Re: Searching for the right cocktail....

[Guest guest]

hi -

I totally understand about the mj - My husband had gone thru chemo for a long

time, and his doctor prescribed him " Marinol " - It's like a little gell - round

pill and it is a legal form of mj ... When I was really, really sick (side

effect sick) from so many of these darned drugs, I took one of those little

pills - My nausea went away - I had a different attitude - the pity myself

attitude went away for awhile and I laughed and laughed. It was actually NICE to

have my head in the clouds and not worry so much and especially not have a down

attitude. I  told my rheumy that I occassionally took one every so often,

because I wasn't going to lie - I can't work so it's not like I am going to get

drug tested! hehehehe....................My doc grinned and shook his head like

OK.

He understood why and understood the effects that marinol has as well as knows

why it was prescribed. i don't know that all states have it legal yet.

 

D. in SC

ltdavis_jrdavis@...

From: musiclvr3237 <musiclvr3237@...>

Subject: [ ] Searching for the right cocktail....

Date: Saturday, August 15, 2009, 2:06 PM

 

We all seem to be searching for the right cocktail to make our pain go

away and make us feel like we did at one time. sorry to be a doubting

downer but once being diagnosed with RA your life and those around you

will never be the same. there is no perfect cocktail especially with

the drugs medical doctors prescribe. None will ever make us feel the

way we once knew. So do we take more or less, do we mix and match arava

with methotrexate, or prednisone with Humira, or cortisone with Enbrel,

or this with that...and still wish we felt better. Yep....that' s RA.

I've been told that I should not drink while being on most of these

meds, but on some of my worst days, I must confess, not many things

could stop me from closely finishing a twelve pack. I believed, and

some times still do, that if I wanted a good night's sleep, beer could

make it happen. So long as to not put anyone elses lives in danger.

Sometimes a nice big bottle of wine at the back table or at a

bonefire.... I'm not proud of it, but it happens.

Something else that has happened...I strongly believe in the benefits of

mj...not proud of that either...but if I had the choice of a any

prescription med or a couple puffs of smoke...i choose smoke...even

before alcohol. I gave up smoking it for a little over a month. I feel

better with it than without it. I am in less pain, I get better sleep,

and I get more chores and things done.

Before being diagnosed with RA, i never smoked, drank maybe a dozen

times a year, and was a very active person. I don't know, has RA made

me an alcoholic and a dope addict. I try not to believe so but even if

I am, it seems better to me than the side effects of prescription drugs

in comparison.

Take care everyone, and I hope I didn't offend anyone. Thanks for the

opportunity to vent.

(musiclvr3237)

[Guest guest]

My mother died of uterine cancer and everybody tried to bring her marijuana

becuz her nausea was horrible, they even baked it in cookies. But she woulnt

take it until cause you had to smoke it and she was afraid, ;lso that it was

illegal. Anyway, the doc prescribed her marinoal All her nauseau stoppped and

she felt pretty good too. It is leglly prescribed in NYC and I believe its the

strongest part of the marijuana.

But I also believe its only for palliative care (the terminally ill). I could

be wrong, but my mom was terminal...

OKD

[Guest guest]

Hi - OKD!!  

Things to find out from a doc:  

 

Is this drug legal in my state? What are the requiments to obtain this drug in

my state?  What are your views/opinions, etc for prescribing this medication.. 

Those are just from the top of my head -----dogs barking at me.....---hubby

wants to know if dinner is ready ( I just told him to call Pizza Hut to find out

the status!! (there is NO order!! yep - not in a great mood - sorry group!!! 

 

Heck, so many of us are already on or have been MTX which IS chemo!!  Research

your state before you talk to your doc about it!

 

Have a pain free and wonderful evening............

in SC

vis_jrdavis@...

From: cofade_2000 <Cofade_2000@...>

Subject: [ ] Re: Searching for the right cocktail....

Date: Saturday, August 15, 2009, 6:34 PM

 

My mother died of uterine cancer and everybody tried to bring her marijuana

becuz her nausea was horrible, they even baked it in cookies. But she woulnt

take it until cause you had to smoke it and she was afraid, ;lso that it was

illegal. Anyway, the doc prescribed her marinoal All her nauseau stoppped and

she felt pretty good too. It is leglly prescribed in NYC and I believe its the

strongest part of the marijuana.

But I also believe its only for palliative care (the terminally ill). I could be

wrong, but my mom was terminal...

