Guest guest Posted September 4, 2010 Report Share Posted September 4, 2010 I have been trying to get on Ampyra for a while now but my insurance company keeps turning me down because I can not walk 25' and I am at risk for seizures. I have been so upset for it my understanding that this is what this drug is for to help MS patients, progressive MS patients walk again. But according to there rules they want you to be able to already walking. Makes not sense to me at all. I have been in a wheel chair now for 2+ years and I can stand I wobble and it gets worse the longer I stand then my legs give out. I can take maybe 2 very sad steps with help on a good day. Why not let me try? They put this drug out advertise it to help Progressive MS patients who get very little help to begin with, get there hopes all up and when they get to the doctors office and want to get on the drug on hopes to have kind of life back, we get smacked in the face with only certain patients are gong to be allowed to take the drug. Has anyone else faced this problem? How did you handle it? Did you eventually get on Ampyra? I want to try Ampyra so badly, I want to see if it will help me. The first time I heard anything about it was on the Today Show and Meredith was doing an interview with a lady who had Progressive MS, she had not walked in several years and she started taking Ampyra and was not walking just like any regular person. Now why would they put that on national TV a woman who could not walk and she took Ampyra and is not walking? Then say you have to be able to walk 25' before the insurance will cover it? Very confusing to me. Maybe someone can make some sense of it all and help me understand. Debbie Quote Link to comment Share on other sites More sharing options...
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