boy 16) keep me informed when I start acting or talking "a little weird", and then I remember to take the Lactulose dose that I had forgotten! My kids and I live alone (dad passed from brain cancer), and I MUST survive as I love them so very much. I've allowed them to go on a church camping trip this weekend and I miss them already. I've already placed you on my prayer list when I first saw the post from Greg (this was you, wasn't it?) Let's keep up with the meds and pray for the road to health. God bless, BTW, what does BTDT mean? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 Hi Yes Gregg did send a post about me. He is my caregiver and my power of attorney. My illness keeps him on his toes, especially the encephalopathy. I want to be around for him since I have never met a man with so much caring and compassion before. BTDT means Been There Done That. Do you know what a/s/l means. SOmeone wrote that on a message to my grandaughter and her mother and I can't even figure what it could mean. WHat did we do before abbreviations? I am sorry to hear about your husband and having to raise your kids all alone. I will keep you in my prayers as I do everyone in our group. I have been having a bout with depression and manic depression these days but I have been trying to overcome it. Keep in touch. It was nice meeting you. Sincerely & Gregg Tustin, CA Re: [ ] to Hi , Thanks for writing to me...BTW, my name is ........I also have seen your posts and am quite empathetic to what you are dealing with. It does help to know that there are other folks trying to come to terms with this illness in a beneficial way. I have great strength in my faith that we will survive these physical and emotional trials. Having the support and love from this group has been a saving grace for me as well. My kids (girl 13 and boy 16) keep me informed when I start acting or talking "a little weird", and then I remember to take the Lactulose dose that I had forgotten! My kids and I live alone (dad passed from brain cancer), and I MUST survive as I love them so very much. I've allowed them to go on a church camping trip this weekend and I miss them already. I've already placed you on my prayer list when I first saw the post from Greg (this was you, wasn't it?) Let's keep up with the meds and pray for the road to health. God bless, BTW, what does BTDT mean? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Dear , a/s/l mean age/sex/location used alot when people are just meeting and everyone wants to know about everyone else. with all the different screen names, sometimes you do not know who you are really talking. cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Dear , a/s/l mean age/sex/location used alot when people are just meeting and everyone wants to know about everyone else. with all the different screen names, sometimes you do not know who you are really talking. cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2001 Report Share Posted July 23, 2001 Hi ! Thank you so much for your well wishes ! I am trying desperately to give this baby as healthy a start in life as I can. I am still trying to find out what I'm supposed to do...and not supposed to do as far as vitamins, etc... This is my second...so I am not completely clueless...however my daughter just turned 6 ...and I am scrambling to remember everything ! Sincerely, ~ ~ >From: " wwmohler " <wwmohler@...> >Reply- > " MGB Post OP " < > >Subject: >Date: Sun, 22 Jul 2001 19:32:50 -0500 > >, > Congratulations, take care of that precious little one growing inside >of you! What a wonderful gift to give him or her, a healthier mommy! > > in MN > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2001 Report Share Posted July 26, 2001 I know this has been agonizing for you. You have made the right decision. Good things are ahead for you. Keep eating healthy, the weight will stay off and you will feel GREAT! Looking forward to meeting you at the picnic. Joni Seattle 12/22/00 231/175/also on the plateau from HE* & Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Hey this is Sharon in Nc... I am Manda's littermate...... and I have been following your weight loss and I have sooooo happy for u, but pissed off..... heheheh..... you had your surgery 1 week before me and weighed 5 pds less and you have lost 98lbs........... damn.... I have only lost 77.... tell me what the hell are you doing?????????? You have really inspired me........ I must be too something wrong?????? please tell me your secret.......... TKU Sharon MGB 3/12/01 327/250/? Dr. R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 I don't know that I am doing anything special really. I feel like my weightloss is very good, but I think it's just fortunate that it is, because I promise you, I do what everyone else does. The body might just be making it up to me for all the years it sat my big butt in a recliner hurting! LOL Here is my very simple program. It's probably just like yours. Get up and have a protein shake. Head to the gym. Walk on a treadmill for 1 1/2 miles (I just upped it for the 5k walk I am doing in Sept.). Drink lots of water right after sweating. Head to the pool for water aerobics. This is Mon-Fri. Eat whatever I want for lunch. Usually chicken and salad, and if I want carbs, usually I eat them at lunch. Go home and do what I have to do (I'm a terrible housekeeper, but I cook! LOL) Make dinner and usually, if I make the family what they want (something I really don't think is my best choice) I will have a yogurt or some soup instead. If I go lite like this, I will add another protein shake. I try to make healthy meals without high carbs for dinner so they too will have the benefits of a good meal. I am heavily into eating protein and veggies. I take my vitamins and ZMA fuel, but I'll admit I'm STILL a terrible Citracel girl. I also take string cheese or handipaks cheese and crackers along as snacks. I also enjoy the handisnacks applesauce and cinnamon crackers. YUMMY. I think the key early on is simply keeping our metabolism high with small meals, but after a while, at least for me, I think the exercise is key. I was on a plateau and this month my loss will be VERY low, but when I upped my walking, the plateau moved on ....for me, that's all I have to contribute. Follow Dr. R's advice and move and then leave it up to your body. We will ALL lose it in the end....it's not a race and you have lost VERY WELL TOO so don't say " hey did this why didn't I " because can say " Hey that Deb in Ok is kicking my butt, what am I doing wrong? " when none of us are doing anything wrong, we just have different bodies. In the end, they'll all be healthy and better for it and we will all one day lock arms at a picnic and say " DANG WE ARE GOOD LOOKIN " HAHAHA HUGS in Ark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Sharon, you are not doing something wrong while someone else is doing right. You are being you, and your body is being your body, and that is the deal. We are all different. No two people will lose the same, even if they live together and do it all exactly the same. Please don't set yourself up to be disappointed and frustrated because your numbers don't match someone else's. Enjoy your own loss as it happens and measure your own success against your own history. No one else is you. If you are feeling better, looking better, moving better. . . what more can anyone expect? Keep up the good work. And enjoy!!! PhillyJude, slower than I wanna be, but happy nonetheless and oh so much better than last year! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Sharon love, When I catch up to you.... then you can complain... until then... shuddup! can't wait to see you at the picnic. Romy(the really tall littermate we had, in the room next to me) is going to be my roomie. I wish we had all gotten a pre-op photo. I think we'll all be there except for , and I haven't heard from her in a while. Perhaps she and her family will make it also. Romy and I consistently lose the same amount of weight. We're both at 65 lbs, and have been since for a while. manda > Hey this is Sharon in Nc... I am Manda's littermate...... and I have > been following your weight loss and I have sooooo happy for u, but pissed > off..... heheheh..... you had your surgery 1 week before me and weighed 5 pds > less and you have lost 98lbs........... damn.... I have only lost 77.... tell > me what the hell are you doing?????????? You have really inspired me........ > I must be too something wrong?????? please tell me your secret.......... > > TKU > > Sharon > MGB 3/12/01 > 327/250/? > Dr. R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 > > Hi Mahtki, > > > > > This is not a good time to be making argumentative > > > statements about > Hulda e because we just got > > over a major> disagreement among some > > > of the members of this board. > > > > Someone said on another group that there is no > > controversy about Dr. . She is one curer of > > many. > > > > > It would seem that some of us are tired of arguing > > > about this topic > and will let a post of this > > nature go unanswered.> However, I won't. > > > > > Most of the statement you make is true. However, > > > not all the things > you say about Hulda e are > > true. Also, none of> the work you > mention was > > originally developed by her and that> work has been > > > pioneered by someone else. > > > > Mahtki, I said before that she references everyone in > > her books. From the zapper development to her > > findings on the effects of metals and carcinogens in > > the body. What is your point??? > > > > > I am not saying that I am a great person, > > > > What does that have to do with anything??? > > > > but I do> question those > practices of Hulda e > > which are automatically> accepted by many. > > > > Who has automatically accepted her practices Mahtki? > > > > I ask how you can make a statement like this. Do you > > understand what you are saying and how you are > > phrasing your sentences and what you are implying by > > your phraseology? > > > > > > > > > > > > > > This message is cross posted from , > > > where there is a > discussion> > about Dr.Hulda > > .