OKD

[Guest guest]

hi, karen i now what u mean. the docs tell me not to drink either but once in

awhile what the hell.

i love wine & mj as well.... whatever works is what i say!! i can function

better & relax just with a drink & a puff. don't get me wrong not all the time.

feel better soon.god bless,melynda

________________________________

From: musiclvr3237 <musiclvr3237@...>

Sent: Saturday, August 15, 2009 1:06:59 PM

Subject: [ ] Searching for the right cocktail.....

We all seem to be searching for the right cocktail to make our pain go

away and make us feel like we did at one time.  sorry to be a doubting

downer but once being diagnosed with RA your life and those around you

will never be the same.  there is no perfect cocktail especially with

the drugs medical doctors prescribe.  None will ever make us feel the

way we once knew.  So do we take more or less, do we mix and match arava

with methotrexate, or prednisone with Humira, or cortisone with Enbrel,

or this with that...and still wish we felt better.  Yep....that's RA..

I've been told that I should not drink while being on most of these

meds, but on some of my worst days, I must confess, not many things

could stop me from closely finishing a twelve pack.  I believed, and

some times still do, that if I wanted a good night's sleep, beer could

make it happen.  So long as to not put anyone elses lives in danger.

Sometimes a nice big bottle of wine at the back table or at a

bonefire....I'm not proud of it, but it happens.

Something else that has happened...I strongly believe in the benefits of

mj...not proud of that either...but if I had the choice of a any

prescription med or a couple puffs of smoke...i choose smoke...even

before alcohol.  I gave up smoking it for a little over a month.  I feel

better with it than without it.  I am in less pain, I get better sleep,

and I get more chores and things done.

Before being diagnosed with RA, i never smoked, drank maybe a dozen

times a year, and was a very active person.  I don't know, has RA made

me an alcoholic and a dope addict.  I try not to believe so but even if

I am, it seems better to me than the side effects of prescription drugs

in comparison.

Take care everyone, and I hope I didn't offend anyone.  Thanks for the

opportunity to vent.

(musiclvr3237)

------------------------------------

[Guest guest]

,

I understand how you feel. It's hard to live with RA, it changes your whole

life. The person you were, is no longer with you. Now, you have to get use to

the new body, and it's no fun.

The meds are very tough. It takes awhile to get the right meds to fit. I am

feeling better then I have in years. I was in pain since 02, and just now

getting relief. It takes a lot of time, and your body and mind goes through so

much.

It's a long road to travel, but it does get a little better. I thought about

not taking the meds, but I weighed my options. Do I want to be in a wheelchair,

or take the meds, be a little more active, and maybe die from the meds? I

choose the meds though. We all have our opinions, and that is why this group is

so wonderful.

I would love to have a black russian, that was my drink. I haven't had one

since 01, because I already have liver problems.

I do understand though, so know you can always talk to me if you ever need to

vent. With this group, you can vent, scream, have your own pity party, just

invite us.

Take care,

Tawny

>

>

> We all seem to be searching for the right cocktail to make our pain go

> away and make us feel like we did at one time. sorry to be a doubting

> downer but once being diagnosed with RA your life and those around you

> will never be the same. there is no perfect cocktail especially with

> the drugs medical doctors prescribe. None will ever make us feel the

> way we once knew. So do we take more or less, do we mix and match arava

> with methotrexate, or prednisone with Humira, or cortisone with Enbrel,

> or this with that...and still wish we felt better. Yep....that's RA.

> I've been told that I should not drink while being on most of these

> meds, but on some of my worst days, I must confess, not many things

> could stop me from closely finishing a twelve pack. I believed, and

> some times still do, that if I wanted a good night's sleep, beer could

> make it happen. So long as to not put anyone elses lives in danger.

> Sometimes a nice big bottle of wine at the back table or at a

> bonefire....I'm not proud of it, but it happens.

> Something else that has happened...I strongly believe in the benefits of

> mj...not proud of that either...but if I had the choice of a any

> prescription med or a couple puffs of smoke...i choose smoke...even

> before alcohol. I gave up smoking it for a little over a month. I feel

> better with it than without it. I am in less pain, I get better sleep,

> and I get more chores and things done.

> Before being diagnosed with RA, i never smoked, drank maybe a dozen

> times a year, and was a very active person. I don't know, has RA made

> me an alcoholic and a dope addict. I try not to believe so but even if

> I am, it seems better to me than the side effects of prescription drugs

> in comparison.

> Take care everyone, and I hope I didn't offend anyone. Thanks for the

> opportunity to vent.

>

> (musiclvr3237)

>