Re: REVIEW - Drug-induced pancreatitis...TO DD!! :)

[Guest guest]

dd...

I do not normally post, but do read from time to time.

These posts caught my eye because I suffered with chronic pancreatitis for 9 1/2

years and ultimately had my pancreas removed and had an autologous islet cell

transplant performed almost 7 years ago (July 16, 2004). I was the first in the

South East to have this done for Pancreatitis.

My pancreatitis was the result of Sphincter of Oddi Dysfunction. I was taking

Opiods for the pain. Some of the pain meds actually would cause acute attacks

(Morphine). It took several attacks before I put it together and called my Dr

and talked to him about it. Once we stopped the MSContin and the MSIR, those

attacks stopped. When he would admit me, we would ALWAYS use Demerol in my PCA

for the Pain. Once home, we had to tailor my other pain meds so I would not

have to use Morphine, but we were able to do so.

While these articles state drug induced pancreatitis is rare, I beg to differ.

As I stated, I dealt with pancreatitis for 9 1/2 years and have spoken with

hundreds of people with pancreatitis and some of the leaders in the field. The

leaders in their field said they have MANY patients who had drug induced

pancreatitis!!! When I had my pancreas, I was always leery about taking even an

Advil for fear of an attack!!

dd, some people, even once their gallbladders are removed, they still have

problems, so if you are one of the unfortunate people, and your Dr. does not

listen, do not back down!!! My surgeon did not listen to me. Thankfully, I

have a wonderful GI who did stand by my side and believed me! I had more than

just a problem with gallstones and it was found. There are also times that when

the gallbladder is removed, stones can be left behind, you can have the

Sphincter of Oddi Dysfunction, and various other problems. I am not saying this

to scare you, but just to INFORM you. I was lucky to have a GI on my side that

cared and didn't back away. I knew far too many that were not so lucky!! I do

not know your situation, so I am only trying to help you .

Feel free to email me from here. There is a link where you can email me at the

bottom of the message. I do give YOU permission to do that .

I do hope you feel better!!! Pancreatitis is rough! As if RA is not rough

enough .

Hugs!

Robin

>

> In a message dated 3/29/2011 10:16:49 A.M. Central Daylight Time,

> Rheumatoid.Arthritis.Support@... writes:

>

> Drug induced pancreatitis.

>

> Wow, thanks for all the research. A surgeon just came in to see me and

> agreed that it's not drug-induced, that it probably is from a gall stone that

> passed through the common bile duct.

>

> The treatment plan changes like the weather. Here's the latest.

>

> I will be weaned from the PCA and get onto real food tomorrow and maybe go

> home.

>

> I will be able to go to Boston and hope that I don't get a reoccurrence.

> My gall bladder will come out right after i get back. I may have to push my

> Remicade infusion out.

>

> I'm happy with this decision.

>

> Thanks again for the research,

>

> dd

>

>

>

>

>

>

>

>

[Guest guest]

Hi, Robin. I agree that drug-induced pancreatitis is probably not

rare. One of the studies I posted concludes that the true incidence of

drug-induced pancreatitis " seems to be underestimated. "

Our reporting system for and methods for investigation of adverse

reactions to medications are terrible.

Not an MD

On Tue, Mar 29, 2011 at 7:41 PM, Robin <robinmk02@...> wrote:

> dd...

>

> I do not normally post, but do read from time to time.

>

> These posts caught my eye because I suffered with chronic pancreatitis for 9

1/2 years and ultimately had my pancreas removed and had an autologous islet

cell transplant performed almost 7 years ago (July 16, 2004).  I was the first

in the South East to have this done for Pancreatitis.

>

> My pancreatitis was the result of Sphincter of Oddi Dysfunction.  I was taking

Opiods for the pain.  Some of the pain meds actually would cause acute attacks

(Morphine).  It took several attacks before I put it together and called my Dr

and talked to him about it.  Once we stopped the MSContin and the MSIR, those

attacks stopped.  When he would admit me, we would ALWAYS use Demerol in my PCA

for the Pain.  Once home, we had to tailor my other pain meds so I would not

have to use Morphine, but we were able to do so.

>

> While these articles state drug induced pancreatitis is rare, I beg to differ.

 As I stated, I dealt with pancreatitis for 9 1/2 years and have spoken with

hundreds of people with pancreatitis and some of the leaders in the field.  The

leaders in their field said they have MANY patients who had drug induced

pancreatitis!!!  When I had my pancreas, I was always leery about taking even an

Advil for fear of an attack!!

>

> dd, some people, even once their gallbladders are removed, they still have

problems, so if you are one of the unfortunate people, and your Dr. does not

listen, do not back down!!!  My surgeon did not listen to me.  Thankfully, I

have a wonderful GI who did stand by my side and believed me!  I had more than

just a problem with gallstones and it was found.  There are also times that when

the gallbladder is removed, stones can be left behind, you can have the

Sphincter of Oddi Dysfunction, and various other problems.  I am not saying this

to scare you, but just to INFORM you.  I was lucky to have a GI on my side that

cared and didn't back away.  I knew far too many that were not so lucky!!  I do

not know your situation, so I am only trying to help you .

>

> Feel free to email me from here.  There is a link where you can email me at

the bottom of the message.  I do give YOU permission to do that .

>

> I do hope you feel better!!!  Pancreatitis is rough!  As if RA is not rough

enough .

>

> Hugs!

> Robin