\> > Mike Cinelli happend to be one of the few > > people > > > who is able to see > > > the whole > > > > picture of modern satanism. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Dear Mahkti, I do not find posts with comments interspersed in them to be NECESSARILY " confusing " . In fact, when someone is commenting on several points in a post, this method (when done well) can be much EASIER to follow. I've read a lot of mail using all different formats for indicating what is the prior post and what is the reply. I read large amounts of email both on lists like this one (and others) and in the context of my work. You are correct that the standard that the moderators of the list have adopted is NOT interspersed. I don't think your theories on WHY posts with comments interspersed are really appropriate subject matter for the list. If the list MUST hear such comments, perhaps I could (at some future date) add some comments of my own about why rebelliousness can be a useful/admirable personal attribute, and the kinds of situations in which it is useful (and harmful). Medical repression might quality as one where it is useful. Also, in matters requiring independent action and thought that is in conflict with " conventiontion ideas " at the time. Like, um, bowel cleansing. regards, Moria At 02:43 PM 8/7/2001 -0000, you wrote: > >> Dear , >> >> Please stop interspersing you comments within my posts. It is very >> confusing to anyone who is trying to read. >> >> There is a standard to replying to posts on this board and you seem >> to insist on developing your own standards and continuing to give >> into your dogmatic nature and to be the " Rebel " and do things the >way >> you please. >> >> Mahkti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Dear Moria, It seems as though you havn't read some of the more recent posts. Else you may have had a better understanding of the subject matter in my reply to . I have asked her nicely, in the past , not to intersperse her comments into my posts. It is very difficult to distinguish what I posted and what she posted am some members have mistaken my words for hers and vice versa. Perhaps now you can understad my objection. Mahkti > >> Dear , > >> > >> Please stop interspersing you comments within my posts. It is very > >> confusing to anyone who is trying to read. > >> > >> There is a standard to replying to posts on this board and you seem > >> to insist on developing your own standards and continuing to give > >> into your dogmatic nature and to be the " Rebel " and do things the > >way > >> you please. > >> > >> Mahkti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Hi I as well am new to the group. My cousin who is basicly like my little brother was just diagnosed and I am trying to find out every little bit of info I can. I do hae a quick question for you : He is on 40 mg of pred. and has been for two weeks now. What were you started out on. Will, my cousin, lies in NC and the doctors here have not seen a case of this personally. So I am a little weary of their knowledge. Thanks, Celia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Hi Celia, Sounds as if Will is lucky to have a cousin like you! Welcome to the group. This is one of the best places to get information on Autoimmune Hepatitis, links to other sites, other sources, as well as from our own experiences. One of the best introductions to AIH can be found in a book by Palmer, " Hepatitis & Liver Disease " ; you can purchase that online @ Amazon. How old is Will? There are people of all ages who post here (or whose family members post) so I know if there are concerns or questions that might be more age related, someone here will be able to help. Where in NC does he live? I live in Greensboro, and there are other folks here from NC as well. I am in my 40's and was diagnosed about 9 mos ago. I was started on 60 mg prednisone, and after some ups and downs, am down to 5 mg, along with taking another medication. I am feeling much better than I was last fall, but still have some not so good days. I am being treated by a gastroenterologist who has some experience with AIH. I was lucky that the family doctor I saw knew about it and got me referred to this specialist. I have found that in having to seek treatment for other things that other medical people know very little about this disease, probably because it is uncommon. As you learn more about this, you will have more and more questions...so just ask away.... Wishing you and Will the best nne > Hi I as well am new to the group. My cousin who is basicly like my little > brother was just diagnosed and I am trying to find out every little bit of > info I can. I do hae a quick question for you : > He is on 40 mg of pred. and has been for two weeks now. What were you started > out on. Will, my cousin, lies in NC and the doctors here have not seen a case > of this personally. So I am a little weary of their knowledge. > Thanks, Celia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 Asheville, NC is where he lives right now. Quote Link to comment Share on other sites More sharing options...
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